Log in

I forgot my password

Latest topics
» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


V in Georgia

Go down

V in Georgia

Post  meelie on Sat Feb 16, 2013 5:56 pm

I live in Georgia midway between Atlanta and Macon. Is there anyone on here that knows a Dr. or even a physical therapist that is anywhere in my area?

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  Alana3 on Sat Feb 16, 2013 6:41 pm

Why don't you check out the obgyn program at Emory?

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: V in Georgia

Post  meelie on Sat Feb 16, 2013 9:11 pm

I did, thanks. Nothing I can brag about. The Dr. I saw didn't seem to give a rip. I was very disappointed and left in tears.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  Alana3 on Sat Feb 16, 2013 9:26 pm

Oh sorry I thought it sounded like a good idea. I have a good doc if you can make it to Florida. I found him by searching vulvodynia specialists in Florida maybe you can do that for Georgia?

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: V in Georgia

Post  meelie on Sat Feb 16, 2013 10:14 pm

What are you taking and/or doing for your V? I started neurontin 5 weeks ago, it was helping but now my face has turned fire engine red on one side and feels like sandpaper and starting to turn red on the other side. I believe it is a side effect so I didn't take any last night and I'm burning pretty bad today. Redness remains. I really think I am coming to the end of my rope. Where in Florida is your Dr.?

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  Alana3 on Sun Feb 17, 2013 12:37 am

I got a vestibulectomy in December. He is in west palm beach. I was at the end of my rope too I understand

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Dr. in Augusta, GA

Post  Applejax on Mon Feb 18, 2013 1:33 am

I am currently seeing a specialist in Augusta, GA who is very knowledgeable about treating vulvodynia. His name is Daron G. Ferris, MD and his clinic is at the Georgia Health Sciences University (used to be called MCG). The number is 706-721-4959. Let me know if you need more info.

Applejax

Posts : 18
Join date : 2013-01-29

View user profile

Back to top Go down

Re: V in Georgia

Post  meelie on Mon Feb 18, 2013 2:57 pm

hey thanks. where do you live?

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  Applejax on Mon Feb 18, 2013 9:07 pm

I live in Aiken, SC which is about 20 minutes from Augusta, GA. I found Dr. Ferris in December and absolutely love him! He is a very compassionate dr. and also has a terrific nurse. I went to him thinking I had vulvodynia and was relieved to finally find someone who knew about this condition. It ends up I actually have several things that have contributed to my pain - all very identifiable and treatable. No other doctor was willing to take my pain seriously. I'm still quite angry about that. How long have you had vulvodynia?

Applejax

Posts : 18
Join date : 2013-01-29

View user profile

Back to top Go down

Re: V in Georgia

Post  meelie on Mon Feb 18, 2013 9:35 pm

Have had it since Sept. 4, diagnosed in October myself because I had a gyn that kept beating around the bush, same old story yeast, Rx didn't work, smears and stuff taken for VB after two weeks more of antibiotics and more yeast medicine he finally acknowledged me that it was vulvodynia. The only suggestion he had was Estrace vaginally 2 x a week, I'm 65 and have been on po hormone for years, and then he started talking about injections (down there) and I was in tears. He suggested I see someone at Emory, I did and she was even less helpful, suggested I use estrace (a dab everyday on the vulva) and I had to ask if she wanted me to come back, she was less than enthusiastic about the whole thing. She is a uro-gyn and was suggested to me by the gyn department. Left in tears and pain. Finally called my regular gyn and she was more helpful than the other two and actually cared. I didn't go to her at first because I live and she is practicing in a small town and after reading so much I had convinced myself that she probably wouldn't know anything or care. I am going back to see her for a 6 week check this Friday. I went ahead and started back on the neurontin last night. I just couldn't take it anymore. I will see a specialist about my red face if she isn't able to help me here.
So, I'm waiting for Friday and if she doesn't know anymore I will definitely call and make an appointment with your Dr. It's a long drive but I will go anywhere if I know I can get help.
I will let you know what she says on Friday.
Thanks for your information and your caring. I'm so glad I found this site. I really thought I was the only one with this horrible curse.
I know it isn't life threatening but sometimes that can be worse, thinking that it will never go away. And reading about so many other women, younger and older, that have had it for so many years is really scary but then there are good stories too. I must concentrate on the good stories.
I know mine is related to "pelvic floor dysfunction" , my own diagnosis since I have been fighting constipation all my life and the pain started after a particularly bad episode of constipation and straining, but no one (Dr's) seem interested in that part of my story. I'm just praying that she or he will know a PT that isn't too far that I might go to if I need that kind of help. Believe me I have been working on my digestive tract since Sept. And here is some irony, I have been a GI nurse for years but can't get my own digestion to cooperate without a whole lot of planning and supplements on my part.
Hope this didn't bore you, it's just so good to "talk" to someone who knows what it is like and cares that I am in pain. Even my best friend can't understand. Thanks.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  meelie on Mon Feb 18, 2013 10:01 pm

Is your Dr. a gyn or a uro-gyn? I found a group in Augusta, on the internet, that are called The Pelvic specialist but they don't have the same number and I don't see you Dr.s name, so it must be a different place. Have you ever heard of them?

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  Applejax on Tue Feb 19, 2013 1:48 am

Thank you for your willingness to share your story. It is a difficult subject to talk about but can be such a relief to share it with others who really do understand. Before October, I had never heard of "vulvodynia" and also had no idea so many other women were suffering. My particular condition only causes me pain with intercourse - not a constant, everyday pain. Unfortunately, every doctor I've been to has told me I'm perfectly fine (physically) and most led me to believe it was a psychological issue. So, after having suffered with it for 18 years, I'm relieved to finally have a doctor who knows what's causing the pain and can treat it.

My first phase of treatment was geared toward fixing problems that hormones have caused. Specifically, removing a hormone IUD (was depleting estrogen and causing major skin tearing problems) and applying premarin cream to restore the skin. That treatment went well and so now I'm facing the next phase which involves surgery. This isn't a surgery that most would need - it is to correct an anatomical defect I have. I haven't decided what I'm going to do about the surgery. I don't really feel ready to move ahead with it yet. 18 years of painful sex has wreaked havoc on my marriage and has created all sorts of emotional and mental difficulties. I have an appointment Thursday with a psychologist/sex therapist who Dr. Ferris highly recommended for me. I'm hoping to find some help with the current state of anger I'm finding myself in.

Dr Ferris is a gyn but is considered a specialist in the area of vulvodynia. He was the only Dr listed in Augusta on the NVA list of providers for GA. I don't know if there are other doctors in Augusta who treat vulvodynia, but the only other Augusta provider on the NVA list is a PT - Teresa Parton, ph#706-868-1707. If you want to PM me your email address, I can email you the list. It would give you a lot of other options, maybe closer to where you live.

Applejax

Posts : 18
Join date : 2013-01-29

View user profile

Back to top Go down

Re: V in Georgia

Post  Applejax on Fri Feb 22, 2013 4:15 pm

meelie, I hope your appointment goes well today!

Applejax

Posts : 18
Join date : 2013-01-29

View user profile

Back to top Go down

Re: V in Georgia

Post  meelie on Sat Feb 23, 2013 1:26 am

Thanks Applejax, it was good I guess. She doesn't think the skin issue is related to what I am taken. We agreed on continuing with the same meds for 6 months and see what is going on then.
The meds are taken the edge off of the pain and i am going to continue with my Chiropractor every two weeks and get that ladies' book about the exercise. Dr. doesn't know any good PT's around here that are educated in PFD. So we are going to see what I can learn from the book.
How are you doing?

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  Applejax on Sat Feb 23, 2013 4:25 pm

Glad to hear your appointment went fairly well and you have a path forward with the meds and chiro. However, it seems like 6 months is an awfully long time to 'wait and see' - at least it would be for me. Sorry she didn't know of a PT she could refer you to. If you're still interested in pursuing the PT, there are 7 GA (supposedly knowledgeable) PT's on the list I have from NVA. I would love to get this list to you as I had offered in a previous post. However, I completely understand if you don't want to give out your email. I'm registered on this forum totally anonymous (even with a 'junk' email account) as I am very cautious about privacy issues online.

Keep us updated on how things are going!

Applejax

Posts : 18
Join date : 2013-01-29

View user profile

Back to top Go down

Re: V in Georgia

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum