Vulvodynia Support
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» Hope to all my suffering ladies
UTI the cause of my vulvodynia??? EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
UTI the cause of my vulvodynia??? EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
UTI the cause of my vulvodynia??? EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
UTI the cause of my vulvodynia??? EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
UTI the cause of my vulvodynia??? EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
UTI the cause of my vulvodynia??? EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
UTI the cause of my vulvodynia??? EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
UTI the cause of my vulvodynia??? EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
UTI the cause of my vulvodynia??? EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


UTI the cause of my vulvodynia???

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UTI the cause of my vulvodynia??? Empty UTI the cause of my vulvodynia???

Post  sassy26 Sun Apr 07, 2013 2:14 am

Does anyone else feel like there symptoms started after a urinary tract infection?? I feel like my vulvodynia started after a really bad UTI. Just curious to see if anyone else feels the sameway.

sassy26

Posts : 6
Join date : 2013-04-04

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UTI the cause of my vulvodynia??? Empty Re: UTI the cause of my vulvodynia???

Post  Alana3 Sun Apr 07, 2013 1:10 pm

I used to get utis all the time as well as yeast infections. But I don't think that's how mine started. There was a year when I went to the doc probably 50 times and he kept giving me drugs for antibiotics and yeast etc. when I went to the specialist he said that vulvodynia can actually mimic utis and yeast. I used to have to pee all the time. When I got my surgery that all stopped. My old doc used to just give me drugs without waiting to see what was wrong. My vv just sort of came on gradually Sad

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  Sarah001 Sun Apr 07, 2013 2:15 pm

I felt like I had a cross between a UTI and yeast infection when mine started, treated the yeast which didn't help so took a urine sample to the doctors and I had blood in my urine but it didn't show an out and out infection and treating for one didn't help. I'd never had a UTI until I got V and went through about a year getting UTIs every few weeks which showed a definite infection present and my last one went to my kidneys too which was awful. I started doing double emptying to make sure my bladder was totally empty (very tight pelvic floor doesn't relax on me) and that's really helped but whenever I have one I can feel my PF spasm each time I go to the loo so they can set off tightness in the pelvic floor which can of course give vulvar symptoms so it is possible yours started with the UTI in that way.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Alana3 Sun Apr 07, 2013 3:47 pm

Sarah I've always had blood in my urine what did they say yours was from

Alana3

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Post  Sarah001 Sun Apr 07, 2013 6:34 pm

They never worked it out Alana they retested a few times and the blood was gone except for when I actually had an infection so I'm not sure. I do know someone who has blood in their urine from tiny gravel like stones that cause no other symptom except the blood being there but I'm not sure how common that is!
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Alana3 Sun Apr 07, 2013 8:53 pm

They told me it was normal who knows

Alana3

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