Log in

I forgot my password

Latest topics
» I don't know what to do anymore
Yesterday at 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


First Physio - at last answers

Go down

First Physio - at last answers

Post  Kathy100 on Mon Mar 18, 2013 4:08 pm

Had my first physio (PT) session last week and at last after months of hell, feel as if I’m starting to get some answers. This forum has been one of the things that has helped keep me going. The physio said that my stomach was permanently clenched ( I had no idea feels so normal to me!) probably going back to when I had IBS at 21 – I’m 47 now. My pelvis is permanently clenched too and in the wrong position. She found a weakness in my lower back, worse on the left hand side, loads of trigger points on my back, backside and legs! She said that there will definitely be some internal ones too & she’s going to tackle those once she’s got my back sorted out. She massaged my back and did some trigger point releasing & immediately the pain in my left leg & back has eased. She also corrected my posture & has given me some exercises to do as well as practising releasing pelvis & stomach which feels so strange. Very early days but at least it’s something to work with….

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: First Physio - at last answers

Post  cba321 on Mon Mar 18, 2013 7:42 pm

Hi there,

I have exactly the same thing as you. Took me a long time to get my answers too. My abdomen in tight also, probably due to the abdomen fascia (skin that surrounds all muscles) is shared with the pelvis, so they are kind of in one sack. I've done physio, chiro, light touch myofascial release, and exercise physiology. Are you hyper flexible in your lower limbs out of interest?

cba321

Posts : 69
Join date : 2012-07-14

View user profile

Back to top Go down

Re: First Physio - at last answers

Post  Kathy100 on Tue Mar 19, 2013 2:40 pm

Hi

Thanks for your reply. I've always been told I'm very flexible at various medicals, by the physio etc but no-one has ever said hyper flexible. My hips, knees & feet also click alot!
How are you getting on? What has helped you the most?

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: First Physio - at last answers

Post  cba321 on Thu Mar 21, 2013 4:58 am

Hi

You can have a look at The Beighton score for hyperflexibility

http://www.nhs.uk/Conditions/Joint-hypermobility/Pages/Diagnosis.aspx

All of them have helped in there own way I guess, but I think the light touch myofascial massage has been the best as it does not cause any pain yet releases the muscles quite a bit. Still early days!

cba321

Posts : 69
Join date : 2012-07-14

View user profile

Back to top Go down

Re: First Physio - at last answers

Post  Sarah001 on Thu Mar 21, 2013 2:12 pm

If you have Hypermobility issues you get diagnosed at Rheumatology and they look at your elbows, knees, spine, wrists and fingers and they expect to find elbows and knees that hyperextend so bend backwards, you likely would be able to place your palms flat on the floor without bending your knees and some people have fingers that easily bend backwards or can touch the thumb to the forearm. They also take into consideration any family history of it as it's hereditory and how long you've been in pain plus how many joints give you pain to establish if you have Hypermobility Syndrome as opposed to just being hypermobile. The only bit I can't do is my fingers don't easily bend backwards but there are lots of other bits on me that are too loose but aren't part of the test so it depends on the Rheumy as to whether they examine those.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: First Physio - at last answers

Post  Kathy100 on Sat Mar 23, 2013 5:15 pm

Thanks for the link & Sarah thanks of the info. I used to be able to place hands flat on floor - I've done a lot of yoga in my time & I can bend my little fingers back 90 degrees. I can't do the others thou...

Had a flare up in the pain in my lower back / backside since Tuesday - had to take time off as too painful to sit down even with the donut cushion I use in the office...So fed-up with it all. I don't know is this because of the physio wearing off or as a result of it? or neither? I've got another appointment Wednesday so I'm hoping she'll be able to ease it....

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: First Physio - at last answers

Post  Sarah001 on Sat Mar 23, 2013 9:52 pm

Sounds like an SI joint issue to me. Have you got a trigger point ball to use in between sessions? I'm not sure where you're from but if it's the UK Chelston Direct do an excellent one for £10 which won't squash or break in two like a tennis ball does. I've also got some firm spikey ones that are great at getting the trigger points in the glute medius to give a bit.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: First Physio - at last answers

Post  dmilly01 on Tue Mar 26, 2013 4:39 pm

Hi Kathy100
I am seeing a pain specialist on the 4th April, as i have tried amitriptyline and gabapentin and neither of them worked. My gynocologist told me there was nothing else he could do for me, so has refered me to this pain specialist instead. I am 49 and i also have ibs, endometriosis, now vulvodynia, Which i was diagnosed with early last year. I also had some blood tests done last week to check my autoimmune system, as i had follicles removed from my cervix and an erosion.
So could be something going on there? Feeling bit happier about seeing the Specialst now that i know it has helped. I read on another site that it can help up to 60% of women with vulvodynia, so heres hoping! I have also bought some anal vibrators from Ann Summers as smaller than a normal vibrator and thought might help with stretching the muscles and relaxing them in my vulva. Have you tried anything like that? Or has anyone else on here? I was going to buy those dilators that you can order, that come in different sizes. But bit expensive if dont work! i will keep you posted on how i get on with the Specialist. Hope you keep finding relief. It would be fab to have pain free sex again with my husband. He is soo patient bless hm. Take carexx

dmilly01

Posts : 9
Join date : 2013-03-17
Age : 54
Location : peterborough, Cambs

View user profile

Back to top Go down

Re: First Physio - at last answers

Post  Kathy100 on Wed Mar 27, 2013 12:43 pm

Hi Sarah, Thanks for your reply. I do have a spiky trigger point ball about the same size as a tennis ball that I got from Amazon but must admit I'm not using it every day - I'll have to get more disciplined! It certainly digs into the pain. I've got my second physio appointment this afternoon so I'll ask her about SI joints.

Hi dmilly01 - thanks for your support. I have IBS also. My doctor first tried my on amitriptyline when she was at a loss at what to try next! It did help with the burning pain but I couldn't cope with the side effects. I then saw a pain specialist & he put me on notriptyline (which is the same class of drugs as ami with fewer side effects) - this has helped a lot with the burning pain. I tried lidocaine too which worked for a couple of days but then made the burning worse than ever. I can't seem to tolerate any creams down there now. He has also referred me to the physio which I'm hoping is going to sort out my tense muscles. I haven't tried dilators yet but I've read several other posts on this site where people have used them and it's helped. Good luck with your pain specialist and let us know how you get on.

Take care xx Kathy

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: First Physio - at last answers

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum