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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


New here . . .

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New here . . .

Post  Guest on Fri Feb 22, 2013 12:39 am

My name is Tina, and I believe I have vulvodynia. My vulva is always very irritated and itchy. I also have interstitial cystitis (have had it for over 20 years). I live in the Atlanta area.

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Re: New here . . .

Post  meelie on Sat Feb 23, 2013 1:22 am

Hi Tina, just saw your post. I live in Barnesville just south of Griffin north of Macon. I was started burning Sept. 4, was diagnosed in October.
As far as I know I don't have IC but everything I read says they seem to go hand and hand. My came after bouts with IBS and then some awful constipation.
I went to two Dr.s, one a "specialist" at Emory and the other here in Griffin. I finally gave in and went to my regular gyn thinking she can't be any worse. I think she actually knows something and I know she cares. She has me on Neurontin 300mg at bedtime and Flexeril two times a day.'I also take Xanax at night to sleep. I have been on these for 7 weeks now and so far I am better, as long as I take my medicine. I came off the Neurontin for 2 days thinking it was causing a skin problem on my face and the pain came back horribly. It doesn't completely go away but it at least takes the edge off and actually goes away as I sleep. Comes back as the day goes on. I truly believe it is a result of bunched up pelvic floor muscles and or a pudental nerve being pinched. I had a horse riding accident 4/30/2011 and broke my left pelvis and have been sitting on my right buttock for almost a year and a half when this started. At least this is what we are working with. I also have been going to my chiropractor since October once I had the guts to tell him what is wrong and asked if he could help. He said he thought so.
Anyway, I'm going to keep this up for at least 6 more months before I try and come off of any of the medicines.
Tell me about yourself.

meelie

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Location : Barnesville, Ga

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Re: New here . . .

Post  Sadgirl on Mon Mar 18, 2013 1:05 pm

For starters Tina, as well as Meekie, I'm so sorry your both dealing with this and I empathize greatly. Sad I have been dealing with the issue of IC and pelvic floor damage for more than eight years. I havent figured out which it is linked to I was raped around that time, and shortly after i had my first child whom was breach and i had to have an emergency c-section. In addition I suffer from IBS and have since puberty, the Dr's also did some additional testing due to having numbness, pain, tingling in my legs and the extent of pain I have in my lower back even without intercourse and also found I suffer from arthritis. Which was a little surprising, not at all what I was expecting I guess it's common to some degree but I'm only 31 and have arthritis like one would see in someone 45+ not my age. There's nothing really they could do just offer me pain medicine which is not what I want or would fix the problem so I opted not to. I have done physical therapy for years, and medications, stress release (excersise, meditation, stretching, hobbies, etc), but recently had a consult with another physical therapist that specializes in IC and pelvic floor damage and said she would work on internal therapy? My past IC and pelvic floor damage therapist worked on stretching, excursuses, and a little adjustments like a chiropractor. I have found much relief with message therapy, too bad my insurance won't cover it even when written as a prescription. I have no idea what this means and quiet honestly am pretty nervous to guess. I'm wondering if any of you have tried this, what it entails and has it been successful? I'm a very modest person
and this condition makes that difficult to begin with, as scared as I'm if this could help I
might try it, but to go through something that sounds pretty humiliating and have it not help I don't know I could handle that well.

Sadgirl

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Re: New here . . .

Post  Guest on Mon Mar 18, 2013 2:22 pm

My apologies for not getting back sooner. I did do internal massage with a practitioner for a while, and then the insurance wouldn't pay for it anymore. The internal work I had done just involved someone with a gloved hand inserting a finger into the vagina, pressing, and then releasing. I guess that would be myofascial pain release?

Sadgirl, it's just similar to having a pelvic exam. Do pelvics bother you, either physically, modestwise, or both?

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Re: New here . . .

Post  meelie on Mon Mar 18, 2013 2:29 pm

Don't think I could handle the internal massage or stretching. What kind of other massage do they do? Is there anything I can do myself and get my husband to do. I just can't afford to go to a PT we are both on Social Security and Medicare and they don't pay for much.
Do you know anything either one of us can do outside the vagina? Question

meelie

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Re: New here . . .

Post  Alana3 on Mon Mar 18, 2013 2:41 pm

Meelie,

I also had a horseback riding accident and hurt my right hip so everything on that side is jammed. Ouch! You can get a foam roller and roll on the side that hurts, it may help release it, they can be purchased at Sports Authority for like $20. But the internal pt helps a lot too, if you can stand it, you can get a vibrator or dilators and trigger the muscles yourself (I read that you couldn't afford a therapist). It's gonna kill at first, but its worth it. Also, an exercise you can try is to breathe out and stick out your stomach as far as it can go, it releases the muscles and feels so good!!! Try getting a prescription for valium and putting the pill in your vagina, that may help too! Just don't get too hooked on prescriptions and do too much at once, you won't know what's helping (or hindering) your pain.

Alana3

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Re: New here . . .

Post  Applejax on Tue Mar 19, 2013 12:41 am

Sadgirl - what kind of arthritis do you have? I have rheumatoid arthritis and take medications to stop the progression of the disease and sort of keep it in remission. I don't like taking the meds but it's essential to keep it from getting worse. I'm also in the process of figuring out which treatment will be best for my vulvodynia. Right now, I don't have a definitive diagnosis or specific treatment plan. The doctors I've seen haven't agreed on what's causing my pain. Physical therapy was recommended by one of them. My husband naively said, "Well, at least it won't be invasive." I then explained to him that it isn't your normal 'run-of-the-mill' PT. He was pretty shocked about it. To be honest, I'm not sure I could handle it either. Right now I'm not too willing to endure any pain. I decided back in October that I was done with intercourse, so, pretty much done with pain until I decide on what the treatment will be.

Applejax

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Re: New here . . .

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