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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 3

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Husband with symptoms too!!

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Husband with symptoms too!!

Post  Delilah1 on Wed Apr 24, 2013 1:27 am

Hello ladies. I'd like to share my story with you. It began in September. I noticed a fishy smell when I washed my vulva with soap in the shower. Made an appointment to see my dr. A few nights later my husband and I had sex. Felt like he had razor blades on his penis when he entered me. The pain went away as we carried on. Several days later he had pain/burning when he urinated and pain at the tip of his penis. Dr. put him on doxycycline. After several days on it he still had no relief of symptoms. They progressed into bladder burning and a feeling of having something in his rectum. My symptoms also progressed. I felt irritation, burning and swelling of my vulva and vagina. Looking at myself with a mirror my vulva looked pink and normal except for a purple/red lines on the inside of my labia minora. Went to dr. Diagnosed with bacterial vaginosis. All STD tests were negative. Took one dose of metrogel. Had reaction to it. Lump in throat, tingling in hands and feet and feeling like I was being poked in the feet. Tried the peroxide douches to get rid of BV. Meanwhile my husband went to his doctor. His doctor told him to keep taking the doxycycline even though his urine never showed bacteria. Husband went to a urologist. Told him he had chronic prostatitis and continue with Cipro antibiotic. I returned to my dr. Still with burning, redness and swelling.
All STD tests negative again. Negative for HPV and herpes also. The Gardnerella BV was gone but I still had the burning!! (peroxide douches do cure bv I guess) Now I have the burning all the time. The swelling comes and goes. Had sex one time since the beginning with me on top. Didn't hurt when he entered but hurt terribly for 3 days after! No sex since then. Went back to Dr. She gave me estrace cream. Never gave me a diagnosis. I have an appointment at a vulvovaginal clinic in St. Louis in June. Now my vulva looks much different. It is red, the skin is shiny and looks fragile. There are darkened areas that were not there 7 months ago. Im 45 years old. Maybe this is perimenopause related? I feel dry and raw. Sometimes there is a drawing sensation. I get feelings of being poked in the vagina and clitoris. The estrogen cream doesnt seem to be helping. It burns and irritates more I think. I have never had a yeast infection or any other kind of vaginal infection my whole life. I've only had one UTI ever! Just one day out of the blue this whole nightmare started! My husband has the burning in his penis and bladder. Fullness in the rectum. They say it could be the nerves in his pelvis. He is going to physical therapy and chiropractor. Here's my question: Are vulvodynia and prostatitis caused by some kind of unknown virus!!??? We tell all of the doctors we see our story. They have no clue! All std tests negative. Whats going on? Thanks for listening ladies!


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Re: Husband with symptoms too!!

Post  Alana3 on Wed Apr 24, 2013 2:25 am

No vulvodynia is not passable could just be a fluke. I know in men ic have the symptoms your husband described. Maybe bring that up with doc?


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