Vulvodynia Support
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» Hope to all my suffering ladies
Hi I'm a new member EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Hi I'm a new member EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Hi I'm a new member EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Hi I'm a new member EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Hi I'm a new member EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Hi I'm a new member EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Hi I'm a new member EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Hi I'm a new member EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Hi I'm a new member EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Post  Lainee Sat Apr 13, 2013 1:01 am

Hi everyone. I've been suffering from vulvodynia for 20 years. I'm just looking for a support system and some positives stories. Any successes with drugs?

Lainee

Posts : 4
Join date : 2013-04-13
Age : 51
Location : Toronto, Canada

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Post  Applejax Sat Apr 13, 2013 2:48 am

Hello Lainee! This is a great place to get some support. I'm 40 also and have been suffering with vulvodynia for 18 years - was just diagnosed in December. Actually, my doctors haven't really settled on an official diagnosis yet. Still waiting on viable treatment options as well so I'm not anywhere close to a success story yet. I'm hopeful, though, that somewhere down the road, my pain will resolve and my husband and I can begin to build a healthy sexual relationship. Have you had much success with doctors?

Applejax

Posts : 18
Join date : 2013-01-29

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Post  Lainee Sat Apr 13, 2013 3:10 am

I kinda gave up on all the doctors long time ago. They didn't diagnose me - i did by stumbling across a magazine article. I find that Viaderm ointment helps. I have goid days and bad days. I know my limits. I did try Lyrica for a year. It helped withthe burning not so much with the pain but it put me in better spirits that i even got pregnant with my second child. I stopped it though because i got pregnant.

I just recently rebounded though because i tried an SSRI called Celexa. I' m kicking myself now for taking it. I was doing fine and now i'm right back at square one.

Where are you located?

Lainee

Posts : 4
Join date : 2013-04-13
Age : 51
Location : Toronto, Canada

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Post  Applejax Sun Apr 14, 2013 11:17 am

I'm in the US - South Carolina. I have only recently found a doctor who knows anything about this. Went through about 9 doctors over 18 years who told me that there was nothing physically wrong with me and suggested I continue with marriage counseling. Like you, I pretty much self-diagnosed through info I found online back in October. Then found a doctor through NVA's provider list and saw him in December. He was the first doctor who validated my experience of pain - what a relief to finally be believed! Mine is considered "provoked" vulvodynia as I only have pain with intercourse and gyn exams. I didn't realize until I started reading these boards that so many women have pain all the time. I feel rather fortunate now. Back in October I stopped having intercourse with my husband. So, except for the several gyn exams to try to figure this out, I've been pain free since October. Now I'm just trying to work through emotional/relational issues in hopes that my marriage can improve. The pain/intercourse issue has essentially run it into the ground.

Applejax

Posts : 18
Join date : 2013-01-29

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Post  Alana3 Sun Apr 14, 2013 12:59 pm

Applejax you have the same as me has surgery ever been discussed for you? I had a vestibulectony in December and it literally changed my life. Smile I went thru millions of doctors too until I found this one he helped so much and actually listened wow!

Alana3

Posts : 1093
Join date : 2012-09-25

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Post  Sebby (Admin) Mon Apr 22, 2013 7:45 pm

Welcome to the forum.

I am currently on Lyrica (pregabalin) 300mg.

The pain isn't so constant and is now mainly provoked.

Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  Kathy100 Tue Apr 23, 2013 11:11 am

Hi Lainee

Welcome - this forum is great for support & keeping you going.
I use notriptyline which has got rid of the burning pain. I'm also having PT to help with the tight muscles.

xx

Kathy100

Posts : 95
Join date : 2012-12-17

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