Log in

I forgot my password

Latest topics
» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New, Frustrated, Looking For Support :-)

View previous topic View next topic Go down

New, Frustrated, Looking For Support :-)

Post  carby148 on Mon Feb 04, 2013 6:12 am

Hello!

Sitting here, knowing I have just registered to a vulvodynia support forum, is almost bringing me to tears. Maybe over the frustration of what I've been going through, but also maybe because I'll finally be able to talk about this with people who understand.

I feel like my husband doesn't really grasp how this has been affecting me, I have no close women friends, my mother has long since passed away, and I've felt so alone dealing with this.

I suppose I will save my "story" for the story board, but I just want to say thank you for creating this site, because I deeply needed it.
avatar
carby148

Posts : 17
Join date : 2013-02-04
Age : 31
Location : East Bay Area

View user profile

Back to top Go down

your not alone

Post  lavrose on Sun Feb 10, 2013 9:23 pm

I know sweety. Im going thru the same thing. My Husband has a hard time understanding aswell, and I think he just thinks Im crazy, and he is completely grossed out and disgusted by the oils thing ( I use essential oils in myself), its awful.

The experience of having this condition is the most painful thing imaginable for a women. There were times when I literally cursed God, and HATED, and cursed being a women, it seemed my sex life and my ability to have a normal, loving relationship with another human being had been taken from me forever.
I hated being a women.
Ive been thru so much with this, I completely understand. You are not alone.
avatar
lavrose

Posts : 150
Join date : 2012-04-28

View user profile

Back to top Go down

since 2003, I am in the boat with you all

Post  chilijackie@aol.com on Fri Feb 15, 2013 4:18 pm

My search for a Doctor began in 2003, after a herpes outbreak had healed, I was left with
sand paper rubbing just from walking. Nothing was there to see, only the pain.
I had seen many Doctors back then, no one knew. I live in south FL. Went to university of Miami. One doctor in south FL new what it was. It was a guessing game to what meds may work, I had a pharmacy it seemed at home of everthing that did not work.
I started wearing boy short underware back them, before they were the fashion. I felt like a freak. I gave up with trying all the meds. After two years it got better. Have never worn a thong since 2003. In 2010 NYE. I got another herpes attack. After is healed
pain was unbeliable. Red inflamed. Spent alot of time in cool bath tub. After much
research and doc after doc, I found Doc Trabin in WPB. He speaclized in V.
I started on Lyrica, liodincane patches cut into small pices, soma to reduce spamses.
Shots of I do not even know what was in them. But they hurt going in. Never helped.
The Lyrica does help, with soma. However, yesterday I saw him again for refills on meds.
Now he says since pain is still there. have not worn jeans in three years. Sitting for more than 2 hours is not an option, nor walking for more than 2 hours. This has changed my life. I want it back. He now wants to do surgery since nothing has taken the pain away. He says after three years, would I want to pain free. If any one has surgery on outside of opening please tell me. I do not know what to do. Thank you

chilijackie@aol.com

Posts : 7
Join date : 2013-02-15

View user profile

Back to top Go down

Re: New, Frustrated, Looking For Support :-)

Post  Alana3 on Fri Feb 15, 2013 4:46 pm

Dr T did my surgery and im a success! He knows what he's doing trust me where do u live here

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Doctor Jay Trabin

Post  chilijackie@aol.com on Fri Feb 15, 2013 4:54 pm

I live in Coral Springs FL. Doc Trabin is WPB. Is this your Doc. I have been seeing him for 2 years now, before I was seeing Tara Soloman. Who got so mean, I would not go back to her. My pharmisit told me about Doctor Trabin.
Thank you

chilijackie@aol.com

Posts : 7
Join date : 2013-02-15

View user profile

Back to top Go down

Re: New, Frustrated, Looking For Support :-)

Post  Alana3 on Fri Feb 15, 2013 4:57 pm

Yeah he's my doctor he did my surgery it went fine I can meet up with you sometime if you want to discuss I live in Boynton but work in boca let me know

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Speak to you

Post  chilijackie@aol.com on Fri Feb 15, 2013 4:59 pm

If this is the same doctor, would you mind speaking with me over the phone.
My # is 954-720-2855 home 954-857-3111 cell. If you do not want to I understand.

chilijackie@aol.com

Posts : 7
Join date : 2013-02-15

View user profile

Back to top Go down

Re: New, Frustrated, Looking For Support :-)

Post  Alana3 on Fri Feb 15, 2013 5:01 pm

No problem can I text you now im at a meeting otherwise id call

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New, Frustrated, Looking For Support :-)

Post  lonelyone48 on Wed Dec 04, 2013 4:32 pm

Hello ladies, I'm new to the forum. What's this surgery you all are talking about? I've had Vulvodynia since 2005 and I get recurrent BV as well. This pain is getting worse and the meds and ointment aren't really helping. I cannot even work anymore because of this pain! My 25 year old son takes care of me. I feel like such a burden. Will this surgery fix it so I'll have no more pain and be able to work, date, and possibly get married again?

lonelyone48

Posts : 39
Join date : 2013-12-01

View user profile

Back to top Go down

Re: New, Frustrated, Looking For Support :-)

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum