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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Husband with symptoms too!!

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Husband with symptoms too!!

Post  Delilah1 on Wed Apr 24, 2013 1:27 am

Hello ladies. I'd like to share my story with you. It began in September. I noticed a fishy smell when I washed my vulva with soap in the shower. Made an appointment to see my dr. A few nights later my husband and I had sex. Felt like he had razor blades on his penis when he entered me. The pain went away as we carried on. Several days later he had pain/burning when he urinated and pain at the tip of his penis. Dr. put him on doxycycline. After several days on it he still had no relief of symptoms. They progressed into bladder burning and a feeling of having something in his rectum. My symptoms also progressed. I felt irritation, burning and swelling of my vulva and vagina. Looking at myself with a mirror my vulva looked pink and normal except for a purple/red lines on the inside of my labia minora. Went to dr. Diagnosed with bacterial vaginosis. All STD tests were negative. Took one dose of metrogel. Had reaction to it. Lump in throat, tingling in hands and feet and feeling like I was being poked in the feet. Tried the peroxide douches to get rid of BV. Meanwhile my husband went to his doctor. His doctor told him to keep taking the doxycycline even though his urine never showed bacteria. Husband went to a urologist. Told him he had chronic prostatitis and continue with Cipro antibiotic. I returned to my dr. Still with burning, redness and swelling.
All STD tests negative again. Negative for HPV and herpes also. The Gardnerella BV was gone but I still had the burning!! (peroxide douches do cure bv I guess) Now I have the burning all the time. The swelling comes and goes. Had sex one time since the beginning with me on top. Didn't hurt when he entered but hurt terribly for 3 days after! No sex since then. Went back to Dr. She gave me estrace cream. Never gave me a diagnosis. I have an appointment at a vulvovaginal clinic in St. Louis in June. Now my vulva looks much different. It is red, the skin is shiny and looks fragile. There are darkened areas that were not there 7 months ago. Im 45 years old. Maybe this is perimenopause related? I feel dry and raw. Sometimes there is a drawing sensation. I get feelings of being poked in the vagina and clitoris. The estrogen cream doesnt seem to be helping. It burns and irritates more I think. I have never had a yeast infection or any other kind of vaginal infection my whole life. I've only had one UTI ever! Just one day out of the blue this whole nightmare started! My husband has the burning in his penis and bladder. Fullness in the rectum. They say it could be the nerves in his pelvis. He is going to physical therapy and chiropractor. Here's my question: Are vulvodynia and prostatitis caused by some kind of unknown virus!!??? We tell all of the doctors we see our story. They have no clue! All std tests negative. Whats going on? Thanks for listening ladies!


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Re: Husband with symptoms too!!

Post  Alana3 on Wed Apr 24, 2013 2:25 am

No vulvodynia is not passable could just be a fluke. I know in men ic have the symptoms your husband described. Maybe bring that up with doc?


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