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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV


Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

a long painful journey

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a long painful journey

Post  Applejax on Tue Jan 29, 2013 2:32 am

I just found this forum tonight. I went looking for it in hopes of getting much needed support. I was introduced to the term "vulvodynia" a few months ago by a good friend who was determined to find me some help. After learning more about it online, I pretty much decided that it must be what I have. I located a specialist and, during my initial appointment, had my first ever validation of my pain being real. I felt so relieved that someone actually was taking me seriously. He said I had multiple physical issues. The most pressing at that time was a skin problem that had developed due to low levels of estrogen. He said the skin at my vaginal opening was tissue paper thin and tore with hardly any pressure applied during the cotton-swab test. So, he started me on a estrogen cream and has since removed my IUD which he said was likely causing the estrogen depletion. At my return visit, he completed the physical exam and has diagnosed me as having a congenital defect. Basically, he says my entire (internal) pelvic anatomy is the size of an 8 year old. He says he is convinced this is the reason for my pain and the only viable treatment is a surgery called perineoplasty surgery. He says the problem is so "obvious" that he can't believe I've never diagnosed before. "Obvious" to him, anyway, but not to the 8+ doctors I've seen over the past 18 years. He's a specialist, so maybe he really knows what he's talking about. It's all a bit much for me to take in. I'm glad to finally be in a place where I am emotionally strong enough to be pursuing an answer. I have been dealing with dyspareunia for my entire marriage (18 years) with a fairly non-supportive husband and have always been told by gyn doctors that there is nothing wrong with me physically. So, now I finally feel validated. Great feeling - but is also creating an enormous amount of anger inside me. I'm wondering how the rest of you have come to terms with anger toward a medical community that is mostly ignorant as well as husbands who all too often believe the medical community.


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Re: a long painful journey

Post  Alana3 on Tue Jan 29, 2013 12:06 pm

Can't help with husbands touchstone department I am alone in lol but the medical Yup that's something I do understand. I used to be miserable, depressed, furious at each doctor who told me there was nothing wrong and gave me an antibiotic and said take this. But like you I found a specialist and I an pretty much cured so now I channeled the depression and anger into gratefulness that there is someone who can help me get better- and I did, but thru my recovery (from a different surgery then you) I was still terrified and depressed. But now im feeling so much better that it doesn't matter I think now you need to focus on how this particular doctor can help you and hard as it may be forget the other docs they don't matter anymore. Burning do understand where you're coming from are you doing the surgery?


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Re: a long painful journey

Post  Applejax on Wed Jan 30, 2013 5:42 pm

Thanks for your reply. I'm not sure about the surgery yet. I still need to meet with the surgeon to find out more. That will also serve as a second opinion. Assuming he also says that's what I need, I still don't feel ready for it yet. However, I know it will be necessary before I'm willing to resume intercourse. I reached the end of my tolerance for the whole sex thing back in October. So, either they (the doctors) figure out a way to eliminate the pain, or else I'm through with sex. This has taken such a toll on me that I honestly have no desire for sex. I think I would be quite happy never having to have sex again.


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Re: a long painful journey

Post  Alana3 on Wed Jan 30, 2013 6:40 pm

Haha I said the same thing I don't know what your surgery would entail but mine was worth it tho I haven't had sex yet but im assuming I can because I can use my vibrator. I have an infection I think now and im just done with everything vagina related lol of you aren't ready don't do it there's probably something else to try?


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Re: a long painful journey

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