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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Possible vulvodynia

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Possible vulvodynia

Post  Mixiepie on Fri Feb 08, 2013 7:40 pm

Hi all,

This is my first post and first time talking about this. I was in a sexless relationship for a long time and I'm now dating someone new. We tried to have intercourse and I'd all but forgotten how much it hurts. I couldn't do it and made him stop, which as you all know is just devastating! I've not been diagnosed but I've had this problem for a long time now. I was always too scared to go to the doctors but I don't want to have to live with this.

This forum looks lovely and it's nice to know I'm not alone.

Mixiepie

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Doctor

Post  chilijackie@aol.com on Fri Feb 15, 2013 10:49 pm

Hi. You must go to Doctor who deals with. Many Docs do not even know what it is. Also because it is so hard and time consuming for a Doctor to help, many do not want to. Honestly I saw at least 15 different docs before finding Doctor Trabin.
Ask your pharmisit if they know of any docs. That is how I finally found mine.
Where do you live

chilijackie@aol.com

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Re: Possible vulvodynia

Post  jen007 on Sat Feb 16, 2013 3:26 am

Hi Mixiepie,

I'd strongly suggest finding a specialist asap. Not treating vulvodynia won't necessarily make it worse, but it's not good to leave untreated. There's a website that you can join that will give you the latest new on vulvodynia studies and a list of specialists near you. You have to pay a yearly fee that gets donated to the NVA to join. I only paid it for one year though just so I could get a list of doctors near me. I'll link it below if you'd like to check it out.

http://www.nva.org/

It really is a great resource. I completely understand how you feel. I've been with the same guy for over 5 years now. We met before I even knew I had vulvodynia. When we tried to have sex it was so painful we had to stop. This happened multiple times. I always thought I was just scared of feeling the pain from the first time, but it was more than that. Once you find the right specialist you will feel better. It might take a few tries to find the right doctor for you...it took me about 4 tries to find the right one.

Please keep us posted on your progress! Good luck!

-Jen

jen007

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Re: Possible vulvodynia

Post  Cyndie on Sat Feb 23, 2013 11:09 pm

Hi Mixiepie,

I suggest you find a specialist asap as well. Having vulvodynia is really hard. I've had it for the past for about 4- 41/2 years. It may take a while to find someone, and a few different treatments trying to figure out what will help you. It's like being a guinie pig because vulvodynia is not something doctors have really looked into. So it can be a bit frustrating but here I am 4 1/2 years later still trying to find something. Hope you can find someone to help you soon and don't worrie! your not the only one out there!

Cyndie

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Re: Possible vulvodynia

Post  Kathy100 on Sun Feb 24, 2013 4:27 pm

Hi Mixiepie,

You're definitely not alone. I agree with the other ladies - best to see a Dr as soon as possible. It's difficult to find one who knows about this (I had to see 5 or 6 plus a couple of specialists) but once you do things will start to get better. You just have to keep going which, I know is really hard sometimes. They will need to try different treatments / combination of treatments to find the best one for you. I found a pelvic pain specialist who has experience of V in my area by looking on the internet & then asking my dr to refer me.

Good luck - let us know how you get on xx

Kathy100

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Re: Possible vulvodynia

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