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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

a long painful journey

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a long painful journey

Post  Applejax on Tue Jan 29, 2013 2:32 am

I just found this forum tonight. I went looking for it in hopes of getting much needed support. I was introduced to the term "vulvodynia" a few months ago by a good friend who was determined to find me some help. After learning more about it online, I pretty much decided that it must be what I have. I located a specialist and, during my initial appointment, had my first ever validation of my pain being real. I felt so relieved that someone actually was taking me seriously. He said I had multiple physical issues. The most pressing at that time was a skin problem that had developed due to low levels of estrogen. He said the skin at my vaginal opening was tissue paper thin and tore with hardly any pressure applied during the cotton-swab test. So, he started me on a estrogen cream and has since removed my IUD which he said was likely causing the estrogen depletion. At my return visit, he completed the physical exam and has diagnosed me as having a congenital defect. Basically, he says my entire (internal) pelvic anatomy is the size of an 8 year old. He says he is convinced this is the reason for my pain and the only viable treatment is a surgery called perineoplasty surgery. He says the problem is so "obvious" that he can't believe I've never diagnosed before. "Obvious" to him, anyway, but not to the 8+ doctors I've seen over the past 18 years. He's a specialist, so maybe he really knows what he's talking about. It's all a bit much for me to take in. I'm glad to finally be in a place where I am emotionally strong enough to be pursuing an answer. I have been dealing with dyspareunia for my entire marriage (18 years) with a fairly non-supportive husband and have always been told by gyn doctors that there is nothing wrong with me physically. So, now I finally feel validated. Great feeling - but is also creating an enormous amount of anger inside me. I'm wondering how the rest of you have come to terms with anger toward a medical community that is mostly ignorant as well as husbands who all too often believe the medical community.


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Re: a long painful journey

Post  Alana3 on Tue Jan 29, 2013 12:06 pm

Can't help with husbands touchstone department I am alone in lol but the medical Yup that's something I do understand. I used to be miserable, depressed, furious at each doctor who told me there was nothing wrong and gave me an antibiotic and said take this. But like you I found a specialist and I an pretty much cured so now I channeled the depression and anger into gratefulness that there is someone who can help me get better- and I did, but thru my recovery (from a different surgery then you) I was still terrified and depressed. But now im feeling so much better that it doesn't matter I think now you need to focus on how this particular doctor can help you and hard as it may be forget the other docs they don't matter anymore. Burning do understand where you're coming from are you doing the surgery?


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Re: a long painful journey

Post  Applejax on Wed Jan 30, 2013 5:42 pm

Thanks for your reply. I'm not sure about the surgery yet. I still need to meet with the surgeon to find out more. That will also serve as a second opinion. Assuming he also says that's what I need, I still don't feel ready for it yet. However, I know it will be necessary before I'm willing to resume intercourse. I reached the end of my tolerance for the whole sex thing back in October. So, either they (the doctors) figure out a way to eliminate the pain, or else I'm through with sex. This has taken such a toll on me that I honestly have no desire for sex. I think I would be quite happy never having to have sex again.


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Re: a long painful journey

Post  Alana3 on Wed Jan 30, 2013 6:40 pm

Haha I said the same thing I don't know what your surgery would entail but mine was worth it tho I haven't had sex yet but im assuming I can because I can use my vibrator. I have an infection I think now and im just done with everything vagina related lol of you aren't ready don't do it there's probably something else to try?


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Re: a long painful journey

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