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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


a long painful journey

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a long painful journey

Post  Applejax on Tue Jan 29, 2013 2:32 am

I just found this forum tonight. I went looking for it in hopes of getting much needed support. I was introduced to the term "vulvodynia" a few months ago by a good friend who was determined to find me some help. After learning more about it online, I pretty much decided that it must be what I have. I located a specialist and, during my initial appointment, had my first ever validation of my pain being real. I felt so relieved that someone actually was taking me seriously. He said I had multiple physical issues. The most pressing at that time was a skin problem that had developed due to low levels of estrogen. He said the skin at my vaginal opening was tissue paper thin and tore with hardly any pressure applied during the cotton-swab test. So, he started me on a estrogen cream and has since removed my IUD which he said was likely causing the estrogen depletion. At my return visit, he completed the physical exam and has diagnosed me as having a congenital defect. Basically, he says my entire (internal) pelvic anatomy is the size of an 8 year old. He says he is convinced this is the reason for my pain and the only viable treatment is a surgery called perineoplasty surgery. He says the problem is so "obvious" that he can't believe I've never diagnosed before. "Obvious" to him, anyway, but not to the 8+ doctors I've seen over the past 18 years. He's a specialist, so maybe he really knows what he's talking about. It's all a bit much for me to take in. I'm glad to finally be in a place where I am emotionally strong enough to be pursuing an answer. I have been dealing with dyspareunia for my entire marriage (18 years) with a fairly non-supportive husband and have always been told by gyn doctors that there is nothing wrong with me physically. So, now I finally feel validated. Great feeling - but is also creating an enormous amount of anger inside me. I'm wondering how the rest of you have come to terms with anger toward a medical community that is mostly ignorant as well as husbands who all too often believe the medical community.

Applejax

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Re: a long painful journey

Post  Alana3 on Tue Jan 29, 2013 12:06 pm

Can't help with husbands touchstone department I am alone in lol but the medical Yup that's something I do understand. I used to be miserable, depressed, furious at each doctor who told me there was nothing wrong and gave me an antibiotic and said take this. But like you I found a specialist and I an pretty much cured so now I channeled the depression and anger into gratefulness that there is someone who can help me get better- and I did, but thru my recovery (from a different surgery then you) I was still terrified and depressed. But now im feeling so much better that it doesn't matter I think now you need to focus on how this particular doctor can help you and hard as it may be forget the other docs they don't matter anymore. Burning do understand where you're coming from are you doing the surgery?

Alana3

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Re: a long painful journey

Post  Applejax on Wed Jan 30, 2013 5:42 pm

Thanks for your reply. I'm not sure about the surgery yet. I still need to meet with the surgeon to find out more. That will also serve as a second opinion. Assuming he also says that's what I need, I still don't feel ready for it yet. However, I know it will be necessary before I'm willing to resume intercourse. I reached the end of my tolerance for the whole sex thing back in October. So, either they (the doctors) figure out a way to eliminate the pain, or else I'm through with sex. This has taken such a toll on me that I honestly have no desire for sex. I think I would be quite happy never having to have sex again.

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Re: a long painful journey

Post  Alana3 on Wed Jan 30, 2013 6:40 pm

Haha I said the same thing I don't know what your surgery would entail but mine was worth it tho I haven't had sex yet but im assuming I can because I can use my vibrator. I have an infection I think now and im just done with everything vagina related lol of you aren't ready don't do it there's probably something else to try?

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Re: a long painful journey

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