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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Looking For Answers. Comparing Notes.

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Looking For Answers. Comparing Notes.

Post  BpCookie on Wed Feb 20, 2013 10:58 pm

I have Lichen Simplex Chronicus which pretty much causes the same symptoms as Vulvodynia. My Gyno's some times calls it Vulvodynia. I wanted to ask a few questions to see if any one has any of these things in common.

1. peri menopause, menopause or hormone problems?

2. has anyone had a uterine ablation done?

3. any STD's? (I had vaginal warts and my dr. froze them off, three damn times. I still have scaring)

4. use a vibrator before all of this happened?

5. Problems with a lot of yeast infections?

6. Problems with lots of UTI's?

7. Any back pain issues before all of this started?

Take care everyone and keep sitting on those ice packs.

hugs

The burning bush
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Re: Looking For Answers. Comparing Notes.

Post  Alana3 on Thu Feb 21, 2013 11:19 am

I had yeast, uti and back pain

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Re: Looking For Answers. Comparing Notes.

Post  BpCookie on Thu Feb 21, 2013 4:01 pm

Hey Alana hun, no hormone problems? Like messed up periods, skipping periods or having them too often? Just wondering. Also, did you have back problems before all of this happened or after? Before the Vulvodynia, my upper back and neck hurt, then about one year after I got this, my lower back and tail bone started hurting. I think the lower back is due to how I sit because it hurts too much to sit the way that I normally would.
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Re: Looking For Answers. Comparing Notes.

Post  Alana3 on Thu Feb 21, 2013 4:31 pm

I mean my periods were crazy before I got on birth control, but I was 14 when I got put on it and haven't been off since and I'm 27 now. But, my periods were crazy and super heavy, but its apparently a very common problem and supposedly changes after you go thru puberty, but I like my pill too much to get off it. My periods screwed up after my vestibulectomy and I was on BC, but it was because of anaesthesia. Its back to normal now, thankfully. I have tight muscles, and my lower back and hip hurt pretty bad especially right before my period- but I have to say I am a very active person, I horseback ride, workout, yoga, zumba, etc, so I don't really know what is connected and what isn't. Have you done acupuncture? It works so well!



I seriously don't think you're going to find the why to your problem, I finally just accepted it, it would be like trying to figure out why someone got Leukemia or Lupus or something. They're both terrible, but there's probably not an answer to the problem. But more importantly, there is a fix. I would think that would drive me crazy thinking everything causes it. And honestly, there's nothing you can do about it, shoot for a cure, not the why's.

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Re: Looking For Answers. Comparing Notes.

Post  Alana3 on Thu Feb 21, 2013 4:36 pm

And that last part wasnt meant as bitchy, I'm like an hour before my periods coming and my hooha is on fire what a terrible feeling, I hate my vag!

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Re: Looking For Answers. Comparing Notes.

Post  Kathy100 on Fri Feb 22, 2013 12:47 pm

Hi,

1. Yes - have breakthrough bleeds (even thou on pill) which last about a week - moods go haywire & feel very tired. After doing ultrasound /hysterscopy / smear - gynae now thinks hormonal - possible start of menopause. I'm 47. Happy days.....

No STDS or yeast infections.

4. Yes - but not internally.

6. Problems with UTIs (but tests always clear) & pain with sex long before I was diagnosed & told all in my head.

7. Used to get pain in shoulders & neck before it started but think that was down to sitting in front of PC all day. Now get muscular pain in tailbone, across backside and down my legs...am doing stretches for this which help. Lower back is starting to hurt too... The pain is worse around the breakthrough bleed time. I was pretty active before this started zumba, gym etc. Now I don't have energy to get through Zumba class ... Got an appointment at the pain clinic today so am hoping to get some answers. The specialist I saw thinks mine all started with IBS, aggravated by the UTIs and gradually got worse so now my whole pelvis is clenched up which is causing all the pain.

Take care & good luck xx

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Re: Looking For Answers. Comparing Notes.

Post  Kathye10 on Fri Feb 22, 2013 5:22 pm

The Burning Bush....That's what I call myself at this point...haha.

1.) Not sure, haven't had my hormone levels checked yet.
2.) No
3.) No, but I've showed positive (recently) for a few different types of bacteria which were treated by numerous antibiotics, externally and oral pill form.
4.) Externally
5.) I get yeast infections once every few years, but nothing a 3 day treatment didn't cure.
6.) Never had one before (thankfully)
7.) Always had lower back problems. Core is not strengthened at ALL, which I believe is why my back is so messed up

I know V is not the a "cause", it's a symptom of something deeper. I am going to see a specialist in a few weeks to try to pin point what might be the cause. I'm going to assume it's either over medication and my nerves decided to have a party down there when no one invited them OR from all of the pain, my pelvic floor muscles have tightened so badly that this is my "cause."

It seems like the women who finally pin point the cause usually get better or make a full recovery. I'm wishing that for ALL of us! Very Happy
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Re: Looking For Answers. Comparing Notes.

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