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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Nottingham Hospital Gyno?

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Nottingham Hospital Gyno?

Post  Kelle_Belle on Mon Feb 11, 2013 2:22 am

Hey everyone, was just wondering if anyone in the uk can help me? After nearly 6 months of pain, overdosing on gabbapentin because a frozen parsnip was more effective, my gyno in my home town finally did something useful by getting me refered to Nottingham hospital to a Dr who specialises in this sort of thing!! I had to lol at the this sort of thing comment! I was just wondering if anyone has any experiance with Nottingham Clinic?? Thanks in advance! x
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Re: Nottingham Hospital Gyno?

Post  Sarah001 on Mon Feb 11, 2013 1:16 pm

Hi again, is it David Nunns at Nottingham you've been referred to? I'd guess it is, my vulvar dermatologist tried to refer me to him and the referral went to pain management instead because he was off with a broken leg at the time however I talked to his secretary and she said to ask for the referral to be made again once he was back at work. I didn't because i'm sure a couple of women on here have actually seen him and didn't really rate him but saying that he does have a team of physios who work with him who have all done the courses my excellent physio has done so they should know their stuff. For me I would definitely have been referred to his physio team but it was too far to travel regularly and my physio knows the same stuff but is much closer to home which was my main reason for not going there. One thing I believe someone else on here said about the physio there is they adhere to the 6 session rule and discharge you whether you're helped or not after that, most hospitals do that. On the bright side if you go and they find a pelvic floor/alignment problem and give you the 6 sessions then discharge you and you feel you need more you can always take what they've told you to a private physio, it's still a plus as at least this would rule in or out physio being a good option.

I'm sure one person on here said she didn't rate him because he basically only had the list of possible causes we can easily find and work through ourselves but it depends how many things you've tried so far as to whether that would be of use to you. It's worth a shot for the physio team alone and I hope you'll let us all know how you get on.
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Nottingham treatment

Post  fedup.com on Tue Apr 30, 2013 9:16 pm

I've only just seen this and extremely glad I have!!!!!!

My whole problem from symptoms to diagnosis to treatment attempts has all been in Nottingham and it'll be good to compare experiences with you both.

I experienced symptoms from 2009 and it took until 2011 to be referred to the hospital. I'm being treated at Nottingham Circle Clinic at QMC and have been for a year now. No luck yet with all of the treatments I've been faced with. Started to wonder whether I should go private but then I look at my bank account and realise no-can-do.

Where is the Nottingham Clinic? Is it the one I'm at? If not I'll be researching into that as I am extremely fed up!

Look forward to hearing your replies,

I'm so relieved to find this post.

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Re: Nottingham Hospital Gyno?

Post  Sarah001 on Wed May 01, 2013 5:30 pm

I never went as it was way too far to travel with my severe joint issues so I've stuck with the physio nearer to home as I'm certain my problem is pelvic floor spasm/pelvic instability. Think kelle_belle did go and last I heard had been diagnosed with erosive lichen planus I believe (correct me if I'm wrong kelle_belle). I'm not sure exactly where David Nunns is based, I thought he was at the hospital but it's so long ago I was referred to him I can't remember. Sorry I couldn't help!
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Re: Nottingham Hospital Gyno?

Post  Kelle_Belle on Sat Mar 14, 2015 12:22 am

Wow, its been forever since I've been online. I had to stop logging in, sadly, I couldn't cope with the overwhelming sadness I was feeling. I hope you ladies are still on here? I just wanted to say that I went to Nottingham, within 10 mins I was diagnosed! I'm not mental! I have genital erosive lichaen planus. I cried! Mr Nunns has helped me so much, I cannot thank or praise him enough. He actually cares, he listens and wants to help. Not just with physical pain, but with mental pain too. I hope that you both have found some relief. Hope I get a reply x
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Re: Nottingham Hospital Gyno?

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