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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


For anyone else that just burns down there, Acidosis?

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For anyone else that just burns down there, Acidosis?

Post  fairymoond84 on Wed Jan 30, 2013 1:46 am

Hi all, first let me start out by saying that my only symptom is burning down there. I posted a few times on here about what I think what caused me to out of the blue just start burning down there. I have noticed a few things. Every time I have really bad heartburn, I burn really bad. So when I control that, the burning isn't as bad. I also noticed that foods cause me to burn more. I think that I have way to much acids in my body, so I looked it up.

"Acidosis is a condition in which there is too much acid in the body fluids."
This is why I think that all my body fluids feel like acid. Like my period, pee and discharge.

I looked up ways to treat acidosis and this is the easiest way that I found:


Natural Help for Acidosis

Acidosis is the term used to describe a situation in which there is an excessive quantity of acid within the tissue fluids of the body. As a result, the concentration of hydrogen ions within the body is greater than average leading to a subsequent drop in pH. Acidosis drains the body's energy reserves, weakening the immune system. It can also lead to cardiovascular damage, chronic fatigue and aching muscles due to lactic acid buildup. Luckily, there are simple, inexpensive, natural treatments for acidosis.


Baking Soda
Once of the most common causes of acidosis is development of lowered pH through an excessive loss of bicarbonate, generally as a result of renal disease. The body keeps a natural supply of bicarbonate reserves to help maintain the pH balance of the blood. When these reserves are depleted, acid begins to build up in the system. To help the system readjust, drink 2 cups of water with 1 Tbsp. of baking soda mixed in. Sodium bicarbonate is the technical name for baking soda. It is alkaline by nature and can help to neutralize the excessive acid in the body.

Water
Drink at least eight glasses of water each day to prevent acidosis, as this helps dilute any amount of acid in the system and it helps flush toxins from the system through the kidneys. Combine water drinking with light exercise, such as walking, to help remove acid waste from the body via perspiration.

Diet
Diet can also impact the levels of acid in the body. The typical Western diet is high in foods which cause the body to produce excess acid, such as dairy products, meat and eggs. Eat more foods which create an alkaline dietary response, such as fresh vegetables, fruits and honey. Reduce intake of processed sugar, coffee, soda and baked goods made with refined white flour. These changes can reduce the acid in the body and also improve overall health.

I'm going to give this all a try and see what happens. Hopefully it works and it will be a plus to stop with the soda intake.





fairymoond84

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Re: For anyone else that just burns down there, Acidosis?

Post  Ceriane on Wed Jan 30, 2013 1:13 pm

You know...that sounds just like me. I'm going to try this...because my symptom is constant burning in that area, and I also get similar symptoms to yours. Mine is there all the time....this is why I'm wondering if mine is more yeast or acid related rather than nerve pain, as most people on here only seem to have a problem when it comes to sex, where as mine is there all the time, particularly if my diet is not good....

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Re: For anyone else that just burns down there, Acidosis?

Post  charly24 on Wed Jan 30, 2013 10:33 pm

Hi Ladies

I have suffered with vulvadynia for a few years now, but I used to be completely normal, pain free the lot! The pain I get during intercourse is horrific, and I get on and off symptoms of paining and discomfort randomly during the day or week.

But I have noticed in the last two years that I have been getting lots of heartburn and acid, etc. and its on and off. I notice the burning more when I am dehydrated and I BURN terribly down there!! So its definitely linked to diet. Unfortunately, I love red wine, but I when ever I drink it I suffer with terrible burning pain the next day.

May I ask if either of you ever it a funny taste in your mouth or funny smell in your nose when you get lots of acid?

There's also a Low Oxalate diet, so that may useful to you. I've tried to do it, but it's easier said that done, lol, too hard to stick to Crying or Very sad

Have you ever been prescribed any anti-acids tablets from your GP??

Charly cat

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Re: For anyone else that just burns down there, Acidosis?

Post  fairymoond84 on Thu Jan 31, 2013 12:35 am

I've been taking my moms prescription heartburn meds and when I take them daily, my burning down there isn't as bad. There is also days when I don't have any burning at all. When it comes to sex, I have noticed a few things, sorry it may get a tiny bit detailed, when he goes to deep and hard I burn really bad, and when his hair gets in, it feels like its cutting the walls of my vagina. That is something else I posted about on here. I use to get a lot of yeast infections, and I would take the yeast infection pills. So I think from years of taking that med has ate away at my vagina walls, causing them to be sensitive, that is also why every time fluids like pee, period or discharge hits it, it burns like crazy. Plus it doesn't help that the fluids are very acidity. Or it could even be the acid in the fluids that are eating away at the walls of my vagina. The foods I eat and drink have gotten way worse these past few years. So I think its all related to foods. Like I said, I only have burning. I don't have muscle pain or anything like that. Even though the burning is very painful at times. The month of February I am going to really cut down on the soda and the bad foods I eat. And try the daily intake of the baking soda and water and antacids. Can't hurt to try it out. I looked into the Low Oxalate diet and I was thinking, its like not even eating. The list of foods to avoid was ridiculous.

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Re: For anyone else that just burns down there, Acidosis?

Post  Ceriane on Thu Jan 31, 2013 10:07 am

Me too...I have found that the burning gets worse depending on what I've been eating and drinking...so I'm really going to start being careful with my diet...it's hard but I have to think...what do I want...this doughnut which will make me happy for 5 minutes...or to be pain free and to be able to have a normal sex life like everyone else...? My burning is there pretty constant, so would make me not even attempt penetrative sex in the first place....seems common sense not to if you've got burning and pain down there????? But I really want to get this sorted once and for all. Another thing is I have pernicious anaemia, and I have found that the pain reduces greatly when I am on B12 injections.

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Update

Post  fairymoond84 on Mon Apr 08, 2013 9:17 pm

I truly believe that I burn down there because of Acidosis. I tend to get pretty lazy at routine but I have noticed that when I am burning and I do the Baking Soda & Water, the burning does stop. I have also noticed that if I do the BS & water before I eat spicy foods or foods that are high in acids, I don't burn afterwards. So I believe I have a solution to my burning problems. Which is FOODS that are high in acids. Which is basically a lot of foods that have a high amount of acids. Right after I eat anything with ketchup or pasta sauce, I burn and I burn bad. But if I drink the BS & water, a few minutes later I am fine. So if you are like me and just burn down there, try the BS & Water.

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Re: For anyone else that just burns down there, Acidosis?

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