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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New, Frustrated, Looking For Support :-)

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New, Frustrated, Looking For Support :-)

Post  carby148 on Mon Feb 04, 2013 6:12 am

Hello!

Sitting here, knowing I have just registered to a vulvodynia support forum, is almost bringing me to tears. Maybe over the frustration of what I've been going through, but also maybe because I'll finally be able to talk about this with people who understand.

I feel like my husband doesn't really grasp how this has been affecting me, I have no close women friends, my mother has long since passed away, and I've felt so alone dealing with this.

I suppose I will save my "story" for the story board, but I just want to say thank you for creating this site, because I deeply needed it.
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carby148

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your not alone

Post  lavrose on Sun Feb 10, 2013 9:23 pm

I know sweety. Im going thru the same thing. My Husband has a hard time understanding aswell, and I think he just thinks Im crazy, and he is completely grossed out and disgusted by the oils thing ( I use essential oils in myself), its awful.

The experience of having this condition is the most painful thing imaginable for a women. There were times when I literally cursed God, and HATED, and cursed being a women, it seemed my sex life and my ability to have a normal, loving relationship with another human being had been taken from me forever.
I hated being a women.
Ive been thru so much with this, I completely understand. You are not alone.
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since 2003, I am in the boat with you all

Post  chilijackie@aol.com on Fri Feb 15, 2013 4:18 pm

My search for a Doctor began in 2003, after a herpes outbreak had healed, I was left with
sand paper rubbing just from walking. Nothing was there to see, only the pain.
I had seen many Doctors back then, no one knew. I live in south FL. Went to university of Miami. One doctor in south FL new what it was. It was a guessing game to what meds may work, I had a pharmacy it seemed at home of everthing that did not work.
I started wearing boy short underware back them, before they were the fashion. I felt like a freak. I gave up with trying all the meds. After two years it got better. Have never worn a thong since 2003. In 2010 NYE. I got another herpes attack. After is healed
pain was unbeliable. Red inflamed. Spent alot of time in cool bath tub. After much
research and doc after doc, I found Doc Trabin in WPB. He speaclized in V.
I started on Lyrica, liodincane patches cut into small pices, soma to reduce spamses.
Shots of I do not even know what was in them. But they hurt going in. Never helped.
The Lyrica does help, with soma. However, yesterday I saw him again for refills on meds.
Now he says since pain is still there. have not worn jeans in three years. Sitting for more than 2 hours is not an option, nor walking for more than 2 hours. This has changed my life. I want it back. He now wants to do surgery since nothing has taken the pain away. He says after three years, would I want to pain free. If any one has surgery on outside of opening please tell me. I do not know what to do. Thank you

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Re: New, Frustrated, Looking For Support :-)

Post  Alana3 on Fri Feb 15, 2013 4:46 pm

Dr T did my surgery and im a success! He knows what he's doing trust me where do u live here

Alana3

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Doctor Jay Trabin

Post  chilijackie@aol.com on Fri Feb 15, 2013 4:54 pm

I live in Coral Springs FL. Doc Trabin is WPB. Is this your Doc. I have been seeing him for 2 years now, before I was seeing Tara Soloman. Who got so mean, I would not go back to her. My pharmisit told me about Doctor Trabin.
Thank you

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Re: New, Frustrated, Looking For Support :-)

Post  Alana3 on Fri Feb 15, 2013 4:57 pm

Yeah he's my doctor he did my surgery it went fine I can meet up with you sometime if you want to discuss I live in Boynton but work in boca let me know

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Speak to you

Post  chilijackie@aol.com on Fri Feb 15, 2013 4:59 pm

If this is the same doctor, would you mind speaking with me over the phone.
My # is 954-720-2855 home 954-857-3111 cell. If you do not want to I understand.

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Re: New, Frustrated, Looking For Support :-)

Post  Alana3 on Fri Feb 15, 2013 5:01 pm

No problem can I text you now im at a meeting otherwise id call

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Re: New, Frustrated, Looking For Support :-)

Post  lonelyone48 on Wed Dec 04, 2013 4:32 pm

Hello ladies, I'm new to the forum. What's this surgery you all are talking about? I've had Vulvodynia since 2005 and I get recurrent BV as well. This pain is getting worse and the meds and ointment aren't really helping. I cannot even work anymore because of this pain! My 25 year old son takes care of me. I feel like such a burden. Will this surgery fix it so I'll have no more pain and be able to work, date, and possibly get married again?

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Re: New, Frustrated, Looking For Support :-)

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