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Sat May 26, 2018 5:21 pm by Aquaben

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» Cleveland Clinic - Pain Management, Weston, FL
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Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Vulva and labia has turned dark brown

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Vulva and labia has turned dark brown

Post  BpCookie on Wed Feb 13, 2013 6:18 pm

Hi girls, I have Lichen Simplex Chronicus and I have noticed that in the last year my vulva and labia has turned DARK brown. I don't know if thats from the LSC, hormones (I'm peri-menopausal), the A and D ointment that I use very often, age (Im 48) or ???? Have any of you noticed that the area is turning darker? At first I thought it was my imagination but I use a hand mirror and check the area a number of times every day. I know for a fact that my vulva area was a healthy pink color before this all started and now its a gross dark brown color. I am terrified that it will turn to leather, just like all those gross pictures that I have seen on Yahoo and Google. Two years ago I asked my Gyno if THAT was going to happen to me and she said NO. I don't know who to trust any more. I mean, did my Gyno tell me that just to ease my mind? Ive seen other Gyno's before and none of them have said anything about the dark color, so I never worried about it till now.

Thanks

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Re: Vulva and labia has turned dark brown

Post  Sarah001 on Wed Feb 13, 2013 6:47 pm

As far as I know it's an age thing, the older we get the more likely the area is to darken. I'm nearly 40 and mine has darkened in small areas so nothing to worry about but also no way of avoiding the "leather" look eventually!! Laughing
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Re: Vulva and labia has turned dark brown

Post  BpCookie on Wed Feb 13, 2013 9:00 pm

Thank you sssssoooo very much for your reply. OMG I was so worried and freaking out. I saw all those horrible and gross pictures of womens vulvas that were brown, shriveled up, swollen, etc. Of course those pictures are the very worst thing that could happen. Im always afraid it will happen to me. Thank again. You have eased my mind. Smile
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Re: Vulva and labia has turned dark brown

Post  Alana3 on Wed Feb 13, 2013 9:20 pm

If it worries you that much, why not go to the doctor? Just to be sure! But yeah, like everything else your vajayjay is going to change as you age. I have seen those pics, and my doc actually treats LS patients, so he explained it to me too, and I understand why you're worried. Honestly, keep an eye on it, if it gets worse, go to the doc, but it's probably just changing as you change Smile Are you doing any kind of treatments for it? Good luck, it's probably nothing, I freak out over EVERYTHING too!!! And I also check mine out too, I'd say if it doesn't change any in a month, you're fine, but for peace of mind, I'd go to the doc just to be sure! And keep in mind, the pics on the internet are probably way worse than what really happens eek! Feel better Very Happy

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Re: Vulva and labia has turned dark brown

Post  BpCookie on Wed Feb 13, 2013 11:45 pm

Alana, yup, I freak out about any change in my vagina. lol. Im like vulva paranoid. I wonder if there is a phobia for that. Something like VulvaOuchiePhobia. This whole thing is a never ending nightmare.

Next time I see my gyno I will ask her about the darkened vulva. uuuggghhhh Ya never know what will happen next.

Thanks for the reply. Take care.
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Re: Vulva and labia has turned dark brown

Post  Alana3 on Thu Feb 14, 2013 3:13 pm

I think all of us are paranoid, I find one little thing and I'm like OH SHIT I HAVE WARTS! Of course it ends up being absolutely nothing, but I take something and run with it, I think it's just anxiety because of everything we have been thru. But yeah let us know what your doc says when you go for a visit, I'm sure you're fine (and I love how I'm like oh you're fine, but SHIT I HAVE WARTS, so much easier to give advice and tell someone not to panic, but when it comes to myself, well I have the worst thing that could ever happen). VulvaOuchie lmao that's amazing Smile Feel better!

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Re: Vulva and labia has turned dark brown

Post  Sarah001 on Thu Feb 14, 2013 6:18 pm

Try not to worry cookie, when I noticed my colour change I was seeing a vulvar dermatologist and I thought if anyone would know the answer it would be her so I asked and got told it was age related and nothing to worry about so it was an informed reply not a flippant one! I think we all spend so much time examining our lady bits we're noticing things other women are never aware of, it's easy to get carried away with our findings and assume it must be something bad because of the pain too. I'm sure you'll get a similar answer to me when you ask and it won't be anything bad. Wink
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Re: Vulva and labia has turned dark brown

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