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    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 1

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 8

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4

    Condoms Less Painful?

    Mon May 07, 2018 3:35 am by stillinpain

    I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

    Comments: 0

    Will there be an end?

    Fri Apr 27, 2018 12:06 am by Krista2828

    I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

    I am in my 20's.. it shouldn't be this way.

    Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

    Comments: 6

    you can be healed so easy and quite fast.

    Thu Apr 26, 2018 11:46 pm by pussycat

    Hello everyone,
    i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

    Comments: 4

    Hi Im from Australia :)

    Sat Jan 08, 2011 1:08 am by emma

    Hi girls... I live in Australia.
    I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
    Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

    Comments: 35


    Just wana say..........

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    Just wana say..........

    Post  Sebby (Admin) on Thu Sep 02, 2010 9:40 pm


    .........Luv you all!! I love you

    So glad I started this forum and met you lovely guys and gals...you lot have been my blessing within this cloud of pain..my silver lining...

    *MWAH*

    xxxx

    Sebby
    xxxx
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    Re: Just wana say..........

    Post  jules on Fri Sep 03, 2010 5:31 am

    How much wine did you have? Laughing

    I feel the same.

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    Re: Just wana say..........

    Post  Sebby (Admin) on Sat Sep 04, 2010 7:17 pm


    Lol..not too much! hehehe Razz
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    Re: Just wana say..........

    Post  tweety on Fri Oct 15, 2010 12:10 pm

    Yes, I'm really grateful I found this forum... It certainly helps to be able to just say whatever and know you'll understand. I think I would have lost it this yr without this outlet.

    Hugs all round...

    Sue

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    Re: Just wana say..........

    Post  naomi on Wed Oct 20, 2010 11:34 pm

    xxxxxxxxxxxxXXXXXXXXXXXXXxxxxxxxxxxxxxxxxxxxxxxx hugs xxxxxxxxxxxxx

    I just wana say.....

    Can we start a thread where we just swear and let it all out?! but mark it as 'rating 18 yrs over and explicit material'?!

    I know this sounds dead immature but tonight a threw a massive tantrum at my parents (im still staying with them month after month after YEAR! and 28 yr old)I lobbed my fav mug across the room (didnt smash it) and threw my laptop, turned the air more than blue with my swearing. All because of my frustration with this condition, the NHS, consultants not giving an obvious damn and passing the buck, private health'care', the government - all those Fcukers Evil or Very Mad Im sooo not a violent person at all but it just builds up like a steam pressure cooker!!

    You know what!...i look like Missy Piggy with my cried out puffy eyes, worn out (so ill sleep better tonight) but I feel like the tension inside me has reduced slightly. not a perm' solution but its helped (not with my parents crockery situation as ive smashed 3 plates and 2 glasses since this all started those years ago!).

    So I vote for a thread where we can really really rant our hearts out, be a stroppy teenager and get it out of our systems (I fear I may be the only immature brat here

    Right, bed for me im pooped xxxxxxxxx Very Happy

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    Re: Just wana say..........

    Post  Mouse on Thu Oct 21, 2010 12:45 am

    Naomi, I may have already muddied the water with a bit of cussing last night. I'm all for it. I love nothing more than swearing. Apparently I can look quite proper (and well old enough to know better), let's burst that illusion up front.

    I'm planning on ripping a strip off the nurse from my GPs office. She's given me a couple of dismissive tones over the past 24 hours. I may say "do I need to pay extra for the customer service" but it may sound more like "you are really fucking me off you rude bitch" to her.

    You threw your laptop??? Wow, I would only throw things that don't belong to me or that my Mother-in-law has given me and I particularly hate.

    On my CD support group we have a discussion called "People I would like to punch", we also have one for people I would like to hug today - I put my husband on there yesterday because it was our wedding anniversary and I really did hug him in that married kind of way. He's back on the other list today. We also have one called And that's when the fight started... I post a lot on this one.

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    Re: Just wana say..........

    Post  Sebby (Admin) on Thu Oct 21, 2010 7:24 pm


    Great idea!! Have just created a forum for letting off some steam....enjoy!! Laughing
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    Re: Just wana say..........

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