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» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

» Newbie and feeling helpless
Thu Jul 12, 2018 6:35 pm by emalita

» Using dilators
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» Hello. In Need of Advice, Please and Thank You. Long Read.
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From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0


Has anyone experienced more pain after doing pelvic floor exercises?

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Has anyone experienced more pain after doing pelvic floor exercises?

Post  Sunflower82 on Sun Feb 24, 2013 9:12 am

Hi,
I've been seeing a women's health physio for a year and a bit, worked on lots of massage a release work. Adventually I got referred on the Nhs the first session I got told to do pelvic floor exercises. I tried but experienced pain in my tummy,my stomached muscels when I started this whole physio process were so tight and I have spend a lot of time trying to relax them so I stopped do the pelvic floor exercise and went back. This time I was examined and I find it hard to tell the difference between squeezing and releasing and most of the time I'm not releasing completley.

Anyway to cut a long story short within a hour it felt like someone was pulling in my stomach muscles in and I got so much pain that has lasted a week over the pubic symphysis bone it's like someone has kicked me really hard in that area, been putting ice there but don't know what else to do ?


Anyone experienced this?
Many thanks

Kt

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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  Sarah001 on Sun Feb 24, 2013 2:25 pm

Yes, if I do kegels my pain shoots through the roof and if you can't tell the difference between contracting and releasing chances are you're not releasing properly. You can buy feedback items to tell you when you're doing this, there's one and the name escapes me I'm afraid but it's really cheap and consists of a plastic probe with a plastic wand on the outside and the wand moves down when you contract and up when you release so you know what you're doing. Has the physio not got access to a biofeedback machine to give you some sessions so you get used to how it feels? Just sending you away with kegels after all your hard work to relax the muscles is very sloppy practice and you need to stop them until you've either had a go on a machine with the physio or you get something to give you feedback. I've got one of the ones with a plastic wand and I'm pretty sure I bought it on Amazon so have a look on there for pelvic floor exercisers and you'll see what it is, cost about £10 I think. Also you need to start slowly, low reps at first so you don't overdo it. The transversus abs co-contracts with the pelvic floor which could be your abdominal pain or it could be you're doing them completely wrong and hitting the rectus abs instead.
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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  riag on Tue Mar 05, 2013 1:42 am

I get conflicting advice from my drs and physical therapist. Kegels make my vulvodynia worse. the physical therapist insisted upon it. saying to focus more on the release than the contraction because my pelvic muscles are too tight. my gyn and urologist say no kegels at all. Who do you listen too? mY urologist just recommended a new physical therapist and I am going for an evaluation tomorrow.

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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  cba321 on Tue Mar 05, 2013 7:48 pm

I have a tight pelvic floor, no one has ever suggested kegels. I have done biofeedback and increasing awareness of muscles while attempting to release the pelvic floor and surrounding hip stomach and butt muscles. My pelvic floor physio gets me to squeeze or contract first then release as much as possible but never exercise. I get quite a bit of pain after release with the physio and also chiro appts in my stomach, SI joint, lumbar spine, butt and sometimes thigh adductors. I have been told this is normal as I am cchanging a lot in my body, changing things to where they should be and my body is it is not used to it.

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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  Sarah001 on Tue Mar 05, 2013 8:45 pm

I've tried both doing kegels and not doing kegels and I think it's which one works for you, if kegels cause more pain you shouldn't be doing them at this stage, fully relax the pelvic floor then reassess and see if you need kegels is what I would go with.
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Re: Has anyone experienced more pain after doing pelvic floor exercises?

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