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» Looking to meet up in LA/OC CA
Yesterday at 3:43 am by crypticcalico

» Vulvadynia
Mon Jul 24, 2017 11:35 pm by Linda Williams

» Just Diagnosed with Vulvadynia
Mon Jul 24, 2017 1:57 am by angelique2016

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

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Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Question for you ladies about Symptoms...

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Question for you ladies about Symptoms...

Post  Kathye10 on Mon Apr 01, 2013 4:09 pm

Hi ladies,

I know that everyone's V and VVS is caused from different things, but curious as to what the women with unprovoked feel on a regular basis. Also do you get constant bacterial or yeast infections? I get burning and now itching as if I have a yeast infection (and to my knowledge I don't have one) but it doesn't last all day, it sort of comes and goes on and off. Just trying to compare notes Smile
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Re: Question for you ladies about Symptoms...

Post  Sarah001 on Mon Apr 01, 2013 5:43 pm

I have unprovoked and I have burning in the entire vulvar area so bad I've had to give in and take medication for it and I have constant soreness/rawness in the vestibule too. The meds have reduced the burning alot but it now feels like a prickly feeling if the skin is touched so still altered sensation. I get yeast infections occasionally and never had a bacterial infection in the vagina but went through a phase last year of very regular UTIs which I think were caused by incomplete emptying of the bladder due to pelvic floor tightness. I often feel like the bones beneath the vulvar are bruised too if that makes sense? I had brief itching which mysteriously disappeared and hasn't returned.
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Re: Question for you ladies about Symptoms...

Post  Kathy100 on Thu Apr 04, 2013 11:57 am

I have unprovoked too & my main symptom is a horrible burning & raw feeling in the vulvar which I've got under control by taking notriptyline. Still painful to the touch but nowhere near as bad as it was. I also get prickly, spiking pain around the vulvar / groin area. Also get back pain & tight muscles in legs & buttocks. PT is helping with this, correcting my posture, doing exercises etc.

I haven't had any yeast infections or itching but did have a series of UTIs when it first started as provoked.

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Re: Question for you ladies about Symptoms...

Post  smile22 on Thu Apr 04, 2013 9:10 pm

I feel constant burning. Sometimes i can feel slightly itchy but its almost like a painful itch :S i'm not sure how to explain it really but its not the sort of itch that i get anywhere else! I also get some stabbing pains but the main thing is burning, it feels like an open wound or as if someone has put something corrosive like acid on me. This is all the time, but sometimes it is literally to the point where I feel like I am going to die from the pain, and other times it is just there hurting me all the time. Nothing improves it, and well I was told I had yeast infections about a million times before I got diagnosed with v a few years ago, so i probably do still have them but i am totally against the medication as it never worked and just damaged me further. so yeah, thats me on a daily basis lol.

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Re: Question for you ladies about Symptoms...

Post  Kathye10 on Fri Apr 05, 2013 3:07 am

Kathy100 - So is your V from PFD?

Smile22- Gosh, I'm so sorry to hear how much pain you are in. How did your V start?
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Re: Question for you ladies about Symptoms...

Post  Kathy100 on Fri Apr 05, 2013 11:45 am

None of the doctors I've seen have come out and actually said it's PFD but given my symptoms (and the fact I've had IBS on & off since I was 21) - I think it could be especially as so far the physio is helping & I'm riddled with trigger points! The other thing that they said it could be is pudendal nerve damage but I really hope it isn't that & is just muscular.

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Re: Question for you ladies about Symptoms...

Post  Sarah001 on Fri Apr 05, 2013 12:49 pm

Have to say PFD is not something most doctors know much about, they usually only know about laxness of the pelvic floor. The one doctor I saw who did was a GU doctor and she told me staright away she thought that would be my problem but only because she understodd the various causes of V.
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Re: Question for you ladies about Symptoms...

Post  Kathye10 on Fri Apr 05, 2013 3:11 pm

So with PFD, I'm assuing you noticed symptoms coming on over a long period of time, or was it acute?
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Re: Question for you ladies about Symptoms...

Post  BpCookie on Fri Apr 05, 2013 4:09 pm


wow! You guys have just described my symptoms. I'm not quite sure what you mean by provoked pain. I have constant burning, from when I wake till I go to sleep. Friggin burning bush from Hell!!! I used to have a raw feeling and also that cactus poking feeling too. Those went away and now I'm only left with the burning. I used to get YI constantly but I could never tell if I had one for sure because my vuvla always burned from the LSC and I'm always getting some kind of white discharge that none of the Dr.s have ever figured out. So half of the time that I went in to be checked for a YI it was negative. I also get BI quite a bit but then again, its hard to tell if I have an inf. or if its just the LSC. My Gyno thought that perhaps I was allergic to yeast, so she put me on a 6 month treatment of YI medication. So far I haven't gotten a YI but it has done nothing for the burning.

So thats me wrapped up in a nice hot package.

Hope you girls find an answer soon. Stay cool my friends. hugs
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Re: Question for you ladies about Symptoms...

Post  Sarah001 on Fri Apr 05, 2013 5:41 pm

With me Kathy I had alot of symptoms that indicated a tight pelvic floor for years, ever since my pelvis became unstable in fact. It usually goes unnoticed for a long time with minor symptoms or no symptoms but then something is the final straw and suddenly you start to notice it. I had sacroiliac joint dysfunction which goes hand in hand with PFD and V and I felt like I had to push urine out instead of being able to relax and let it flow and urge would rapidly become urgent so urinary urgency, I'd get constipated no matter how much fibre and water I had because again my PF wouldn't relax and go with the flow, I had provoked only V symptoms for a few years before it became unprovoked, I'd get weird tingling burning sensations that would go off so quickly I didn't bother to look into them and my brains attempts to stabilise my pelvis would have me holding my breath instead of breathing properly and I'd grip with the glutes and pelvic floor all the time and while I was aware of the external gripping I had no idea I was doing it with my PF.
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Re: Question for you ladies about Symptoms...

Post  Kathy100 on Mon Apr 08, 2013 11:16 am

Looking back now, I was like Sarah with different symptoms that started at different times all pointing to a tight pelvic floor. It started with IBS & not being able to relax my muscles to go to the toilet. I also used to "push" my urine out rather than just relaxing it which meant I went to the loo far more often than anyone else I know. Then I had the provoked V symptoms & UTIs after sex on & off for a few years (but Drs said nothing wrong) & then it turned to unprovoked. Now I've researched it, joined this forum, seen pain specialist - I realise how it's all linked. My physio told me that both my stomach & pelvic floor are permanently clenched. I had no idea - learning to relax the muscles now and it's making a difference.

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Re: Question for you ladies about Symptoms...

Post  Kathy100 on Mon Apr 08, 2013 11:18 am

Hugs to you too BP - stay strong xx

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Re: Question for you ladies about Symptoms...

Post  Kate1981 on Mon Apr 08, 2013 9:22 pm

I have provoked V which turned into unprovoked. Started after sex with a new partner and a uti which tested positive for ecoli culture. Initially my symtoms were hot burning in my vulva vestibule and vagina mainly right sided. The burning was so I tense I thought there were flames inside me. The burning started to subside after about 6 weeks with the help of amitriptyline. It has left a rawness stabbing crawling type pain in my vagina. I have problems passing water and I am also constipated. Having a bm always causes burning in my vagina as well as my rectum. I don't really have vulval pain now it's all deep in my vagina on the right side. I am seeing 2 physios who both believe my symtoms are caused by my pudendal nerve which is what I suspected all along. This however could be due to pelvic floor dysfunction as my muscles are tight and I have many external trigger points as well as internal ones. I also have pelvic misalignment. Some days are better than others around my period the pain is always worse and while I am bleeding I have a dragging sensation. I have suffered with IBS from around 15 so I think my pelvic floor has always been tight. My past partners have also all said that I am very tight which I knew myself I always felt like a virgin even after having sex for 16 years. Just hope physio will work or I will have to consider nerve decompression of my pudendal nerve.

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Re: Question for you ladies about Symptoms...

Post  Kathye10 on Mon Apr 08, 2013 10:16 pm

Gosh, I hope your physio can help too! It's just so strange that something like this can come on after 1 sexual experience.
Very frustrating. Sending lots of healing thoughts your way. Smile
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Re: Question for you ladies about Symptoms...

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