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» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Newly diagnosed - Vulvar vestibulitis

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Newly diagnosed - Vulvar vestibulitis

Post  christine12345 on Tue Feb 26, 2013 9:31 pm

Hey everyone - thought I'd post an update about my story. After months of being pushed from Dr. to Dr and being on loads and loads of antibiotics due to misdiagnosis, I finally saw a gynecologist. She took one look at me and diagnosed my problem as vulvar vestibulitis (the visit was literally 5 mins - so shocking!)

She prescribed me Elavil (amitriptyline) at 10mg.

Anyone taken this medication / had success with it?


Last edited by christine12345 on Tue Feb 26, 2013 9:48 pm; edited 1 time in total

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Re: Newly diagnosed - Vulvar vestibulitis

Post  Alana3 on Tue Feb 26, 2013 9:36 pm

I haven't personally taken it, one of my docs wanted to put me on it, but it's an anti-depressant and I didn't want to deal with the side effects. I do hear that it works for some people relatively well, so give it a shot, it might help Smile let us know how it goes!

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Re: Newly diagnosed - Vulvar vestibulitis

Post  Sarah001 on Tue Feb 26, 2013 9:47 pm

I was actually on Ami when my V pain started so they upped my dose to 50mg but it made no difference to pain. I'm still on that amount as it helps me sleep and what I will say is any dizziness is usually short lived so stick with it for a while to see how you go. The only side effect I get now is the dry mouth and you're not supposed to mix it with alcohol however I do and it totally knocks me out so you may want to go easy on alcohol if you drink.
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Re: Newly diagnosed - Vulvar vestibulitis

Post  m18 on Thu Mar 07, 2013 1:58 am

Hey I was pushed from doctor to doctor too! and actually diagnosed myself before they doctor did but I havn't seen a gynolocologist yet so I don't know what type I have, I've just been trying my hardest to relieve the pain. I was on Amitritylene since June 2012 and if you take it regulary it does stop the pain however I came off it because of the side effects It made me sleep all day, effected my emotions and hormone making me feel like a human robot and also affected my arrousal...which I no longer have at all. So my doctor then prescribed me Nortriptylene which doesnt make you as sleepy however it didnt get rid of the pain for me so Amitriptylene was deffinitely better in terms of getting rid of the pain. I've also been given a numbing ointment called linocaine which numbs the pain. Hope this helps and I havn't put you off amytriptylene just wanted to be honest but it might not have the same effects for you and it does relieve the pain.

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Re: Newly diagnosed - Vulvar vestibulitis

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