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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 4

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


V in Georgia

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V in Georgia

Post  meelie on Sat Feb 16, 2013 5:56 pm

I live in Georgia midway between Atlanta and Macon. Is there anyone on here that knows a Dr. or even a physical therapist that is anywhere in my area?

meelie

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Re: V in Georgia

Post  Alana3 on Sat Feb 16, 2013 6:41 pm

Why don't you check out the obgyn program at Emory?

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Re: V in Georgia

Post  meelie on Sat Feb 16, 2013 9:11 pm

I did, thanks. Nothing I can brag about. The Dr. I saw didn't seem to give a rip. I was very disappointed and left in tears.

meelie

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Re: V in Georgia

Post  Alana3 on Sat Feb 16, 2013 9:26 pm

Oh sorry I thought it sounded like a good idea. I have a good doc if you can make it to Florida. I found him by searching vulvodynia specialists in Florida maybe you can do that for Georgia?

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Re: V in Georgia

Post  meelie on Sat Feb 16, 2013 10:14 pm

What are you taking and/or doing for your V? I started neurontin 5 weeks ago, it was helping but now my face has turned fire engine red on one side and feels like sandpaper and starting to turn red on the other side. I believe it is a side effect so I didn't take any last night and I'm burning pretty bad today. Redness remains. I really think I am coming to the end of my rope. Where in Florida is your Dr.?

meelie

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Re: V in Georgia

Post  Alana3 on Sun Feb 17, 2013 12:37 am

I got a vestibulectomy in December. He is in west palm beach. I was at the end of my rope too I understand

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Dr. in Augusta, GA

Post  Applejax on Mon Feb 18, 2013 1:33 am

I am currently seeing a specialist in Augusta, GA who is very knowledgeable about treating vulvodynia. His name is Daron G. Ferris, MD and his clinic is at the Georgia Health Sciences University (used to be called MCG). The number is 706-721-4959. Let me know if you need more info.

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Re: V in Georgia

Post  meelie on Mon Feb 18, 2013 2:57 pm

hey thanks. where do you live?

meelie

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Re: V in Georgia

Post  Applejax on Mon Feb 18, 2013 9:07 pm

I live in Aiken, SC which is about 20 minutes from Augusta, GA. I found Dr. Ferris in December and absolutely love him! He is a very compassionate dr. and also has a terrific nurse. I went to him thinking I had vulvodynia and was relieved to finally find someone who knew about this condition. It ends up I actually have several things that have contributed to my pain - all very identifiable and treatable. No other doctor was willing to take my pain seriously. I'm still quite angry about that. How long have you had vulvodynia?

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Re: V in Georgia

Post  meelie on Mon Feb 18, 2013 9:35 pm

Have had it since Sept. 4, diagnosed in October myself because I had a gyn that kept beating around the bush, same old story yeast, Rx didn't work, smears and stuff taken for VB after two weeks more of antibiotics and more yeast medicine he finally acknowledged me that it was vulvodynia. The only suggestion he had was Estrace vaginally 2 x a week, I'm 65 and have been on po hormone for years, and then he started talking about injections (down there) and I was in tears. He suggested I see someone at Emory, I did and she was even less helpful, suggested I use estrace (a dab everyday on the vulva) and I had to ask if she wanted me to come back, she was less than enthusiastic about the whole thing. She is a uro-gyn and was suggested to me by the gyn department. Left in tears and pain. Finally called my regular gyn and she was more helpful than the other two and actually cared. I didn't go to her at first because I live and she is practicing in a small town and after reading so much I had convinced myself that she probably wouldn't know anything or care. I am going back to see her for a 6 week check this Friday. I went ahead and started back on the neurontin last night. I just couldn't take it anymore. I will see a specialist about my red face if she isn't able to help me here.
So, I'm waiting for Friday and if she doesn't know anymore I will definitely call and make an appointment with your Dr. It's a long drive but I will go anywhere if I know I can get help.
I will let you know what she says on Friday.
Thanks for your information and your caring. I'm so glad I found this site. I really thought I was the only one with this horrible curse.
I know it isn't life threatening but sometimes that can be worse, thinking that it will never go away. And reading about so many other women, younger and older, that have had it for so many years is really scary but then there are good stories too. I must concentrate on the good stories.
I know mine is related to "pelvic floor dysfunction" , my own diagnosis since I have been fighting constipation all my life and the pain started after a particularly bad episode of constipation and straining, but no one (Dr's) seem interested in that part of my story. I'm just praying that she or he will know a PT that isn't too far that I might go to if I need that kind of help. Believe me I have been working on my digestive tract since Sept. And here is some irony, I have been a GI nurse for years but can't get my own digestion to cooperate without a whole lot of planning and supplements on my part.
Hope this didn't bore you, it's just so good to "talk" to someone who knows what it is like and cares that I am in pain. Even my best friend can't understand. Thanks.

meelie

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Re: V in Georgia

Post  meelie on Mon Feb 18, 2013 10:01 pm

Is your Dr. a gyn or a uro-gyn? I found a group in Augusta, on the internet, that are called The Pelvic specialist but they don't have the same number and I don't see you Dr.s name, so it must be a different place. Have you ever heard of them?

meelie

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Re: V in Georgia

Post  Applejax on Tue Feb 19, 2013 1:48 am

Thank you for your willingness to share your story. It is a difficult subject to talk about but can be such a relief to share it with others who really do understand. Before October, I had never heard of "vulvodynia" and also had no idea so many other women were suffering. My particular condition only causes me pain with intercourse - not a constant, everyday pain. Unfortunately, every doctor I've been to has told me I'm perfectly fine (physically) and most led me to believe it was a psychological issue. So, after having suffered with it for 18 years, I'm relieved to finally have a doctor who knows what's causing the pain and can treat it.

My first phase of treatment was geared toward fixing problems that hormones have caused. Specifically, removing a hormone IUD (was depleting estrogen and causing major skin tearing problems) and applying premarin cream to restore the skin. That treatment went well and so now I'm facing the next phase which involves surgery. This isn't a surgery that most would need - it is to correct an anatomical defect I have. I haven't decided what I'm going to do about the surgery. I don't really feel ready to move ahead with it yet. 18 years of painful sex has wreaked havoc on my marriage and has created all sorts of emotional and mental difficulties. I have an appointment Thursday with a psychologist/sex therapist who Dr. Ferris highly recommended for me. I'm hoping to find some help with the current state of anger I'm finding myself in.

Dr Ferris is a gyn but is considered a specialist in the area of vulvodynia. He was the only Dr listed in Augusta on the NVA list of providers for GA. I don't know if there are other doctors in Augusta who treat vulvodynia, but the only other Augusta provider on the NVA list is a PT - Teresa Parton, ph#706-868-1707. If you want to PM me your email address, I can email you the list. It would give you a lot of other options, maybe closer to where you live.

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Re: V in Georgia

Post  Applejax on Fri Feb 22, 2013 4:15 pm

meelie, I hope your appointment goes well today!

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Re: V in Georgia

Post  meelie on Sat Feb 23, 2013 1:26 am

Thanks Applejax, it was good I guess. She doesn't think the skin issue is related to what I am taken. We agreed on continuing with the same meds for 6 months and see what is going on then.
The meds are taken the edge off of the pain and i am going to continue with my Chiropractor every two weeks and get that ladies' book about the exercise. Dr. doesn't know any good PT's around here that are educated in PFD. So we are going to see what I can learn from the book.
How are you doing?

meelie

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Re: V in Georgia

Post  Applejax on Sat Feb 23, 2013 4:25 pm

Glad to hear your appointment went fairly well and you have a path forward with the meds and chiro. However, it seems like 6 months is an awfully long time to 'wait and see' - at least it would be for me. Sorry she didn't know of a PT she could refer you to. If you're still interested in pursuing the PT, there are 7 GA (supposedly knowledgeable) PT's on the list I have from NVA. I would love to get this list to you as I had offered in a previous post. However, I completely understand if you don't want to give out your email. I'm registered on this forum totally anonymous (even with a 'junk' email account) as I am very cautious about privacy issues online.

Keep us updated on how things are going!

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Re: V in Georgia

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