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» Vestibulectomy today and no pain
Today at 3:28 pm by Dsrt16

» vestibulectomy success
Yesterday at 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Yesterday at 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Yesterday at 12:01 am by Jgreen81

» Vulvodynia help
Wed Nov 15, 2017 1:04 pm by ekaterina1996

» FACEBOOK VULVODYNIA SUPPORT GROUP (SECRET)
Tue Nov 14, 2017 9:53 pm by Dsrt16

» Needing some reassurance
Sun Nov 12, 2017 3:04 pm by Nicmay

» Vulvodynia burning mouth and bladder discomfort
Fri Nov 10, 2017 7:26 pm by Zbrown

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 0

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


New, Frustrated, Looking For Support :-)

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New, Frustrated, Looking For Support :-)

Post  carby148 on Mon Feb 04, 2013 6:12 am

Hello!

Sitting here, knowing I have just registered to a vulvodynia support forum, is almost bringing me to tears. Maybe over the frustration of what I've been going through, but also maybe because I'll finally be able to talk about this with people who understand.

I feel like my husband doesn't really grasp how this has been affecting me, I have no close women friends, my mother has long since passed away, and I've felt so alone dealing with this.

I suppose I will save my "story" for the story board, but I just want to say thank you for creating this site, because I deeply needed it.
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your not alone

Post  lavrose on Sun Feb 10, 2013 9:23 pm

I know sweety. Im going thru the same thing. My Husband has a hard time understanding aswell, and I think he just thinks Im crazy, and he is completely grossed out and disgusted by the oils thing ( I use essential oils in myself), its awful.

The experience of having this condition is the most painful thing imaginable for a women. There were times when I literally cursed God, and HATED, and cursed being a women, it seemed my sex life and my ability to have a normal, loving relationship with another human being had been taken from me forever.
I hated being a women.
Ive been thru so much with this, I completely understand. You are not alone.
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since 2003, I am in the boat with you all

Post  chilijackie@aol.com on Fri Feb 15, 2013 4:18 pm

My search for a Doctor began in 2003, after a herpes outbreak had healed, I was left with
sand paper rubbing just from walking. Nothing was there to see, only the pain.
I had seen many Doctors back then, no one knew. I live in south FL. Went to university of Miami. One doctor in south FL new what it was. It was a guessing game to what meds may work, I had a pharmacy it seemed at home of everthing that did not work.
I started wearing boy short underware back them, before they were the fashion. I felt like a freak. I gave up with trying all the meds. After two years it got better. Have never worn a thong since 2003. In 2010 NYE. I got another herpes attack. After is healed
pain was unbeliable. Red inflamed. Spent alot of time in cool bath tub. After much
research and doc after doc, I found Doc Trabin in WPB. He speaclized in V.
I started on Lyrica, liodincane patches cut into small pices, soma to reduce spamses.
Shots of I do not even know what was in them. But they hurt going in. Never helped.
The Lyrica does help, with soma. However, yesterday I saw him again for refills on meds.
Now he says since pain is still there. have not worn jeans in three years. Sitting for more than 2 hours is not an option, nor walking for more than 2 hours. This has changed my life. I want it back. He now wants to do surgery since nothing has taken the pain away. He says after three years, would I want to pain free. If any one has surgery on outside of opening please tell me. I do not know what to do. Thank you

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Re: New, Frustrated, Looking For Support :-)

Post  Alana3 on Fri Feb 15, 2013 4:46 pm

Dr T did my surgery and im a success! He knows what he's doing trust me where do u live here

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Doctor Jay Trabin

Post  chilijackie@aol.com on Fri Feb 15, 2013 4:54 pm

I live in Coral Springs FL. Doc Trabin is WPB. Is this your Doc. I have been seeing him for 2 years now, before I was seeing Tara Soloman. Who got so mean, I would not go back to her. My pharmisit told me about Doctor Trabin.
Thank you

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Re: New, Frustrated, Looking For Support :-)

Post  Alana3 on Fri Feb 15, 2013 4:57 pm

Yeah he's my doctor he did my surgery it went fine I can meet up with you sometime if you want to discuss I live in Boynton but work in boca let me know

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Speak to you

Post  chilijackie@aol.com on Fri Feb 15, 2013 4:59 pm

If this is the same doctor, would you mind speaking with me over the phone.
My # is 954-720-2855 home 954-857-3111 cell. If you do not want to I understand.

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Re: New, Frustrated, Looking For Support :-)

Post  Alana3 on Fri Feb 15, 2013 5:01 pm

No problem can I text you now im at a meeting otherwise id call

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Re: New, Frustrated, Looking For Support :-)

Post  lonelyone48 on Wed Dec 04, 2013 4:32 pm

Hello ladies, I'm new to the forum. What's this surgery you all are talking about? I've had Vulvodynia since 2005 and I get recurrent BV as well. This pain is getting worse and the meds and ointment aren't really helping. I cannot even work anymore because of this pain! My 25 year old son takes care of me. I feel like such a burden. Will this surgery fix it so I'll have no more pain and be able to work, date, and possibly get married again?

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Re: New, Frustrated, Looking For Support :-)

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