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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

Husband with symptoms too!!

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Husband with symptoms too!!

Post  Delilah1 on Wed Apr 24, 2013 1:27 am

Hello ladies. I'd like to share my story with you. It began in September. I noticed a fishy smell when I washed my vulva with soap in the shower. Made an appointment to see my dr. A few nights later my husband and I had sex. Felt like he had razor blades on his penis when he entered me. The pain went away as we carried on. Several days later he had pain/burning when he urinated and pain at the tip of his penis. Dr. put him on doxycycline. After several days on it he still had no relief of symptoms. They progressed into bladder burning and a feeling of having something in his rectum. My symptoms also progressed. I felt irritation, burning and swelling of my vulva and vagina. Looking at myself with a mirror my vulva looked pink and normal except for a purple/red lines on the inside of my labia minora. Went to dr. Diagnosed with bacterial vaginosis. All STD tests were negative. Took one dose of metrogel. Had reaction to it. Lump in throat, tingling in hands and feet and feeling like I was being poked in the feet. Tried the peroxide douches to get rid of BV. Meanwhile my husband went to his doctor. His doctor told him to keep taking the doxycycline even though his urine never showed bacteria. Husband went to a urologist. Told him he had chronic prostatitis and continue with Cipro antibiotic. I returned to my dr. Still with burning, redness and swelling.
All STD tests negative again. Negative for HPV and herpes also. The Gardnerella BV was gone but I still had the burning!! (peroxide douches do cure bv I guess) Now I have the burning all the time. The swelling comes and goes. Had sex one time since the beginning with me on top. Didn't hurt when he entered but hurt terribly for 3 days after! No sex since then. Went back to Dr. She gave me estrace cream. Never gave me a diagnosis. I have an appointment at a vulvovaginal clinic in St. Louis in June. Now my vulva looks much different. It is red, the skin is shiny and looks fragile. There are darkened areas that were not there 7 months ago. Im 45 years old. Maybe this is perimenopause related? I feel dry and raw. Sometimes there is a drawing sensation. I get feelings of being poked in the vagina and clitoris. The estrogen cream doesnt seem to be helping. It burns and irritates more I think. I have never had a yeast infection or any other kind of vaginal infection my whole life. I've only had one UTI ever! Just one day out of the blue this whole nightmare started! My husband has the burning in his penis and bladder. Fullness in the rectum. They say it could be the nerves in his pelvis. He is going to physical therapy and chiropractor. Here's my question: Are vulvodynia and prostatitis caused by some kind of unknown virus!!??? We tell all of the doctors we see our story. They have no clue! All std tests negative. Whats going on? Thanks for listening ladies!


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Re: Husband with symptoms too!!

Post  Alana3 on Wed Apr 24, 2013 2:25 am

No vulvodynia is not passable could just be a fluke. I know in men ic have the symptoms your husband described. Maybe bring that up with doc?


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