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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


burning and PVD?

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burning and PVD?

Post  ringostarr26 on Fri Mar 15, 2013 8:12 pm

MY gyn originally diagnosed me with vulvodynia because i experience extreme burning in the vulva. It is not provoked and I feel it for most of the day. After visiting a pain specialist however he believes my pain is related to the pelvic floor. Is burning a common effect of PVD because I assumed that muscles were responsible for more of an achey feeling. I'm really stressed about what exactly is going on?

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Re: burning and PVD?

Post  Alana3 on Fri Mar 15, 2013 8:21 pm

I have both

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Re: burning and PVD?

Post  cba321 on Sat Mar 16, 2013 11:15 am

I have pvd and I also have the burning pain at times without touch. I think it is more related to irritation of the nerves, when muscles are in spasm they can produce by - products that irritate the nerves. Doesn't necessarily have to be something touching the nerve.

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Re: burning and PVD?

Post  Sarah001 on Sat Mar 16, 2013 5:24 pm

I have unprovoked diffuse burning plus pelvic floor dysfunction and when my physio realigns my pelvis it sets the muscles off on a severe burn for a few minutes afterwards so it's the muscles that are to blame in my case. I had severe burning in my neck and shoulders a few years back from tight spasmed muscles so muscles can definitely cause burning.
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Re: burning and PVD?

Post  ringostarr26 on Sat Mar 16, 2013 5:47 pm

Have you found that physio helps the burning pain? i have been looking to try it for some time. I get burning in my feet every time my V flares up and I never understood why.

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Re: burning and PVD?

Post  Alana3 on Sat Mar 16, 2013 6:33 pm

It def helps but until I got my vestibulectomtly it did nothing for me because a penis was impossible. Now I do it and it def helps

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Re: burning and PVD?

Post  Alana3 on Sat Mar 16, 2013 6:43 pm

But the burning from vulvodynia was way worse then muscular pain. I know there are different degrees and all but God the v was terrible it is possible to have both but the burning sensations for me were different

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Re: burning and PVD?

Post  ringostarr26 on Sat Mar 16, 2013 6:59 pm

Yeah i'm dealing with a horrible flare right now. I was symptom free for 3 years and just this past summer the burning started all over again. I'm at my wits end. I am currently using valium suppositories for the muscles but the burning is unbearable.

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Re: burning and PVD?

Post  Alana3 on Sat Mar 16, 2013 9:36 pm

Did you have the surgery or what did you use for the original to stop

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Re: burning and PVD?

Post  ringostarr26 on Sun Mar 17, 2013 1:13 am

i tried amytriptyline with no success and just dealt with the pain. It disappeared on it's own actually which i'm sure is rare. It took over a year for it to be gone completely but I was 3 years 100% pain free.I just can't pin point what started this flare. I made myself believe that I was drinking too much coffee its the midst of exam season but i have no idea. I was told surgery for me was not a good option because my V is not provoked. By PVD i meant PFD i should have corrected myself earlier. I have the more generalized V that burns constantly. It does not get better or worse with sex... not that i have any these days in my agony. Sad

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Re: burning and PVD?

Post  Alana3 on Sun Mar 17, 2013 3:39 am

Ugh idk I guess I was lucky mine actually did go away and then it came back again yuck. Then I had the surgery where are you located

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Re: burning and PVD?

Post  Sarah001 on Sun Mar 17, 2013 2:35 pm

In answer to the earlier question I'm not at the stage where I can have my pelvic floor released yet so I don't know how well it will work but I do know if I keep it relaxed my pain decreases and if I clench it my pain shoots through the roof. The constant burning is just hell, I take Ami for sleep but it didn't help my burning so I'm also on Lyrica now which helps to a degree even though I can tell the sensation of the skin isn't right through it if that makes sense. I would try medication at the same time as other things just to give you some relief. Have you been told your pelvic floor is tight? I'm assuming you have because you've been given the valium but valium won't remove trigger points, the only thing that will get rid of them is internal massage. It's also a good idea to get your pelvic alignment checked out, I keep banging on about this I know but my physio has treated loads of women with V and she almost always finds a pelvic alignment/stability issue that's set the pelvic floor off.

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Re: burning and PVD?

Post  Loulou on Sun Mar 17, 2013 9:16 pm

Hi ringostarr26

So sorry to hear you've had a relapse. But i think you could be right with your diagnosis of PFD and exams being partly to blame for relapse. Presume exam time has been stressful for you? Stress can cause you to tense muscles (stomach, butt, pelvic floor) without you even realising. Holding tension in muscles can cause trigger points and misalignments, all leading to pain/burning. I'm pretty sure now that a prolonged stressful period at work combined with a twisted sitting position at the computer (I would lean forward and over on one hip) were the straws that broke the camel's back for me. I was later diagnosed by my chiro with a misaligned pelvis which i'd probably had for years, muscles had been compensating in ways they shouldn't have, and then bang - an intense period of stress and posture triggers and my vvd started.

So definitely get a physio and/or a chiropractor to check you out for misalignments and trigger points. What's worked for me is getting my pelvis realigned and then doing regular yoga and pilates to strengthen muscles to hold everything in place.

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Re: burning and PVD?

Post  ringostarr26 on Sun Mar 17, 2013 11:41 pm

thank you all for the replies. i definitely think it is all the stress. I also suffer from TMJ! Fun eh? and that too is acting up. I just need to find a good PT so if anyone knows one in Toronto that would be so helpful!

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Re: burning and PVD?

Post  Loulou on Mon Mar 18, 2013 12:05 am

For your TMJ have a look at Peter Egoscue's book 'Pain Free' - he has some specific exercises for relieving TMJ pain and discomfort.

I used his book 'The Egoscue Method of Health Through Motion' to help realign my pelvis (its not a vvd book nor is Pain Free). It really helped and he made a lot of sense.

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Re: burning and PVD?

Post  Alana3 on Mon Mar 18, 2013 1:01 am

Just go to an orthodontist and get a splint I work in the field that's what they do and I have tmj

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Re: burning and PVD?

Post  Sarah001 on Mon Mar 18, 2013 11:43 am

There's also a trigger point in the neck that can mimic TMJ, my friend thought she had it and when I showed her the spot on her neck she pressed it and it reproduced all her "TMJ" symptoms so working on it over a few weeks got rid of the problem.
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Re: burning and PVD?

Post  ringostarr26 on Mon Mar 18, 2013 3:14 pm

I do have a splint, multiple actually. it hasn't helped much. Massage and dry needling helped a bit. I am just hoping once the stress of exams is over my flares calm down.

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Re: burning and PVD?

Post  Alana3 on Mon Mar 18, 2013 3:29 pm

Do you have clicking/popping? sometimes it needs surgery because its too far advanced, and do you still have wisdom teeth? Sometimes that can cause an issue too. I mean I clearly don't know what your problem is, but just saying there are definite ways to help your TMJ. Trust me my jaw is very musical when I eat haha its painful too sometimes. But I'm a surgical candidate at this point blah I've had enough surgery recently! Heat and advil might help if you're having a painful flair. Also, if you sleep with a window/fan on you may consider turning those off because they oddly can trigger pain in you jaw.

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Re: burning and PVD?

Post  ringostarr26 on Mon Mar 18, 2013 4:53 pm

mine is all muscular from what my doctors say. MRI's all came back negative and I don't get popping in clicking. Most of the pain i get is in my ear to be honest so surgery is not an option.I think all my TMJ problems started from having my wisdom teeth removed actually. It seems like it is easier to control the TMJ flares over the V flares though. At least with TMJ doctors know what it going on! This may sound weird but when my TMJ is at its worst my V flare is not bad ad vice versa. I think everything is connected and there is a constant pull on my muscles. I just wish there were better studies out there to help us all suffering with this awful ailment.

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Re: burning and PVD?

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