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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Newly diagnosed - Vulvar vestibulitis

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Newly diagnosed - Vulvar vestibulitis

Post  christine12345 on Tue Feb 26, 2013 9:31 pm

Hey everyone - thought I'd post an update about my story. After months of being pushed from Dr. to Dr and being on loads and loads of antibiotics due to misdiagnosis, I finally saw a gynecologist. She took one look at me and diagnosed my problem as vulvar vestibulitis (the visit was literally 5 mins - so shocking!)

She prescribed me Elavil (amitriptyline) at 10mg.

Anyone taken this medication / had success with it?

Last edited by christine12345 on Tue Feb 26, 2013 9:48 pm; edited 1 time in total


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Re: Newly diagnosed - Vulvar vestibulitis

Post  Alana3 on Tue Feb 26, 2013 9:36 pm

I haven't personally taken it, one of my docs wanted to put me on it, but it's an anti-depressant and I didn't want to deal with the side effects. I do hear that it works for some people relatively well, so give it a shot, it might help Smile let us know how it goes!


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Re: Newly diagnosed - Vulvar vestibulitis

Post  Sarah001 on Tue Feb 26, 2013 9:47 pm

I was actually on Ami when my V pain started so they upped my dose to 50mg but it made no difference to pain. I'm still on that amount as it helps me sleep and what I will say is any dizziness is usually short lived so stick with it for a while to see how you go. The only side effect I get now is the dry mouth and you're not supposed to mix it with alcohol however I do and it totally knocks me out so you may want to go easy on alcohol if you drink.

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Re: Newly diagnosed - Vulvar vestibulitis

Post  m18 on Thu Mar 07, 2013 1:58 am

Hey I was pushed from doctor to doctor too! and actually diagnosed myself before they doctor did but I havn't seen a gynolocologist yet so I don't know what type I have, I've just been trying my hardest to relieve the pain. I was on Amitritylene since June 2012 and if you take it regulary it does stop the pain however I came off it because of the side effects It made me sleep all day, effected my emotions and hormone making me feel like a human robot and also affected my arrousal...which I no longer have at all. So my doctor then prescribed me Nortriptylene which doesnt make you as sleepy however it didnt get rid of the pain for me so Amitriptylene was deffinitely better in terms of getting rid of the pain. I've also been given a numbing ointment called linocaine which numbs the pain. Hope this helps and I havn't put you off amytriptylene just wanted to be honest but it might not have the same effects for you and it does relieve the pain.


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Re: Newly diagnosed - Vulvar vestibulitis

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