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» Post Vestibulectomy
Tue Aug 22, 2017 6:48 pm by JGD13

» Vestibulectomy
Fri Aug 18, 2017 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Vulvodynia - How it Started for Me

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Vulvodynia - How it Started for Me

Post  catarific on Wed Mar 06, 2013 7:26 pm

Well, the dryness in the vaginal area I have had for a long time. I did avoid wearing tight clothes, always wore cotton underwear and basically could love with this.

But then, I had a reaction to some laundry detergent. Not realizing my husband changed the one we were using, he bought a brand called Purex and he ended up with an inflammation on his rear end that took about a month or so to clear up. At the time, I did not correlate the burning sensation I was having to his outbreak. But afterward, we did correlate that both started at the same time he switched detergents. His outbreak has cleared but unfortunately my reaction is still ongoing.

First I thought it was a yeast infection and treated it but the itchiness and burning did not go away. Then I went to the doctor and had a urine culture done that showed the presence of a bacterial infection - and was given antibiotics for that. After taking the antibiotics, I still felt somewhat itchy. My doctor recommended using a hormonal cream - which I did not want to do - having not done well in the past with any hormonal supplements. So she suggested trying Replens for the dryness. Well, that seemed to make this even worse. So again, I called the doctor and asked to have another urine culture to see if I had urinary tract infection or kidney infection or maybe a yeast infection from the antibiotics. But again, everything was normal.

So now I am not sure really what to do. If I use Vagisil, it does taking the itching away. But I am not sure how frequently you can use that cream. What have others done?


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Re: Vulvodynia - How it Started for Me

Post  jen007 on Fri Mar 08, 2013 3:33 pm

Hi catarific,

There are a few things you could try. One thing that my doctor recommended for me was using crisco down there. I know it sounds weird, but she told me to put it in the fridge to keep it cool and put it down there to soothe me and give me some lubrication. I never tried it, but her other patients did and it helped them. I usually just put some lube down there to keep me moisturized. Another thing I saw a women on this site post was coconut oil. I've only used coconut oil in my hair, but It's supposed to be good for you're entire body. It might be worth trying out as long as you aren't allergic or something. Before trying anything though, please consult your doctor!



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Re: Vulvodynia - How it Started for Me

Post  dmilly01 on Sat Mar 23, 2013 9:24 pm

Hi Catarific
I use organic coconut oil in a jar, which i bought from Tescos. It is completely pure and i does help with the itcing and is very soothing. I also use Aveeno oatmeal bath and shower oil every day in the shower, which cleanses and moisturises down below and it really helps too soothe the vaginal area, especially if having a flare up, which i have most days now. I find that if you use the coconut oil and lidocaine 5% ointment together, it takes the initial burning effect away, when first applying the lidocaine to your vulva. The coconut oil is very runny once you apply it, as dont put it in the fridge as will go too hard! Keep in a cupboard. Also i buy cotton sanitary pads once applying the coconut oil, so that it doesn't stain your knickers. Also lidocaine 5% ointment applied to a cotton wool ball and put inside the vagina in bed at night, really soothes the area. It did help with the pain of sex at first, but doesnt help me in that area now unfortunately. Hope some of these things help you and you find some sort of relief. X


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Re: Vulvodynia - How it Started for Me

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