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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


UTI the cause of my vulvodynia???

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UTI the cause of my vulvodynia???

Post  sassy26 on Sun Apr 07, 2013 2:14 am

Does anyone else feel like there symptoms started after a urinary tract infection?? I feel like my vulvodynia started after a really bad UTI. Just curious to see if anyone else feels the sameway.

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Re: UTI the cause of my vulvodynia???

Post  Alana3 on Sun Apr 07, 2013 1:10 pm

I used to get utis all the time as well as yeast infections. But I don't think that's how mine started. There was a year when I went to the doc probably 50 times and he kept giving me drugs for antibiotics and yeast etc. when I went to the specialist he said that vulvodynia can actually mimic utis and yeast. I used to have to pee all the time. When I got my surgery that all stopped. My old doc used to just give me drugs without waiting to see what was wrong. My vv just sort of came on gradually Sad

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Re: UTI the cause of my vulvodynia???

Post  Sarah001 on Sun Apr 07, 2013 2:15 pm

I felt like I had a cross between a UTI and yeast infection when mine started, treated the yeast which didn't help so took a urine sample to the doctors and I had blood in my urine but it didn't show an out and out infection and treating for one didn't help. I'd never had a UTI until I got V and went through about a year getting UTIs every few weeks which showed a definite infection present and my last one went to my kidneys too which was awful. I started doing double emptying to make sure my bladder was totally empty (very tight pelvic floor doesn't relax on me) and that's really helped but whenever I have one I can feel my PF spasm each time I go to the loo so they can set off tightness in the pelvic floor which can of course give vulvar symptoms so it is possible yours started with the UTI in that way.
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Re: UTI the cause of my vulvodynia???

Post  Alana3 on Sun Apr 07, 2013 3:47 pm

Sarah I've always had blood in my urine what did they say yours was from

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Re: UTI the cause of my vulvodynia???

Post  Sarah001 on Sun Apr 07, 2013 6:34 pm

They never worked it out Alana they retested a few times and the blood was gone except for when I actually had an infection so I'm not sure. I do know someone who has blood in their urine from tiny gravel like stones that cause no other symptom except the blood being there but I'm not sure how common that is!
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Re: UTI the cause of my vulvodynia???

Post  Alana3 on Sun Apr 07, 2013 8:53 pm

They told me it was normal who knows

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Re: UTI the cause of my vulvodynia???

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