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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico


I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

Possible vulvodynia

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Possible vulvodynia

Post  Mixiepie on Fri Feb 08, 2013 7:40 pm

Hi all,

This is my first post and first time talking about this. I was in a sexless relationship for a long time and I'm now dating someone new. We tried to have intercourse and I'd all but forgotten how much it hurts. I couldn't do it and made him stop, which as you all know is just devastating! I've not been diagnosed but I've had this problem for a long time now. I was always too scared to go to the doctors but I don't want to have to live with this.

This forum looks lovely and it's nice to know I'm not alone.


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Post  chilijackie@aol.com on Fri Feb 15, 2013 10:49 pm

Hi. You must go to Doctor who deals with. Many Docs do not even know what it is. Also because it is so hard and time consuming for a Doctor to help, many do not want to. Honestly I saw at least 15 different docs before finding Doctor Trabin.
Ask your pharmisit if they know of any docs. That is how I finally found mine.
Where do you live


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Re: Possible vulvodynia

Post  jen007 on Sat Feb 16, 2013 3:26 am

Hi Mixiepie,

I'd strongly suggest finding a specialist asap. Not treating vulvodynia won't necessarily make it worse, but it's not good to leave untreated. There's a website that you can join that will give you the latest new on vulvodynia studies and a list of specialists near you. You have to pay a yearly fee that gets donated to the NVA to join. I only paid it for one year though just so I could get a list of doctors near me. I'll link it below if you'd like to check it out.


It really is a great resource. I completely understand how you feel. I've been with the same guy for over 5 years now. We met before I even knew I had vulvodynia. When we tried to have sex it was so painful we had to stop. This happened multiple times. I always thought I was just scared of feeling the pain from the first time, but it was more than that. Once you find the right specialist you will feel better. It might take a few tries to find the right doctor for you...it took me about 4 tries to find the right one.

Please keep us posted on your progress! Good luck!



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Re: Possible vulvodynia

Post  Cyndie on Sat Feb 23, 2013 11:09 pm

Hi Mixiepie,

I suggest you find a specialist asap as well. Having vulvodynia is really hard. I've had it for the past for about 4- 41/2 years. It may take a while to find someone, and a few different treatments trying to figure out what will help you. It's like being a guinie pig because vulvodynia is not something doctors have really looked into. So it can be a bit frustrating but here I am 4 1/2 years later still trying to find something. Hope you can find someone to help you soon and don't worrie! your not the only one out there!


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Re: Possible vulvodynia

Post  Kathy100 on Sun Feb 24, 2013 4:27 pm

Hi Mixiepie,

You're definitely not alone. I agree with the other ladies - best to see a Dr as soon as possible. It's difficult to find one who knows about this (I had to see 5 or 6 plus a couple of specialists) but once you do things will start to get better. You just have to keep going which, I know is really hard sometimes. They will need to try different treatments / combination of treatments to find the best one for you. I found a pelvic pain specialist who has experience of V in my area by looking on the internet & then asking my dr to refer me.

Good luck - let us know how you get on xx


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Re: Possible vulvodynia

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