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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I HATE my period!!!!!!

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I HATE my period!!!!!!

Post  Alana3 on Thu Apr 18, 2013 1:06 pm

I hate it! It came early even when I am on the pill! I hate bleeding, I hate my hooha being on fire, burning and itching (and totally unrelated from vulvodynia because I no longer have that problem) I hate tampons as they cause me imense cramps, and the effing pads rub. I hate that this is once a month and that my back, head, boobs, stomach ache and the blood let's not forget that. AHHH I HATE IT why cant they stop it? I've been getting horrible migraines worse than any vulvodynia where I cant even function and I throw up. I HATE BEING A GIRL!!!! And this stupid pad is driving me insane, but I hate tampons more.

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Re: I HATE my period!!!!!!

Post  Alana3 on Thu Apr 18, 2013 1:19 pm

Oh and my question lol I forgot does anyone pee more when they have their period? omg my poor vag it's been 20 minutes and its already irritated. FUCK THIS!

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Re: I HATE my period!!!!!!

Post  Sarah001 on Thu Apr 18, 2013 5:56 pm

Sounds like the old water retention problem, as soon as you start bleeding which means hormones have shifted a bit the water creates more pees. I used to get really bad migraines with my periods too and a doctor diagnosed it as also being related to water retention and sure enough a diuretic a few days a month (right before my period) sorted that issue out too. Have some chocolate, or better still wine! Wink
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Re: I HATE my period!!!!!!

Post  Alana3 on Thu Apr 18, 2013 7:06 pm

I had chicken mcnuggets does that count lol I gain like 5 pounds right before too ugh wine sounds amazing haha yeah God my head last night I thought I was going to die ugh

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Re: I HATE my period!!!!!!

Post  Kathye10 on Fri Apr 19, 2013 1:35 am

Alana, I've heard of a verrrrrrry simple solution for water retention....my best friend gets it REALLY bad and was told to drink a ton of water with lemon. Sure enough, it worked.
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Re: I HATE my period!!!!!!

Post  Alana3 on Fri Apr 19, 2013 3:18 am

Omg I'll Try it everyone has been telling me how fat I am. It's like seriously I have my period I gain weight it's so depressing. Sad

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Re: I HATE my period!!!!!!

Post  Kathye10 on Fri Apr 19, 2013 3:41 am

Who is telling you, you are fat?!? That's not nice! Seriously though, try the lemon water. And it's not REAL weight, it's just water, it happens to all of us. Some more than others.
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Re: I HATE my period!!!!!!

Post  Alana3 on Fri Apr 19, 2013 11:44 am

I hate being a girl ugh Sad

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Re: I HATE my period!!!!!!

Post  Kathye10 on Sat Apr 20, 2013 1:07 am

I feel ya. At this point I'm ready to turn in my vagina for a penis..lol
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Re: I HATE my period!!!!!!

Post  Alana3 on Sat Apr 20, 2013 1:44 am

I've been ready since I was 12

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Re: I HATE my period!!!!!!

Post  Kathye10 on Sat Apr 20, 2013 6:59 am

How old are you now?
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Re: I HATE my period!!!!!!

Post  Alana3 on Sat Apr 20, 2013 9:36 am

27... So I think I have ic and have been up half the night in total panic. As soon as I take a sip of beer I have this burning sensation and have to pee the rest of the night. Coffee makes me pee too but without the burn. Alcohol is usually the only thing that makes me burn. Im so scared. Do you have this? I hate what vv has done to me it's made me total hypochondriac. Maybe im just allergic to beer? I get the burn with wine but it goes away and I don't have to pee as much. Or it could be because of my stupid period? Im going nuts. I can't talk to anyone because they're like you always have problems and I don't wanna be that girl Sad on a good note my vv doesn't hurt! Oh and one more question (assuming you can) have sex do you have to pee right after you're done? Sorry im probably flipping for no reason. I haven't had sex in over a year and a half but def remember having to pee right after. I hate my vagina! I feel crazy

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Re: I HATE my period!!!!!!

Post  Kathye10 on Sat Apr 20, 2013 2:38 pm

I haven't had sex since this started (sex brought this BS on) last November. And I didn't pee right after, which I totally should have. Yes, from what I hear, it's always good to pee right after penetration.

I sometimes burn when I pee, but I don't drink coffee or alcohol. For me it burns on the vulva area, not from inside Maybe you are having some sort of allergic reaction to it? Or maybe because you are panicking it's making it worse? Trust me, I know about the "crazy", hypochondria feelings. I'm in the same spot. I use to wash my vag with whatever, never had problems. Now I have to be careful about EVERYTHING...I'm such a freak about it, I wash my hands BEFORE and after peeing because I'm scared to infect myself (I've tested positive for bacteria that they are trying to treat in hopes it will make my symptoms go away) So does it burn on the vulva or does your urethra or bladder actually bother you?
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Re: I HATE my period!!!!!!

Post  Alana3 on Sat Apr 20, 2013 3:01 pm

It's not my vulva it's only when I drink certain drinks so maybe I am allergic? It seems to be with cider and wine. But like rum doesn't do anything to me. Im a mess. If I have ic on top of this im gonna go insane. I can't deal with oh you're normal now but here's something else you have to worry about. There goes eating and enjoying kg myself. Anything else my body wants to do to make miserable? Ic is my biggest fear ever. I seriously will for if I have this

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Re: I HATE my period!!!!!!

Post  Kathye10 on Sat Apr 20, 2013 8:01 pm

Hmmm....Sounds like your body is already sensitive from the V...I would experiment with not drinking alcohol for a month or so, then slowly trying it again with each one separately. I know, I'd freak if I had IC too. My recent Dr threw it out there, along with PFD and I was like NOPE, not an option. For me it's just my vulva skin and vestibule. I recently had a bad case of folliculitus down there, and am on antibiotics now, it's clearing up but along with the other shit....I'm soooooo over this and for me it's only been 5 months. I'm an emotional, obsessed wreak at this point. Can't we just wake up one morning NORMAL?
Where do you live?
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Re: I HATE my period!!!!!!

Post  Alana3 on Sat Apr 20, 2013 8:29 pm

Have surgery you'll be good I had a rum drink today and was perfectly fine. I have no idea im trying vodka now no big deal. Lol im from Florida you?

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Re: I HATE my period!!!!!!

Post  Alana3 on Sat Apr 20, 2013 9:57 pm

Vodka and rum are both ok that's so weird. Maybe there's something in beer that affects me Weird Sad because nothing else affects me like that

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Re: I HATE my period!!!!!!

Post  Kathye10 on Sun Apr 21, 2013 12:46 am

Doesn't beer have wheat, barley, stuff like that? I'm in Los Angeles.
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Re: I HATE my period!!!!!!

Post  Alana3 on Sun Apr 21, 2013 1:14 am

Yes as does wine blah. Wow you're all the way west! Nice!

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Re: I HATE my period!!!!!!

Post  Kathye10 on Sun Apr 21, 2013 4:42 am

Opposite ends of the country. I've been to FL once. Miami, was going on a cruise....when my vagina was normal lol Ugh....
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Re: I HATE my period!!!!!!

Post  Alana3 on Sun Apr 21, 2013 2:35 pm

Do the surgery best decision of my life!

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Re: I HATE my period!!!!!!

Post  EviE°Bee on Thu Oct 10, 2013 8:05 am

Caffeine is a diuretic so coffee, tea, anything with caffeine is a sure way to irritate bladder. The alcohol is a definate irritant. I have IC too. I dont like the taste of alcohol but if I have a sip or two on holidays it goes straight through me. Even certain liquid cold and flu medicines, they contain alcohol and I have the same effect.

Some things we can get away with, some we can't. Either way it blows. You see women drinkin to have fun or relax and they are completely fine. I can't help but be jealous of their normalcy.

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Re: I HATE my period!!!!!!

Post  Alana3 on Thu Oct 10, 2013 12:15 pm

It doesn't.affect me anymore... weird!

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Re: I HATE my period!!!!!!

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