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» Struggling
Yesterday at 3:19 am by doublej

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Wed Dec 13, 2017 5:17 pm by Katiej

» Amitriptyline Success and new-found love
Mon Dec 11, 2017 2:47 am by hannah22

» Went Away and Came Back
Sun Dec 10, 2017 8:48 pm by lindsey_taylor

» Somebody please help me...
Sat Dec 09, 2017 5:46 pm by PainBlogger

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 09, 2017 4:40 pm by mary jane

» 7 years later and life looks bleak :(
Thu Dec 07, 2017 12:37 am by sarisbaris

» Laser or Botox Injections for treating vulvodynia
Wed Dec 06, 2017 6:04 am by sarisbaris

» difficult to treat vaginal infections, un-understanding docotrs
Wed Dec 06, 2017 2:52 am by RainyShay77

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Do you know what your "cause" is?

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Re: Do you know what your "cause" is?

Post  Sarah001 on Tue May 07, 2013 5:57 pm

With me it was very, very obvious, my pelvis has been severely unstable for 9 years due to another condition and my V started after a physio had me use extra pelvic floor activity during exercise in an attempt to gain some stability, it didn't work and left me with V so an additional problem for the last 3 years of the 9. After being silly and doing as you say "fighting symptoms" I finally went to a women's health physio who checked my resting tone, 2 or below is normal, some women can have problems at 5 and around 15 was the highest she'd seen in 30 years so my resting tone of 20 that crept up to 29 when I was totally relaxed talking to her was a bit of a giveaway too! Because of my other condition I have to be very careful and can't have my pelvic floor released yet so I'm not a good example of typical PFD. I do find relaxing the pelvic floor helps my V though and clenching makes it much worse so again pretty obvious with me! Physio is a longterm situation so some women would be fine after a couple of months and others take much longer, the only way to know if you should stick with it is if there is still some trigger points and spasm to release and/or areas to realign and stabilise. Only a trained physio would be able to tell you if those problems exist on you and it really is worth going to one and finding out.
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Re: Do you know what your "cause" is?

Post  juleps on Tue May 07, 2013 7:21 pm

thanks for taking your time!
i also had pysio but it seems not to help me so well, although i also have to admit it is hard to find time forall the exercises al the time. but my physio concluded that i seemto have no issues to relax my muscles and it seems to be the skin.
now i dont know if i should just be more patient or assume that is not my ideal treatment.

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Re: Do you know what your "cause" is?

Post  Kathy100 on Wed May 08, 2013 10:47 am

Hi Juleps

I'm having physio at the moment too as I do have issues relaxing my muscles. Earlier on I went to see a vulval dermatologist to check whether it was a skin problem. For me it wasn't, so the next thing to try was physio. I think Sarah is right you have to know the cause so you can find the treatment that's the right one for you. Unfortunately this can take loads of time (and money). If you haven't already it may be worth seeing a dermatologist to check whether it is a skin problem. Good luck.

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Re: Do you know what your "cause" is?

Post  Kathye10 on Wed May 08, 2013 2:29 pm

Hi Girls,

I agree with Kathy, seeing a derm will definitely rule out certain skin problems and the biospy isn't that bad. If you can afford it, DO IT! Very Happy

I had a vulvar biopsy done. At the time I had folliculitus so it showed that I had that, and some other type of inflammation but no word on what it was. They ruled out skin diseases, so who knows. The process like you said, is lengthy, expensive and frustrating as hell. I'm seeing a PT on the 20th to rule out PFD. I have a feeling the muscles have a lot to do with it.
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Re: Do you know what your "cause" is?

Post  Alana3 on Wed May 08, 2013 3:11 pm

I saw a vulvar specialist, best thing going, expensive as hell, but so worth it in the end! If you can find one you should go seriously Smile

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Re: Do you know what your "cause" is?

Post  juleps on Wed May 08, 2013 4:41 pm

ok so a dermatologist?
what and how do they tests things?
does anyone actually have the skin as the issue as the seems for most people it´s muscles?!

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Re: Do you know what your "cause" is?

Post  Alana3 on Wed May 08, 2013 5:11 pm

Mine was skin and nerves once I had the surgery I was fine but no dermatologist is going to be able to diagnose vv unless they're specializing in vulva issues

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Re: Do you know what your "cause" is?

Post  Kathye10 on Wed May 08, 2013 7:07 pm

They will need to biopsy a piece of your skin. Some ladies have this due to a skin condition, others bacterial/yeast issues, others pelvic muscle probs, etc. Try and find a derm that specializes in the vulva.
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Re: Do you know what your "cause" is?

Post  Sarah001 on Wed May 08, 2013 7:08 pm

I saw a vulvar dermatologist, there are a handful in the uk and they travel around the hospitals and run one clinic a month in several they cover so yes there are vulvar dermatologists out there and they also deal with prescribing pain meds for V too if it turns out not to be a dermatological issue. A biopsy is a possibility when you see one but it depends what there is to see.
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Re: Do you know what your "cause" is?

Post  Kathy100 on Thu May 09, 2013 10:42 am

Mine examined me but didn't do a biopsy as she said the skin was healthy.

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Re: Do you know what your "cause" is?

Post  Ridgwell on Sat Jun 08, 2013 1:15 pm

When the pain started for me during sex I just kept saying it would fade that it was just an odd circumstance that wouldn't last. Weeks of this I finally went to the doctor who told me I had thrush which I treated and the first time I had sex afterwards the pain was gone. Then next time it was back. I went back to the doctor and had multiple tests again an everything came back clear and so I was sent away. This happened with multiple doctors and the pain continued until I was finally diagnosed with vulvodynia. As they say the cause is often unknown, but I think the cause for myself may have been the thrush

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Re: Do you know what your "cause" is?

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