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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


UTI the cause of my vulvodynia???

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UTI the cause of my vulvodynia???

Post  sassy26 on Sun Apr 07, 2013 2:14 am

Does anyone else feel like there symptoms started after a urinary tract infection?? I feel like my vulvodynia started after a really bad UTI. Just curious to see if anyone else feels the sameway.

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Re: UTI the cause of my vulvodynia???

Post  Alana3 on Sun Apr 07, 2013 1:10 pm

I used to get utis all the time as well as yeast infections. But I don't think that's how mine started. There was a year when I went to the doc probably 50 times and he kept giving me drugs for antibiotics and yeast etc. when I went to the specialist he said that vulvodynia can actually mimic utis and yeast. I used to have to pee all the time. When I got my surgery that all stopped. My old doc used to just give me drugs without waiting to see what was wrong. My vv just sort of came on gradually Sad

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Re: UTI the cause of my vulvodynia???

Post  Sarah001 on Sun Apr 07, 2013 2:15 pm

I felt like I had a cross between a UTI and yeast infection when mine started, treated the yeast which didn't help so took a urine sample to the doctors and I had blood in my urine but it didn't show an out and out infection and treating for one didn't help. I'd never had a UTI until I got V and went through about a year getting UTIs every few weeks which showed a definite infection present and my last one went to my kidneys too which was awful. I started doing double emptying to make sure my bladder was totally empty (very tight pelvic floor doesn't relax on me) and that's really helped but whenever I have one I can feel my PF spasm each time I go to the loo so they can set off tightness in the pelvic floor which can of course give vulvar symptoms so it is possible yours started with the UTI in that way.
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Re: UTI the cause of my vulvodynia???

Post  Alana3 on Sun Apr 07, 2013 3:47 pm

Sarah I've always had blood in my urine what did they say yours was from

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Re: UTI the cause of my vulvodynia???

Post  Sarah001 on Sun Apr 07, 2013 6:34 pm

They never worked it out Alana they retested a few times and the blood was gone except for when I actually had an infection so I'm not sure. I do know someone who has blood in their urine from tiny gravel like stones that cause no other symptom except the blood being there but I'm not sure how common that is!
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Re: UTI the cause of my vulvodynia???

Post  Alana3 on Sun Apr 07, 2013 8:53 pm

They told me it was normal who knows

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Re: UTI the cause of my vulvodynia???

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