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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Looking For Answers. Comparing Notes.

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Looking For Answers. Comparing Notes.

Post  BpCookie on Wed Feb 20, 2013 10:58 pm

I have Lichen Simplex Chronicus which pretty much causes the same symptoms as Vulvodynia. My Gyno's some times calls it Vulvodynia. I wanted to ask a few questions to see if any one has any of these things in common.

1. peri menopause, menopause or hormone problems?

2. has anyone had a uterine ablation done?

3. any STD's? (I had vaginal warts and my dr. froze them off, three damn times. I still have scaring)

4. use a vibrator before all of this happened?

5. Problems with a lot of yeast infections?

6. Problems with lots of UTI's?

7. Any back pain issues before all of this started?

Take care everyone and keep sitting on those ice packs.

hugs

The burning bush
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Re: Looking For Answers. Comparing Notes.

Post  Alana3 on Thu Feb 21, 2013 11:19 am

I had yeast, uti and back pain

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Re: Looking For Answers. Comparing Notes.

Post  BpCookie on Thu Feb 21, 2013 4:01 pm

Hey Alana hun, no hormone problems? Like messed up periods, skipping periods or having them too often? Just wondering. Also, did you have back problems before all of this happened or after? Before the Vulvodynia, my upper back and neck hurt, then about one year after I got this, my lower back and tail bone started hurting. I think the lower back is due to how I sit because it hurts too much to sit the way that I normally would.
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Re: Looking For Answers. Comparing Notes.

Post  Alana3 on Thu Feb 21, 2013 4:31 pm

I mean my periods were crazy before I got on birth control, but I was 14 when I got put on it and haven't been off since and I'm 27 now. But, my periods were crazy and super heavy, but its apparently a very common problem and supposedly changes after you go thru puberty, but I like my pill too much to get off it. My periods screwed up after my vestibulectomy and I was on BC, but it was because of anaesthesia. Its back to normal now, thankfully. I have tight muscles, and my lower back and hip hurt pretty bad especially right before my period- but I have to say I am a very active person, I horseback ride, workout, yoga, zumba, etc, so I don't really know what is connected and what isn't. Have you done acupuncture? It works so well!



I seriously don't think you're going to find the why to your problem, I finally just accepted it, it would be like trying to figure out why someone got Leukemia or Lupus or something. They're both terrible, but there's probably not an answer to the problem. But more importantly, there is a fix. I would think that would drive me crazy thinking everything causes it. And honestly, there's nothing you can do about it, shoot for a cure, not the why's.

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Re: Looking For Answers. Comparing Notes.

Post  Alana3 on Thu Feb 21, 2013 4:36 pm

And that last part wasnt meant as bitchy, I'm like an hour before my periods coming and my hooha is on fire what a terrible feeling, I hate my vag!

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Re: Looking For Answers. Comparing Notes.

Post  Kathy100 on Fri Feb 22, 2013 12:47 pm

Hi,

1. Yes - have breakthrough bleeds (even thou on pill) which last about a week - moods go haywire & feel very tired. After doing ultrasound /hysterscopy / smear - gynae now thinks hormonal - possible start of menopause. I'm 47. Happy days.....

No STDS or yeast infections.

4. Yes - but not internally.

6. Problems with UTIs (but tests always clear) & pain with sex long before I was diagnosed & told all in my head.

7. Used to get pain in shoulders & neck before it started but think that was down to sitting in front of PC all day. Now get muscular pain in tailbone, across backside and down my legs...am doing stretches for this which help. Lower back is starting to hurt too... The pain is worse around the breakthrough bleed time. I was pretty active before this started zumba, gym etc. Now I don't have energy to get through Zumba class ... Got an appointment at the pain clinic today so am hoping to get some answers. The specialist I saw thinks mine all started with IBS, aggravated by the UTIs and gradually got worse so now my whole pelvis is clenched up which is causing all the pain.

Take care & good luck xx

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Re: Looking For Answers. Comparing Notes.

Post  Kathye10 on Fri Feb 22, 2013 5:22 pm

The Burning Bush....That's what I call myself at this point...haha.

1.) Not sure, haven't had my hormone levels checked yet.
2.) No
3.) No, but I've showed positive (recently) for a few different types of bacteria which were treated by numerous antibiotics, externally and oral pill form.
4.) Externally
5.) I get yeast infections once every few years, but nothing a 3 day treatment didn't cure.
6.) Never had one before (thankfully)
7.) Always had lower back problems. Core is not strengthened at ALL, which I believe is why my back is so messed up

I know V is not the a "cause", it's a symptom of something deeper. I am going to see a specialist in a few weeks to try to pin point what might be the cause. I'm going to assume it's either over medication and my nerves decided to have a party down there when no one invited them OR from all of the pain, my pelvic floor muscles have tightened so badly that this is my "cause."

It seems like the women who finally pin point the cause usually get better or make a full recovery. I'm wishing that for ALL of us! Very Happy
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Re: Looking For Answers. Comparing Notes.

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