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» Will there be an end?
Today at 12:06 am by Krista2828

» you can be healed so easy and quite fast.
Yesterday at 11:46 pm by pussycat

» What's next?
Tue Apr 24, 2018 4:01 pm by jennyk2

» Pain management - what works for me
Tue Apr 24, 2018 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 0

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 0

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Hi I'm a new member

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Hi I'm a new member

Post  Lainee on Sat Apr 13, 2013 1:01 am

Hi everyone. I've been suffering from vulvodynia for 20 years. I'm just looking for a support system and some positives stories. Any successes with drugs?

Lainee

Posts : 4
Join date : 2013-04-13
Age : 45
Location : Toronto, Canada

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Re: Hi I'm a new member

Post  Applejax on Sat Apr 13, 2013 2:48 am

Hello Lainee! This is a great place to get some support. I'm 40 also and have been suffering with vulvodynia for 18 years - was just diagnosed in December. Actually, my doctors haven't really settled on an official diagnosis yet. Still waiting on viable treatment options as well so I'm not anywhere close to a success story yet. I'm hopeful, though, that somewhere down the road, my pain will resolve and my husband and I can begin to build a healthy sexual relationship. Have you had much success with doctors?

Applejax

Posts : 18
Join date : 2013-01-29

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hi applejax

Post  Lainee on Sat Apr 13, 2013 3:10 am

I kinda gave up on all the doctors long time ago. They didn't diagnose me - i did by stumbling across a magazine article. I find that Viaderm ointment helps. I have goid days and bad days. I know my limits. I did try Lyrica for a year. It helped withthe burning not so much with the pain but it put me in better spirits that i even got pregnant with my second child. I stopped it though because i got pregnant.

I just recently rebounded though because i tried an SSRI called Celexa. I' m kicking myself now for taking it. I was doing fine and now i'm right back at square one.

Where are you located?

Lainee

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Re: Hi I'm a new member

Post  Applejax on Sun Apr 14, 2013 11:17 am

I'm in the US - South Carolina. I have only recently found a doctor who knows anything about this. Went through about 9 doctors over 18 years who told me that there was nothing physically wrong with me and suggested I continue with marriage counseling. Like you, I pretty much self-diagnosed through info I found online back in October. Then found a doctor through NVA's provider list and saw him in December. He was the first doctor who validated my experience of pain - what a relief to finally be believed! Mine is considered "provoked" vulvodynia as I only have pain with intercourse and gyn exams. I didn't realize until I started reading these boards that so many women have pain all the time. I feel rather fortunate now. Back in October I stopped having intercourse with my husband. So, except for the several gyn exams to try to figure this out, I've been pain free since October. Now I'm just trying to work through emotional/relational issues in hopes that my marriage can improve. The pain/intercourse issue has essentially run it into the ground.

Applejax

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Re: Hi I'm a new member

Post  Alana3 on Sun Apr 14, 2013 12:59 pm

Applejax you have the same as me has surgery ever been discussed for you? I had a vestibulectony in December and it literally changed my life. Smile I went thru millions of doctors too until I found this one he helped so much and actually listened wow!

Alana3

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Re: Hi I'm a new member

Post  Sebby (Admin) on Mon Apr 22, 2013 7:45 pm

Welcome to the forum.

I am currently on Lyrica (pregabalin) 300mg.

The pain isn't so constant and is now mainly provoked.


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Re: Hi I'm a new member

Post  Kathy100 on Tue Apr 23, 2013 11:11 am

Hi Lainee

Welcome - this forum is great for support & keeping you going.
I use notriptyline which has got rid of the burning pain. I'm also having PT to help with the tight muscles.

xx

Kathy100

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Re: Hi I'm a new member

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