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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Lidocaine With Cotton Ball

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Lidocaine With Cotton Ball

Post  carby148 on Mon Feb 25, 2013 5:53 am

Hello everyone.

I was recently prescribed lidocaine for vulvydonia, but now that I finally have the prescription, I'm second guessing and wondering about its use.

Most of my pain is around my outer labia (labia majora) and has little to do with my actual vaginal opening. I do have an odd sensation where my urethra is as well.

My doctor told me to soak a cotton ball with the lidocaine and stick it in between the lips of my vagina and leave it in overnight (that seems excessive?).

What I don't understand is how will that help my labia majora, and is this something I will have to do every night for the rest of my life?

I will call my gyno first thing tomorrow, but I figured I would ask here as well to get personal experiences. Also because I know it probably won't be for a few days before she gets back to me.

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Re: Lidocaine With Cotton Ball

Post  jen007 on Mon Feb 25, 2013 1:01 pm

Hi carby148,

I've tried this method before accept my pain was around the entrance area and I put the cotton ball a little up there. Sadly it didn't work for me. The idea is to numb the area you put the gel on and by doing it every night it would absorb into your skin to keep it numb. It's something you need to try to see if it works or it's something else to check off the "didn't work" list. It's not that extreme, I think most of us here have tried this method. The lidocaine is only temporary. I had surgery last summer and am pretty much cured, but sometimes if I haven't been dilating I'll use the gel before having sex just to make sure I don't feel any pains.

Just a tip for when you use the gel, mix it with a little lubricant before applying it to your area. Alone the lidocaine can burn you until the numbness starts kicking in. When you mix it with lubricant it won't cause you any pain.

Good luck!

-Jen

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Re: Lidocaine With Cotton Ball

Post  carby148 on Mon Feb 25, 2013 5:54 pm

Thanks for the info! Should I also apply it to my outer labia? My doctor didn't say to, so I'm paranoid about doing so, haha.

Also, will this affect how my vagina works with sex? I know sex isn't too great for me anyway, but does it affect how I feel an orgasm or when it actually does feel good with penetration?
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Re: Lidocaine With Cotton Ball

Post  Alana3 on Mon Feb 25, 2013 6:41 pm

If you're having sex with lidocaine make sure you tell whoever your sleeping with to wear a condom, or his penis will go numb. Put it where it hurts and that's it. It shouldn't have an effect it just numbs the painful area and the rest feels the same. But remember this isn't a cure, it just makes you comfortable. When I used it after I still had pain because eventually it wears off. That stuff does numb you, but it burns like hell to put it on.

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Re: Lidocaine With Cotton Ball

Post  jen007 on Mon Feb 25, 2013 7:27 pm

carby148,

I use it before sex and it hasn't changed any good feelings, but like I said be sure to mix it with some lubricant whether you're having sex or not, it'll prevent that burning Alana is referring to.

-Jen

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Re: Lidocaine With Cotton Ball

Post  Alana3 on Mon Feb 25, 2013 8:09 pm

Be careful with the lubricant since you're not just washing it off after playing, make sure it's water-based, some of them can cause yeast infections! As well all know, those are not enjoyable. Ask your doc what kind of lubricant he/she recommends mine says astroglide works, just be careful!!!! But def good advice, not discrediting, I just get a lot of yeast and I HATE the feeling!

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Re: Lidocaine With Cotton Ball

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