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    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 10

    Hello. Happy to have found this group.

    Fri Dec 07, 2018 9:01 pm by foxysugarpants

    I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

    Comments: 0

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 0

    Had this for 5 years, looking for people who understand

    Sat Oct 06, 2018 9:46 pm by blackberrie

    Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

    Comments: 3

    Anyone have pain with urination?

    Tue Oct 16, 2018 2:35 pm by mertzwl

    Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

    I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

    Comments: 6

    Diagnosed recently, looking for advice

    Sun Sep 02, 2018 12:51 am by Cloudberry

    Hi everyone,

    I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

    I’m a woman in my late 20s. Before getting diagnosed …

    Comments: 4

    From a concerned husband

    Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

    Hello everyone,

    This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

    I’m sure a lot …

    Comments: 4

    6 year sufferer but I’ve found some hope

    Wed Oct 10, 2018 1:33 am by Npage14

    Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

    Comments: 0

    Hurting, Burning, Itching, and Worn Out

    Thu Aug 09, 2018 10:55 pm by donnambr

    This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

    Comments: 5


    Just wana say..........

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    Just wana say..........

    Post  Sebby (Admin) on Thu Sep 02, 2010 9:40 pm


    .........Luv you all!! I love you

    So glad I started this forum and met you lovely guys and gals...you lot have been my blessing within this cloud of pain..my silver lining...

    *MWAH*

    xxxx

    Sebby
    xxxx
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    Re: Just wana say..........

    Post  jules on Fri Sep 03, 2010 5:31 am

    How much wine did you have? Laughing

    I feel the same.

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    Re: Just wana say..........

    Post  Sebby (Admin) on Sat Sep 04, 2010 7:17 pm


    Lol..not too much! hehehe Razz
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    Re: Just wana say..........

    Post  tweety on Fri Oct 15, 2010 12:10 pm

    Yes, I'm really grateful I found this forum... It certainly helps to be able to just say whatever and know you'll understand. I think I would have lost it this yr without this outlet.

    Hugs all round...

    Sue

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    Re: Just wana say..........

    Post  naomi on Wed Oct 20, 2010 11:34 pm

    xxxxxxxxxxxxXXXXXXXXXXXXXxxxxxxxxxxxxxxxxxxxxxxx hugs xxxxxxxxxxxxx

    I just wana say.....

    Can we start a thread where we just swear and let it all out?! but mark it as 'rating 18 yrs over and explicit material'?!

    I know this sounds dead immature but tonight a threw a massive tantrum at my parents (im still staying with them month after month after YEAR! and 28 yr old)I lobbed my fav mug across the room (didnt smash it) and threw my laptop, turned the air more than blue with my swearing. All because of my frustration with this condition, the NHS, consultants not giving an obvious damn and passing the buck, private health'care', the government - all those Fcukers Evil or Very Mad Im sooo not a violent person at all but it just builds up like a steam pressure cooker!!

    You know what!...i look like Missy Piggy with my cried out puffy eyes, worn out (so ill sleep better tonight) but I feel like the tension inside me has reduced slightly. not a perm' solution but its helped (not with my parents crockery situation as ive smashed 3 plates and 2 glasses since this all started those years ago!).

    So I vote for a thread where we can really really rant our hearts out, be a stroppy teenager and get it out of our systems (I fear I may be the only immature brat here

    Right, bed for me im pooped xxxxxxxxx Very Happy

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    Re: Just wana say..........

    Post  Mouse on Thu Oct 21, 2010 12:45 am

    Naomi, I may have already muddied the water with a bit of cussing last night. I'm all for it. I love nothing more than swearing. Apparently I can look quite proper (and well old enough to know better), let's burst that illusion up front.

    I'm planning on ripping a strip off the nurse from my GPs office. She's given me a couple of dismissive tones over the past 24 hours. I may say "do I need to pay extra for the customer service" but it may sound more like "you are really fucking me off you rude bitch" to her.

    You threw your laptop??? Wow, I would only throw things that don't belong to me or that my Mother-in-law has given me and I particularly hate.

    On my CD support group we have a discussion called "People I would like to punch", we also have one for people I would like to hug today - I put my husband on there yesterday because it was our wedding anniversary and I really did hug him in that married kind of way. He's back on the other list today. We also have one called And that's when the fight started... I post a lot on this one.

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    Re: Just wana say..........

    Post  Sebby (Admin) on Thu Oct 21, 2010 7:24 pm


    Great idea!! Have just created a forum for letting off some steam....enjoy!! Laughing
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    Re: Just wana say..........

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