New, Frustrated, Looking For Support :-)

Hello!

Sitting here, knowing I have just registered to a vulvodynia support forum, is almost bringing me to tears. Maybe over the frustration of what I've been going through, but also maybe because I'll finally be able to talk about this with people who understand.

I feel like my husband doesn't really grasp how this has been affecting me, I have no close women friends, my mother has long since passed away, and I've felt so alone dealing with this.

I suppose I will save my "story" for the story board, but I just want to say thank you for creating this site, because I deeply needed it.

I know sweety. Im going thru the same thing. My Husband has a hard time understanding aswell, and I think he just thinks Im crazy, and he is completely grossed out and disgusted by the oils thing ( I use essential oils in myself), its awful.

The experience of having this condition is the most painful thing imaginable for a women. There were times when I literally cursed God, and HATED, and cursed being a women, it seemed my sex life and my ability to have a normal, loving relationship with another human being had been taken from me forever.
I hated being a women.
Ive been thru so much with this, I completely understand. You are not alone.

My search for a Doctor began in 2003, after a herpes outbreak had healed, I was left with
sand paper rubbing just from walking. Nothing was there to see, only the pain.
I had seen many Doctors back then, no one knew. I live in south FL. Went to university of Miami. One doctor in south FL new what it was. It was a guessing game to what meds may work, I had a pharmacy it seemed at home of everthing that did not work.
I started wearing boy short underware back them, before they were the fashion. I felt like a freak. I gave up with trying all the meds. After two years it got better. Have never worn a thong since 2003. In 2010 NYE. I got another herpes attack. After is healed
pain was unbeliable. Red inflamed. Spent alot of time in cool bath tub. After much
research and doc after doc, I found Doc Trabin in WPB. He speaclized in V.
I started on Lyrica, liodincane patches cut into small pices, soma to reduce spamses.
Shots of I do not even know what was in them. But they hurt going in. Never helped.
The Lyrica does help, with soma. However, yesterday I saw him again for refills on meds.
Now he says since pain is still there. have not worn jeans in three years. Sitting for more than 2 hours is not an option, nor walking for more than 2 hours. This has changed my life. I want it back. He now wants to do surgery since nothing has taken the pain away. He says after three years, would I want to pain free. If any one has surgery on outside of opening please tell me. I do not know what to do. Thank you

Dr T did my surgery and im a success! He knows what he's doing trust me where do u live here

I live in Coral Springs FL. Doc Trabin is WPB. Is this your Doc. I have been seeing him for 2 years now, before I was seeing Tara Soloman. Who got so mean, I would not go back to her. My pharmisit told me about Doctor Trabin.
Thank you

Yeah he's my doctor he did my surgery it went fine I can meet up with you sometime if you want to discuss I live in Boynton but work in boca let me know

If this is the same doctor, would you mind speaking with me over the phone.
My # is 954-720-2855 home 954-857-3111 cell. If you do not want to I understand.

No problem can I text you now im at a meeting otherwise id call

Hello ladies, I'm new to the forum. What's this surgery you all are talking about? I've had Vulvodynia since 2005 and I get recurrent BV as well. This pain is getting worse and the meds and ointment aren't really helping. I cannot even work anymore because of this pain! My 25 year old son takes care of me. I feel like such a burden. Will this surgery fix it so I'll have no more pain and be able to work, date, and possibly get married again?