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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia - How it Started for Me

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Vulvodynia - How it Started for Me

Post  catarific on Wed Mar 06, 2013 7:26 pm

Well, the dryness in the vaginal area I have had for a long time. I did avoid wearing tight clothes, always wore cotton underwear and basically could love with this.

But then, I had a reaction to some laundry detergent. Not realizing my husband changed the one we were using, he bought a brand called Purex and he ended up with an inflammation on his rear end that took about a month or so to clear up. At the time, I did not correlate the burning sensation I was having to his outbreak. But afterward, we did correlate that both started at the same time he switched detergents. His outbreak has cleared but unfortunately my reaction is still ongoing.

First I thought it was a yeast infection and treated it but the itchiness and burning did not go away. Then I went to the doctor and had a urine culture done that showed the presence of a bacterial infection - and was given antibiotics for that. After taking the antibiotics, I still felt somewhat itchy. My doctor recommended using a hormonal cream - which I did not want to do - having not done well in the past with any hormonal supplements. So she suggested trying Replens for the dryness. Well, that seemed to make this even worse. So again, I called the doctor and asked to have another urine culture to see if I had urinary tract infection or kidney infection or maybe a yeast infection from the antibiotics. But again, everything was normal.

So now I am not sure really what to do. If I use Vagisil, it does taking the itching away. But I am not sure how frequently you can use that cream. What have others done?


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Re: Vulvodynia - How it Started for Me

Post  jen007 on Fri Mar 08, 2013 3:33 pm

Hi catarific,

There are a few things you could try. One thing that my doctor recommended for me was using crisco down there. I know it sounds weird, but she told me to put it in the fridge to keep it cool and put it down there to soothe me and give me some lubrication. I never tried it, but her other patients did and it helped them. I usually just put some lube down there to keep me moisturized. Another thing I saw a women on this site post was coconut oil. I've only used coconut oil in my hair, but It's supposed to be good for you're entire body. It might be worth trying out as long as you aren't allergic or something. Before trying anything though, please consult your doctor!



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Re: Vulvodynia - How it Started for Me

Post  dmilly01 on Sat Mar 23, 2013 9:24 pm

Hi Catarific
I use organic coconut oil in a jar, which i bought from Tescos. It is completely pure and i does help with the itcing and is very soothing. I also use Aveeno oatmeal bath and shower oil every day in the shower, which cleanses and moisturises down below and it really helps too soothe the vaginal area, especially if having a flare up, which i have most days now. I find that if you use the coconut oil and lidocaine 5% ointment together, it takes the initial burning effect away, when first applying the lidocaine to your vulva. The coconut oil is very runny once you apply it, as dont put it in the fridge as will go too hard! Keep in a cupboard. Also i buy cotton sanitary pads once applying the coconut oil, so that it doesn't stain your knickers. Also lidocaine 5% ointment applied to a cotton wool ball and put inside the vagina in bed at night, really soothes the area. It did help with the pain of sex at first, but doesnt help me in that area now unfortunately. Hope some of these things help you and you find some sort of relief. X


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Re: Vulvodynia - How it Started for Me

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