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Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Steroid Injections then Prolotherapy

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Steroid Injections then Prolotherapy

Post  Sarah001 on Thu Mar 28, 2013 9:43 pm

Hi Girls, I have been to a private pain clinic today to look into getting prolotherapy to tighten my damaged ligaments around the right SI joint and at no point did I mention V when the doctor announced I needed a steroid jab in the joint first as I had symptoms consistent with nerve inflammation, specifically the nerves around the S1 and S2 area of the sacrum. He established this by my reflexes, right side barely responds where as the left is normal, and explained how he got alot of men going with pain or burning in the scrotum and it always turned out to be a sacroiliac joint irritating a nerve and it astounded me to be honest! Clearly the vulva is the same area as the scrotum and for him to know which nerves were being affected with no knowledge of my vulva pain and burning surprised me. So I said I wanted to run it by my physio and he said ok just give me a ring to let me know if you're going ahead but as he's so clued up I'll definitely be going ahead. Hopefully next week for the sacroiliac steroid jabs and then it has to be 4-6 weeks later we start the prolo. Just wanted to let you all know about the sacral nerves aspect in case it applies to any of you ladies. Wish me luck!
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Re: Steroid Injections then Prolotherapy

Post  Loulou on Sun Mar 31, 2013 6:29 pm

Thanks for the info Sarah. Makes a lot of sense to me. My chiro says my pelvic misalignment was due to SI problem so if that can irritate sacral nerves related to the vulva then it would explain my vvd. Its basically what my chiros been saying too - that its like a chain reaction in the pelvis when you have misalignment or instability. As you already know, its not just a simple case of bones being out of line or in the wrong place - misalignment or abnormal movement can cause tension in surrounding muscles, ditto connective tissue, ditto nerves. Just further confirmation to me that i've got to look after my SI joints!

Good luck with the steriod injections and the prolo therapy. Let us know how you get on.

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Re: Steroid Injections then Prolotherapy

Post  Sarah001 on Sun Mar 31, 2013 9:00 pm

Steroid jabs scheduled for Tuesday night, I'm a little bit nervous now and have stopped being a geek and looking it up online after coming across horror stories, not that I believe them all but it won't help me to have them in my head on the day! Fingers crossed it goes well.
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Re: Steroid Injections then Prolotherapy

Post  Lms911 on Sat Jan 11, 2014 4:26 pm

Hi Sarah did the injections help?

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Re: Steroid Injections then Prolotherapy

Post  mary jane on Sun Jan 12, 2014 10:46 pm

Hi Sarah, you might want to read this. I am active on 3 different forums

"Transsacral S2-S4 nerve block for vaginal pain due to pudendal neuralgia.
Cok OY, Eker HE, Cok T, Akin S, Aribogan A, Arslan G.
Source
Department of Anesthesiology and Reanimation, Baskent University, School of Medicine, Ankara, Turkey. oyacok@yahoo.com
Abstract
Pudendal neuralgia is a type of neuropathic pain experienced predominantly while sitting, and causes a substantial decrease in quality of life in affected patients. Pudendal nerve block is a diagnostic and therapeutic option for pudendal neuralgia. Transsacral block at S2 through S4 results in pudendal nerve block, which is an option for successful relief of pain due to pudendal nerve injury. Herein is reported blockade of S2 through S4 using lidocaine and methylprednisolone for successful treatment of pudendal neuralgia in 2 patients with severe chronic vaginal pain. The patients, aged 44 and 58 years, respectively, were referred from the Gynecology Department to the pain clinic because of burning, stabbing, electric shock-like, unilateral pain localized to the left portion of the vagina and extending to the perineum. Their initial pain scores were 9 and 10, respectively, on a numeric rating scale. Both patients refused pudendal nerve block using classical techniques. Therefore, diagnostic transsacral S2-S4 nerve block was performed using lidocaine 1%, and was repeated using lidocaine 1% and methylprednisolone 80 mg after confirming block efficiency as demonstrated by an immediate decrease in pain scores. After 1 month, pain scores were 1 and 0, respectively, and both patients were free of pain at 6-month follow up. It is suggested that blockade of S2 through S4 using lidocaine and methylprednisolone is an effective treatment option in patients with chronic pudendal neuralgia when traditional pudendal nerve block is not applicable.
Copyright © 2011 AAGL. Published by Elsevier Inc. All rights reserved."

taken from pudendalhope forum
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Re: Steroid Injections then Prolotherapy

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