Log in

I forgot my password

Latest topics
» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


V in Georgia

View previous topic View next topic Go down

V in Georgia

Post  meelie on Sat Feb 16, 2013 5:56 pm

I live in Georgia midway between Atlanta and Macon. Is there anyone on here that knows a Dr. or even a physical therapist that is anywhere in my area?

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  Alana3 on Sat Feb 16, 2013 6:41 pm

Why don't you check out the obgyn program at Emory?

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: V in Georgia

Post  meelie on Sat Feb 16, 2013 9:11 pm

I did, thanks. Nothing I can brag about. The Dr. I saw didn't seem to give a rip. I was very disappointed and left in tears.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  Alana3 on Sat Feb 16, 2013 9:26 pm

Oh sorry I thought it sounded like a good idea. I have a good doc if you can make it to Florida. I found him by searching vulvodynia specialists in Florida maybe you can do that for Georgia?

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: V in Georgia

Post  meelie on Sat Feb 16, 2013 10:14 pm

What are you taking and/or doing for your V? I started neurontin 5 weeks ago, it was helping but now my face has turned fire engine red on one side and feels like sandpaper and starting to turn red on the other side. I believe it is a side effect so I didn't take any last night and I'm burning pretty bad today. Redness remains. I really think I am coming to the end of my rope. Where in Florida is your Dr.?

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  Alana3 on Sun Feb 17, 2013 12:37 am

I got a vestibulectomy in December. He is in west palm beach. I was at the end of my rope too I understand

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Dr. in Augusta, GA

Post  Applejax on Mon Feb 18, 2013 1:33 am

I am currently seeing a specialist in Augusta, GA who is very knowledgeable about treating vulvodynia. His name is Daron G. Ferris, MD and his clinic is at the Georgia Health Sciences University (used to be called MCG). The number is 706-721-4959. Let me know if you need more info.

Applejax

Posts : 18
Join date : 2013-01-29

View user profile

Back to top Go down

Re: V in Georgia

Post  meelie on Mon Feb 18, 2013 2:57 pm

hey thanks. where do you live?

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  Applejax on Mon Feb 18, 2013 9:07 pm

I live in Aiken, SC which is about 20 minutes from Augusta, GA. I found Dr. Ferris in December and absolutely love him! He is a very compassionate dr. and also has a terrific nurse. I went to him thinking I had vulvodynia and was relieved to finally find someone who knew about this condition. It ends up I actually have several things that have contributed to my pain - all very identifiable and treatable. No other doctor was willing to take my pain seriously. I'm still quite angry about that. How long have you had vulvodynia?

Applejax

Posts : 18
Join date : 2013-01-29

View user profile

Back to top Go down

Re: V in Georgia

Post  meelie on Mon Feb 18, 2013 9:35 pm

Have had it since Sept. 4, diagnosed in October myself because I had a gyn that kept beating around the bush, same old story yeast, Rx didn't work, smears and stuff taken for VB after two weeks more of antibiotics and more yeast medicine he finally acknowledged me that it was vulvodynia. The only suggestion he had was Estrace vaginally 2 x a week, I'm 65 and have been on po hormone for years, and then he started talking about injections (down there) and I was in tears. He suggested I see someone at Emory, I did and she was even less helpful, suggested I use estrace (a dab everyday on the vulva) and I had to ask if she wanted me to come back, she was less than enthusiastic about the whole thing. She is a uro-gyn and was suggested to me by the gyn department. Left in tears and pain. Finally called my regular gyn and she was more helpful than the other two and actually cared. I didn't go to her at first because I live and she is practicing in a small town and after reading so much I had convinced myself that she probably wouldn't know anything or care. I am going back to see her for a 6 week check this Friday. I went ahead and started back on the neurontin last night. I just couldn't take it anymore. I will see a specialist about my red face if she isn't able to help me here.
So, I'm waiting for Friday and if she doesn't know anymore I will definitely call and make an appointment with your Dr. It's a long drive but I will go anywhere if I know I can get help.
I will let you know what she says on Friday.
Thanks for your information and your caring. I'm so glad I found this site. I really thought I was the only one with this horrible curse.
I know it isn't life threatening but sometimes that can be worse, thinking that it will never go away. And reading about so many other women, younger and older, that have had it for so many years is really scary but then there are good stories too. I must concentrate on the good stories.
I know mine is related to "pelvic floor dysfunction" , my own diagnosis since I have been fighting constipation all my life and the pain started after a particularly bad episode of constipation and straining, but no one (Dr's) seem interested in that part of my story. I'm just praying that she or he will know a PT that isn't too far that I might go to if I need that kind of help. Believe me I have been working on my digestive tract since Sept. And here is some irony, I have been a GI nurse for years but can't get my own digestion to cooperate without a whole lot of planning and supplements on my part.
Hope this didn't bore you, it's just so good to "talk" to someone who knows what it is like and cares that I am in pain. Even my best friend can't understand. Thanks.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  meelie on Mon Feb 18, 2013 10:01 pm

Is your Dr. a gyn or a uro-gyn? I found a group in Augusta, on the internet, that are called The Pelvic specialist but they don't have the same number and I don't see you Dr.s name, so it must be a different place. Have you ever heard of them?

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  Applejax on Tue Feb 19, 2013 1:48 am

Thank you for your willingness to share your story. It is a difficult subject to talk about but can be such a relief to share it with others who really do understand. Before October, I had never heard of "vulvodynia" and also had no idea so many other women were suffering. My particular condition only causes me pain with intercourse - not a constant, everyday pain. Unfortunately, every doctor I've been to has told me I'm perfectly fine (physically) and most led me to believe it was a psychological issue. So, after having suffered with it for 18 years, I'm relieved to finally have a doctor who knows what's causing the pain and can treat it.

My first phase of treatment was geared toward fixing problems that hormones have caused. Specifically, removing a hormone IUD (was depleting estrogen and causing major skin tearing problems) and applying premarin cream to restore the skin. That treatment went well and so now I'm facing the next phase which involves surgery. This isn't a surgery that most would need - it is to correct an anatomical defect I have. I haven't decided what I'm going to do about the surgery. I don't really feel ready to move ahead with it yet. 18 years of painful sex has wreaked havoc on my marriage and has created all sorts of emotional and mental difficulties. I have an appointment Thursday with a psychologist/sex therapist who Dr. Ferris highly recommended for me. I'm hoping to find some help with the current state of anger I'm finding myself in.

Dr Ferris is a gyn but is considered a specialist in the area of vulvodynia. He was the only Dr listed in Augusta on the NVA list of providers for GA. I don't know if there are other doctors in Augusta who treat vulvodynia, but the only other Augusta provider on the NVA list is a PT - Teresa Parton, ph#706-868-1707. If you want to PM me your email address, I can email you the list. It would give you a lot of other options, maybe closer to where you live.

Applejax

Posts : 18
Join date : 2013-01-29

View user profile

Back to top Go down

Re: V in Georgia

Post  Applejax on Fri Feb 22, 2013 4:15 pm

meelie, I hope your appointment goes well today!

Applejax

Posts : 18
Join date : 2013-01-29

View user profile

Back to top Go down

Re: V in Georgia

Post  meelie on Sat Feb 23, 2013 1:26 am

Thanks Applejax, it was good I guess. She doesn't think the skin issue is related to what I am taken. We agreed on continuing with the same meds for 6 months and see what is going on then.
The meds are taken the edge off of the pain and i am going to continue with my Chiropractor every two weeks and get that ladies' book about the exercise. Dr. doesn't know any good PT's around here that are educated in PFD. So we are going to see what I can learn from the book.
How are you doing?

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: V in Georgia

Post  Applejax on Sat Feb 23, 2013 4:25 pm

Glad to hear your appointment went fairly well and you have a path forward with the meds and chiro. However, it seems like 6 months is an awfully long time to 'wait and see' - at least it would be for me. Sorry she didn't know of a PT she could refer you to. If you're still interested in pursuing the PT, there are 7 GA (supposedly knowledgeable) PT's on the list I have from NVA. I would love to get this list to you as I had offered in a previous post. However, I completely understand if you don't want to give out your email. I'm registered on this forum totally anonymous (even with a 'junk' email account) as I am very cautious about privacy issues online.

Keep us updated on how things are going!

Applejax

Posts : 18
Join date : 2013-01-29

View user profile

Back to top Go down

Re: V in Georgia

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum