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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


New here . . .

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New here . . .

Post  irwinswife on Fri Feb 22, 2013 12:39 am

My name is Tina, and I believe I have vulvodynia. My vulva is always very irritated and itchy. I also have interstitial cystitis (have had it for over 20 years). I live in the Atlanta area.

irwinswife

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Re: New here . . .

Post  meelie on Sat Feb 23, 2013 1:22 am

Hi Tina, just saw your post. I live in Barnesville just south of Griffin north of Macon. I was started burning Sept. 4, was diagnosed in October.
As far as I know I don't have IC but everything I read says they seem to go hand and hand. My came after bouts with IBS and then some awful constipation.
I went to two Dr.s, one a "specialist" at Emory and the other here in Griffin. I finally gave in and went to my regular gyn thinking she can't be any worse. I think she actually knows something and I know she cares. She has me on Neurontin 300mg at bedtime and Flexeril two times a day.'I also take Xanax at night to sleep. I have been on these for 7 weeks now and so far I am better, as long as I take my medicine. I came off the Neurontin for 2 days thinking it was causing a skin problem on my face and the pain came back horribly. It doesn't completely go away but it at least takes the edge off and actually goes away as I sleep. Comes back as the day goes on. I truly believe it is a result of bunched up pelvic floor muscles and or a pudental nerve being pinched. I had a horse riding accident 4/30/2011 and broke my left pelvis and have been sitting on my right buttock for almost a year and a half when this started. At least this is what we are working with. I also have been going to my chiropractor since October once I had the guts to tell him what is wrong and asked if he could help. He said he thought so.
Anyway, I'm going to keep this up for at least 6 more months before I try and come off of any of the medicines.
Tell me about yourself.

meelie

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Location : Barnesville, Ga

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Re: New here . . .

Post  Sadgirl on Mon Mar 18, 2013 1:05 pm

For starters Tina, as well as Meekie, I'm so sorry your both dealing with this and I empathize greatly. Sad I have been dealing with the issue of IC and pelvic floor damage for more than eight years. I havent figured out which it is linked to I was raped around that time, and shortly after i had my first child whom was breach and i had to have an emergency c-section. In addition I suffer from IBS and have since puberty, the Dr's also did some additional testing due to having numbness, pain, tingling in my legs and the extent of pain I have in my lower back even without intercourse and also found I suffer from arthritis. Which was a little surprising, not at all what I was expecting I guess it's common to some degree but I'm only 31 and have arthritis like one would see in someone 45+ not my age. There's nothing really they could do just offer me pain medicine which is not what I want or would fix the problem so I opted not to. I have done physical therapy for years, and medications, stress release (excersise, meditation, stretching, hobbies, etc), but recently had a consult with another physical therapist that specializes in IC and pelvic floor damage and said she would work on internal therapy? My past IC and pelvic floor damage therapist worked on stretching, excursuses, and a little adjustments like a chiropractor. I have found much relief with message therapy, too bad my insurance won't cover it even when written as a prescription. I have no idea what this means and quiet honestly am pretty nervous to guess. I'm wondering if any of you have tried this, what it entails and has it been successful? I'm a very modest person
and this condition makes that difficult to begin with, as scared as I'm if this could help I
might try it, but to go through something that sounds pretty humiliating and have it not help I don't know I could handle that well.

Sadgirl

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Re: New here . . .

Post  irwinswife on Mon Mar 18, 2013 2:22 pm

My apologies for not getting back sooner. I did do internal massage with a practitioner for a while, and then the insurance wouldn't pay for it anymore. The internal work I had done just involved someone with a gloved hand inserting a finger into the vagina, pressing, and then releasing. I guess that would be myofascial pain release?

Sadgirl, it's just similar to having a pelvic exam. Do pelvics bother you, either physically, modestwise, or both?

irwinswife

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Re: New here . . .

Post  meelie on Mon Mar 18, 2013 2:29 pm

Don't think I could handle the internal massage or stretching. What kind of other massage do they do? Is there anything I can do myself and get my husband to do. I just can't afford to go to a PT we are both on Social Security and Medicare and they don't pay for much.
Do you know anything either one of us can do outside the vagina? Question

meelie

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Re: New here . . .

Post  Alana3 on Mon Mar 18, 2013 2:41 pm

Meelie,

I also had a horseback riding accident and hurt my right hip so everything on that side is jammed. Ouch! You can get a foam roller and roll on the side that hurts, it may help release it, they can be purchased at Sports Authority for like $20. But the internal pt helps a lot too, if you can stand it, you can get a vibrator or dilators and trigger the muscles yourself (I read that you couldn't afford a therapist). It's gonna kill at first, but its worth it. Also, an exercise you can try is to breathe out and stick out your stomach as far as it can go, it releases the muscles and feels so good!!! Try getting a prescription for valium and putting the pill in your vagina, that may help too! Just don't get too hooked on prescriptions and do too much at once, you won't know what's helping (or hindering) your pain.

Alana3

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Re: New here . . .

Post  Applejax on Tue Mar 19, 2013 12:41 am

Sadgirl - what kind of arthritis do you have? I have rheumatoid arthritis and take medications to stop the progression of the disease and sort of keep it in remission. I don't like taking the meds but it's essential to keep it from getting worse. I'm also in the process of figuring out which treatment will be best for my vulvodynia. Right now, I don't have a definitive diagnosis or specific treatment plan. The doctors I've seen haven't agreed on what's causing my pain. Physical therapy was recommended by one of them. My husband naively said, "Well, at least it won't be invasive." I then explained to him that it isn't your normal 'run-of-the-mill' PT. He was pretty shocked about it. To be honest, I'm not sure I could handle it either. Right now I'm not too willing to endure any pain. I decided back in October that I was done with intercourse, so, pretty much done with pain until I decide on what the treatment will be.

Applejax

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Re: New here . . .

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