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    Diagnosed recently, looking for advice

    Sun Sep 02, 2018 12:51 am by Cloudberry

    Hi everyone,

    I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

    I’m a woman in my late 20s. Before getting diagnosed …

    Comments: 3

    Hurting, Burning, Itching, and Worn Out

    Thu Aug 09, 2018 10:55 pm by donnambr

    This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

    Comments: 5

    Hi girls! New in this forum

    Fri Jul 13, 2018 2:31 pm by Gaby

    Hi everyone!

    Also joining the V club, Here my story:

    It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

    Comments: 1

    Newbie and feeling helpless

    Wed Jul 11, 2018 1:52 pm by Taylor1

    Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

    Comments: 3

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 6

    From a concerned husband

    Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

    Hello everyone,

    This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

    I’m sure a lot …

    Comments: 3

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 10

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0


    Just wana say..........

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    Just wana say..........

    Post  Sebby (Admin) on Thu Sep 02, 2010 9:40 pm


    .........Luv you all!! I love you

    So glad I started this forum and met you lovely guys and gals...you lot have been my blessing within this cloud of pain..my silver lining...

    *MWAH*

    xxxx

    Sebby
    xxxx
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    Re: Just wana say..........

    Post  jules on Fri Sep 03, 2010 5:31 am

    How much wine did you have? Laughing

    I feel the same.

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    Re: Just wana say..........

    Post  Sebby (Admin) on Sat Sep 04, 2010 7:17 pm


    Lol..not too much! hehehe Razz
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    Re: Just wana say..........

    Post  tweety on Fri Oct 15, 2010 12:10 pm

    Yes, I'm really grateful I found this forum... It certainly helps to be able to just say whatever and know you'll understand. I think I would have lost it this yr without this outlet.

    Hugs all round...

    Sue

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    Re: Just wana say..........

    Post  naomi on Wed Oct 20, 2010 11:34 pm

    xxxxxxxxxxxxXXXXXXXXXXXXXxxxxxxxxxxxxxxxxxxxxxxx hugs xxxxxxxxxxxxx

    I just wana say.....

    Can we start a thread where we just swear and let it all out?! but mark it as 'rating 18 yrs over and explicit material'?!

    I know this sounds dead immature but tonight a threw a massive tantrum at my parents (im still staying with them month after month after YEAR! and 28 yr old)I lobbed my fav mug across the room (didnt smash it) and threw my laptop, turned the air more than blue with my swearing. All because of my frustration with this condition, the NHS, consultants not giving an obvious damn and passing the buck, private health'care', the government - all those Fcukers Evil or Very Mad Im sooo not a violent person at all but it just builds up like a steam pressure cooker!!

    You know what!...i look like Missy Piggy with my cried out puffy eyes, worn out (so ill sleep better tonight) but I feel like the tension inside me has reduced slightly. not a perm' solution but its helped (not with my parents crockery situation as ive smashed 3 plates and 2 glasses since this all started those years ago!).

    So I vote for a thread where we can really really rant our hearts out, be a stroppy teenager and get it out of our systems (I fear I may be the only immature brat here

    Right, bed for me im pooped xxxxxxxxx Very Happy

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    Re: Just wana say..........

    Post  Mouse on Thu Oct 21, 2010 12:45 am

    Naomi, I may have already muddied the water with a bit of cussing last night. I'm all for it. I love nothing more than swearing. Apparently I can look quite proper (and well old enough to know better), let's burst that illusion up front.

    I'm planning on ripping a strip off the nurse from my GPs office. She's given me a couple of dismissive tones over the past 24 hours. I may say "do I need to pay extra for the customer service" but it may sound more like "you are really fucking me off you rude bitch" to her.

    You threw your laptop??? Wow, I would only throw things that don't belong to me or that my Mother-in-law has given me and I particularly hate.

    On my CD support group we have a discussion called "People I would like to punch", we also have one for people I would like to hug today - I put my husband on there yesterday because it was our wedding anniversary and I really did hug him in that married kind of way. He's back on the other list today. We also have one called And that's when the fight started... I post a lot on this one.

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    Re: Just wana say..........

    Post  Sebby (Admin) on Thu Oct 21, 2010 7:24 pm


    Great idea!! Have just created a forum for letting off some steam....enjoy!! Laughing
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    Re: Just wana say..........

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