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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


UTI the cause of my vulvodynia???

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UTI the cause of my vulvodynia???

Post  sassy26 on Sun Apr 07, 2013 2:14 am

Does anyone else feel like there symptoms started after a urinary tract infection?? I feel like my vulvodynia started after a really bad UTI. Just curious to see if anyone else feels the sameway.

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Re: UTI the cause of my vulvodynia???

Post  Alana3 on Sun Apr 07, 2013 1:10 pm

I used to get utis all the time as well as yeast infections. But I don't think that's how mine started. There was a year when I went to the doc probably 50 times and he kept giving me drugs for antibiotics and yeast etc. when I went to the specialist he said that vulvodynia can actually mimic utis and yeast. I used to have to pee all the time. When I got my surgery that all stopped. My old doc used to just give me drugs without waiting to see what was wrong. My vv just sort of came on gradually Sad

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Re: UTI the cause of my vulvodynia???

Post  Sarah001 on Sun Apr 07, 2013 2:15 pm

I felt like I had a cross between a UTI and yeast infection when mine started, treated the yeast which didn't help so took a urine sample to the doctors and I had blood in my urine but it didn't show an out and out infection and treating for one didn't help. I'd never had a UTI until I got V and went through about a year getting UTIs every few weeks which showed a definite infection present and my last one went to my kidneys too which was awful. I started doing double emptying to make sure my bladder was totally empty (very tight pelvic floor doesn't relax on me) and that's really helped but whenever I have one I can feel my PF spasm each time I go to the loo so they can set off tightness in the pelvic floor which can of course give vulvar symptoms so it is possible yours started with the UTI in that way.
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Re: UTI the cause of my vulvodynia???

Post  Alana3 on Sun Apr 07, 2013 3:47 pm

Sarah I've always had blood in my urine what did they say yours was from

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Re: UTI the cause of my vulvodynia???

Post  Sarah001 on Sun Apr 07, 2013 6:34 pm

They never worked it out Alana they retested a few times and the blood was gone except for when I actually had an infection so I'm not sure. I do know someone who has blood in their urine from tiny gravel like stones that cause no other symptom except the blood being there but I'm not sure how common that is!
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Re: UTI the cause of my vulvodynia???

Post  Alana3 on Sun Apr 07, 2013 8:53 pm

They told me it was normal who knows

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Re: UTI the cause of my vulvodynia???

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