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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

a long painful journey

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a long painful journey

Post  Applejax on Tue Jan 29, 2013 2:32 am

I just found this forum tonight. I went looking for it in hopes of getting much needed support. I was introduced to the term "vulvodynia" a few months ago by a good friend who was determined to find me some help. After learning more about it online, I pretty much decided that it must be what I have. I located a specialist and, during my initial appointment, had my first ever validation of my pain being real. I felt so relieved that someone actually was taking me seriously. He said I had multiple physical issues. The most pressing at that time was a skin problem that had developed due to low levels of estrogen. He said the skin at my vaginal opening was tissue paper thin and tore with hardly any pressure applied during the cotton-swab test. So, he started me on a estrogen cream and has since removed my IUD which he said was likely causing the estrogen depletion. At my return visit, he completed the physical exam and has diagnosed me as having a congenital defect. Basically, he says my entire (internal) pelvic anatomy is the size of an 8 year old. He says he is convinced this is the reason for my pain and the only viable treatment is a surgery called perineoplasty surgery. He says the problem is so "obvious" that he can't believe I've never diagnosed before. "Obvious" to him, anyway, but not to the 8+ doctors I've seen over the past 18 years. He's a specialist, so maybe he really knows what he's talking about. It's all a bit much for me to take in. I'm glad to finally be in a place where I am emotionally strong enough to be pursuing an answer. I have been dealing with dyspareunia for my entire marriage (18 years) with a fairly non-supportive husband and have always been told by gyn doctors that there is nothing wrong with me physically. So, now I finally feel validated. Great feeling - but is also creating an enormous amount of anger inside me. I'm wondering how the rest of you have come to terms with anger toward a medical community that is mostly ignorant as well as husbands who all too often believe the medical community.


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Re: a long painful journey

Post  Alana3 on Tue Jan 29, 2013 12:06 pm

Can't help with husbands touchstone department I am alone in lol but the medical Yup that's something I do understand. I used to be miserable, depressed, furious at each doctor who told me there was nothing wrong and gave me an antibiotic and said take this. But like you I found a specialist and I an pretty much cured so now I channeled the depression and anger into gratefulness that there is someone who can help me get better- and I did, but thru my recovery (from a different surgery then you) I was still terrified and depressed. But now im feeling so much better that it doesn't matter I think now you need to focus on how this particular doctor can help you and hard as it may be forget the other docs they don't matter anymore. Burning do understand where you're coming from are you doing the surgery?


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Re: a long painful journey

Post  Applejax on Wed Jan 30, 2013 5:42 pm

Thanks for your reply. I'm not sure about the surgery yet. I still need to meet with the surgeon to find out more. That will also serve as a second opinion. Assuming he also says that's what I need, I still don't feel ready for it yet. However, I know it will be necessary before I'm willing to resume intercourse. I reached the end of my tolerance for the whole sex thing back in October. So, either they (the doctors) figure out a way to eliminate the pain, or else I'm through with sex. This has taken such a toll on me that I honestly have no desire for sex. I think I would be quite happy never having to have sex again.


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Re: a long painful journey

Post  Alana3 on Wed Jan 30, 2013 6:40 pm

Haha I said the same thing I don't know what your surgery would entail but mine was worth it tho I haven't had sex yet but im assuming I can because I can use my vibrator. I have an infection I think now and im just done with everything vagina related lol of you aren't ready don't do it there's probably something else to try?


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Re: a long painful journey

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