Log in
Similar topics
Latest topics
I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Mar 09, 2018 6:17 pm by Tunes25
Hello!
I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.
To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …
I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.
To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …
Comments: 4
I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Mon Mar 12, 2018 4:33 pm by totallycured
Hi,
Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.
Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …
Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.
Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …
Comments: 3
Hi Im from Australia :)
Sat Jan 08, 2011 1:08 am by emma
Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …
Comments: 35
Somebody please help me...
Fri Nov 24, 2017 8:05 am by Andlag
Hey everyone,
since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …
since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …
Comments: 14
Lidocaine with condoms?
Wed Mar 21, 2018 10:44 pm by AEM1
Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks!
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …
Comments: 1
Constant pain, I want to die.
Fri Jun 02, 2017 4:29 am by Meggiemay
I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …
Comments: 23
Recently Diagnosed which has motivated my research study
Tue Mar 06, 2018 4:54 pm by ebclose2free
Hi everyone,
My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …
My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …
Comments: 0
MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering
Dear all,
Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist
after having a vestibulectomy with no success, I decided to visit …
Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist
after having a vestibulectomy with no success, I decided to visit …
Comments: 3
New and desperate for advice
Sat Mar 03, 2018 2:37 pm by srbry
Hi everyone,
I'm new here and was told to find a support group because this is all getting a bit much really...
I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …
I'm new here and was told to find a support group because this is all getting a bit much really...
I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …
Comments: 3
Sick of it
Page 1 of 1 • Share •
Sick of it
Ok so I probably don't have Vulvodynia in its truest sense. But I share your symptoms and Doctors refuse to give me an exact name.
I am 26, sex has always been painful but got worse the older I got and the more fed up with it I got, its near agony now. To add to this I have had unusual discharge my whole life. Every now and then I would seek help from my Doctor but its taken this long to get anywhere. I was told once "if it looks like thrush its probably thrush"......... Finally I found a nice doctor who confirmed once more I don't have thrush, that theres no obvious cause for my discharge and it may or may not be related to the pain (there was talk of possible internal scarring). So far treatment has been focussed on controlling the discharge, it looks like im using a weekly lotion for the rest of my life. Having just had another relationship end, I really am sick of this. I am a sexual person and I want a fulfilling sexual relationship, I am entitled to one. Having read about all of you using numbing gels I really feel that's my best shot. The pain feels like its about an inch or less inside. Like my muscles wont stretch properly like they should. Of course they do but its like being stabbed with a burning sensation afterwards. I have an appointment in 2 weeks and I will demand a numbing gel. I know there's mental issues with this, I have had psychosexual therapy but I feel the best thing for me mentally is to achieve full intercourse and see myself doing that. I also saw a gynaecologist when I was 21 who did an ultrasound and confirmed everything was physically normal.
I have also bought an expensive vibrator to help me relax and stay relaxed during insertation.
I really wish I had the courage to seek and demand better help at an earlier age.
Im looking forward to reading through all your posts.
I am 26, sex has always been painful but got worse the older I got and the more fed up with it I got, its near agony now. To add to this I have had unusual discharge my whole life. Every now and then I would seek help from my Doctor but its taken this long to get anywhere. I was told once "if it looks like thrush its probably thrush"......... Finally I found a nice doctor who confirmed once more I don't have thrush, that theres no obvious cause for my discharge and it may or may not be related to the pain (there was talk of possible internal scarring). So far treatment has been focussed on controlling the discharge, it looks like im using a weekly lotion for the rest of my life. Having just had another relationship end, I really am sick of this. I am a sexual person and I want a fulfilling sexual relationship, I am entitled to one. Having read about all of you using numbing gels I really feel that's my best shot. The pain feels like its about an inch or less inside. Like my muscles wont stretch properly like they should. Of course they do but its like being stabbed with a burning sensation afterwards. I have an appointment in 2 weeks and I will demand a numbing gel. I know there's mental issues with this, I have had psychosexual therapy but I feel the best thing for me mentally is to achieve full intercourse and see myself doing that. I also saw a gynaecologist when I was 21 who did an ultrasound and confirmed everything was physically normal.
I have also bought an expensive vibrator to help me relax and stay relaxed during insertation.
I really wish I had the courage to seek and demand better help at an earlier age.
Im looking forward to reading through all your posts.
ElleJay- Posts : 1
Join date : 2013-02-11
Re: Sick of it
Do you maybe have vaginimus? That's muscles or does your skin actually hurt?
Alana3- Posts : 1090
Join date : 2012-09-25
Re: Sick of it
To me, It sounds like you have vulvodynia. In my case there was no visible sign of it..I didn't have a rash or irritated skin. I was told I had a perfectly healthy looking vagina. After seeing a few doctors vulvodynia was brought up. I was diagnosed about 3 years ago with provoked vestibuledynia. I have pain only when I'm touched down there, and it's only internal pain. I also have muscle tightness that I work on with dilators daily.
My suggestion for you is to join the NVA (National Vulvodynia Association) and find a specialist in your area. This site is very helpful, I will link it below:
http://www.nva.org/
You can only search for specialists if you are a member... you have to pay a donation to join, but it's worth it if you really want to find some good help. Also you could check your local hospitals for gynecologists. At one point I had run out of options with my one specialist and I was suggested by a family member to call my local hospital. They had 2 specialists in the maternity/ gyno. area of the hospital. I was so lucky!
Keep your head up! And good luck!
-Jen
My suggestion for you is to join the NVA (National Vulvodynia Association) and find a specialist in your area. This site is very helpful, I will link it below:
http://www.nva.org/
You can only search for specialists if you are a member... you have to pay a donation to join, but it's worth it if you really want to find some good help. Also you could check your local hospitals for gynecologists. At one point I had run out of options with my one specialist and I was suggested by a family member to call my local hospital. They had 2 specialists in the maternity/ gyno. area of the hospital. I was so lucky!
Keep your head up! And good luck!
-Jen
jen007- Posts : 151
Join date : 2012-11-05
Age : 25
Location : U.S.A
Re: Sick of it
Hey Elle,
It does sound like you have Vulvodynia...the same kind that I have! I also have the discharge, which based on all the reading I've done seems like it's called DIV (Desquamative Inflammatory Vaginitis). I have yet to really figure out what that means or what to do about that...
If you come across any info, let me know!
It does sound like you have Vulvodynia...the same kind that I have! I also have the discharge, which based on all the reading I've done seems like it's called DIV (Desquamative Inflammatory Vaginitis). I have yet to really figure out what that means or what to do about that...
If you come across any info, let me know!
raquelll- Posts : 14
Join date : 2012-07-01
Age : 30
Location : USA
Re: Sick of it
Sex has always been painful for me, and unless we really "work" at it, the times it's actually enjoyable for me are few and far between. Most of the time, it hurts when he's inserted in me, and I will suffer a burning pain when we're done. I often have to hold my vagina open to make it less painful, if that makes sense. I too do not feel like I'm able to open wide enough for him, even WITH lubrication. I always figured it was vaginismus, because even as a young girl I could not insert tampons. On the flip side, however, I'm able to insert a vibrator on my own without any pain if I'm masturbating, so I know a part of it has to be psychological (the pain).
Now that the doctor has diagnosed me with vulvodynia, I'm not so sure it was vaginismus the entire time, or maybe it was a combination of both.
I too have had unusual discharge since adolescence, never going a day without wearing a pantiliner just because I always have it. I was recently told to stop doing that, so I walk around with wet underwear daily. But I suppose the trade off is better -- I'd rather risk wet underwear than risk more yeast infections/pain.
Now that the doctor has diagnosed me with vulvodynia, I'm not so sure it was vaginismus the entire time, or maybe it was a combination of both.
I too have had unusual discharge since adolescence, never going a day without wearing a pantiliner just because I always have it. I was recently told to stop doing that, so I walk around with wet underwear daily. But I suppose the trade off is better -- I'd rather risk wet underwear than risk more yeast infections/pain.
carby148- Posts : 17
Join date : 2013-02-04
Age : 31
Location : East Bay Area
Re: Sick of it
carby148,
I totally understand how you feel. When my boyfriend and I used to have sex I couldn't even do it. Like I couldn't get him in. It was always so close to happening, but it was much too painful. I'd be left with a burning firey feeling and had to soak in a tub right away. It was awful. I recently had surgery so I no longer have that problem, but I know how it feels. I also had the discharge issue. I used to wear liners all the time, seriously it felt like I peed my pants or something. Somethings to try...change your underwear to 100% cotton if you haven't already. It's supposed to keep moisture away which causes yeast. Also try using an unscented soap like ivory soap. Some soaps can be irritating, but the ivory soap has been good to me since I've started using it. Even try using feminine wipes to keep the area extra clean.
Hope this helps!
-Jen
I totally understand how you feel. When my boyfriend and I used to have sex I couldn't even do it. Like I couldn't get him in. It was always so close to happening, but it was much too painful. I'd be left with a burning firey feeling and had to soak in a tub right away. It was awful. I recently had surgery so I no longer have that problem, but I know how it feels. I also had the discharge issue. I used to wear liners all the time, seriously it felt like I peed my pants or something. Somethings to try...change your underwear to 100% cotton if you haven't already. It's supposed to keep moisture away which causes yeast. Also try using an unscented soap like ivory soap. Some soaps can be irritating, but the ivory soap has been good to me since I've started using it. Even try using feminine wipes to keep the area extra clean.
Hope this helps!
-Jen
jen007- Posts : 151
Join date : 2012-11-05
Age : 25
Location : U.S.A
Re: Sick of it
Ella,
I'm so sorry you are dealing with this horrible issue and can relate all too well. I empathize it's upsetting and angering at the sametime, I remember when I was first diagnosed I thought why does everyone else my age get to enjoy this? I want to, I have needs, cravings too, I want this, so why can't I do this without being in excruciating pain and lingering pain for days after? I haven't been diagnosed with vulvodynia, but I found this blog and the postings fit ALL of my issues to a T. I have been diagnosed with IC, intersestial cystitis and pelvic floor damage, however I'm and have been experiencing what you explained since my problem and diagnoses first stared. I went in several times thinking it was a yeast infection I seemed to get everytime I was intimate or tried to be but it never came up positive? My OBGYN also checked for STD's which where pretty unlikely I've only been with one person, although he has been with others in the past but still nothing. My Dr said it's so odd, it's almost like my body is acting like I'm having an allergic reaction to my husband, which I have heard can happen and you can actually be allergic to sperm however using birth control I've ruled thar out. I also am extremely careful about the lubricants I use, only a natural vagasil (like your own bodies natural moisture) and coconut oil, also we've switched to non latex condoms to try to help avoid any sensitivity I may have to any products we use. I don't know if any of this is helpful but although I have not been officially diagnosed with vulvodynia I just assumed these symptoms where part of IC and my pelvic floor dysfunction.
I'm so sorry you are dealing with this horrible issue and can relate all too well. I empathize it's upsetting and angering at the sametime, I remember when I was first diagnosed I thought why does everyone else my age get to enjoy this? I want to, I have needs, cravings too, I want this, so why can't I do this without being in excruciating pain and lingering pain for days after? I haven't been diagnosed with vulvodynia, but I found this blog and the postings fit ALL of my issues to a T. I have been diagnosed with IC, intersestial cystitis and pelvic floor damage, however I'm and have been experiencing what you explained since my problem and diagnoses first stared. I went in several times thinking it was a yeast infection I seemed to get everytime I was intimate or tried to be but it never came up positive? My OBGYN also checked for STD's which where pretty unlikely I've only been with one person, although he has been with others in the past but still nothing. My Dr said it's so odd, it's almost like my body is acting like I'm having an allergic reaction to my husband, which I have heard can happen and you can actually be allergic to sperm however using birth control I've ruled thar out. I also am extremely careful about the lubricants I use, only a natural vagasil (like your own bodies natural moisture) and coconut oil, also we've switched to non latex condoms to try to help avoid any sensitivity I may have to any products we use. I don't know if any of this is helpful but although I have not been officially diagnosed with vulvodynia I just assumed these symptoms where part of IC and my pelvic floor dysfunction.
Sadgirl- Posts : 4
Join date : 2013-03-18
Re: Sick of it
I have the horrible discharge and went through the constant assumptions by doctors that it's yeast. Turned out to be DIV (desquamative inflammatory vaginitis).
geog272- Posts : 2
Join date : 2013-07-05
Re: Sick of it
I have the pain with all arousal too..I've done physical therapy, nerve blocks, and meds. My insurance doesn't cover Botox so idk what else to do. My pain is so bad that I can't work or go to school, last Sunday I was having spasms that were so bad it was like I was having a baby
Princess-j13- Posts : 3
Join date : 2013-07-11

» Sick Parades
» 8 weeks post op. Sick with Flu and not wanting to eat!!
» My little Girl is sick!
» Man urinating blood
» The Angel of the Lord taking me into a room of sick eagles.
» 8 weeks post op. Sick with Flu and not wanting to eat!!
» My little Girl is sick!
» Man urinating blood
» The Angel of the Lord taking me into a room of sick eagles.
Page 1 of 1
Permissions in this forum:
You cannot reply to topics in this forum
» Pain management - what works for me
» Share your Vulvodynia Story and become a member of the Global Anthology!
» If it helps anyone else
» Cured, cyst in foot
» HELP!! Topical cream?
» The pain CAN get better - What's worked for me
» Custom made leggings?
» Please tell me this can get better