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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 6

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Vagisil for pain?

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Vagisil for pain?

Post  katie220 on Thu Mar 14, 2013 4:55 pm

Hey everyone. I was wondering if anyone has used vagisil for their pain. I heard it has a numbing effect, so I was thinking of using it before sex to cut the pain. Does it make the pain even worse over time? I am trying to be careful with putting too many creams/meds on myself because I believe it might make it worse. Any advice would help. Thanks!

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Re: Vagisil for pain?

Post  Alana3 on Thu Mar 14, 2013 5:05 pm

Personally I wouldn't you're only numbing it it's not fixing anything and potentially making the problem worse. My doc wrote me a prescription for something similar but wasn't as harsh maybe try that route?

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Re: Vagisil for pain?

Post  Alana3 on Thu Mar 14, 2013 5:05 pm

And it had other stuff to help the v

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Re: Vagisil for pain?

Post  jen007 on Thu Mar 14, 2013 8:21 pm

Hi katie220,

I'm not sure about the vagisil for pain...but there is a cream that you can get from your doctor that will temporarily numb the area you apply it to. It's called Lidocaine. Next time you see your doctor it might be worth asking about. I use it before sex and it helps me stay confortable.

-Jen

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Re: Vagisil for pain?

Post  Alana3 on Fri Mar 15, 2013 3:40 pm

Lidocaine is in vagisil but I would ask your doc first that stuff burned me Sad

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Re: Vagisil for pain?

Post  katie220 on Sat Mar 16, 2013 4:01 am

Thanks for the advice guys! I may try it once but if I have any symptoms I definitely won't use it again. I have to be pretty careful at this point.

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Re: Vagisil for pain?

Post  jen007 on Sat Mar 16, 2013 8:30 pm

katie220,

Just so you know, the lidocaine gel burns when you use it like Alana had mentioned, but if you do use it be sure to mix it with some lubricant. By mixing them together it makes the lidocaine less strong, but strong enough to give you some relief with out the burning sensation.

-Jen

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Re: Vagisil for pain?

Post  Loulou on Sun Mar 17, 2013 9:28 pm

Hi Katie22

I understand what you mean about not wanting to put anything on that would make it worse. I felt the same but i did try lidocaine in the early days of my vvd cos i was desperate for some relief from the pain. My experience was that it worked the first time i used it (burned a bit for about half a min then settled down) but the second time i tried it didn't work i just got more burning. But that extra burning wasn't permanent and did ease off after a while. So worth a try.

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Re: Vagisil for pain?

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