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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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Has anyone experienced more pain after doing pelvic floor exercises?

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Has anyone experienced more pain after doing pelvic floor exercises?

Post  Sunflower82 on Sun Feb 24, 2013 9:12 am

Hi,
I've been seeing a women's health physio for a year and a bit, worked on lots of massage a release work. Adventually I got referred on the Nhs the first session I got told to do pelvic floor exercises. I tried but experienced pain in my tummy,my stomached muscels when I started this whole physio process were so tight and I have spend a lot of time trying to relax them so I stopped do the pelvic floor exercise and went back. This time I was examined and I find it hard to tell the difference between squeezing and releasing and most of the time I'm not releasing completley.

Anyway to cut a long story short within a hour it felt like someone was pulling in my stomach muscles in and I got so much pain that has lasted a week over the pubic symphysis bone it's like someone has kicked me really hard in that area, been putting ice there but don't know what else to do ?


Anyone experienced this?
Many thanks

Kt

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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  Sarah001 on Sun Feb 24, 2013 2:25 pm

Yes, if I do kegels my pain shoots through the roof and if you can't tell the difference between contracting and releasing chances are you're not releasing properly. You can buy feedback items to tell you when you're doing this, there's one and the name escapes me I'm afraid but it's really cheap and consists of a plastic probe with a plastic wand on the outside and the wand moves down when you contract and up when you release so you know what you're doing. Has the physio not got access to a biofeedback machine to give you some sessions so you get used to how it feels? Just sending you away with kegels after all your hard work to relax the muscles is very sloppy practice and you need to stop them until you've either had a go on a machine with the physio or you get something to give you feedback. I've got one of the ones with a plastic wand and I'm pretty sure I bought it on Amazon so have a look on there for pelvic floor exercisers and you'll see what it is, cost about £10 I think. Also you need to start slowly, low reps at first so you don't overdo it. The transversus abs co-contracts with the pelvic floor which could be your abdominal pain or it could be you're doing them completely wrong and hitting the rectus abs instead.
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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  riag on Tue Mar 05, 2013 1:42 am

I get conflicting advice from my drs and physical therapist. Kegels make my vulvodynia worse. the physical therapist insisted upon it. saying to focus more on the release than the contraction because my pelvic muscles are too tight. my gyn and urologist say no kegels at all. Who do you listen too? mY urologist just recommended a new physical therapist and I am going for an evaluation tomorrow.

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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  cba321 on Tue Mar 05, 2013 7:48 pm

I have a tight pelvic floor, no one has ever suggested kegels. I have done biofeedback and increasing awareness of muscles while attempting to release the pelvic floor and surrounding hip stomach and butt muscles. My pelvic floor physio gets me to squeeze or contract first then release as much as possible but never exercise. I get quite a bit of pain after release with the physio and also chiro appts in my stomach, SI joint, lumbar spine, butt and sometimes thigh adductors. I have been told this is normal as I am cchanging a lot in my body, changing things to where they should be and my body is it is not used to it.

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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  Sarah001 on Tue Mar 05, 2013 8:45 pm

I've tried both doing kegels and not doing kegels and I think it's which one works for you, if kegels cause more pain you shouldn't be doing them at this stage, fully relax the pelvic floor then reassess and see if you need kegels is what I would go with.
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Re: Has anyone experienced more pain after doing pelvic floor exercises?

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