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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

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Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

Post  lavrose on Sun Feb 10, 2013 7:33 pm

Hey guys, just thought Id update on my latest struggle.
I am now newly married, and altho, its been a rough beginning, I feel 100% cured now, and just thought Id share about my new discovery that kicked my latest Vulva/Yeast infection irritation pain in the butt. Betadine douche!!!!!!!!

So simple, I cannot believe Ive overlooked this, this long, and Ive researched and TRIED everything.

The Bladder, IC pain is gone, (thanks to Massive doses of Bactrim). I still had some residual pain, but I guess it was just my bladder healing, cuz its been a few weeks now, and NO PAIN, even during my period this month.

I still had a mild yeast infection and I was attacking it with gelcaps full of horendoucly strong essential oils, 2 to 3 times a day(not recommended). Havnt been able to have sex with my Husband for a month and a half. My cervix was swollen, and the oils were helping but not really working this time, and I was using more and more(again, not recommended) and it just wasnt getting rid of it.
I was using 2 drops of clove, 3 drops eucalyptus, and ylang ylang, and 3 drops bergamont 3 times a day, That is just so wrong!!!!
I remember when even one drop of eucalyptus would make me jump around and dance around the room for a good 5 min, if I put it anywhere near my vag, and now I was putting tons of it in there, and it wasnt burning me, but my flowers were so swollen and I could feel that horrendous pain was still there, I wasnt making progress.
I guess my vagina got immune to the strength of the oils.
In my experience using essential oils, and (in the past Ive had great results) your body or the yeast cells CAN get used to them, so you have to rotate them, but it just seem like this nitemare wasnt ending, and I knew, even if I made this yeast infection go away. I would just get it again, next time I have sex, so I felt like topping myself at times, I was so sad.
So anyway, my Mother, being in her sixties, told me about an old time remedy, Betadine Douche, or Iodine douches. Twice a day for a week to 14 days. Said, it always worked for her., she said she could kick a mild yeast infection (preventative !!!) with just one to 2 douches, ...........she asked me to try that.

Now, Ive always been under the assumption that douches are bad, and in my experience, using peroxide and apple cider vinegar douches, always made my condition worse, so I ALWAYS STAYED WAY AWAY from douches. Plus they always made me dry aswell.
Well, guys not only did it make me better, it has completely cured me. Also, I can even have sex WHILE Im doing treatment, which is also amazing.
Another thing is, now I have something to help me prevent another infection.

Just buy a bottle of providone iodine, (Betadine) at the drugstore for approximately $20 a bottle, and a few boxes of disposable douches. Dump out the liquid, fill the bottle halfway with tap water, and several drops of the Betadine. Make it a very dark red, )make a strong solution) get into the bathtub, and insert douche as far in as it will go, use gentle pressure, etc, etc. Works. Its amazing. Im cured. Thank You God.

God Bless

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Re: Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

Post  meelie on Tue Feb 19, 2013 1:51 am

how long have you been doing this and are you still pain free? does your Dr. know? Smile


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Post  lavrose on Sun Mar 10, 2013 10:07 pm

My Doctor actually discouraged me from using betadine douches as some people can have a really bad reaction to it, (red blistering sores, and irritation) but it actually doesnt bother me at all, and makes me feel relief, and yes, Im still feeling great.

Now all Im doing is inserting a probiotic acidophilus capsule in with a clean finger after my shower in the morning, and I feel good.

im also gonna try a product called "Flora Fem" which is 6 probiotitic vaginal suppositories for $50 (pricey, i know) , off amazon. com. The reviews are really good, and alot of women are swearing by it. I tend to think Vulvodynia is an imbalance, anyway, the acidophilus capsules vaginally help me, and I feel fine right now.

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Post  lavrose on Sun Mar 10, 2013 10:11 pm

as far as using your fingers to rub oils around inside the vagina a few times a day, i think Ive changed my mind on that, as I might have actually caused an infection by doing that, as fingers are not always clean, even after you wash them. Also the oils can be very harsh on the tissues, and even ineffective, as I didnt have as much luck with my last infection, (and I scalded my vag, lol ;( ) altho they worked great before. Ive cured problems for myself before with oils.

I find the probiotics, and gentle douching is working much better, at this point, Im taking a break on the oils for awhile.
Im not douching now, as I cured my infection, but i WILL permanently be inserting a femdophilus capsule inside my vag every morning, as I sincerely believe, I was born not having enough of the vaginal flora naturally to ward off these problems. and also taking orally, 2 pills a day.
Ive also started AZO YEAST again, 2 pilss a day orally.

Good luck!

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Re: Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

Post  Alana3 on Mon Mar 11, 2013 3:21 am

Could you have killed off the good bacteria/yeast with all that you're doing? Im not trying to be rude or anything but that's a whole lot of stuff you were putting in your hooha. I try not to put anything there keeps her happy. But if it works more power to you Smile


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Re: Yeast free, IC free, Vulvodynia free, Betadine douche finnally kicked it :)

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