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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

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Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

Post  lavrose on Sun Feb 10, 2013 7:33 pm

Hey guys, just thought Id update on my latest struggle.
I am now newly married, and altho, its been a rough beginning, I feel 100% cured now, and just thought Id share about my new discovery that kicked my latest Vulva/Yeast infection irritation pain in the butt. Betadine douche!!!!!!!!

So simple, I cannot believe Ive overlooked this, this long, and Ive researched and TRIED everything.

The Bladder, IC pain is gone, (thanks to Massive doses of Bactrim). I still had some residual pain, but I guess it was just my bladder healing, cuz its been a few weeks now, and NO PAIN, even during my period this month.

I still had a mild yeast infection and I was attacking it with gelcaps full of horendoucly strong essential oils, 2 to 3 times a day(not recommended). Havnt been able to have sex with my Husband for a month and a half. My cervix was swollen, and the oils were helping but not really working this time, and I was using more and more(again, not recommended) and it just wasnt getting rid of it.
I was using 2 drops of clove, 3 drops eucalyptus, and ylang ylang, and 3 drops bergamont 3 times a day, That is just so wrong!!!!
I remember when even one drop of eucalyptus would make me jump around and dance around the room for a good 5 min, if I put it anywhere near my vag, and now I was putting tons of it in there, and it wasnt burning me, but my flowers were so swollen and I could feel that horrendous pain was still there, I wasnt making progress.
I guess my vagina got immune to the strength of the oils.
In my experience using essential oils, and (in the past Ive had great results) your body or the yeast cells CAN get used to them, so you have to rotate them, but it just seem like this nitemare wasnt ending, and I knew, even if I made this yeast infection go away. I would just get it again, next time I have sex, so I felt like topping myself at times, I was so sad.
So anyway, my Mother, being in her sixties, told me about an old time remedy, Betadine Douche, or Iodine douches. Twice a day for a week to 14 days. Said, it always worked for her., she said she could kick a mild yeast infection (preventative !!!) with just one to 2 douches, ...........she asked me to try that.

Now, Ive always been under the assumption that douches are bad, and in my experience, using peroxide and apple cider vinegar douches, always made my condition worse, so I ALWAYS STAYED WAY AWAY from douches. Plus they always made me dry aswell.
Well, guys not only did it make me better, it has completely cured me. Also, I can even have sex WHILE Im doing treatment, which is also amazing.
Another thing is, now I have something to help me prevent another infection.

Just buy a bottle of providone iodine, (Betadine) at the drugstore for approximately $20 a bottle, and a few boxes of disposable douches. Dump out the liquid, fill the bottle halfway with tap water, and several drops of the Betadine. Make it a very dark red, )make a strong solution) get into the bathtub, and insert douche as far in as it will go, use gentle pressure, etc, etc. Works. Its amazing. Im cured. Thank You God.

God Bless
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Re: Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

Post  meelie on Tue Feb 19, 2013 1:51 am

how long have you been doing this and are you still pain free? does your Dr. know? Smile

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Post  lavrose on Sun Mar 10, 2013 10:07 pm

My Doctor actually discouraged me from using betadine douches as some people can have a really bad reaction to it, (red blistering sores, and irritation) but it actually doesnt bother me at all, and makes me feel relief, and yes, Im still feeling great.

Now all Im doing is inserting a probiotic acidophilus capsule in with a clean finger after my shower in the morning, and I feel good.

im also gonna try a product called "Flora Fem" which is 6 probiotitic vaginal suppositories for $50 (pricey, i know) , off amazon. com. The reviews are really good, and alot of women are swearing by it. I tend to think Vulvodynia is an imbalance, anyway, the acidophilus capsules vaginally help me, and I feel fine right now.
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Post  lavrose on Sun Mar 10, 2013 10:11 pm

as far as using your fingers to rub oils around inside the vagina a few times a day, i think Ive changed my mind on that, as I might have actually caused an infection by doing that, as fingers are not always clean, even after you wash them. Also the oils can be very harsh on the tissues, and even ineffective, as I didnt have as much luck with my last infection, (and I scalded my vag, lol ;( ) altho they worked great before. Ive cured problems for myself before with oils.

I find the probiotics, and gentle douching is working much better, at this point, Im taking a break on the oils for awhile.
Im not douching now, as I cured my infection, but i WILL permanently be inserting a femdophilus capsule inside my vag every morning, as I sincerely believe, I was born not having enough of the vaginal flora naturally to ward off these problems. and also taking orally, 2 pills a day.
Ive also started AZO YEAST again, 2 pilss a day orally.

Good luck!
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Re: Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

Post  Alana3 on Mon Mar 11, 2013 3:21 am

Could you have killed off the good bacteria/yeast with all that you're doing? Im not trying to be rude or anything but that's a whole lot of stuff you were putting in your hooha. I try not to put anything there keeps her happy. But if it works more power to you Smile

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Re: Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

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