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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Do you know what your "cause" is?

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Re: Do you know what your "cause" is?

Post  Sarah001 on Tue May 07, 2013 5:57 pm

With me it was very, very obvious, my pelvis has been severely unstable for 9 years due to another condition and my V started after a physio had me use extra pelvic floor activity during exercise in an attempt to gain some stability, it didn't work and left me with V so an additional problem for the last 3 years of the 9. After being silly and doing as you say "fighting symptoms" I finally went to a women's health physio who checked my resting tone, 2 or below is normal, some women can have problems at 5 and around 15 was the highest she'd seen in 30 years so my resting tone of 20 that crept up to 29 when I was totally relaxed talking to her was a bit of a giveaway too! Because of my other condition I have to be very careful and can't have my pelvic floor released yet so I'm not a good example of typical PFD. I do find relaxing the pelvic floor helps my V though and clenching makes it much worse so again pretty obvious with me! Physio is a longterm situation so some women would be fine after a couple of months and others take much longer, the only way to know if you should stick with it is if there is still some trigger points and spasm to release and/or areas to realign and stabilise. Only a trained physio would be able to tell you if those problems exist on you and it really is worth going to one and finding out.
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Re: Do you know what your "cause" is?

Post  juleps on Tue May 07, 2013 7:21 pm

thanks for taking your time!
i also had pysio but it seems not to help me so well, although i also have to admit it is hard to find time forall the exercises al the time. but my physio concluded that i seemto have no issues to relax my muscles and it seems to be the skin.
now i dont know if i should just be more patient or assume that is not my ideal treatment.

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Re: Do you know what your "cause" is?

Post  Kathy100 on Wed May 08, 2013 10:47 am

Hi Juleps

I'm having physio at the moment too as I do have issues relaxing my muscles. Earlier on I went to see a vulval dermatologist to check whether it was a skin problem. For me it wasn't, so the next thing to try was physio. I think Sarah is right you have to know the cause so you can find the treatment that's the right one for you. Unfortunately this can take loads of time (and money). If you haven't already it may be worth seeing a dermatologist to check whether it is a skin problem. Good luck.

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Re: Do you know what your "cause" is?

Post  Kathye10 on Wed May 08, 2013 2:29 pm

Hi Girls,

I agree with Kathy, seeing a derm will definitely rule out certain skin problems and the biospy isn't that bad. If you can afford it, DO IT! Very Happy

I had a vulvar biopsy done. At the time I had folliculitus so it showed that I had that, and some other type of inflammation but no word on what it was. They ruled out skin diseases, so who knows. The process like you said, is lengthy, expensive and frustrating as hell. I'm seeing a PT on the 20th to rule out PFD. I have a feeling the muscles have a lot to do with it.
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Re: Do you know what your "cause" is?

Post  Alana3 on Wed May 08, 2013 3:11 pm

I saw a vulvar specialist, best thing going, expensive as hell, but so worth it in the end! If you can find one you should go seriously Smile

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Re: Do you know what your "cause" is?

Post  juleps on Wed May 08, 2013 4:41 pm

ok so a dermatologist?
what and how do they tests things?
does anyone actually have the skin as the issue as the seems for most people it´s muscles?!

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Re: Do you know what your "cause" is?

Post  Alana3 on Wed May 08, 2013 5:11 pm

Mine was skin and nerves once I had the surgery I was fine but no dermatologist is going to be able to diagnose vv unless they're specializing in vulva issues

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Re: Do you know what your "cause" is?

Post  Kathye10 on Wed May 08, 2013 7:07 pm

They will need to biopsy a piece of your skin. Some ladies have this due to a skin condition, others bacterial/yeast issues, others pelvic muscle probs, etc. Try and find a derm that specializes in the vulva.
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Re: Do you know what your "cause" is?

Post  Sarah001 on Wed May 08, 2013 7:08 pm

I saw a vulvar dermatologist, there are a handful in the uk and they travel around the hospitals and run one clinic a month in several they cover so yes there are vulvar dermatologists out there and they also deal with prescribing pain meds for V too if it turns out not to be a dermatological issue. A biopsy is a possibility when you see one but it depends what there is to see.
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Re: Do you know what your "cause" is?

Post  Kathy100 on Thu May 09, 2013 10:42 am

Mine examined me but didn't do a biopsy as she said the skin was healthy.

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Re: Do you know what your "cause" is?

Post  Ridgwell on Sat Jun 08, 2013 1:15 pm

When the pain started for me during sex I just kept saying it would fade that it was just an odd circumstance that wouldn't last. Weeks of this I finally went to the doctor who told me I had thrush which I treated and the first time I had sex afterwards the pain was gone. Then next time it was back. I went back to the doctor and had multiple tests again an everything came back clear and so I was sent away. This happened with multiple doctors and the pain continued until I was finally diagnosed with vulvodynia. As they say the cause is often unknown, but I think the cause for myself may have been the thrush

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Re: Do you know what your "cause" is?

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