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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Possible vulvodynia

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Possible vulvodynia

Post  Mixiepie on Fri Feb 08, 2013 7:40 pm

Hi all,

This is my first post and first time talking about this. I was in a sexless relationship for a long time and I'm now dating someone new. We tried to have intercourse and I'd all but forgotten how much it hurts. I couldn't do it and made him stop, which as you all know is just devastating! I've not been diagnosed but I've had this problem for a long time now. I was always too scared to go to the doctors but I don't want to have to live with this.

This forum looks lovely and it's nice to know I'm not alone.

Mixiepie

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Doctor

Post  chilijackie@aol.com on Fri Feb 15, 2013 10:49 pm

Hi. You must go to Doctor who deals with. Many Docs do not even know what it is. Also because it is so hard and time consuming for a Doctor to help, many do not want to. Honestly I saw at least 15 different docs before finding Doctor Trabin.
Ask your pharmisit if they know of any docs. That is how I finally found mine.
Where do you live

chilijackie@aol.com

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Re: Possible vulvodynia

Post  jen007 on Sat Feb 16, 2013 3:26 am

Hi Mixiepie,

I'd strongly suggest finding a specialist asap. Not treating vulvodynia won't necessarily make it worse, but it's not good to leave untreated. There's a website that you can join that will give you the latest new on vulvodynia studies and a list of specialists near you. You have to pay a yearly fee that gets donated to the NVA to join. I only paid it for one year though just so I could get a list of doctors near me. I'll link it below if you'd like to check it out.

http://www.nva.org/

It really is a great resource. I completely understand how you feel. I've been with the same guy for over 5 years now. We met before I even knew I had vulvodynia. When we tried to have sex it was so painful we had to stop. This happened multiple times. I always thought I was just scared of feeling the pain from the first time, but it was more than that. Once you find the right specialist you will feel better. It might take a few tries to find the right doctor for you...it took me about 4 tries to find the right one.

Please keep us posted on your progress! Good luck!

-Jen

jen007

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Re: Possible vulvodynia

Post  Cyndie on Sat Feb 23, 2013 11:09 pm

Hi Mixiepie,

I suggest you find a specialist asap as well. Having vulvodynia is really hard. I've had it for the past for about 4- 41/2 years. It may take a while to find someone, and a few different treatments trying to figure out what will help you. It's like being a guinie pig because vulvodynia is not something doctors have really looked into. So it can be a bit frustrating but here I am 4 1/2 years later still trying to find something. Hope you can find someone to help you soon and don't worrie! your not the only one out there!

Cyndie

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Re: Possible vulvodynia

Post  Kathy100 on Sun Feb 24, 2013 4:27 pm

Hi Mixiepie,

You're definitely not alone. I agree with the other ladies - best to see a Dr as soon as possible. It's difficult to find one who knows about this (I had to see 5 or 6 plus a couple of specialists) but once you do things will start to get better. You just have to keep going which, I know is really hard sometimes. They will need to try different treatments / combination of treatments to find the best one for you. I found a pelvic pain specialist who has experience of V in my area by looking on the internet & then asking my dr to refer me.

Good luck - let us know how you get on xx

Kathy100

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Re: Possible vulvodynia

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