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» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Do you think this problem is linked to trauma?

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Do you think this problem is linked to trauma?

Post  Sadgirl on Mon Mar 18, 2013 12:37 pm

I found myself up again tonight, troubled by my inability to have painless or fulfilling sex. I found this show on "MTV True Life, I can't have Sex" and I feel like I'm watching my life, it's so sad. I really wonder what is the connection to this problem and if trauma plays a part in this horrible condition? I was raised in a home where it was pounded in my head my entire life that sex was a bad thing, not natural, not something fulfilling or that one should enjoy, not a normal part of a healthy life. Basically my parents where religious nuts and if you had sex you'd get pregnant, get AIDS, it would end up ruining your life and the aids would kill you and you'd burn in he'll for all eternity. It sounds crazy as I now know that it is, but that's what I was taught from day one. I was diagnosed in 2005 due to horrible pain during and after sex, that's when we were able to have it. When we could actually have sex I would pay for it for the next 48 hours and knew I would live in the bathroom and would have excruciating lowerback and pelvic pain. I had an exam and was diagnosed with IC intersestial Cystitus I had one DMSO treatment that almost landed me in ER. I spent two days curled up in a ball crying, in
excruciating pain, and on pain killers and the Dr decided (as well as myself) that this
was not the best option for me, this specialist said in all the 30+ years he's done
treatment for IC he's never seen a case as bad as mine and referred me to a urologist at
a state of the university hospital that focuses on women's health. That is where I go
now, my urologist has Confimed my diagnoses of IC and pelvic floor damage. I have
tried medications (mostly musle relaxers and pain preventatives), and have done physical
therapy, and counseling. I do wonder how fear and lack of trust play into the fact that
I'm unable to have or have pain free intercourse. I never had issues with painful sex or pelvic pain after intercourse even after I got married in 2003, but I was attacked and raped in 2004, I had my first child in 2005 and I guess I've always wondered if this was
caused by my rape or my c-section when having my baby. I have spent a several years
in counseling dealing with the rape and assault, and feel that I have emotionally, physicologically, mentally, and have moved onto helping women and men dealing with
this same issue. I have moved from being a victim through survivor to thrivor, but I still
struggle with this disabling pain and the lack of desire to want to connect sexually
knowing the pain that it will entail and fallow. I know I hear that a lot of this is related
to anxiety and fear and although my mind is saying yes I feel like my body regardless
says no. I was wondering who else has had some type of trauma like myself that has
lead to this condition and inability, whether it be molestation, sexual abuse, rape, trauma, or being raised with the belief that sex is somehow something that is wrong or something that one shouldn't do or enjoy anyways and how this all plays into it? I know
it takes brave and amazing poeple suffering from this horrible issue to have these
discussions but now that I've found others suffering from this very under discussed and misunderstood issue I'm asking hoping someone out there is brave enough to admit if they have suffered from any of these same things and if they think it has impacted them or is linked to this issue? Thank you, and good luck to you all and your struggles with this aweful condition.

Sadgirl

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Re: Do you think this problem is linked to trauma?

Post  Alana3 on Mon Mar 18, 2013 1:19 pm

I think it could be a little of both especially when you have had the encounter you had of course you're going to be tense, but I definetely know its NOT in your head this is a real thing. I have not been in a situation like yours, and my pain was horrifying. I don't really know what to say, but do you have both IC and Vulvodynia and where are you located? I'm sorry to hear all that happened to you that's horrible but I'm glad you are able to overcome it and be a role model for others who have been thru it. Where are you located and getting your treatment at?

Alana3

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Re: Do you think this problem is linked to trauma?

Post  Kathy100 on Mon Mar 18, 2013 3:55 pm

Hi, I haven’t suffered from the same terrible things as you and I feel for you. It’s great to hear that you have come through all of that and are now helping others. When I was finally diagnosed though both my doctor & the pain management consultant asked me if I had been abused and/or raped as they said that this type of trauma can cause it / be linked to it. In my case I wasn’t & I have horrible burning pain that isn’t in my head. Mine started out of the blue with pain during & after sex followed by cystitis.
I do think when you are expecting something to be painful because of previous experiences then you start to tense more anyway - I know I do and that can make it worse. My doctor also said that the body remembers pain and reacts to defend itself??

Kathy100

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Re: Do you think this problem is linked to trauma?

Post  Sadgirl on Mon Mar 18, 2013 7:28 pm

Thank you for your replies, I'm seeing a urologist in Portland, OR at OHSU. It's a travel from where I live but it's worth it, when I started my physical therapy there several years ago I traveled there once a week just trying to get the pain under control. Since then our local hospital has gotten a physical therapist that helps with IC patients and I've seen her as well, she had me do all the same exercises but it wasnt as successful. The physical therapist I've seen at OHSU did stretching, exercise, chiropractic adjustments, and a little message therapy, the one her locally just has me do these hard exercises with no warm up, cool down, stretching, that's it. When I left I felt like I was hit by a bus and was in worse pain than when I had sex. I recently had a consult with a physical therapist that works at the pain management clinic I've been referred to, but she discussed wanting to do internal work with me, and honestly didn't explain much beside that and I don't think I could or would be comfortable enough to do that, not even with my husband let alone a stranger. Maybe this is something either of you have tried, and if so is it helpful? There are times I feel if they told me to live off pickles and stand on my head 5 times a day to help I would. I've tried changing my diet as several books suggest but I don't eat the trigger foods as they put it due to my IBS anyways but I haven't noticed any flare ups the few times I've indulged so theres only so much I can do. It is hard, I want to satisfy my husband I know men have needs and stay pretty creative to keep him happy but it still would be nice not to have to dread being intimate knowing I will be up all night and in such pain when I do. Oh I also read an article and filled out a survey and it asked about the use of pot (yes a smoking drug) as it is legal in some states and is used for medical reasons, I guess for IC and if it helped. I never have but if you all have tried this as a medical choice did it help?

Sadgirl

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Re: Do you think this problem is linked to trauma?

Post  Alana3 on Mon Mar 18, 2013 7:41 pm

If pot is legal where you are (and I'm pretty sure it is) why not try it? Can't hurt and it really cant mess you up than anything else you've probably tried. Smile

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Re: Do you think this problem is linked to trauma?

Post  Kathy100 on Tue Mar 19, 2013 2:33 pm

I've only had one physio (physical therapy) session so far. The therapist asked all about my history (and listened) checked how flexible I was and then did an ultrasound massage on my back followed by some trigger point releasing on my back, backside & legs as I have pain there as well as the V pain. This was gentle and really helped my back pain. She has also given me some exercises to do at home & guidelines on what not to do too. I do feel as if I'm getting somewhere at last. She is going to do some internal work but as I've a lot of pain there she wants to sort out my lower back pain first. I'm not looking forward to it because I know it's going to be painful but I'm going to give it a go....

Kathy100

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Re: Do you think this problem is linked to trauma?

Post  Alana3 on Tue Mar 19, 2013 2:50 pm

Its really not as bad as you think- you just have to be open for it- which you are if you're going to do it. Once they release those muscles you are going to feel so much better I promise! Smile

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Re: Do you think this problem is linked to trauma?

Post  Kathy100 on Wed Mar 20, 2013 10:57 am

That's what I'm hoping ...

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Re: Do you think this problem is linked to trauma?

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