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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

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Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

Post  lavrose on Sun Feb 10, 2013 7:33 pm

Hey guys, just thought Id update on my latest struggle.
I am now newly married, and altho, its been a rough beginning, I feel 100% cured now, and just thought Id share about my new discovery that kicked my latest Vulva/Yeast infection irritation pain in the butt. Betadine douche!!!!!!!!

So simple, I cannot believe Ive overlooked this, this long, and Ive researched and TRIED everything.

The Bladder, IC pain is gone, (thanks to Massive doses of Bactrim). I still had some residual pain, but I guess it was just my bladder healing, cuz its been a few weeks now, and NO PAIN, even during my period this month.

I still had a mild yeast infection and I was attacking it with gelcaps full of horendoucly strong essential oils, 2 to 3 times a day(not recommended). Havnt been able to have sex with my Husband for a month and a half. My cervix was swollen, and the oils were helping but not really working this time, and I was using more and more(again, not recommended) and it just wasnt getting rid of it.
I was using 2 drops of clove, 3 drops eucalyptus, and ylang ylang, and 3 drops bergamont 3 times a day, That is just so wrong!!!!
I remember when even one drop of eucalyptus would make me jump around and dance around the room for a good 5 min, if I put it anywhere near my vag, and now I was putting tons of it in there, and it wasnt burning me, but my flowers were so swollen and I could feel that horrendous pain was still there, I wasnt making progress.
I guess my vagina got immune to the strength of the oils.
In my experience using essential oils, and (in the past Ive had great results) your body or the yeast cells CAN get used to them, so you have to rotate them, but it just seem like this nitemare wasnt ending, and I knew, even if I made this yeast infection go away. I would just get it again, next time I have sex, so I felt like topping myself at times, I was so sad.
So anyway, my Mother, being in her sixties, told me about an old time remedy, Betadine Douche, or Iodine douches. Twice a day for a week to 14 days. Said, it always worked for her., she said she could kick a mild yeast infection (preventative !!!) with just one to 2 douches, ...........she asked me to try that.

Now, Ive always been under the assumption that douches are bad, and in my experience, using peroxide and apple cider vinegar douches, always made my condition worse, so I ALWAYS STAYED WAY AWAY from douches. Plus they always made me dry aswell.
Well, guys not only did it make me better, it has completely cured me. Also, I can even have sex WHILE Im doing treatment, which is also amazing.
Another thing is, now I have something to help me prevent another infection.

Just buy a bottle of providone iodine, (Betadine) at the drugstore for approximately $20 a bottle, and a few boxes of disposable douches. Dump out the liquid, fill the bottle halfway with tap water, and several drops of the Betadine. Make it a very dark red, )make a strong solution) get into the bathtub, and insert douche as far in as it will go, use gentle pressure, etc, etc. Works. Its amazing. Im cured. Thank You God.

God Bless

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Re: Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

Post  meelie on Tue Feb 19, 2013 1:51 am

how long have you been doing this and are you still pain free? does your Dr. know? Smile


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Post  lavrose on Sun Mar 10, 2013 10:07 pm

My Doctor actually discouraged me from using betadine douches as some people can have a really bad reaction to it, (red blistering sores, and irritation) but it actually doesnt bother me at all, and makes me feel relief, and yes, Im still feeling great.

Now all Im doing is inserting a probiotic acidophilus capsule in with a clean finger after my shower in the morning, and I feel good.

im also gonna try a product called "Flora Fem" which is 6 probiotitic vaginal suppositories for $50 (pricey, i know) , off amazon. com. The reviews are really good, and alot of women are swearing by it. I tend to think Vulvodynia is an imbalance, anyway, the acidophilus capsules vaginally help me, and I feel fine right now.

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Post  lavrose on Sun Mar 10, 2013 10:11 pm

as far as using your fingers to rub oils around inside the vagina a few times a day, i think Ive changed my mind on that, as I might have actually caused an infection by doing that, as fingers are not always clean, even after you wash them. Also the oils can be very harsh on the tissues, and even ineffective, as I didnt have as much luck with my last infection, (and I scalded my vag, lol ;( ) altho they worked great before. Ive cured problems for myself before with oils.

I find the probiotics, and gentle douching is working much better, at this point, Im taking a break on the oils for awhile.
Im not douching now, as I cured my infection, but i WILL permanently be inserting a femdophilus capsule inside my vag every morning, as I sincerely believe, I was born not having enough of the vaginal flora naturally to ward off these problems. and also taking orally, 2 pills a day.
Ive also started AZO YEAST again, 2 pilss a day orally.

Good luck!

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Re: Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

Post  Alana3 on Mon Mar 11, 2013 3:21 am

Could you have killed off the good bacteria/yeast with all that you're doing? Im not trying to be rude or anything but that's a whole lot of stuff you were putting in your hooha. I try not to put anything there keeps her happy. But if it works more power to you Smile


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Re: Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

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