Vulvodynia Support
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» Hope to all my suffering ladies
For anyone else that just burns down there, Acidosis? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
For anyone else that just burns down there, Acidosis? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
For anyone else that just burns down there, Acidosis? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
For anyone else that just burns down there, Acidosis? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
For anyone else that just burns down there, Acidosis? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
For anyone else that just burns down there, Acidosis? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
For anyone else that just burns down there, Acidosis? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
For anyone else that just burns down there, Acidosis? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
For anyone else that just burns down there, Acidosis? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


For anyone else that just burns down there, Acidosis?

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For anyone else that just burns down there, Acidosis? Empty For anyone else that just burns down there, Acidosis?

Post  fairymoond84 Wed Jan 30, 2013 1:46 am

Hi all, first let me start out by saying that my only symptom is burning down there. I posted a few times on here about what I think what caused me to out of the blue just start burning down there. I have noticed a few things. Every time I have really bad heartburn, I burn really bad. So when I control that, the burning isn't as bad. I also noticed that foods cause me to burn more. I think that I have way to much acids in my body, so I looked it up.

"Acidosis is a condition in which there is too much acid in the body fluids."
This is why I think that all my body fluids feel like acid. Like my period, pee and discharge.

I looked up ways to treat acidosis and this is the easiest way that I found:


Natural Help for Acidosis

Acidosis is the term used to describe a situation in which there is an excessive quantity of acid within the tissue fluids of the body. As a result, the concentration of hydrogen ions within the body is greater than average leading to a subsequent drop in pH. Acidosis drains the body's energy reserves, weakening the immune system. It can also lead to cardiovascular damage, chronic fatigue and aching muscles due to lactic acid buildup. Luckily, there are simple, inexpensive, natural treatments for acidosis.


Baking Soda
Once of the most common causes of acidosis is development of lowered pH through an excessive loss of bicarbonate, generally as a result of renal disease. The body keeps a natural supply of bicarbonate reserves to help maintain the pH balance of the blood. When these reserves are depleted, acid begins to build up in the system. To help the system readjust, drink 2 cups of water with 1 Tbsp. of baking soda mixed in. Sodium bicarbonate is the technical name for baking soda. It is alkaline by nature and can help to neutralize the excessive acid in the body.

Water
Drink at least eight glasses of water each day to prevent acidosis, as this helps dilute any amount of acid in the system and it helps flush toxins from the system through the kidneys. Combine water drinking with light exercise, such as walking, to help remove acid waste from the body via perspiration.

Diet
Diet can also impact the levels of acid in the body. The typical Western diet is high in foods which cause the body to produce excess acid, such as dairy products, meat and eggs. Eat more foods which create an alkaline dietary response, such as fresh vegetables, fruits and honey. Reduce intake of processed sugar, coffee, soda and baked goods made with refined white flour. These changes can reduce the acid in the body and also improve overall health.

I'm going to give this all a try and see what happens. Hopefully it works and it will be a plus to stop with the soda intake.





fairymoond84

Posts : 7
Join date : 2013-01-13
Age : 40
Location : FL, United States

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Post  Ceriane Wed Jan 30, 2013 1:13 pm

You know...that sounds just like me. I'm going to try this...because my symptom is constant burning in that area, and I also get similar symptoms to yours. Mine is there all the time....this is why I'm wondering if mine is more yeast or acid related rather than nerve pain, as most people on here only seem to have a problem when it comes to sex, where as mine is there all the time, particularly if my diet is not good....

Ceriane

Posts : 76
Join date : 2012-02-16

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Post  charly24 Wed Jan 30, 2013 10:33 pm

Hi Ladies

I have suffered with vulvadynia for a few years now, but I used to be completely normal, pain free the lot! The pain I get during intercourse is horrific, and I get on and off symptoms of paining and discomfort randomly during the day or week.

But I have noticed in the last two years that I have been getting lots of heartburn and acid, etc. and its on and off. I notice the burning more when I am dehydrated and I BURN terribly down there!! So its definitely linked to diet. Unfortunately, I love red wine, but I when ever I drink it I suffer with terrible burning pain the next day.

May I ask if either of you ever it a funny taste in your mouth or funny smell in your nose when you get lots of acid?

There's also a Low Oxalate diet, so that may useful to you. I've tried to do it, but it's easier said that done, lol, too hard to stick to Crying or Very sad

Have you ever been prescribed any anti-acids tablets from your GP??

Charly cat

charly24
charly24

Posts : 7
Join date : 2012-04-07
Age : 36
Location : East Midlands, UK

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Post  fairymoond84 Thu Jan 31, 2013 12:35 am

I've been taking my moms prescription heartburn meds and when I take them daily, my burning down there isn't as bad. There is also days when I don't have any burning at all. When it comes to sex, I have noticed a few things, sorry it may get a tiny bit detailed, when he goes to deep and hard I burn really bad, and when his hair gets in, it feels like its cutting the walls of my vagina. That is something else I posted about on here. I use to get a lot of yeast infections, and I would take the yeast infection pills. So I think from years of taking that med has ate away at my vagina walls, causing them to be sensitive, that is also why every time fluids like pee, period or discharge hits it, it burns like crazy. Plus it doesn't help that the fluids are very acidity. Or it could even be the acid in the fluids that are eating away at the walls of my vagina. The foods I eat and drink have gotten way worse these past few years. So I think its all related to foods. Like I said, I only have burning. I don't have muscle pain or anything like that. Even though the burning is very painful at times. The month of February I am going to really cut down on the soda and the bad foods I eat. And try the daily intake of the baking soda and water and antacids. Can't hurt to try it out. I looked into the Low Oxalate diet and I was thinking, its like not even eating. The list of foods to avoid was ridiculous.

fairymoond84

Posts : 7
Join date : 2013-01-13
Age : 40
Location : FL, United States

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Post  Ceriane Thu Jan 31, 2013 10:07 am

Me too...I have found that the burning gets worse depending on what I've been eating and drinking...so I'm really going to start being careful with my diet...it's hard but I have to think...what do I want...this doughnut which will make me happy for 5 minutes...or to be pain free and to be able to have a normal sex life like everyone else...? My burning is there pretty constant, so would make me not even attempt penetrative sex in the first place....seems common sense not to if you've got burning and pain down there????? But I really want to get this sorted once and for all. Another thing is I have pernicious anaemia, and I have found that the pain reduces greatly when I am on B12 injections.

Ceriane

Posts : 76
Join date : 2012-02-16

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Post  fairymoond84 Mon Apr 08, 2013 9:17 pm

I truly believe that I burn down there because of Acidosis. I tend to get pretty lazy at routine but I have noticed that when I am burning and I do the Baking Soda & Water, the burning does stop. I have also noticed that if I do the BS & water before I eat spicy foods or foods that are high in acids, I don't burn afterwards. So I believe I have a solution to my burning problems. Which is FOODS that are high in acids. Which is basically a lot of foods that have a high amount of acids. Right after I eat anything with ketchup or pasta sauce, I burn and I burn bad. But if I drink the BS & water, a few minutes later I am fine. So if you are like me and just burn down there, try the BS & Water.

fairymoond84

Posts : 7
Join date : 2013-01-13
Age : 40
Location : FL, United States

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