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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Has anyone experienced more pain after doing pelvic floor exercises?

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Has anyone experienced more pain after doing pelvic floor exercises?

Post  Sunflower82 on Sun Feb 24, 2013 9:12 am

Hi,
I've been seeing a women's health physio for a year and a bit, worked on lots of massage a release work. Adventually I got referred on the Nhs the first session I got told to do pelvic floor exercises. I tried but experienced pain in my tummy,my stomached muscels when I started this whole physio process were so tight and I have spend a lot of time trying to relax them so I stopped do the pelvic floor exercise and went back. This time I was examined and I find it hard to tell the difference between squeezing and releasing and most of the time I'm not releasing completley.

Anyway to cut a long story short within a hour it felt like someone was pulling in my stomach muscles in and I got so much pain that has lasted a week over the pubic symphysis bone it's like someone has kicked me really hard in that area, been putting ice there but don't know what else to do ?


Anyone experienced this?
Many thanks

Kt

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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  Sarah001 on Sun Feb 24, 2013 2:25 pm

Yes, if I do kegels my pain shoots through the roof and if you can't tell the difference between contracting and releasing chances are you're not releasing properly. You can buy feedback items to tell you when you're doing this, there's one and the name escapes me I'm afraid but it's really cheap and consists of a plastic probe with a plastic wand on the outside and the wand moves down when you contract and up when you release so you know what you're doing. Has the physio not got access to a biofeedback machine to give you some sessions so you get used to how it feels? Just sending you away with kegels after all your hard work to relax the muscles is very sloppy practice and you need to stop them until you've either had a go on a machine with the physio or you get something to give you feedback. I've got one of the ones with a plastic wand and I'm pretty sure I bought it on Amazon so have a look on there for pelvic floor exercisers and you'll see what it is, cost about £10 I think. Also you need to start slowly, low reps at first so you don't overdo it. The transversus abs co-contracts with the pelvic floor which could be your abdominal pain or it could be you're doing them completely wrong and hitting the rectus abs instead.
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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  riag on Tue Mar 05, 2013 1:42 am

I get conflicting advice from my drs and physical therapist. Kegels make my vulvodynia worse. the physical therapist insisted upon it. saying to focus more on the release than the contraction because my pelvic muscles are too tight. my gyn and urologist say no kegels at all. Who do you listen too? mY urologist just recommended a new physical therapist and I am going for an evaluation tomorrow.

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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  cba321 on Tue Mar 05, 2013 7:48 pm

I have a tight pelvic floor, no one has ever suggested kegels. I have done biofeedback and increasing awareness of muscles while attempting to release the pelvic floor and surrounding hip stomach and butt muscles. My pelvic floor physio gets me to squeeze or contract first then release as much as possible but never exercise. I get quite a bit of pain after release with the physio and also chiro appts in my stomach, SI joint, lumbar spine, butt and sometimes thigh adductors. I have been told this is normal as I am cchanging a lot in my body, changing things to where they should be and my body is it is not used to it.

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Re: Has anyone experienced more pain after doing pelvic floor exercises?

Post  Sarah001 on Tue Mar 05, 2013 8:45 pm

I've tried both doing kegels and not doing kegels and I think it's which one works for you, if kegels cause more pain you shouldn't be doing them at this stage, fully relax the pelvic floor then reassess and see if you need kegels is what I would go with.
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Re: Has anyone experienced more pain after doing pelvic floor exercises?

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