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Sat May 26, 2018 5:21 pm by Aquaben

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» Cleveland Clinic - Pain Management, Weston, FL
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Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Vulvodynia - How it Started for Me

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Vulvodynia - How it Started for Me

Post  catarific on Wed Mar 06, 2013 7:26 pm

Well, the dryness in the vaginal area I have had for a long time. I did avoid wearing tight clothes, always wore cotton underwear and basically could love with this.

But then, I had a reaction to some laundry detergent. Not realizing my husband changed the one we were using, he bought a brand called Purex and he ended up with an inflammation on his rear end that took about a month or so to clear up. At the time, I did not correlate the burning sensation I was having to his outbreak. But afterward, we did correlate that both started at the same time he switched detergents. His outbreak has cleared but unfortunately my reaction is still ongoing.

First I thought it was a yeast infection and treated it but the itchiness and burning did not go away. Then I went to the doctor and had a urine culture done that showed the presence of a bacterial infection - and was given antibiotics for that. After taking the antibiotics, I still felt somewhat itchy. My doctor recommended using a hormonal cream - which I did not want to do - having not done well in the past with any hormonal supplements. So she suggested trying Replens for the dryness. Well, that seemed to make this even worse. So again, I called the doctor and asked to have another urine culture to see if I had urinary tract infection or kidney infection or maybe a yeast infection from the antibiotics. But again, everything was normal.

So now I am not sure really what to do. If I use Vagisil, it does taking the itching away. But I am not sure how frequently you can use that cream. What have others done?


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Re: Vulvodynia - How it Started for Me

Post  jen007 on Fri Mar 08, 2013 3:33 pm

Hi catarific,

There are a few things you could try. One thing that my doctor recommended for me was using crisco down there. I know it sounds weird, but she told me to put it in the fridge to keep it cool and put it down there to soothe me and give me some lubrication. I never tried it, but her other patients did and it helped them. I usually just put some lube down there to keep me moisturized. Another thing I saw a women on this site post was coconut oil. I've only used coconut oil in my hair, but It's supposed to be good for you're entire body. It might be worth trying out as long as you aren't allergic or something. Before trying anything though, please consult your doctor!



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Re: Vulvodynia - How it Started for Me

Post  dmilly01 on Sat Mar 23, 2013 9:24 pm

Hi Catarific
I use organic coconut oil in a jar, which i bought from Tescos. It is completely pure and i does help with the itcing and is very soothing. I also use Aveeno oatmeal bath and shower oil every day in the shower, which cleanses and moisturises down below and it really helps too soothe the vaginal area, especially if having a flare up, which i have most days now. I find that if you use the coconut oil and lidocaine 5% ointment together, it takes the initial burning effect away, when first applying the lidocaine to your vulva. The coconut oil is very runny once you apply it, as dont put it in the fridge as will go too hard! Keep in a cupboard. Also i buy cotton sanitary pads once applying the coconut oil, so that it doesn't stain your knickers. Also lidocaine 5% ointment applied to a cotton wool ball and put inside the vagina in bed at night, really soothes the area. It did help with the pain of sex at first, but doesnt help me in that area now unfortunately. Hope some of these things help you and you find some sort of relief. X


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Re: Vulvodynia - How it Started for Me

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