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» I don't know what to do anymore
Today at 5:05 am by SinclairSassy

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Steroid Injections then Prolotherapy

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Steroid Injections then Prolotherapy

Post  Sarah001 on Thu Mar 28, 2013 9:43 pm

Hi Girls, I have been to a private pain clinic today to look into getting prolotherapy to tighten my damaged ligaments around the right SI joint and at no point did I mention V when the doctor announced I needed a steroid jab in the joint first as I had symptoms consistent with nerve inflammation, specifically the nerves around the S1 and S2 area of the sacrum. He established this by my reflexes, right side barely responds where as the left is normal, and explained how he got alot of men going with pain or burning in the scrotum and it always turned out to be a sacroiliac joint irritating a nerve and it astounded me to be honest! Clearly the vulva is the same area as the scrotum and for him to know which nerves were being affected with no knowledge of my vulva pain and burning surprised me. So I said I wanted to run it by my physio and he said ok just give me a ring to let me know if you're going ahead but as he's so clued up I'll definitely be going ahead. Hopefully next week for the sacroiliac steroid jabs and then it has to be 4-6 weeks later we start the prolo. Just wanted to let you all know about the sacral nerves aspect in case it applies to any of you ladies. Wish me luck!
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Re: Steroid Injections then Prolotherapy

Post  Loulou on Sun Mar 31, 2013 6:29 pm

Thanks for the info Sarah. Makes a lot of sense to me. My chiro says my pelvic misalignment was due to SI problem so if that can irritate sacral nerves related to the vulva then it would explain my vvd. Its basically what my chiros been saying too - that its like a chain reaction in the pelvis when you have misalignment or instability. As you already know, its not just a simple case of bones being out of line or in the wrong place - misalignment or abnormal movement can cause tension in surrounding muscles, ditto connective tissue, ditto nerves. Just further confirmation to me that i've got to look after my SI joints!

Good luck with the steriod injections and the prolo therapy. Let us know how you get on.

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Re: Steroid Injections then Prolotherapy

Post  Sarah001 on Sun Mar 31, 2013 9:00 pm

Steroid jabs scheduled for Tuesday night, I'm a little bit nervous now and have stopped being a geek and looking it up online after coming across horror stories, not that I believe them all but it won't help me to have them in my head on the day! Fingers crossed it goes well.
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Re: Steroid Injections then Prolotherapy

Post  Lms911 on Sat Jan 11, 2014 4:26 pm

Hi Sarah did the injections help?

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Re: Steroid Injections then Prolotherapy

Post  mary jane on Sun Jan 12, 2014 10:46 pm

Hi Sarah, you might want to read this. I am active on 3 different forums

"Transsacral S2-S4 nerve block for vaginal pain due to pudendal neuralgia.
Cok OY, Eker HE, Cok T, Akin S, Aribogan A, Arslan G.
Source
Department of Anesthesiology and Reanimation, Baskent University, School of Medicine, Ankara, Turkey. oyacok@yahoo.com
Abstract
Pudendal neuralgia is a type of neuropathic pain experienced predominantly while sitting, and causes a substantial decrease in quality of life in affected patients. Pudendal nerve block is a diagnostic and therapeutic option for pudendal neuralgia. Transsacral block at S2 through S4 results in pudendal nerve block, which is an option for successful relief of pain due to pudendal nerve injury. Herein is reported blockade of S2 through S4 using lidocaine and methylprednisolone for successful treatment of pudendal neuralgia in 2 patients with severe chronic vaginal pain. The patients, aged 44 and 58 years, respectively, were referred from the Gynecology Department to the pain clinic because of burning, stabbing, electric shock-like, unilateral pain localized to the left portion of the vagina and extending to the perineum. Their initial pain scores were 9 and 10, respectively, on a numeric rating scale. Both patients refused pudendal nerve block using classical techniques. Therefore, diagnostic transsacral S2-S4 nerve block was performed using lidocaine 1%, and was repeated using lidocaine 1% and methylprednisolone 80 mg after confirming block efficiency as demonstrated by an immediate decrease in pain scores. After 1 month, pain scores were 1 and 0, respectively, and both patients were free of pain at 6-month follow up. It is suggested that blockade of S2 through S4 using lidocaine and methylprednisolone is an effective treatment option in patients with chronic pudendal neuralgia when traditional pudendal nerve block is not applicable.
Copyright © 2011 AAGL. Published by Elsevier Inc. All rights reserved."

taken from pudendalhope forum
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Re: Steroid Injections then Prolotherapy

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