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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Feeling Hopeless

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Feeling Hopeless

Post  carby148 on Mon Feb 04, 2013 6:26 am

First and foremost, I want to say thank you again for having a site like this. I am looking for some support as I don't feel I've had the opportunity to really sit down and talk to anyone about this.

I'm 26, married, no kids of my own. I haven't been formally diagnosed with vulvodynia yet, but by the time I see a gynecologist about it, it will almost be four months that I've struggled with chronic vulva (labia majora) pain and irritation.

I know four months is such a short amount of time compared to the many women who have this, but if this is something I indeed suffer from, the thought of possibly having to live with this for months, years, or my entire life scares me.

Back in early November of 2012 I began feeling a throbbing in my vagina, and since then I've experienced irritation in my urethra and labia majora. In a nutshell, it feels like I will need to urinate and my labia majora feels bruised to the touch. Aside from when I'm not wearing any underwear, I have constant soreness.

What frustrates me most, is in the last three months, I've been to my general practitioner about five times, and although my primary complaint was the pain, these concerns were completely ignored and overshadowed by the fact that I kept getting diagnosed with yeast infections (atypical symptoms, although still very much present despite recurrent treatment).

The pain was attributed to the constant yeast, and despite being on yeast infection medication week after week, the pain never subsided.

I finally called a gynecologist last week, and although they didn't do anything but a swab test again (to see if I had yet another yeast infection), she was the first person to mention vulvodynia as a possible cause.

She told me not to worry, but did prepare me that it may take a few visits to officially diagnose me as they would have to rule out everything else.

She referred me to another gynecologist who knew more about it than her, but I don't have an appointment until the 20th of February.

I'm a little upset she set the appointment so far out, but I guess on the bright side, if they aren't worried to the point of making me an emergency appointment, I guess I can live with it for the next two weeks.

The pain isn't bad enough to take off work, and there are times when I am so used to it that I can't feel it, but I know it's never gone.

It's making me depressed and it has put a wedge in my marriage, at least from my perspective. I've cried a few times over this, just because I never would have thought it would affect me this deeply (emotionally).

I just hope there are people here who can understand, because at times I feel like it's all just in my head...especially when I feel my previous doctor just didn't even listen.

Thanks for letting me share my story!
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Re: Feeling Hopeless

Post  jen007 on Mon Feb 04, 2013 2:42 pm

carby148,

Usually a sure fire sign of vulvodynia is constant or chronic yeast infections. I used to have yeast infections all the time for a long time Crying or Very sad . Plus when ever I'd take the medications to clear it up none of them ever worked and even if it did the infect would come back just a few days later. One thing I did was change my under wear to 100% cotton. Cotton is a more breathable material and helps keep the moisture out that would cause yeast to develop. Another thing you could try is changing your soaps with you bathe. I only use fragrance free ivory soap on my area. For my body I still continue to use regular scented soaps. One last thing you could do is ask your doctor to prescribe you 5% lidocaine cream. It temporarily numbs out the areas you put in on. If you do get it be sure to mix it with a little lubricant. Alone the lidocaine can burn until it starts to actually work. When you mix the two it won't burn or make you feel worse.

I completely understand how you feel. I used to feel so alone and in the dark with this. I'd cry all of the time. Plus I had. and still have, a boyfriend since the beginning of this which was hard. We could never be intimate or anything because it was too painful. I had surgery last July to somewhat get rid of my vulvodynia (a vestibulectomy). I only did this as a last resort. I had tried everything to no avail. My pain was all internal so the just cut out my most painful areas and now I don't really have any pain anymore. But you still have a long way to go in this.

Do you have internal pain or is it only external?

Also if you don't think your doctor/ doctors have been properly treating you there is a website you can go to that will help you find specialists in your area. You have to join the group and make a donation, but it's totally worth it. It's called the NVA. They also send you a little news letter every month giving you the latest information on vulvodynia and other related conditions. When they send it it's sent in a discrete package so the information is kept private. I'll link it for you down below if you'd like to check it out.

http://www.nva.org/

Hope this helps!

-Jen

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Re: Feeling Hopeless

Post  carby148 on Mon Feb 04, 2013 5:58 pm

Wow, thank you so much for all that information!

I've tried all the "typical" things the doctors and websites tell you to do...I've always worn cotton underwear, but have ditched wearing daily pantiliners (I get daily discharge, always have since puberty). I switched to cotton leggings (although I find it doesn't do much in terms of pain relief), I eat yogurt every day, I blow dry the area instead of using towels after showers, tried topical over the counter yeast infection medication, diaper rash medication, nothing has helped.

I'm hoping on the 20th they will finally be able to give me some real options as opposed to options that would only cure a yeast infection.

The pain is only external (thank goodness) and is mostly mild. The pain is usually only to the touch, so I do get some relief when I'm able to walk around with no underwear or pants on. But even right now, as I sit here on the couch, I can feel my thighs pressing against my labia majora and it's sore.

Almost how it would feel if you bruised the area, or wore tight pants for too long, or when your pubic hair starts to grow back (I don't know if that's common for everyone, but for me, sometimes it hurts when my hair starts growing back, lol). Oh, and I stopped shaving down there...which I hate...it's like a jungle!
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Re: Feeling Hopeless

Post  jen007 on Mon Feb 04, 2013 6:05 pm

I felt the same way for a while. I had no external pain, but I couldn't wait to get home after school everyday to take my pants off...I suffered through my skinny jeans because I love them so much. I started wearing jeggings which helped a little. I always felt tight and a pressure like feeling, plus the yeast. It wasn't a good mix.

My on doctor told me to stop shaving to. She thought that I might have been irritating it too much, but it didn't change anything. She told told me stop wearing tampons and wear pads during my period. I'd also suffer through my period, tampons hurt so bad, but I hated wearing pads. I tried that and the pads actually irritated me more because of the constant rubbing and contact to my skin.

I know one thing that can cause vulvodynia is birth control. Are you on any?

-Jen

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Re: Feeling Hopeless

Post  carby148 on Mon Feb 04, 2013 6:15 pm

No, not on any birth control. My husband doesn't use condoms either. (Long story short, the odds of him getting me pregnant is slim, but if we fell pregnant, we would be happy.)

It's always been painful with sex; as a young teen I was never able to insert tampons. I chalked it up to vaginismus and me being so tiny, but sex has been a difficult thing to bear. We weren't even able to have sex on my wedding night (I was a virgin until then), and it took a while for me to get used to it. Now I am able to have pain free sex, but everything sort of has to align or else that won't happen (I have to be wet enough, he has to be lubricated enough, and it has to be in a particular position). If that doesn't occur, it will be painful during, or it will burn so intensely afterwards I have to just grin and bear it.

I never thought the painful sex was related, but now I'm thinking maybe it is, but the internal vaginal pain is definitely secondary to the vulva pain, especially because I know it's manageable and I'm capable of having pain free sex.
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Re: Feeling Hopeless

Post  mcclave96 on Wed Feb 06, 2013 2:11 pm

When i read your story i think you should talk to your doctor about Physical Therapy....your sex might be causing your labia pain....it is nerves... do some research on physical therapy before seeing you doctor so you are prepared to ask the right questions....i would not use anymore creams...my specialist (who I drove 7 hours to see) suggested using plain vegtable oil....try to relax noticed if you are clenching your body when you stand and walk...If sex is too painful don't do it there are other ways to be intimate....practice breathing....i know it is weird how this is related...Good luck and stay positive it is amazing how much of a difference that has made form...i know it is difficult but try to focus on those times you "forget" about it...I have been thanking God in prayer each time i have a few hours of relief...I noticed my whole attitude is better!!

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Re: Feeling Hopeless

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