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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Do you ever feel like....

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Do you ever feel like....

Post  Kathye10 on Wed Apr 17, 2013 4:07 am

Do you ever feel like, with all of the research you've done to help and inform yourself, you could practically be a Doctor at this point? lol

A friend of mine said to me yesterday, "Girl, if you were to apply for med school, they'd just throw you into your second year right away!" I couldn't help but laugh my butt off. Seriously...at this point couldn't we all be Gynecologists, Dermatologists, Pathologists, and for some of you Physical Therapists? Apparently, I choose the WRONG career path. Oy vey... lol!
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Re: Do you ever feel like....

Post  tinkerbelle2 on Mon Sep 30, 2013 10:53 am

YES! And sometimes I feel I know more than the professionals, about this anyway.

What's also weird is all the male professionals I've seen seem to know more than the females.
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Hell yea!

Post  mushroomvisionlala on Mon Sep 30, 2013 3:57 pm

Hell yes. I know more about this condition then most doctors do, and either they get pissed off at me, for knowing more than they do, (its an ego thing with doctors most times)or they are relieved, as I am on their level, and I tell them what I want, make it quick, tell then my symptoms, get my scripts and get the Hell out of there. Sumtimes you gotta play their game and tell them what they want to hear, its a mutual respect thing. It takes patience. and they almost always follow protocol. Ive actually been asked before if I was a medical student.

if I was younger, I would either go into microbiology or Gynaecology.

You need Gods help to get thru this thing. I pray before every doctors visit.

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Re: Do you ever feel like....

Post  EverythingIsDifferentNow on Sat Oct 25, 2014 4:39 pm

my mom calls me a doctor at this point haha

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Re: Do you ever feel like....

Post  lonelyone48 on Sat Nov 08, 2014 4:05 am

Yes my sister says I'm a walking medical journal.

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Re: Do you ever feel like....

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