Log in

I forgot my password

Latest topics
» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Looking for guidence

View previous topic View next topic Go down

Looking for guidence

Post  Hodg72 on Sun Mar 31, 2013 4:27 pm

Hi to all

I guess I am looking for others with similar symptoms/experiences to mine, and looking at some of the posts I think I might find some here.

I have experienced itching, burning and some pain 'down there' for about 15 years. For 12 of those years I thought I had recurring thrush, and treated the problem accordingly. I had many swabs over the years, but was never actually told that they swabs were negative - so I subjected myself for the harsh treatments for years unnecessarily! Finally my Gynae looked in my file and asked why I was going through all the courses of treatment when I had always come back negative??!! (GRRRRR).

We them looked at other things such as dermatitis etc, and I was given steroid treatments to try. Nothing has really helped, although there are some (very few and far between) months when I DON'T suffer. That is the other thing about me - my symptoms are definitely ciclical (although this was poohoo'd by my Drs).

So - finally I was referred to a dermatologist to look at allergic causes - and after waiting for many more uncomfortable months I went through patch testing. I tested positive to an allergy to Balsam of Peru (has anyone heard of it??) and nickel. So - I have cut these products out of my life as best I can (Balsam of Peru is little heard of but in EVERYTHING! Especially in producst you are likely to use 'down there'. I have been looking on forums, and products suggested to me to use as an anesthetic or cooling gel seem to contain it (anything with Benzoayte, basically!)

My Dermatologist did suggest that I may have Vulvodynia, esp if my patch tests came back negative. I am wondering if this is in fact the case, as my symptoms are not always visble (especially when I get an examination) and also the sensation can be on one side, then shift front, back, other side, etc etc. I hve read that itching is not usually a symptom for this condition, through.

Any help GRATEFULLY received

thanks all

Hodg72

Posts : 3
Join date : 2013-03-31

View user profile

Back to top Go down

Re: Looking for guidence

Post  jen007 on Sun Mar 31, 2013 4:52 pm

Hello Hodg72 and Welcome to the forum!

I've had vulvodynia for 5 years now. I too had itching and burning pains "down there" for a long time, mostly caused by chronic yeast infections. A lot of the time, vulvodynia is misdiagnosed as a bacterial infection. Theres a few ways to tell if you have vulvodynia...at least that I know of. Let me know if you answer yes to any of these questions:

Are you now on or have ever been on birth control?
Do you have any food allergies?
Do you get reoccurring yeast infections?
Is the pain constant or is it provoked? ....meaning does it hurt all the time or does it only hurt when you touch "down there?"

The allergy you mentioned could be the issue, but if you took all of it out of your daily routines, things should've gone back to normal. Also it isn't unusual to have periods of no pain. I always had pain...but only provoked pain, but a few women here have talked about going through a few months pain free or even a few years and then it comes back. Not sure why...this is a very strange disorder, in my opinion. I'd recommend finding a vulvodynia specialist if you have one near you. If you do have vulvodynia it is important to get some help to keep it under control.

-Jen

jen007

Posts : 151
Join date : 2012-11-05
Age : 25
Location : U.S.A

View user profile

Back to top Go down

Re: Looking for guidence

Post  Hodg72 on Sun Mar 31, 2013 7:05 pm

Thanks, Jen

In answer to your questions:

It seems that although I had suspected yeast infections, it wasn't so.

Food allergies would be the nickel and Balsam of Peru - both are present in both food stuffs and other products. I have ben advised to avoid tomatoes (Nickel) and the presence of B of P, and things that are similar (cinnamon, cloves, citrus peels etc etc) It is nigh on impossible to avoid in products AND food, but I've been doing my best by changing shampoos, any other bathing products used elsewhere on my body (I have not used products in the effected area for years) washing powders,, cleaning products etc. Really made no difference except to my bank balance!

When I get the symptoms, they are fairly constant, this month has been worse than recent - I am towards the end of my period and still in a bad way - normally things start up halfway through my cycle and finish as my period starts (hence my notion that my issues are cyclical and flare-ups with hormone levels). Sex is very uncomfortable both during and afterwards.

I am having acupuncture this week (haven't had since our long quest for a child (he's four and asleep upstairs!) - and am hoping she may be able to help me.

Thanks again for your response - other than my husband and Drs I haven't really talked about this before -As I said to my husband this morning, due to the nature of the problem, it isn't really easy to discuss, like evident skin problems behind you knee!

Fliss

Hodg72

Posts : 3
Join date : 2013-03-31

View user profile

Back to top Go down

Re: Looking for guidence

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum