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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Vulvodynia - How it Started for Me

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Vulvodynia - How it Started for Me

Post  catarific on Wed Mar 06, 2013 7:26 pm

Well, the dryness in the vaginal area I have had for a long time. I did avoid wearing tight clothes, always wore cotton underwear and basically could love with this.

But then, I had a reaction to some laundry detergent. Not realizing my husband changed the one we were using, he bought a brand called Purex and he ended up with an inflammation on his rear end that took about a month or so to clear up. At the time, I did not correlate the burning sensation I was having to his outbreak. But afterward, we did correlate that both started at the same time he switched detergents. His outbreak has cleared but unfortunately my reaction is still ongoing.

First I thought it was a yeast infection and treated it but the itchiness and burning did not go away. Then I went to the doctor and had a urine culture done that showed the presence of a bacterial infection - and was given antibiotics for that. After taking the antibiotics, I still felt somewhat itchy. My doctor recommended using a hormonal cream - which I did not want to do - having not done well in the past with any hormonal supplements. So she suggested trying Replens for the dryness. Well, that seemed to make this even worse. So again, I called the doctor and asked to have another urine culture to see if I had urinary tract infection or kidney infection or maybe a yeast infection from the antibiotics. But again, everything was normal.

So now I am not sure really what to do. If I use Vagisil, it does taking the itching away. But I am not sure how frequently you can use that cream. What have others done?


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Re: Vulvodynia - How it Started for Me

Post  jen007 on Fri Mar 08, 2013 3:33 pm

Hi catarific,

There are a few things you could try. One thing that my doctor recommended for me was using crisco down there. I know it sounds weird, but she told me to put it in the fridge to keep it cool and put it down there to soothe me and give me some lubrication. I never tried it, but her other patients did and it helped them. I usually just put some lube down there to keep me moisturized. Another thing I saw a women on this site post was coconut oil. I've only used coconut oil in my hair, but It's supposed to be good for you're entire body. It might be worth trying out as long as you aren't allergic or something. Before trying anything though, please consult your doctor!



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Re: Vulvodynia - How it Started for Me

Post  dmilly01 on Sat Mar 23, 2013 9:24 pm

Hi Catarific
I use organic coconut oil in a jar, which i bought from Tescos. It is completely pure and i does help with the itcing and is very soothing. I also use Aveeno oatmeal bath and shower oil every day in the shower, which cleanses and moisturises down below and it really helps too soothe the vaginal area, especially if having a flare up, which i have most days now. I find that if you use the coconut oil and lidocaine 5% ointment together, it takes the initial burning effect away, when first applying the lidocaine to your vulva. The coconut oil is very runny once you apply it, as dont put it in the fridge as will go too hard! Keep in a cupboard. Also i buy cotton sanitary pads once applying the coconut oil, so that it doesn't stain your knickers. Also lidocaine 5% ointment applied to a cotton wool ball and put inside the vagina in bed at night, really soothes the area. It did help with the pain of sex at first, but doesnt help me in that area now unfortunately. Hope some of these things help you and you find some sort of relief. X


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Re: Vulvodynia - How it Started for Me

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