Log in

I forgot my password

Latest topics
Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Steroid Injections then Prolotherapy

Go down

Steroid Injections then Prolotherapy

Post  Sarah001 on Thu Mar 28, 2013 9:43 pm

Hi Girls, I have been to a private pain clinic today to look into getting prolotherapy to tighten my damaged ligaments around the right SI joint and at no point did I mention V when the doctor announced I needed a steroid jab in the joint first as I had symptoms consistent with nerve inflammation, specifically the nerves around the S1 and S2 area of the sacrum. He established this by my reflexes, right side barely responds where as the left is normal, and explained how he got alot of men going with pain or burning in the scrotum and it always turned out to be a sacroiliac joint irritating a nerve and it astounded me to be honest! Clearly the vulva is the same area as the scrotum and for him to know which nerves were being affected with no knowledge of my vulva pain and burning surprised me. So I said I wanted to run it by my physio and he said ok just give me a ring to let me know if you're going ahead but as he's so clued up I'll definitely be going ahead. Hopefully next week for the sacroiliac steroid jabs and then it has to be 4-6 weeks later we start the prolo. Just wanted to let you all know about the sacral nerves aspect in case it applies to any of you ladies. Wish me luck!
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 45
Location : UK

View user profile

Back to top Go down

Re: Steroid Injections then Prolotherapy

Post  Loulou on Sun Mar 31, 2013 6:29 pm

Thanks for the info Sarah. Makes a lot of sense to me. My chiro says my pelvic misalignment was due to SI problem so if that can irritate sacral nerves related to the vulva then it would explain my vvd. Its basically what my chiros been saying too - that its like a chain reaction in the pelvis when you have misalignment or instability. As you already know, its not just a simple case of bones being out of line or in the wrong place - misalignment or abnormal movement can cause tension in surrounding muscles, ditto connective tissue, ditto nerves. Just further confirmation to me that i've got to look after my SI joints!

Good luck with the steriod injections and the prolo therapy. Let us know how you get on.

Loulou

Posts : 124
Join date : 2012-01-18

View user profile

Back to top Go down

Re: Steroid Injections then Prolotherapy

Post  Sarah001 on Sun Mar 31, 2013 9:00 pm

Steroid jabs scheduled for Tuesday night, I'm a little bit nervous now and have stopped being a geek and looking it up online after coming across horror stories, not that I believe them all but it won't help me to have them in my head on the day! Fingers crossed it goes well.
avatar
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 45
Location : UK

View user profile

Back to top Go down

Re: Steroid Injections then Prolotherapy

Post  Lms911 on Sat Jan 11, 2014 4:26 pm

Hi Sarah did the injections help?

Lms911

Posts : 30
Join date : 2013-11-07

View user profile

Back to top Go down

Re: Steroid Injections then Prolotherapy

Post  mary jane on Sun Jan 12, 2014 10:46 pm

Hi Sarah, you might want to read this. I am active on 3 different forums

"Transsacral S2-S4 nerve block for vaginal pain due to pudendal neuralgia.
Cok OY, Eker HE, Cok T, Akin S, Aribogan A, Arslan G.
Source
Department of Anesthesiology and Reanimation, Baskent University, School of Medicine, Ankara, Turkey. oyacok@yahoo.com
Abstract
Pudendal neuralgia is a type of neuropathic pain experienced predominantly while sitting, and causes a substantial decrease in quality of life in affected patients. Pudendal nerve block is a diagnostic and therapeutic option for pudendal neuralgia. Transsacral block at S2 through S4 results in pudendal nerve block, which is an option for successful relief of pain due to pudendal nerve injury. Herein is reported blockade of S2 through S4 using lidocaine and methylprednisolone for successful treatment of pudendal neuralgia in 2 patients with severe chronic vaginal pain. The patients, aged 44 and 58 years, respectively, were referred from the Gynecology Department to the pain clinic because of burning, stabbing, electric shock-like, unilateral pain localized to the left portion of the vagina and extending to the perineum. Their initial pain scores were 9 and 10, respectively, on a numeric rating scale. Both patients refused pudendal nerve block using classical techniques. Therefore, diagnostic transsacral S2-S4 nerve block was performed using lidocaine 1%, and was repeated using lidocaine 1% and methylprednisolone 80 mg after confirming block efficiency as demonstrated by an immediate decrease in pain scores. After 1 month, pain scores were 1 and 0, respectively, and both patients were free of pain at 6-month follow up. It is suggested that blockade of S2 through S4 using lidocaine and methylprednisolone is an effective treatment option in patients with chronic pudendal neuralgia when traditional pudendal nerve block is not applicable.
Copyright © 2011 AAGL. Published by Elsevier Inc. All rights reserved."

taken from pudendalhope forum
avatar
mary jane

Posts : 333
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: Steroid Injections then Prolotherapy

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum