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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Hi I'm a new member

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Hi I'm a new member

Post  Lainee on Sat Apr 13, 2013 1:01 am

Hi everyone. I've been suffering from vulvodynia for 20 years. I'm just looking for a support system and some positives stories. Any successes with drugs?

Lainee

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Location : Toronto, Canada

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Re: Hi I'm a new member

Post  Applejax on Sat Apr 13, 2013 2:48 am

Hello Lainee! This is a great place to get some support. I'm 40 also and have been suffering with vulvodynia for 18 years - was just diagnosed in December. Actually, my doctors haven't really settled on an official diagnosis yet. Still waiting on viable treatment options as well so I'm not anywhere close to a success story yet. I'm hopeful, though, that somewhere down the road, my pain will resolve and my husband and I can begin to build a healthy sexual relationship. Have you had much success with doctors?

Applejax

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hi applejax

Post  Lainee on Sat Apr 13, 2013 3:10 am

I kinda gave up on all the doctors long time ago. They didn't diagnose me - i did by stumbling across a magazine article. I find that Viaderm ointment helps. I have goid days and bad days. I know my limits. I did try Lyrica for a year. It helped withthe burning not so much with the pain but it put me in better spirits that i even got pregnant with my second child. I stopped it though because i got pregnant.

I just recently rebounded though because i tried an SSRI called Celexa. I' m kicking myself now for taking it. I was doing fine and now i'm right back at square one.

Where are you located?

Lainee

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Re: Hi I'm a new member

Post  Applejax on Sun Apr 14, 2013 11:17 am

I'm in the US - South Carolina. I have only recently found a doctor who knows anything about this. Went through about 9 doctors over 18 years who told me that there was nothing physically wrong with me and suggested I continue with marriage counseling. Like you, I pretty much self-diagnosed through info I found online back in October. Then found a doctor through NVA's provider list and saw him in December. He was the first doctor who validated my experience of pain - what a relief to finally be believed! Mine is considered "provoked" vulvodynia as I only have pain with intercourse and gyn exams. I didn't realize until I started reading these boards that so many women have pain all the time. I feel rather fortunate now. Back in October I stopped having intercourse with my husband. So, except for the several gyn exams to try to figure this out, I've been pain free since October. Now I'm just trying to work through emotional/relational issues in hopes that my marriage can improve. The pain/intercourse issue has essentially run it into the ground.

Applejax

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Re: Hi I'm a new member

Post  Alana3 on Sun Apr 14, 2013 12:59 pm

Applejax you have the same as me has surgery ever been discussed for you? I had a vestibulectony in December and it literally changed my life. Smile I went thru millions of doctors too until I found this one he helped so much and actually listened wow!

Alana3

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Re: Hi I'm a new member

Post  Sebby (Admin) on Mon Apr 22, 2013 7:45 pm

Welcome to the forum.

I am currently on Lyrica (pregabalin) 300mg.

The pain isn't so constant and is now mainly provoked.


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Re: Hi I'm a new member

Post  Kathy100 on Tue Apr 23, 2013 11:11 am

Hi Lainee

Welcome - this forum is great for support & keeping you going.
I use notriptyline which has got rid of the burning pain. I'm also having PT to help with the tight muscles.

xx

Kathy100

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Re: Hi I'm a new member

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