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» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Sex Tips and Things

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Sex Tips and Things

Post  ISairon on Tue Apr 09, 2013 6:07 am

Um, I guess I'm going to start with some background about myself. I'm 19 and I was diagnosed about 2 months ago. About a month before then, my then-boyfriend broke up with me because of my vestibulodynia. Since then, during then, and even before then, I often get really shut down when I even kiss people, kind of disconnected from myself, running away from intimacy and things.
I guess a lot of that is unrelated angst that i'll probably make a separate post about....
Anyways, I was wondering if any of you guys have any good pointers on ways to be intimate with people without penetration - literature, things that have worked for you, whatever! I think it would be really useful for me, who feels painfully naive and insecure about sex , and a lot of us who are struggling to be able to be with other people here. I really think it would be useful so that i can be less afraid of sexual contact and more kind to myself if we can talk this through. Blowjobs and Handjobs get really boring for me... they seem to work okay for a while but eventually i just get bored with them and that's usually something my partners notice and just isn't healthy for me.
So, what are some good ways to regain sexual confidence? Do you guys have any activity suggestions? I would really appreciate the help - people tell me that there's plenty of ways to have sex without penetration but i really don't know what they are besides the obvious, kind of boring ones! ( That's also been used as an excuse to convince me that this isn't a tough thing to go through...yuck!)


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Re: Sex Tips and Things

Post  BpCookie on Tue Apr 09, 2013 11:36 pm

Hello ISairon, Ok, I'm gonna be blunt, forgive me if I make you or anyone else blush. I blushed just writing this. lol. I can't always have sex, so I do things to or for my hubby that are also fun for me. Like you said, hand jobs and blow jobs can get boring. You can have him do it between your breasts. Just lube them up, hold them together and he can slip his penis between them and have sex that way. Or you can lube your butt cheeks, you lay on your stomach and he can do it between your cheeks. You can try ass sex also (I suggest using a BUNCH of lube). For some reason, guys really dig that. Also vibrating penis rings are good too. Those are all ideas to get the guy off, now for some ideas to get you off as well. If your clitoris isn't painful, then he can always get you off that way, using his finger, tongue or even a vibrator. A vibrator is a girls best friend. Smile

Being intimate with someone should be fun. Here are some things that I do. Besides negligee's I wear costumes. I have a cheerleaders costume and I do a little act in front of my hubby. I also have a Catholic school girl uniform. I pretend to be a horny 18 yr old virgin who escaped from the Catholic school. I stay in character the entire time. So, perhaps you could buy some costumes and surprise your partner. Nurses costumes are always popular with guys. When you wear a costume you don't have to be yourself, you can pretend to be someone else. Its a lot easier to have confidence when your pretending to be someone else. queen jocolor santa farao cat

I'm 48 yrs old and all my ideas may be boring and old. Laughing I hope that helps and I hope I didn't make a fool out of myself.


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Re: Sex Tips and Things

Post  Sarah001 on Wed Apr 10, 2013 8:29 pm

You didn't make a fool out of yourself cookie, made me laugh a bit though!! Laughing I'm not going to offer any sex tips as I'm very single but I'm here to offer one piece of sensible advice, if you suspect your pelvic floor is tight ISairon don't try anal!! Shocked The pelvic floor obviously affects the anus too so if in doubt check it before you go down that route. And that's it!

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Re: Sex Tips and Things

Post  ISairon on Thu Apr 11, 2013 2:42 am

thanks, you guys. For some reason i feel like a lot of the sites i go to don't actually talk about this which is weird to me- or maybe that's only because my vulvodynia is really contact-oriented. Idk, if you have any other resources or ideas, let me know! I also still feel like some of these things don't seem as interactive as vaginal sex. Any other ideas of even places that i could go look for some help would be super useful! Thanks.


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Re: Sex Tips and Things

Post  Alana3 on Thu Apr 25, 2013 1:09 pm

Different positions helped me with mine, all about experimentation! But that's with any relationship. If missionary doesn't work try doggy style, I found that with him kneeling and his penis pointing toward my belly button helped me and it felt amazingly good. But my VV was localized in one spot, but we worked on it til we found something work and now.. I'm single Sad haha


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Re: Sex Tips and Things

Post  Finch on Wed May 29, 2013 12:00 pm

I totally understand what you mean about feeling uneducated in the way of non-penetrative sex. I have found a few useful things here and there, one being sensual and erotic massage, which uses acupressure points to arouse all the senses and relax as well as arouse. It gives some different strokes to use and imaginative ways and places to touch as well, which I have found quite useful.

Here is the website: http://www.redbookmag.com/love-sex/advice/sexy-touch-man

Don't know how do do links, sorry.



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