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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Has anyone experienced more pain after doing pelvic floor exercises?

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Has anyone experienced more pain after doing pelvic floor exercises?

Post  Sunflower82 on Sun Feb 24, 2013 9:12 am

I've been seeing a women's health physio for a year and a bit, worked on lots of massage a release work. Adventually I got referred on the Nhs the first session I got told to do pelvic floor exercises. I tried but experienced pain in my tummy,my stomached muscels when I started this whole physio process were so tight and I have spend a lot of time trying to relax them so I stopped do the pelvic floor exercise and went back. This time I was examined and I find it hard to tell the difference between squeezing and releasing and most of the time I'm not releasing completley.

Anyway to cut a long story short within a hour it felt like someone was pulling in my stomach muscles in and I got so much pain that has lasted a week over the pubic symphysis bone it's like someone has kicked me really hard in that area, been putting ice there but don't know what else to do ?

Anyone experienced this?
Many thanks



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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  Sarah001 on Sun Feb 24, 2013 2:25 pm

Yes, if I do kegels my pain shoots through the roof and if you can't tell the difference between contracting and releasing chances are you're not releasing properly. You can buy feedback items to tell you when you're doing this, there's one and the name escapes me I'm afraid but it's really cheap and consists of a plastic probe with a plastic wand on the outside and the wand moves down when you contract and up when you release so you know what you're doing. Has the physio not got access to a biofeedback machine to give you some sessions so you get used to how it feels? Just sending you away with kegels after all your hard work to relax the muscles is very sloppy practice and you need to stop them until you've either had a go on a machine with the physio or you get something to give you feedback. I've got one of the ones with a plastic wand and I'm pretty sure I bought it on Amazon so have a look on there for pelvic floor exercisers and you'll see what it is, cost about £10 I think. Also you need to start slowly, low reps at first so you don't overdo it. The transversus abs co-contracts with the pelvic floor which could be your abdominal pain or it could be you're doing them completely wrong and hitting the rectus abs instead.

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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  riag on Tue Mar 05, 2013 1:42 am

I get conflicting advice from my drs and physical therapist. Kegels make my vulvodynia worse. the physical therapist insisted upon it. saying to focus more on the release than the contraction because my pelvic muscles are too tight. my gyn and urologist say no kegels at all. Who do you listen too? mY urologist just recommended a new physical therapist and I am going for an evaluation tomorrow.


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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  cba321 on Tue Mar 05, 2013 7:48 pm

I have a tight pelvic floor, no one has ever suggested kegels. I have done biofeedback and increasing awareness of muscles while attempting to release the pelvic floor and surrounding hip stomach and butt muscles. My pelvic floor physio gets me to squeeze or contract first then release as much as possible but never exercise. I get quite a bit of pain after release with the physio and also chiro appts in my stomach, SI joint, lumbar spine, butt and sometimes thigh adductors. I have been told this is normal as I am cchanging a lot in my body, changing things to where they should be and my body is it is not used to it.


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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  Sarah001 on Tue Mar 05, 2013 8:45 pm

I've tried both doing kegels and not doing kegels and I think it's which one works for you, if kegels cause more pain you shouldn't be doing them at this stage, fully relax the pelvic floor then reassess and see if you need kegels is what I would go with.

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Re: Has anyone experienced more pain after doing pelvic floor exercises?

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