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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Newly diagnosed - Vulvar vestibulitis

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Newly diagnosed - Vulvar vestibulitis

Post  christine12345 on Tue Feb 26, 2013 9:31 pm

Hey everyone - thought I'd post an update about my story. After months of being pushed from Dr. to Dr and being on loads and loads of antibiotics due to misdiagnosis, I finally saw a gynecologist. She took one look at me and diagnosed my problem as vulvar vestibulitis (the visit was literally 5 mins - so shocking!)

She prescribed me Elavil (amitriptyline) at 10mg.

Anyone taken this medication / had success with it?

Last edited by christine12345 on Tue Feb 26, 2013 9:48 pm; edited 1 time in total


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Re: Newly diagnosed - Vulvar vestibulitis

Post  Alana3 on Tue Feb 26, 2013 9:36 pm

I haven't personally taken it, one of my docs wanted to put me on it, but it's an anti-depressant and I didn't want to deal with the side effects. I do hear that it works for some people relatively well, so give it a shot, it might help Smile let us know how it goes!


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Re: Newly diagnosed - Vulvar vestibulitis

Post  Sarah001 on Tue Feb 26, 2013 9:47 pm

I was actually on Ami when my V pain started so they upped my dose to 50mg but it made no difference to pain. I'm still on that amount as it helps me sleep and what I will say is any dizziness is usually short lived so stick with it for a while to see how you go. The only side effect I get now is the dry mouth and you're not supposed to mix it with alcohol however I do and it totally knocks me out so you may want to go easy on alcohol if you drink.

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Re: Newly diagnosed - Vulvar vestibulitis

Post  m18 on Thu Mar 07, 2013 1:58 am

Hey I was pushed from doctor to doctor too! and actually diagnosed myself before they doctor did but I havn't seen a gynolocologist yet so I don't know what type I have, I've just been trying my hardest to relieve the pain. I was on Amitritylene since June 2012 and if you take it regulary it does stop the pain however I came off it because of the side effects It made me sleep all day, effected my emotions and hormone making me feel like a human robot and also affected my arrousal...which I no longer have at all. So my doctor then prescribed me Nortriptylene which doesnt make you as sleepy however it didnt get rid of the pain for me so Amitriptylene was deffinitely better in terms of getting rid of the pain. I've also been given a numbing ointment called linocaine which numbs the pain. Hope this helps and I havn't put you off amytriptylene just wanted to be honest but it might not have the same effects for you and it does relieve the pain.


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Re: Newly diagnosed - Vulvar vestibulitis

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