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Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Lidocaine With Cotton Ball

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Lidocaine With Cotton Ball

Post  carby148 on Mon Feb 25, 2013 5:53 am

Hello everyone.

I was recently prescribed lidocaine for vulvydonia, but now that I finally have the prescription, I'm second guessing and wondering about its use.

Most of my pain is around my outer labia (labia majora) and has little to do with my actual vaginal opening. I do have an odd sensation where my urethra is as well.

My doctor told me to soak a cotton ball with the lidocaine and stick it in between the lips of my vagina and leave it in overnight (that seems excessive?).

What I don't understand is how will that help my labia majora, and is this something I will have to do every night for the rest of my life?

I will call my gyno first thing tomorrow, but I figured I would ask here as well to get personal experiences. Also because I know it probably won't be for a few days before she gets back to me.

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Re: Lidocaine With Cotton Ball

Post  jen007 on Mon Feb 25, 2013 1:01 pm

Hi carby148,

I've tried this method before accept my pain was around the entrance area and I put the cotton ball a little up there. Sadly it didn't work for me. The idea is to numb the area you put the gel on and by doing it every night it would absorb into your skin to keep it numb. It's something you need to try to see if it works or it's something else to check off the "didn't work" list. It's not that extreme, I think most of us here have tried this method. The lidocaine is only temporary. I had surgery last summer and am pretty much cured, but sometimes if I haven't been dilating I'll use the gel before having sex just to make sure I don't feel any pains.

Just a tip for when you use the gel, mix it with a little lubricant before applying it to your area. Alone the lidocaine can burn you until the numbness starts kicking in. When you mix it with lubricant it won't cause you any pain.

Good luck!

-Jen

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Re: Lidocaine With Cotton Ball

Post  carby148 on Mon Feb 25, 2013 5:54 pm

Thanks for the info! Should I also apply it to my outer labia? My doctor didn't say to, so I'm paranoid about doing so, haha.

Also, will this affect how my vagina works with sex? I know sex isn't too great for me anyway, but does it affect how I feel an orgasm or when it actually does feel good with penetration?
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Re: Lidocaine With Cotton Ball

Post  Alana3 on Mon Feb 25, 2013 6:41 pm

If you're having sex with lidocaine make sure you tell whoever your sleeping with to wear a condom, or his penis will go numb. Put it where it hurts and that's it. It shouldn't have an effect it just numbs the painful area and the rest feels the same. But remember this isn't a cure, it just makes you comfortable. When I used it after I still had pain because eventually it wears off. That stuff does numb you, but it burns like hell to put it on.

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Re: Lidocaine With Cotton Ball

Post  jen007 on Mon Feb 25, 2013 7:27 pm

carby148,

I use it before sex and it hasn't changed any good feelings, but like I said be sure to mix it with some lubricant whether you're having sex or not, it'll prevent that burning Alana is referring to.

-Jen

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Re: Lidocaine With Cotton Ball

Post  Alana3 on Mon Feb 25, 2013 8:09 pm

Be careful with the lubricant since you're not just washing it off after playing, make sure it's water-based, some of them can cause yeast infections! As well all know, those are not enjoyable. Ask your doc what kind of lubricant he/she recommends mine says astroglide works, just be careful!!!! But def good advice, not discrediting, I just get a lot of yeast and I HATE the feeling!

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Re: Lidocaine With Cotton Ball

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