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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Hi I'm a new member

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Hi I'm a new member

Post  Lainee on Sat Apr 13, 2013 1:01 am

Hi everyone. I've been suffering from vulvodynia for 20 years. I'm just looking for a support system and some positives stories. Any successes with drugs?


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Re: Hi I'm a new member

Post  Applejax on Sat Apr 13, 2013 2:48 am

Hello Lainee! This is a great place to get some support. I'm 40 also and have been suffering with vulvodynia for 18 years - was just diagnosed in December. Actually, my doctors haven't really settled on an official diagnosis yet. Still waiting on viable treatment options as well so I'm not anywhere close to a success story yet. I'm hopeful, though, that somewhere down the road, my pain will resolve and my husband and I can begin to build a healthy sexual relationship. Have you had much success with doctors?


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hi applejax

Post  Lainee on Sat Apr 13, 2013 3:10 am

I kinda gave up on all the doctors long time ago. They didn't diagnose me - i did by stumbling across a magazine article. I find that Viaderm ointment helps. I have goid days and bad days. I know my limits. I did try Lyrica for a year. It helped withthe burning not so much with the pain but it put me in better spirits that i even got pregnant with my second child. I stopped it though because i got pregnant.

I just recently rebounded though because i tried an SSRI called Celexa. I' m kicking myself now for taking it. I was doing fine and now i'm right back at square one.

Where are you located?


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Re: Hi I'm a new member

Post  Applejax on Sun Apr 14, 2013 11:17 am

I'm in the US - South Carolina. I have only recently found a doctor who knows anything about this. Went through about 9 doctors over 18 years who told me that there was nothing physically wrong with me and suggested I continue with marriage counseling. Like you, I pretty much self-diagnosed through info I found online back in October. Then found a doctor through NVA's provider list and saw him in December. He was the first doctor who validated my experience of pain - what a relief to finally be believed! Mine is considered "provoked" vulvodynia as I only have pain with intercourse and gyn exams. I didn't realize until I started reading these boards that so many women have pain all the time. I feel rather fortunate now. Back in October I stopped having intercourse with my husband. So, except for the several gyn exams to try to figure this out, I've been pain free since October. Now I'm just trying to work through emotional/relational issues in hopes that my marriage can improve. The pain/intercourse issue has essentially run it into the ground.


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Re: Hi I'm a new member

Post  Alana3 on Sun Apr 14, 2013 12:59 pm

Applejax you have the same as me has surgery ever been discussed for you? I had a vestibulectony in December and it literally changed my life. Smile I went thru millions of doctors too until I found this one he helped so much and actually listened wow!


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Re: Hi I'm a new member

Post  Sebby (Admin) on Mon Apr 22, 2013 7:45 pm

Welcome to the forum.

I am currently on Lyrica (pregabalin) 300mg.

The pain isn't so constant and is now mainly provoked.


Sebby (Admin)

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Re: Hi I'm a new member

Post  Kathy100 on Tue Apr 23, 2013 11:11 am

Hi Lainee

Welcome - this forum is great for support & keeping you going.
I use notriptyline which has got rid of the burning pain. I'm also having PT to help with the tight muscles.



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Re: Hi I'm a new member

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