Log in

I forgot my password

Latest topics
Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 0

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


Do you think this problem is linked to trauma?

View previous topic View next topic Go down

Do you think this problem is linked to trauma?

Post  Sadgirl on Mon Mar 18, 2013 12:37 pm

I found myself up again tonight, troubled by my inability to have painless or fulfilling sex. I found this show on "MTV True Life, I can't have Sex" and I feel like I'm watching my life, it's so sad. I really wonder what is the connection to this problem and if trauma plays a part in this horrible condition? I was raised in a home where it was pounded in my head my entire life that sex was a bad thing, not natural, not something fulfilling or that one should enjoy, not a normal part of a healthy life. Basically my parents where religious nuts and if you had sex you'd get pregnant, get AIDS, it would end up ruining your life and the aids would kill you and you'd burn in he'll for all eternity. It sounds crazy as I now know that it is, but that's what I was taught from day one. I was diagnosed in 2005 due to horrible pain during and after sex, that's when we were able to have it. When we could actually have sex I would pay for it for the next 48 hours and knew I would live in the bathroom and would have excruciating lowerback and pelvic pain. I had an exam and was diagnosed with IC intersestial Cystitus I had one DMSO treatment that almost landed me in ER. I spent two days curled up in a ball crying, in
excruciating pain, and on pain killers and the Dr decided (as well as myself) that this
was not the best option for me, this specialist said in all the 30+ years he's done
treatment for IC he's never seen a case as bad as mine and referred me to a urologist at
a state of the university hospital that focuses on women's health. That is where I go
now, my urologist has Confimed my diagnoses of IC and pelvic floor damage. I have
tried medications (mostly musle relaxers and pain preventatives), and have done physical
therapy, and counseling. I do wonder how fear and lack of trust play into the fact that
I'm unable to have or have pain free intercourse. I never had issues with painful sex or pelvic pain after intercourse even after I got married in 2003, but I was attacked and raped in 2004, I had my first child in 2005 and I guess I've always wondered if this was
caused by my rape or my c-section when having my baby. I have spent a several years
in counseling dealing with the rape and assault, and feel that I have emotionally, physicologically, mentally, and have moved onto helping women and men dealing with
this same issue. I have moved from being a victim through survivor to thrivor, but I still
struggle with this disabling pain and the lack of desire to want to connect sexually
knowing the pain that it will entail and fallow. I know I hear that a lot of this is related
to anxiety and fear and although my mind is saying yes I feel like my body regardless
says no. I was wondering who else has had some type of trauma like myself that has
lead to this condition and inability, whether it be molestation, sexual abuse, rape, trauma, or being raised with the belief that sex is somehow something that is wrong or something that one shouldn't do or enjoy anyways and how this all plays into it? I know
it takes brave and amazing poeple suffering from this horrible issue to have these
discussions but now that I've found others suffering from this very under discussed and misunderstood issue I'm asking hoping someone out there is brave enough to admit if they have suffered from any of these same things and if they think it has impacted them or is linked to this issue? Thank you, and good luck to you all and your struggles with this aweful condition.

Sadgirl

Posts : 4
Join date : 2013-03-18

View user profile

Back to top Go down

Re: Do you think this problem is linked to trauma?

Post  Alana3 on Mon Mar 18, 2013 1:19 pm

I think it could be a little of both especially when you have had the encounter you had of course you're going to be tense, but I definetely know its NOT in your head this is a real thing. I have not been in a situation like yours, and my pain was horrifying. I don't really know what to say, but do you have both IC and Vulvodynia and where are you located? I'm sorry to hear all that happened to you that's horrible but I'm glad you are able to overcome it and be a role model for others who have been thru it. Where are you located and getting your treatment at?

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Do you think this problem is linked to trauma?

Post  Kathy100 on Mon Mar 18, 2013 3:55 pm

Hi, I haven’t suffered from the same terrible things as you and I feel for you. It’s great to hear that you have come through all of that and are now helping others. When I was finally diagnosed though both my doctor & the pain management consultant asked me if I had been abused and/or raped as they said that this type of trauma can cause it / be linked to it. In my case I wasn’t & I have horrible burning pain that isn’t in my head. Mine started out of the blue with pain during & after sex followed by cystitis.
I do think when you are expecting something to be painful because of previous experiences then you start to tense more anyway - I know I do and that can make it worse. My doctor also said that the body remembers pain and reacts to defend itself??

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Do you think this problem is linked to trauma?

Post  Sadgirl on Mon Mar 18, 2013 7:28 pm

Thank you for your replies, I'm seeing a urologist in Portland, OR at OHSU. It's a travel from where I live but it's worth it, when I started my physical therapy there several years ago I traveled there once a week just trying to get the pain under control. Since then our local hospital has gotten a physical therapist that helps with IC patients and I've seen her as well, she had me do all the same exercises but it wasnt as successful. The physical therapist I've seen at OHSU did stretching, exercise, chiropractic adjustments, and a little message therapy, the one her locally just has me do these hard exercises with no warm up, cool down, stretching, that's it. When I left I felt like I was hit by a bus and was in worse pain than when I had sex. I recently had a consult with a physical therapist that works at the pain management clinic I've been referred to, but she discussed wanting to do internal work with me, and honestly didn't explain much beside that and I don't think I could or would be comfortable enough to do that, not even with my husband let alone a stranger. Maybe this is something either of you have tried, and if so is it helpful? There are times I feel if they told me to live off pickles and stand on my head 5 times a day to help I would. I've tried changing my diet as several books suggest but I don't eat the trigger foods as they put it due to my IBS anyways but I haven't noticed any flare ups the few times I've indulged so theres only so much I can do. It is hard, I want to satisfy my husband I know men have needs and stay pretty creative to keep him happy but it still would be nice not to have to dread being intimate knowing I will be up all night and in such pain when I do. Oh I also read an article and filled out a survey and it asked about the use of pot (yes a smoking drug) as it is legal in some states and is used for medical reasons, I guess for IC and if it helped. I never have but if you all have tried this as a medical choice did it help?

Sadgirl

Posts : 4
Join date : 2013-03-18

View user profile

Back to top Go down

Re: Do you think this problem is linked to trauma?

Post  Alana3 on Mon Mar 18, 2013 7:41 pm

If pot is legal where you are (and I'm pretty sure it is) why not try it? Can't hurt and it really cant mess you up than anything else you've probably tried. Smile

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Do you think this problem is linked to trauma?

Post  Kathy100 on Tue Mar 19, 2013 2:33 pm

I've only had one physio (physical therapy) session so far. The therapist asked all about my history (and listened) checked how flexible I was and then did an ultrasound massage on my back followed by some trigger point releasing on my back, backside & legs as I have pain there as well as the V pain. This was gentle and really helped my back pain. She has also given me some exercises to do at home & guidelines on what not to do too. I do feel as if I'm getting somewhere at last. She is going to do some internal work but as I've a lot of pain there she wants to sort out my lower back pain first. I'm not looking forward to it because I know it's going to be painful but I'm going to give it a go....

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Do you think this problem is linked to trauma?

Post  Alana3 on Tue Mar 19, 2013 2:50 pm

Its really not as bad as you think- you just have to be open for it- which you are if you're going to do it. Once they release those muscles you are going to feel so much better I promise! Smile

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Do you think this problem is linked to trauma?

Post  Kathy100 on Wed Mar 20, 2013 10:57 am

That's what I'm hoping ...

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Do you think this problem is linked to trauma?

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum