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» Please tell me this can get better
Today at 2:10 am by anon99

» Acupuncture advice please
Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

Wed Feb 14, 2018 3:33 am by Athena


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

Feeling extremely down.

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Feeling extremely down.

Post  fedup.com on Sun Mar 24, 2013 5:40 pm

My problems started about 5 years ago when I was 18/19.

My symptoms started with pain after sex, at which point I went to my university doctors. On both occasions I went it was suggested I had an STI, and on both occasions the tests came back clear yet no further advice was offered. It was then just something I accepted but as time went on pain did get worse so it was occurring during and afterwards, sometimes unbearable.

After 3 years of that, I then went to my local GP several times. On the first occasion, I was diagnosed with herpes and sent to the GUM clinic, who quickly retracted that diagnosis. Next it was suggested I was suffering from thrush, after following a course of treatment that also turned out to be an incorrect diagnosis. My GP then put me on 10mg on amitriptyline on the hope that it would reduce the pain. After a year of visiting my GP and making no progress, I was then referred to a dermatologist at the hospital treatment centre and that was about a year ago. On my first visit I was diagnosed with vulvodynia on the entrance to my vagina.

My dosage of amitriptyline was then increased to 75mg each night which I found unbearable. I work as a teacher and found I couldn't cope with that amount of amitriptyline on top of the early mornings and light nights. I also put on a great deal of weight when taking that dosage, putting on a stone and a half. I was also provided with dilators to try and use to get comfortable with something entering the vagina! That is currently the situation now ... no progress, weight gain and feeling pretty miserable.

My boyfriend has been absolutely amazing throughout it all, really encouraging and supportive which has helped make things less stressful but I just feel like there is going to be no end to it all!

Did anyone else have similar treatments to mine and find them unsuccessful? If so, what other solutions do you have to offer? A| huge thanks in advance!!


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Re: Feeling extremely down.

Post  Alana3 on Mon Mar 25, 2013 2:33 pm

haha yup your story sounds exactly like mine except I refused to go on oral pills so they made a compound for me, but I don't think they do that where you're from. I decided to go ahead with surgery, but I'm not sure that's a big hit over there either. I tried PT which helped, but it was more my skin that was affected than my muscles, and it became excruciating. I guess google a vulvodynia specailst in the location where you're at and go from there, but other than the surgery nothing worked for me Sad I'm glad you had a boyfriend who is supportive, that's important too! Mine cheated on me so we obviously broke up and I felt like a complete loser, which made this whole process even worse. You can try lidocaine on it before sex and maybe that will help you- but you will have to use condoms (which I would do anyway) because his penis will go numb lol. But I would def try to find a vulvodynia specialist someone who does this everyday so they can help you better than a regular gyno. It took my forever to find one, but I am so thankful that I took the time to do so. I traveled all over the place looking for the right doctor and spent crazy amounts of money, but it was honestly so worth it.


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Re: Feeling extremely down.

Post  Kathy100 on Wed May 01, 2013 3:35 pm

Yep - your story is similar to mine first they said STDs but all came back clear, then cystitis gave me antibiotics, then thrush, then just take paracetamol,. Finally gave me amitriptyline but I couldn't take the side effects. Then I found a pain management specialist in v so now I take notriptyline which is the same class of drug as the ami but is newer & has fewer side effects. Also doing physio as my muscles are really tight and its starting to help. The best thing to do is find a dr who specialises in vulvodynia who can put together a treatment plan for you & discuss various options. Lucky you having understanding boyfriend - mine left! Mind you with this I prefer being single - ha!
Good luck.


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Re: Feeling extremely down.

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