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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Feeling extremely down.

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Feeling extremely down.

Post  fedup.com on Sun Mar 24, 2013 5:40 pm

My problems started about 5 years ago when I was 18/19.

My symptoms started with pain after sex, at which point I went to my university doctors. On both occasions I went it was suggested I had an STI, and on both occasions the tests came back clear yet no further advice was offered. It was then just something I accepted but as time went on pain did get worse so it was occurring during and afterwards, sometimes unbearable.

After 3 years of that, I then went to my local GP several times. On the first occasion, I was diagnosed with herpes and sent to the GUM clinic, who quickly retracted that diagnosis. Next it was suggested I was suffering from thrush, after following a course of treatment that also turned out to be an incorrect diagnosis. My GP then put me on 10mg on amitriptyline on the hope that it would reduce the pain. After a year of visiting my GP and making no progress, I was then referred to a dermatologist at the hospital treatment centre and that was about a year ago. On my first visit I was diagnosed with vulvodynia on the entrance to my vagina.

My dosage of amitriptyline was then increased to 75mg each night which I found unbearable. I work as a teacher and found I couldn't cope with that amount of amitriptyline on top of the early mornings and light nights. I also put on a great deal of weight when taking that dosage, putting on a stone and a half. I was also provided with dilators to try and use to get comfortable with something entering the vagina! That is currently the situation now ... no progress, weight gain and feeling pretty miserable.

My boyfriend has been absolutely amazing throughout it all, really encouraging and supportive which has helped make things less stressful but I just feel like there is going to be no end to it all!

Did anyone else have similar treatments to mine and find them unsuccessful? If so, what other solutions do you have to offer? A| huge thanks in advance!!


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Re: Feeling extremely down.

Post  Alana3 on Mon Mar 25, 2013 2:33 pm

haha yup your story sounds exactly like mine except I refused to go on oral pills so they made a compound for me, but I don't think they do that where you're from. I decided to go ahead with surgery, but I'm not sure that's a big hit over there either. I tried PT which helped, but it was more my skin that was affected than my muscles, and it became excruciating. I guess google a vulvodynia specailst in the location where you're at and go from there, but other than the surgery nothing worked for me Sad I'm glad you had a boyfriend who is supportive, that's important too! Mine cheated on me so we obviously broke up and I felt like a complete loser, which made this whole process even worse. You can try lidocaine on it before sex and maybe that will help you- but you will have to use condoms (which I would do anyway) because his penis will go numb lol. But I would def try to find a vulvodynia specialist someone who does this everyday so they can help you better than a regular gyno. It took my forever to find one, but I am so thankful that I took the time to do so. I traveled all over the place looking for the right doctor and spent crazy amounts of money, but it was honestly so worth it.


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Re: Feeling extremely down.

Post  Kathy100 on Wed May 01, 2013 3:35 pm

Yep - your story is similar to mine first they said STDs but all came back clear, then cystitis gave me antibiotics, then thrush, then just take paracetamol,. Finally gave me amitriptyline but I couldn't take the side effects. Then I found a pain management specialist in v so now I take notriptyline which is the same class of drug as the ami but is newer & has fewer side effects. Also doing physio as my muscles are really tight and its starting to help. The best thing to do is find a dr who specialises in vulvodynia who can put together a treatment plan for you & discuss various options. Lucky you having understanding boyfriend - mine left! Mind you with this I prefer being single - ha!
Good luck.


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Re: Feeling extremely down.

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