Vulvodynia Support
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» Hope to all my suffering ladies
Starting a new relationship EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Starting a new relationship EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Starting a new relationship EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Starting a new relationship EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Starting a new relationship EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Starting a new relationship EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Starting a new relationship EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Starting a new relationship EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Starting a new relationship EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Starting a new relationship

2 posters

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Starting a new relationship Empty Starting a new relationship

Post  happynerd Tue Feb 05, 2013 2:37 pm

Hi all, I have had two long term relationships in my life. One lasted 6 years but we never had sex because it was too painful for me. The second one lasted two years and for the first 5 months I used to just grit my teeth and bear it. I would make sure that he never looked at me during sex as I usually had tears streaming down my face. After 5 months I thought it was time to tell. He was not understanding and for the next 18 months the relationship was torture until I finally got the courage to leave.

In between these I have had lots of dates and for most of them it would get to the point where we had sex and then I would never hear from them again and this is even if I didnt tell them about my problem.

Well I have now met a guy who I quite like, more than I have liked someone in a long time. We have only been on three dates but we have been chatting for months before we dated so I feel like I know him pretty well. The only problem is it has now got to the point where this weekend he will probably want sex. I am attracted to him but I feel sick to my stomach at the thought of having sex. I dont want to have to pretend I'm having a great time while secretly I am crying inside and screaming inside my head. I feel like what is the point in carrying on with this guy because I know I am in for 6 months of pain as I endure sex. If I tell him, chances are he will go, they all have in the past. If I dont tell him, he may still go meaning I have put up with the pain of sex for no reason. Sorry I just needed to vent this all out somewhere.

happynerd

Posts : 2
Join date : 2013-01-09

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Starting a new relationship Empty Re: Starting a new relationship

Post  jen007 Tue Feb 05, 2013 9:33 pm

Hi happynerd,

I too have been in a long term relationship since the beginning, I've been with my guy for 7 years now and we just started having sex recently. I had surgery this past summer to try and get rid of my vulvodynia and for the most part it did, but sex still isn't great. I'm hoping eventually it'll get better with practice.

Sex isn't everything in a relationship. Plus theres other things you can do other than actual penetrative sex, which is much less painful. You could tell him you want to take things slow because you really like him and don't want to go too fast. Don't feel obligated to give yourself to this guy. It's not fair to you, you shouldn't force yourself to suffer through sex. It's not going to help your condition if you keep irritating yourself. Also if you've known this guy for a while and trust him I'd say tell him about it in a discrete way. I used to tell people I had nerve damage for a long time just so I didn't have to explain my constant doctors visits.

If you really feel the need to have sex with this guy you could try 5% lidocaine cream/gel. It temporarily numbs the area you put it on. I'm not sure if you can get this over the counter, but you could have your gyno, or who ever is taking care of your vulvodyina, to write you a prescription for it.

-Jen

jen007

Posts : 152
Join date : 2012-11-05
Age : 31
Location : U.S.A

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