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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


I'm new here from Brisbane, recent diagnosis- Vestibulodynia

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I'm new here from Brisbane, recent diagnosis- Vestibulodynia

Post  keepdreaming on Mon Apr 01, 2013 6:03 am

Hi All,

I am new here and I would really like to get in contact with people from Brisbane, Australia.

I was recently diagnosed (2 months ago) with Provoked Vestibulodynia (Vulvar Vestibulitis) and reactive vaginismus due to the Vestibulodynia, after such a long time of massive pain, suffering and feeling completely hopeless.

I just want to start by saying that this forum have helped me SO much!...

My story is very similar to most of the stories in this forum. I met the man of my life, after being in a terrible marriage of 6 years, were "sarcastically" I never ever experienced any symptoms. A couple of months after meeting my actual fiancé Very Happy (He proposed to me a month ago), the nightmare began, I realised that only after a day of having intercourse, I would start feeling this sort of urethral burning, and the need of urinate every five seconds, with a lot of pain for two days and then an incredible massive raw feeling in my vagina opening with stabbing pains. Literally I feel that my whole vulvar area is a massive bruise that's been constantly kicked (sorry! This is the only way I can describe it). After going to a lot of doctors and specialists, asking for swabs, urine tests, paps...more than ten thousand times (that of course came back negative), getting the usual “you have a bacterial vaginosis” “You have a yeast infection, sometimes they don't show up in tests, take this pill, use this cream”, I went back home one day feeling so desperate, alone, disappointed and scared; I started a huge online research with all my symptoms and etc. This is how I got to this forum and I am so thankful about it, because I discover that there was a condition called “Vulvodynia” and it was extremely similar to all what was happening to me. Of course I started trying every single thing I read that would help to alleviate some of my symptoms; 100% cotton underwear, low oxalates diet, coconut oil, calcium citrate tablets, vitamin E oil, and the list goes on and on and on. (nothing really changed). I have to add that by this stage I was a mess so depress and scared, my fiancé always extremely supportive, our sexual intercourse was reduce to times 0.

I finally got in contact with a Vulvar pain specialist in my area which diagnosed me with Provoked Vestibulodynia (Vulvar Vestibulitis), gave me lidocaine 4%, Amitriptiline, and referred me to a Physiotherapist. This also happened two days before leaving for a two months holidays, so it was a bit tricky to start a complete treatment as soon as possible, with my desperation I got in contact with a Vulvar specialist and physiotherapist in the country I was going to be away on holidays and went to see them the very first week I arrived. I trusted this physio when she said that “6 physio sessions” were going to be enough. I can say that physio traumatised me even more, I can't even explain how I felt each time I got out of that physio room, it was so painful and I also feel that what she was doing was very "advance", in session #3 she fully introduced me a thick dilator, even though I said to her: I don't think I am ready for this", she answered back "It is only in your head" and pushed it all the way in Crying or Very sad (maybe this is only me, but it has really make me feel even more depress).

Ok, sorry for such a long story, the thing is that today I can say that the lidocaine 4%, plus the amitriptiline have helped tons. I can't say the same thing about physio, I think I had a terrible experience with the first one I saw, now that I am back in Australia I found one of the best and will let you girls know what happens. Since I started the treatment I have had sex once, and my symptoms only lasted for 2 days, this should definitely mean something positive, right?

I feel the need to get in contact with more girls in Brisbane, I think it is extremely important to talk about what's happening with people that is experiencing the same thing, sometimes I feel so alone and I don't know who to talk with about this, is not easy.

I know that I will need to see a psychologist soon; I am not the same person I used to be. I am incredible anxious and always “waiting for the pain to come back”, sometimes I cry nonstop and of course it had affected my relationship, even though my fiancé keeps telling me that he will always love me no matter what and that we are together in this.

It's been very tough,

Thank so much for reading...


Last edited by keepdreaming on Mon Apr 29, 2013 4:32 am; edited 1 time in total (Reason for editing : grammar)

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Re: I'm new here from Brisbane, recent diagnosis- Vestibulodynia

Post  keepdreaming on Wed Apr 17, 2013 3:55 am

I need some support pls, anybody interested in getting in contact with me? I feel so alone in this...

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Re: I'm new here from Brisbane, recent diagnosis- Vestibulodynia

Post  Kathye10 on Wed Apr 17, 2013 4:17 am

Hi Keepdreaming,

While I don't live anywhere near Brisbane, I can empathize with you. I'm so sorry to hear you are having such a hard time.
From someone who was perfectly fine 5 months ago, I can attest to what a nightmare this is. I didn't even know these kinds of things could happen to us women. I thought the worse was a yeast infection or BV (and of course std's)...never did I once think anyone could have chronic pain in the vulva/vagina area. I'm always up for chatting if you want too Very Happy
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Re: I'm new here from Brisbane, recent diagnosis- Vestibulodynia

Post  Kathy100 on Wed Apr 17, 2013 11:48 am

Hi Keepdreaming

I'm nowhere near Brisbane either but I feel for you. The whole experience is a nightmare. Your first physio sounded really horrible! and as if she "advanced" way too quick. I've just started physio myself - 3 sessions so far with another one today. My physio is very gentle and explains what she is doing first before she does it. She hasn't done any internals yet as I had so many external trigger points and problems with my lower back that she wants to sort those out first. She has released a lot of trigger points & I'm starting to feel better - so fingers crossed. Until it happened to me I didn't know this condition existed or that you could get pain like that (definitely not in your head). Its definitely very isolating & it's difficult for other people to understand how painful it really is.

Let us know how you get on with your new physio.
Take care xx

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Re: I'm new here from Brisbane, recent diagnosis- Vestibulodynia

Post  keepdreaming on Mon Apr 29, 2013 4:32 am

Hi Kathy100

Thanks so much for your kind words...

I don't know where to start from! This last few weeks have been horrendous... I got a massive flare up, after thinking that my Vulvodynia was getting better. This is when I start thinking, What the hell I'm suppose to do?! What else besides changing my whole life because of this?!

I feel so distressed and completely hopeless. Maybe I am not doing enough?, but I don't know what else I should be doing?

I'm already in 50 mg of Amitriptyline, lidocaine 5%, going to physio once a week, following every single instruction! and here I am once again, experiencing the most terrible pains and so scared and disappointed.

I wish I could write only positive stuff but seems impossible...

thanks so much!....

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Re: I'm new here from Brisbane, recent diagnosis- Vestibulodynia

Post  Vulvo1 on Sun Mar 23, 2014 5:52 am

Hi, I feel your pain. I have Vulvodynia & also Strep B. It put a massive strain on my relationship with my fiancé, nearly broke us up multiple times & also sent me into depression. The worst part was not being able to show my love o my fiancé, being to embarrassed to talk to anyone about the issue & basically being told I'm a freak by doctors after going through test after test, medication after medication, etc, etc & never having any results.

But I am here to tell you there is hope!! I am from around the Brisbane area & have been seeing Alyssa Tait from Equilibria at Salsibury, She is a miacle worker! I am still seeing her for issues related to my Strep B & PH levels but she has pretty much cured my Vuvodynia! Through her I have gone from not even being able to have my fiancé touch down there to being able to make love to him on a weekly basis in less than a year! I have also been seeing a psychologist specialised in this area at Spring Hill, her name is Alice Hucker.

Hope all works out for you!

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Re: I'm new here from Brisbane, recent diagnosis- Vestibulodynia

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