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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


New, Frustrated, Looking For Support :-)

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New, Frustrated, Looking For Support :-)

Post  carby148 on Mon Feb 04, 2013 6:12 am

Hello!

Sitting here, knowing I have just registered to a vulvodynia support forum, is almost bringing me to tears. Maybe over the frustration of what I've been going through, but also maybe because I'll finally be able to talk about this with people who understand.

I feel like my husband doesn't really grasp how this has been affecting me, I have no close women friends, my mother has long since passed away, and I've felt so alone dealing with this.

I suppose I will save my "story" for the story board, but I just want to say thank you for creating this site, because I deeply needed it.
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carby148

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Location : East Bay Area

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your not alone

Post  lavrose on Sun Feb 10, 2013 9:23 pm

I know sweety. Im going thru the same thing. My Husband has a hard time understanding aswell, and I think he just thinks Im crazy, and he is completely grossed out and disgusted by the oils thing ( I use essential oils in myself), its awful.

The experience of having this condition is the most painful thing imaginable for a women. There were times when I literally cursed God, and HATED, and cursed being a women, it seemed my sex life and my ability to have a normal, loving relationship with another human being had been taken from me forever.
I hated being a women.
Ive been thru so much with this, I completely understand. You are not alone.
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since 2003, I am in the boat with you all

Post  chilijackie@aol.com on Fri Feb 15, 2013 4:18 pm

My search for a Doctor began in 2003, after a herpes outbreak had healed, I was left with
sand paper rubbing just from walking. Nothing was there to see, only the pain.
I had seen many Doctors back then, no one knew. I live in south FL. Went to university of Miami. One doctor in south FL new what it was. It was a guessing game to what meds may work, I had a pharmacy it seemed at home of everthing that did not work.
I started wearing boy short underware back them, before they were the fashion. I felt like a freak. I gave up with trying all the meds. After two years it got better. Have never worn a thong since 2003. In 2010 NYE. I got another herpes attack. After is healed
pain was unbeliable. Red inflamed. Spent alot of time in cool bath tub. After much
research and doc after doc, I found Doc Trabin in WPB. He speaclized in V.
I started on Lyrica, liodincane patches cut into small pices, soma to reduce spamses.
Shots of I do not even know what was in them. But they hurt going in. Never helped.
The Lyrica does help, with soma. However, yesterday I saw him again for refills on meds.
Now he says since pain is still there. have not worn jeans in three years. Sitting for more than 2 hours is not an option, nor walking for more than 2 hours. This has changed my life. I want it back. He now wants to do surgery since nothing has taken the pain away. He says after three years, would I want to pain free. If any one has surgery on outside of opening please tell me. I do not know what to do. Thank you

chilijackie@aol.com

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Re: New, Frustrated, Looking For Support :-)

Post  Alana3 on Fri Feb 15, 2013 4:46 pm

Dr T did my surgery and im a success! He knows what he's doing trust me where do u live here

Alana3

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Doctor Jay Trabin

Post  chilijackie@aol.com on Fri Feb 15, 2013 4:54 pm

I live in Coral Springs FL. Doc Trabin is WPB. Is this your Doc. I have been seeing him for 2 years now, before I was seeing Tara Soloman. Who got so mean, I would not go back to her. My pharmisit told me about Doctor Trabin.
Thank you

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Re: New, Frustrated, Looking For Support :-)

Post  Alana3 on Fri Feb 15, 2013 4:57 pm

Yeah he's my doctor he did my surgery it went fine I can meet up with you sometime if you want to discuss I live in Boynton but work in boca let me know

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Speak to you

Post  chilijackie@aol.com on Fri Feb 15, 2013 4:59 pm

If this is the same doctor, would you mind speaking with me over the phone.
My # is 954-720-2855 home 954-857-3111 cell. If you do not want to I understand.

chilijackie@aol.com

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Re: New, Frustrated, Looking For Support :-)

Post  Alana3 on Fri Feb 15, 2013 5:01 pm

No problem can I text you now im at a meeting otherwise id call

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Re: New, Frustrated, Looking For Support :-)

Post  lonelyone48 on Wed Dec 04, 2013 4:32 pm

Hello ladies, I'm new to the forum. What's this surgery you all are talking about? I've had Vulvodynia since 2005 and I get recurrent BV as well. This pain is getting worse and the meds and ointment aren't really helping. I cannot even work anymore because of this pain! My 25 year old son takes care of me. I feel like such a burden. Will this surgery fix it so I'll have no more pain and be able to work, date, and possibly get married again?

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Re: New, Frustrated, Looking For Support :-)

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