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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

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Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


Nottingham Hospital Gyno?

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Nottingham Hospital Gyno?

Post  Kelle_Belle on Mon Feb 11, 2013 2:22 am

Hey everyone, was just wondering if anyone in the uk can help me? After nearly 6 months of pain, overdosing on gabbapentin because a frozen parsnip was more effective, my gyno in my home town finally did something useful by getting me refered to Nottingham hospital to a Dr who specialises in this sort of thing!! I had to lol at the this sort of thing comment! I was just wondering if anyone has any experiance with Nottingham Clinic?? Thanks in advance! x
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Re: Nottingham Hospital Gyno?

Post  Sarah001 on Mon Feb 11, 2013 1:16 pm

Hi again, is it David Nunns at Nottingham you've been referred to? I'd guess it is, my vulvar dermatologist tried to refer me to him and the referral went to pain management instead because he was off with a broken leg at the time however I talked to his secretary and she said to ask for the referral to be made again once he was back at work. I didn't because i'm sure a couple of women on here have actually seen him and didn't really rate him but saying that he does have a team of physios who work with him who have all done the courses my excellent physio has done so they should know their stuff. For me I would definitely have been referred to his physio team but it was too far to travel regularly and my physio knows the same stuff but is much closer to home which was my main reason for not going there. One thing I believe someone else on here said about the physio there is they adhere to the 6 session rule and discharge you whether you're helped or not after that, most hospitals do that. On the bright side if you go and they find a pelvic floor/alignment problem and give you the 6 sessions then discharge you and you feel you need more you can always take what they've told you to a private physio, it's still a plus as at least this would rule in or out physio being a good option.

I'm sure one person on here said she didn't rate him because he basically only had the list of possible causes we can easily find and work through ourselves but it depends how many things you've tried so far as to whether that would be of use to you. It's worth a shot for the physio team alone and I hope you'll let us all know how you get on.
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Nottingham treatment

Post  fedup.com on Tue Apr 30, 2013 9:16 pm

I've only just seen this and extremely glad I have!!!!!!

My whole problem from symptoms to diagnosis to treatment attempts has all been in Nottingham and it'll be good to compare experiences with you both.

I experienced symptoms from 2009 and it took until 2011 to be referred to the hospital. I'm being treated at Nottingham Circle Clinic at QMC and have been for a year now. No luck yet with all of the treatments I've been faced with. Started to wonder whether I should go private but then I look at my bank account and realise no-can-do.

Where is the Nottingham Clinic? Is it the one I'm at? If not I'll be researching into that as I am extremely fed up!

Look forward to hearing your replies,

I'm so relieved to find this post.

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Re: Nottingham Hospital Gyno?

Post  Sarah001 on Wed May 01, 2013 5:30 pm

I never went as it was way too far to travel with my severe joint issues so I've stuck with the physio nearer to home as I'm certain my problem is pelvic floor spasm/pelvic instability. Think kelle_belle did go and last I heard had been diagnosed with erosive lichen planus I believe (correct me if I'm wrong kelle_belle). I'm not sure exactly where David Nunns is based, I thought he was at the hospital but it's so long ago I was referred to him I can't remember. Sorry I couldn't help!
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Re: Nottingham Hospital Gyno?

Post  Kelle_Belle on Sat Mar 14, 2015 12:22 am

Wow, its been forever since I've been online. I had to stop logging in, sadly, I couldn't cope with the overwhelming sadness I was feeling. I hope you ladies are still on here? I just wanted to say that I went to Nottingham, within 10 mins I was diagnosed! I'm not mental! I have genital erosive lichaen planus. I cried! Mr Nunns has helped me so much, I cannot thank or praise him enough. He actually cares, he listens and wants to help. Not just with physical pain, but with mental pain too. I hope that you both have found some relief. Hope I get a reply x
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Re: Nottingham Hospital Gyno?

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