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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

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you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Nottingham Hospital Gyno?

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Nottingham Hospital Gyno?

Post  Kelle_Belle on Mon Feb 11, 2013 2:22 am

Hey everyone, was just wondering if anyone in the uk can help me? After nearly 6 months of pain, overdosing on gabbapentin because a frozen parsnip was more effective, my gyno in my home town finally did something useful by getting me refered to Nottingham hospital to a Dr who specialises in this sort of thing!! I had to lol at the this sort of thing comment! I was just wondering if anyone has any experiance with Nottingham Clinic?? Thanks in advance! x
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Re: Nottingham Hospital Gyno?

Post  Sarah001 on Mon Feb 11, 2013 1:16 pm

Hi again, is it David Nunns at Nottingham you've been referred to? I'd guess it is, my vulvar dermatologist tried to refer me to him and the referral went to pain management instead because he was off with a broken leg at the time however I talked to his secretary and she said to ask for the referral to be made again once he was back at work. I didn't because i'm sure a couple of women on here have actually seen him and didn't really rate him but saying that he does have a team of physios who work with him who have all done the courses my excellent physio has done so they should know their stuff. For me I would definitely have been referred to his physio team but it was too far to travel regularly and my physio knows the same stuff but is much closer to home which was my main reason for not going there. One thing I believe someone else on here said about the physio there is they adhere to the 6 session rule and discharge you whether you're helped or not after that, most hospitals do that. On the bright side if you go and they find a pelvic floor/alignment problem and give you the 6 sessions then discharge you and you feel you need more you can always take what they've told you to a private physio, it's still a plus as at least this would rule in or out physio being a good option.

I'm sure one person on here said she didn't rate him because he basically only had the list of possible causes we can easily find and work through ourselves but it depends how many things you've tried so far as to whether that would be of use to you. It's worth a shot for the physio team alone and I hope you'll let us all know how you get on.
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Nottingham treatment

Post  fedup.com on Tue Apr 30, 2013 9:16 pm

I've only just seen this and extremely glad I have!!!!!!

My whole problem from symptoms to diagnosis to treatment attempts has all been in Nottingham and it'll be good to compare experiences with you both.

I experienced symptoms from 2009 and it took until 2011 to be referred to the hospital. I'm being treated at Nottingham Circle Clinic at QMC and have been for a year now. No luck yet with all of the treatments I've been faced with. Started to wonder whether I should go private but then I look at my bank account and realise no-can-do.

Where is the Nottingham Clinic? Is it the one I'm at? If not I'll be researching into that as I am extremely fed up!

Look forward to hearing your replies,

I'm so relieved to find this post.

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Re: Nottingham Hospital Gyno?

Post  Sarah001 on Wed May 01, 2013 5:30 pm

I never went as it was way too far to travel with my severe joint issues so I've stuck with the physio nearer to home as I'm certain my problem is pelvic floor spasm/pelvic instability. Think kelle_belle did go and last I heard had been diagnosed with erosive lichen planus I believe (correct me if I'm wrong kelle_belle). I'm not sure exactly where David Nunns is based, I thought he was at the hospital but it's so long ago I was referred to him I can't remember. Sorry I couldn't help!
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Re: Nottingham Hospital Gyno?

Post  Kelle_Belle on Sat Mar 14, 2015 12:22 am

Wow, its been forever since I've been online. I had to stop logging in, sadly, I couldn't cope with the overwhelming sadness I was feeling. I hope you ladies are still on here? I just wanted to say that I went to Nottingham, within 10 mins I was diagnosed! I'm not mental! I have genital erosive lichaen planus. I cried! Mr Nunns has helped me so much, I cannot thank or praise him enough. He actually cares, he listens and wants to help. Not just with physical pain, but with mental pain too. I hope that you both have found some relief. Hope I get a reply x
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Re: Nottingham Hospital Gyno?

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