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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Hi I'm a new member

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Hi I'm a new member

Post  Lainee on Sat Apr 13, 2013 1:01 am

Hi everyone. I've been suffering from vulvodynia for 20 years. I'm just looking for a support system and some positives stories. Any successes with drugs?

Lainee

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Re: Hi I'm a new member

Post  Applejax on Sat Apr 13, 2013 2:48 am

Hello Lainee! This is a great place to get some support. I'm 40 also and have been suffering with vulvodynia for 18 years - was just diagnosed in December. Actually, my doctors haven't really settled on an official diagnosis yet. Still waiting on viable treatment options as well so I'm not anywhere close to a success story yet. I'm hopeful, though, that somewhere down the road, my pain will resolve and my husband and I can begin to build a healthy sexual relationship. Have you had much success with doctors?

Applejax

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hi applejax

Post  Lainee on Sat Apr 13, 2013 3:10 am

I kinda gave up on all the doctors long time ago. They didn't diagnose me - i did by stumbling across a magazine article. I find that Viaderm ointment helps. I have goid days and bad days. I know my limits. I did try Lyrica for a year. It helped withthe burning not so much with the pain but it put me in better spirits that i even got pregnant with my second child. I stopped it though because i got pregnant.

I just recently rebounded though because i tried an SSRI called Celexa. I' m kicking myself now for taking it. I was doing fine and now i'm right back at square one.

Where are you located?

Lainee

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Re: Hi I'm a new member

Post  Applejax on Sun Apr 14, 2013 11:17 am

I'm in the US - South Carolina. I have only recently found a doctor who knows anything about this. Went through about 9 doctors over 18 years who told me that there was nothing physically wrong with me and suggested I continue with marriage counseling. Like you, I pretty much self-diagnosed through info I found online back in October. Then found a doctor through NVA's provider list and saw him in December. He was the first doctor who validated my experience of pain - what a relief to finally be believed! Mine is considered "provoked" vulvodynia as I only have pain with intercourse and gyn exams. I didn't realize until I started reading these boards that so many women have pain all the time. I feel rather fortunate now. Back in October I stopped having intercourse with my husband. So, except for the several gyn exams to try to figure this out, I've been pain free since October. Now I'm just trying to work through emotional/relational issues in hopes that my marriage can improve. The pain/intercourse issue has essentially run it into the ground.

Applejax

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Re: Hi I'm a new member

Post  Alana3 on Sun Apr 14, 2013 12:59 pm

Applejax you have the same as me has surgery ever been discussed for you? I had a vestibulectony in December and it literally changed my life. Smile I went thru millions of doctors too until I found this one he helped so much and actually listened wow!

Alana3

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Re: Hi I'm a new member

Post  Sebby (Admin) on Mon Apr 22, 2013 7:45 pm

Welcome to the forum.

I am currently on Lyrica (pregabalin) 300mg.

The pain isn't so constant and is now mainly provoked.


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Re: Hi I'm a new member

Post  Kathy100 on Tue Apr 23, 2013 11:11 am

Hi Lainee

Welcome - this forum is great for support & keeping you going.
I use notriptyline which has got rid of the burning pain. I'm also having PT to help with the tight muscles.

xx

Kathy100

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Re: Hi I'm a new member

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