Log in

I forgot my password

Latest topics
» Vulvodynia is a secret
Today at 1:59 am by ryn207

» does anyone else have nocturnal itching?
Yesterday at 4:57 pm by aspaceodyssey

» Pressure to have sex.
Yesterday at 4:30 pm by aspaceodyssey

» Looking for a friend..... and new problems
Thu Jan 18, 2018 5:08 pm by PainBlogger

» Can you guys tell me your experiences with diflucan/Fluconazole?
Thu Jan 18, 2018 3:07 pm by RainyShay77

» Vestibulectomy today and no pain
Thu Jan 18, 2018 4:53 am by Sandra4372

» Reviews on Amy Stein's Book and Methods
Thu Jan 18, 2018 4:51 am by Sandra4372

» Dilator Discount Code
Thu Jan 18, 2018 4:48 am by Sandra4372

» Why don't more women know about pelvic pt?
Thu Jan 18, 2018 4:39 am by Sandra4372

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


New here . . .

View previous topic View next topic Go down

New here . . .

Post  irwinswife on Fri Feb 22, 2013 12:39 am

My name is Tina, and I believe I have vulvodynia. My vulva is always very irritated and itchy. I also have interstitial cystitis (have had it for over 20 years). I live in the Atlanta area.

irwinswife

Posts : 2
Join date : 2013-02-22

View user profile

Back to top Go down

Re: New here . . .

Post  meelie on Sat Feb 23, 2013 1:22 am

Hi Tina, just saw your post. I live in Barnesville just south of Griffin north of Macon. I was started burning Sept. 4, was diagnosed in October.
As far as I know I don't have IC but everything I read says they seem to go hand and hand. My came after bouts with IBS and then some awful constipation.
I went to two Dr.s, one a "specialist" at Emory and the other here in Griffin. I finally gave in and went to my regular gyn thinking she can't be any worse. I think she actually knows something and I know she cares. She has me on Neurontin 300mg at bedtime and Flexeril two times a day.'I also take Xanax at night to sleep. I have been on these for 7 weeks now and so far I am better, as long as I take my medicine. I came off the Neurontin for 2 days thinking it was causing a skin problem on my face and the pain came back horribly. It doesn't completely go away but it at least takes the edge off and actually goes away as I sleep. Comes back as the day goes on. I truly believe it is a result of bunched up pelvic floor muscles and or a pudental nerve being pinched. I had a horse riding accident 4/30/2011 and broke my left pelvis and have been sitting on my right buttock for almost a year and a half when this started. At least this is what we are working with. I also have been going to my chiropractor since October once I had the guts to tell him what is wrong and asked if he could help. He said he thought so.
Anyway, I'm going to keep this up for at least 6 more months before I try and come off of any of the medicines.
Tell me about yourself.

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: New here . . .

Post  Sadgirl on Mon Mar 18, 2013 1:05 pm

For starters Tina, as well as Meekie, I'm so sorry your both dealing with this and I empathize greatly. Sad I have been dealing with the issue of IC and pelvic floor damage for more than eight years. I havent figured out which it is linked to I was raped around that time, and shortly after i had my first child whom was breach and i had to have an emergency c-section. In addition I suffer from IBS and have since puberty, the Dr's also did some additional testing due to having numbness, pain, tingling in my legs and the extent of pain I have in my lower back even without intercourse and also found I suffer from arthritis. Which was a little surprising, not at all what I was expecting I guess it's common to some degree but I'm only 31 and have arthritis like one would see in someone 45+ not my age. There's nothing really they could do just offer me pain medicine which is not what I want or would fix the problem so I opted not to. I have done physical therapy for years, and medications, stress release (excersise, meditation, stretching, hobbies, etc), but recently had a consult with another physical therapist that specializes in IC and pelvic floor damage and said she would work on internal therapy? My past IC and pelvic floor damage therapist worked on stretching, excursuses, and a little adjustments like a chiropractor. I have found much relief with message therapy, too bad my insurance won't cover it even when written as a prescription. I have no idea what this means and quiet honestly am pretty nervous to guess. I'm wondering if any of you have tried this, what it entails and has it been successful? I'm a very modest person
and this condition makes that difficult to begin with, as scared as I'm if this could help I
might try it, but to go through something that sounds pretty humiliating and have it not help I don't know I could handle that well.

Sadgirl

Posts : 4
Join date : 2013-03-18

View user profile

Back to top Go down

Re: New here . . .

Post  irwinswife on Mon Mar 18, 2013 2:22 pm

My apologies for not getting back sooner. I did do internal massage with a practitioner for a while, and then the insurance wouldn't pay for it anymore. The internal work I had done just involved someone with a gloved hand inserting a finger into the vagina, pressing, and then releasing. I guess that would be myofascial pain release?

Sadgirl, it's just similar to having a pelvic exam. Do pelvics bother you, either physically, modestwise, or both?

irwinswife

Posts : 2
Join date : 2013-02-22

View user profile

Back to top Go down

Re: New here . . .

Post  meelie on Mon Mar 18, 2013 2:29 pm

Don't think I could handle the internal massage or stretching. What kind of other massage do they do? Is there anything I can do myself and get my husband to do. I just can't afford to go to a PT we are both on Social Security and Medicare and they don't pay for much.
Do you know anything either one of us can do outside the vagina? Question

meelie

Posts : 136
Join date : 2013-01-09
Location : Barnesville, Ga

View user profile

Back to top Go down

Re: New here . . .

Post  Alana3 on Mon Mar 18, 2013 2:41 pm

Meelie,

I also had a horseback riding accident and hurt my right hip so everything on that side is jammed. Ouch! You can get a foam roller and roll on the side that hurts, it may help release it, they can be purchased at Sports Authority for like $20. But the internal pt helps a lot too, if you can stand it, you can get a vibrator or dilators and trigger the muscles yourself (I read that you couldn't afford a therapist). It's gonna kill at first, but its worth it. Also, an exercise you can try is to breathe out and stick out your stomach as far as it can go, it releases the muscles and feels so good!!! Try getting a prescription for valium and putting the pill in your vagina, that may help too! Just don't get too hooked on prescriptions and do too much at once, you won't know what's helping (or hindering) your pain.

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New here . . .

Post  Applejax on Tue Mar 19, 2013 12:41 am

Sadgirl - what kind of arthritis do you have? I have rheumatoid arthritis and take medications to stop the progression of the disease and sort of keep it in remission. I don't like taking the meds but it's essential to keep it from getting worse. I'm also in the process of figuring out which treatment will be best for my vulvodynia. Right now, I don't have a definitive diagnosis or specific treatment plan. The doctors I've seen haven't agreed on what's causing my pain. Physical therapy was recommended by one of them. My husband naively said, "Well, at least it won't be invasive." I then explained to him that it isn't your normal 'run-of-the-mill' PT. He was pretty shocked about it. To be honest, I'm not sure I could handle it either. Right now I'm not too willing to endure any pain. I decided back in October that I was done with intercourse, so, pretty much done with pain until I decide on what the treatment will be.

Applejax

Posts : 18
Join date : 2013-01-29

View user profile

Back to top Go down

Re: New here . . .

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum