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    » What's next?
    Yesterday at 4:01 pm by jennyk2

    » Pain management - what works for me
    Yesterday at 3:41 pm by Jo44

    » Share your Vulvodynia Story and become a member of the Global Anthology!
    Mon Apr 23, 2018 10:44 pm by smyerskelley

    » If it helps anyone else
    Mon Apr 23, 2018 6:36 pm by VH7797

    » Cured, cyst in foot
    Mon Apr 23, 2018 4:06 pm by Guest

    » HELP!! Topical cream?
    Sun Apr 22, 2018 5:44 pm by emalita

    » The pain CAN get better - What's worked for me
    Sun Apr 22, 2018 5:32 pm by emalita

    » Custom made leggings?
    Sun Apr 22, 2018 4:52 am by CatJones

    » Please tell me this can get better
    Sun Apr 15, 2018 11:31 am by amf329

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 4

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 3

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35

    Somebody please help me...

    Fri Nov 24, 2017 8:05 am by Andlag

    Hey everyone,

    since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

    Comments: 14

    Lidocaine with condoms?

    Wed Mar 21, 2018 10:44 pm by AEM1

    Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
    Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

    Comments: 1

    Constant pain, I want to die.

    Fri Jun 02, 2017 4:29 am by Meggiemay

    I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

    For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

    Comments: 23

    Recently Diagnosed which has motivated my research study

    Tue Mar 06, 2018 4:54 pm by ebclose2free

    Hi everyone,

    My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

    Comments: 0

    MAY HAVE FOUND A CURE- PLEASE READ

    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


    after having a vestibulectomy with no success, I decided to visit …

    Comments: 3

    New and desperate for advice

    Sat Mar 03, 2018 2:37 pm by srbry

    Hi everyone,

    I'm new here and was told to find a support group because this is all getting a bit much really...

    I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

    Comments: 3


    Just Diagnosed

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    Just Diagnosed

    Post  carby148 on Wed Feb 20, 2013 10:51 pm

    So I haven't posted since I registered about two weeks ago (you can read my story in the story thread). Today was my appointment. The good news is at this point in time, I'm finally clear of yeast but will continue with my current treatment of Diflucan and Terazol for this month and next month.

    The bad news, although expected, was the diagnosis of Vulvodynia. Apparently I have a mild case, and my first mode of treatment will be a five day application of Lidocaine with a cotton ball at night (apparently I leave the cotton ball between my labia overnight). Has anyone done this?

    Although Vulvodynia is going to change some things for me, I'm so relieved that I finally have a diagnosis and an alternate form of treatment. I was so tired of getting told it's just a yeast infection and to go on my merry way. The woman I met with was so kind and patient, and reassured me it was NOT in my head.

    She also assured me that we will try various treatments, and worse case scenario, she said she has a contact of one of the top docs in our area who knows about Vulvodynia. So that made me feel a bit better as well.

    So glad I signed up here, thanks for letting me share!
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    carby148

    Posts : 17
    Join date : 2013-02-04
    Age : 31
    Location : East Bay Area

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    Re: Just Diagnosed

    Post  jen007 on Wed Feb 20, 2013 11:05 pm

    Hi carby148,

    Happy to hear you were properly diagnosed and found a good doctor! I too had tried the lidocaine on a cotton ball at night. For me it didn't really change anything, but we are all different..maybe it will work for you. If it doesn't don't get too down, there are many things you can try.

    Please keep us posted on your journey!

    -Jen

    jen007

    Posts : 151
    Join date : 2012-11-05
    Age : 25
    Location : U.S.A

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