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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Nottingham Hospital Gyno?

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Nottingham Hospital Gyno?

Post  Kelle_Belle on Mon Feb 11, 2013 2:22 am

Hey everyone, was just wondering if anyone in the uk can help me? After nearly 6 months of pain, overdosing on gabbapentin because a frozen parsnip was more effective, my gyno in my home town finally did something useful by getting me refered to Nottingham hospital to a Dr who specialises in this sort of thing!! I had to lol at the this sort of thing comment! I was just wondering if anyone has any experiance with Nottingham Clinic?? Thanks in advance! x
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Re: Nottingham Hospital Gyno?

Post  Sarah001 on Mon Feb 11, 2013 1:16 pm

Hi again, is it David Nunns at Nottingham you've been referred to? I'd guess it is, my vulvar dermatologist tried to refer me to him and the referral went to pain management instead because he was off with a broken leg at the time however I talked to his secretary and she said to ask for the referral to be made again once he was back at work. I didn't because i'm sure a couple of women on here have actually seen him and didn't really rate him but saying that he does have a team of physios who work with him who have all done the courses my excellent physio has done so they should know their stuff. For me I would definitely have been referred to his physio team but it was too far to travel regularly and my physio knows the same stuff but is much closer to home which was my main reason for not going there. One thing I believe someone else on here said about the physio there is they adhere to the 6 session rule and discharge you whether you're helped or not after that, most hospitals do that. On the bright side if you go and they find a pelvic floor/alignment problem and give you the 6 sessions then discharge you and you feel you need more you can always take what they've told you to a private physio, it's still a plus as at least this would rule in or out physio being a good option.

I'm sure one person on here said she didn't rate him because he basically only had the list of possible causes we can easily find and work through ourselves but it depends how many things you've tried so far as to whether that would be of use to you. It's worth a shot for the physio team alone and I hope you'll let us all know how you get on.
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Nottingham treatment

Post  fedup.com on Tue Apr 30, 2013 9:16 pm

I've only just seen this and extremely glad I have!!!!!!

My whole problem from symptoms to diagnosis to treatment attempts has all been in Nottingham and it'll be good to compare experiences with you both.

I experienced symptoms from 2009 and it took until 2011 to be referred to the hospital. I'm being treated at Nottingham Circle Clinic at QMC and have been for a year now. No luck yet with all of the treatments I've been faced with. Started to wonder whether I should go private but then I look at my bank account and realise no-can-do.

Where is the Nottingham Clinic? Is it the one I'm at? If not I'll be researching into that as I am extremely fed up!

Look forward to hearing your replies,

I'm so relieved to find this post.

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Re: Nottingham Hospital Gyno?

Post  Sarah001 on Wed May 01, 2013 5:30 pm

I never went as it was way too far to travel with my severe joint issues so I've stuck with the physio nearer to home as I'm certain my problem is pelvic floor spasm/pelvic instability. Think kelle_belle did go and last I heard had been diagnosed with erosive lichen planus I believe (correct me if I'm wrong kelle_belle). I'm not sure exactly where David Nunns is based, I thought he was at the hospital but it's so long ago I was referred to him I can't remember. Sorry I couldn't help!
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Re: Nottingham Hospital Gyno?

Post  Kelle_Belle on Sat Mar 14, 2015 12:22 am

Wow, its been forever since I've been online. I had to stop logging in, sadly, I couldn't cope with the overwhelming sadness I was feeling. I hope you ladies are still on here? I just wanted to say that I went to Nottingham, within 10 mins I was diagnosed! I'm not mental! I have genital erosive lichaen planus. I cried! Mr Nunns has helped me so much, I cannot thank or praise him enough. He actually cares, he listens and wants to help. Not just with physical pain, but with mental pain too. I hope that you both have found some relief. Hope I get a reply x
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Re: Nottingham Hospital Gyno?

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