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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Husband with symptoms too!!

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Husband with symptoms too!!

Post  Delilah1 on Wed Apr 24, 2013 1:27 am

Hello ladies. I'd like to share my story with you. It began in September. I noticed a fishy smell when I washed my vulva with soap in the shower. Made an appointment to see my dr. A few nights later my husband and I had sex. Felt like he had razor blades on his penis when he entered me. The pain went away as we carried on. Several days later he had pain/burning when he urinated and pain at the tip of his penis. Dr. put him on doxycycline. After several days on it he still had no relief of symptoms. They progressed into bladder burning and a feeling of having something in his rectum. My symptoms also progressed. I felt irritation, burning and swelling of my vulva and vagina. Looking at myself with a mirror my vulva looked pink and normal except for a purple/red lines on the inside of my labia minora. Went to dr. Diagnosed with bacterial vaginosis. All STD tests were negative. Took one dose of metrogel. Had reaction to it. Lump in throat, tingling in hands and feet and feeling like I was being poked in the feet. Tried the peroxide douches to get rid of BV. Meanwhile my husband went to his doctor. His doctor told him to keep taking the doxycycline even though his urine never showed bacteria. Husband went to a urologist. Told him he had chronic prostatitis and continue with Cipro antibiotic. I returned to my dr. Still with burning, redness and swelling.
All STD tests negative again. Negative for HPV and herpes also. The Gardnerella BV was gone but I still had the burning!! (peroxide douches do cure bv I guess) Now I have the burning all the time. The swelling comes and goes. Had sex one time since the beginning with me on top. Didn't hurt when he entered but hurt terribly for 3 days after! No sex since then. Went back to Dr. She gave me estrace cream. Never gave me a diagnosis. I have an appointment at a vulvovaginal clinic in St. Louis in June. Now my vulva looks much different. It is red, the skin is shiny and looks fragile. There are darkened areas that were not there 7 months ago. Im 45 years old. Maybe this is perimenopause related? I feel dry and raw. Sometimes there is a drawing sensation. I get feelings of being poked in the vagina and clitoris. The estrogen cream doesnt seem to be helping. It burns and irritates more I think. I have never had a yeast infection or any other kind of vaginal infection my whole life. I've only had one UTI ever! Just one day out of the blue this whole nightmare started! My husband has the burning in his penis and bladder. Fullness in the rectum. They say it could be the nerves in his pelvis. He is going to physical therapy and chiropractor. Here's my question: Are vulvodynia and prostatitis caused by some kind of unknown virus!!??? We tell all of the doctors we see our story. They have no clue! All std tests negative. Whats going on? Thanks for listening ladies!

Delilah1

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Re: Husband with symptoms too!!

Post  Alana3 on Wed Apr 24, 2013 2:25 am

No vulvodynia is not passable could just be a fluke. I know in men ic have the symptoms your husband described. Maybe bring that up with doc?

Alana3

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