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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


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PLEASE READ

Post  katie220 on Wed Mar 20, 2013 5:51 pm

Hey everyone, I just wanted to ask you all a few questions about whats going on with me. My pain has been the same around three years. The pain gets better around the first day of my cycle and then progressively gets worse towards the luteal phase. Sometimes I can have sex and sometimes I can't. The strange thing is that the pain is mainly on the right side of my vagina. Docotors always told me I had a bacteria problem but no anti biotic ever helped. It doesn't make sense because if I had a nerve problem then why would the pain get better at times? I am really frustrated. Another odd thing is that if I take xanax the pain level goes down. Also, if I drink baking soda and water the burn on urination will go away. I am just really worried that this will turn into full blown constant pain and it will be all my fault. Can someone who has had this for awhile give me some advice?

katie220

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Re: PLEASE READ

Post  Alana3 on Wed Mar 20, 2013 6:11 pm

Mine always got worse before my period, and mine is worse on the right too. You could possibly have a muscle spasm on the right side which makes it uncomfortable. I had surgery in December and my probelm disappeared except for the muscles, which is a work in progress. If you take a xanax its for anxiety, so I would imagine that the pain would diminish because it makes you relax and if its at all muscular, well there you go! Perhaps you have IC? I think burning with urination is a symptom of IC. Also, people with IC have trouble having sex as well. Do you pee a lot? And nerves are stupid, my pain was only there if provoked not all the time. So even with a nerve problem, it doesn't mean that your nerves aren't firing off different signals at different times. Pay attention to what you're doing when it starts hurting really bad. Sex? Sitting too long? But my vulvodynia def got way worse (as did everything) when my period came and better after it ended. Stop taking the antibiotics unless you really need them, they aren't going to help you for what you have. I had a doctor who did that to me too, and it never worked, finally, I got so frustrated I went to look for a specialist (after I was told I had herpes which I DIDNT!) and he diagnosed me with vulovdynia and treated me with a topical compound for a while and finally I couldn't take it anymore I opted for surgery.

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Re: PLEASE READ

Post  katie220 on Wed Mar 20, 2013 6:38 pm

Thanks for the reply! I don't think I have IC. I mean I pee a lot but I've been that way since I was a little kid. What kind of surgery did you have? Surgery would be the last resort for me but if it works I would definitely do it. The only problem is that I can have sex at times and I wouldn't want surgery to numb me to the point where I can't have an orgasm anymore. Did it do that to you? I was also wondering if you felt a sort of "zapping" feeling or a feeling of electricity on your right side at times. It happened to me when I stopped drinking caffeine. Yes, it does get worse when I sit too long. When I get up and walk around it gets a lot better.

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Post  Alana3 on Wed Mar 20, 2013 6:50 pm

They basically removed the affected skin, it was a last resort for me too, and my doctor tried everything before he did the surgery. I mean I'm not having sex right now, but I still have every sensation (besides the pain) that I had before surgery, now. You'll def be able to have an orgasm lol, no worries. I sometimes do get an electrical feeling, but its every now and then, but I think mine is from where my body is recovering from my surgery lol Yours sounds like mine where your skin is affected and possibly some muscular. But I mean I don't know for sure. Where are you located? If you're anywhere near me, my doctor is awesome and has made me feel so much better Smile

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Post  katie220 on Wed Mar 20, 2013 7:04 pm

That's awesome! I always thought surgery made you permanently numb lol. I live in a suburb around Kansas City Missouri. What was your condition called? If you can't give me the name of it could you describe it to me more? I want to tell my doctor about it because he is confused about what my problem might be too.

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Re: PLEASE READ

Post  Alana3 on Wed Mar 20, 2013 7:31 pm

If your doctor doesn't know what your problem is, I'd get a new one or someone who can help point you in a direction appropriate for you. Mine was provoked vestibulodynia, basically meaning that my pain was only there on contact (with a penis, qtip, pelvic exam, tampons, etc.). So sex was impossible, and where it sometimes flared it was nothing like I've heard other people describe. I guess it could make you numb, but that was a question I asked my doc when he first told me about it, and said that would defeat the entire point of the surgery and most people have like 98% success rates. I'd say mine was that close. The surgery itself was called a vestibulectomy. However, only a few people are referred that route because it's not for everyone. People with unprovoked vestibulodynia are not often reccomended to go down that road, for whatever reason, it wouldn't work in their case. But I had no burning with peeing, I would look into that too, that sounds awful. I live in Florida, I don't know if that's an option for you, but my doctor honestly was a life saver for me, he specailizes in vulovdynia, and chronic vag pain. Another thing I did was physical therapy, but before my surgery it was so painful I couldn't take it anymore and had to stop, now I go with no problems, except for muscle spasms. Grrr.

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Re: PLEASE READ

Post  katie220 on Wed Mar 20, 2013 9:16 pm

Thanks for all the advice! You definitely helped. I will keep you updated on how my progress goes and I'm going to look up some vulvar pain specialists in Kansas City. I may just have generalized vulvodynia because it's not provoked. I'm only 24 though so I'm not really sure if I'm too young for that.

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Re: PLEASE READ

Post  Alana3 on Wed Mar 20, 2013 10:16 pm

It doesn't matter how old you are there are little kids with it unfortunately. Good luck lmk if u need anything

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