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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Got rid of soy no more problems!

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Got rid of soy no more problems!

Post  TheresaA. on Sun Feb 24, 2013 8:06 pm

Hi, just thought I needed to post here about something that worked for me. I have had vulvodynia for 10 years, it was only occasionally at first. But then 2 years ago we went vegan. Because of that I started adding much more soy to my diet. My symptoms became much worse and nearly every day. Last month I started doing the Clean diet by Dr Junger. It has you get off all soy, wheat, corn and other food items. I started reading labels and found that soy was in all sorts of things that you would not expect it to be in including some herbal teas. I was also taking soy capsules and using a lotion that had soy in it. Anyways, I know it was the soy, because I had given up the other items before with no relief. Within a few days of starting the diet my symptoms were disappearing and by one week in they were completely gone. It has now been 4 weeks and absolutely no pain! I can't tell you how excited I am about this because the last few years I was never without pain for more than 1 day! I never thought it could be the soy products I was using, but now I have to share with everyone suffering from the same thing an option that worked for me. Give it a try, read labels and quit soy and see if it helps you too! It's worth a shot!
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Re: Got rid of soy no more problems!

Post  Sarah001 on Sun Feb 24, 2013 9:30 pm

Isn't soy supposed to be a phytoestrogen? If so then that would indicate your problem was hormone imbalance if the symptoms were helped by removing the soy. Long may your painfree days continue!
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Thanks!

Post  TheresaA. on Tue Feb 26, 2013 5:40 pm

I believe it is a phytoestrogen, and I was taking it for hot flashes thinking it would help with that. I had been taking soy capsules for probably 7 years. The funny thing is, when I stopped all the soy not only did my vulvodynia pain go away but so did the hot flashes! If I'd only quit sooner my life (and my husbands life) would have been so much better Smile
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Re: Got rid of soy no more problems!

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