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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Looking for guidence

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Looking for guidence

Post  Hodg72 on Sun Mar 31, 2013 4:27 pm

Hi to all

I guess I am looking for others with similar symptoms/experiences to mine, and looking at some of the posts I think I might find some here.

I have experienced itching, burning and some pain 'down there' for about 15 years. For 12 of those years I thought I had recurring thrush, and treated the problem accordingly. I had many swabs over the years, but was never actually told that they swabs were negative - so I subjected myself for the harsh treatments for years unnecessarily! Finally my Gynae looked in my file and asked why I was going through all the courses of treatment when I had always come back negative??!! (GRRRRR).

We them looked at other things such as dermatitis etc, and I was given steroid treatments to try. Nothing has really helped, although there are some (very few and far between) months when I DON'T suffer. That is the other thing about me - my symptoms are definitely ciclical (although this was poohoo'd by my Drs).

So - finally I was referred to a dermatologist to look at allergic causes - and after waiting for many more uncomfortable months I went through patch testing. I tested positive to an allergy to Balsam of Peru (has anyone heard of it??) and nickel. So - I have cut these products out of my life as best I can (Balsam of Peru is little heard of but in EVERYTHING! Especially in producst you are likely to use 'down there'. I have been looking on forums, and products suggested to me to use as an anesthetic or cooling gel seem to contain it (anything with Benzoayte, basically!)

My Dermatologist did suggest that I may have Vulvodynia, esp if my patch tests came back negative. I am wondering if this is in fact the case, as my symptoms are not always visble (especially when I get an examination) and also the sensation can be on one side, then shift front, back, other side, etc etc. I hve read that itching is not usually a symptom for this condition, through.

Any help GRATEFULLY received

thanks all

Hodg72

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Re: Looking for guidence

Post  jen007 on Sun Mar 31, 2013 4:52 pm

Hello Hodg72 and Welcome to the forum!

I've had vulvodynia for 5 years now. I too had itching and burning pains "down there" for a long time, mostly caused by chronic yeast infections. A lot of the time, vulvodynia is misdiagnosed as a bacterial infection. Theres a few ways to tell if you have vulvodynia...at least that I know of. Let me know if you answer yes to any of these questions:

Are you now on or have ever been on birth control?
Do you have any food allergies?
Do you get reoccurring yeast infections?
Is the pain constant or is it provoked? ....meaning does it hurt all the time or does it only hurt when you touch "down there?"

The allergy you mentioned could be the issue, but if you took all of it out of your daily routines, things should've gone back to normal. Also it isn't unusual to have periods of no pain. I always had pain...but only provoked pain, but a few women here have talked about going through a few months pain free or even a few years and then it comes back. Not sure why...this is a very strange disorder, in my opinion. I'd recommend finding a vulvodynia specialist if you have one near you. If you do have vulvodynia it is important to get some help to keep it under control.

-Jen

jen007

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Re: Looking for guidence

Post  Hodg72 on Sun Mar 31, 2013 7:05 pm

Thanks, Jen

In answer to your questions:

It seems that although I had suspected yeast infections, it wasn't so.

Food allergies would be the nickel and Balsam of Peru - both are present in both food stuffs and other products. I have ben advised to avoid tomatoes (Nickel) and the presence of B of P, and things that are similar (cinnamon, cloves, citrus peels etc etc) It is nigh on impossible to avoid in products AND food, but I've been doing my best by changing shampoos, any other bathing products used elsewhere on my body (I have not used products in the effected area for years) washing powders,, cleaning products etc. Really made no difference except to my bank balance!

When I get the symptoms, they are fairly constant, this month has been worse than recent - I am towards the end of my period and still in a bad way - normally things start up halfway through my cycle and finish as my period starts (hence my notion that my issues are cyclical and flare-ups with hormone levels). Sex is very uncomfortable both during and afterwards.

I am having acupuncture this week (haven't had since our long quest for a child (he's four and asleep upstairs!) - and am hoping she may be able to help me.

Thanks again for your response - other than my husband and Drs I haven't really talked about this before -As I said to my husband this morning, due to the nature of the problem, it isn't really easy to discuss, like evident skin problems behind you knee!

Fliss

Hodg72

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Re: Looking for guidence

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