Vulvodynia Support
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» Hope to all my suffering ladies
Joy 123 my story EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Joy 123 my story EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Joy 123 my story EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Joy 123 my story EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Joy 123 my story EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Joy 123 my story EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Joy 123 my story EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Joy 123 my story EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Joy 123 my story EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Joy 123 my story

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Post  Joy 123 Thu Apr 25, 2013 7:07 am

I am 58 years of age, married for 37 years, had vaginal inflammation off and on for 30 years, appearing to occurr especially after drinking bubbly wines or good quality wines, bubbly strawberry wine or even strong mixed drinks. Diflucan tablets helped initially but over time no longer work as with most thrush treatments. Sometimes when I had no inflammation I'd have a period then inflammation followed taking me months to recover using all the candida medications available. I have given 3 Gyno's a year each to try to help me, but each one virtually put me through the same medications. I am now allergic to the preservatives in any vaginal treatments and Hormone Replacement Therapy gives my fibroids. At age 50 my periods ceased never to return again, thank goodness but it seems like my vulvodynia is here to stay as for the last 8 years I have not been able to have sex because of how sore and raw I feel. My GP suggested I try HRT patches which I did and to my disbelief my vaginal pain went and sex was at last comfortable. This relief only lasted 4 months then pain was back, so now the patches don't work. I have recently spent 2 months on Naturopath treatment taking bucket loads of pro-biotics and a diet of unprocessed foods, but with no improvement. My next and I feel possibly last idea is to try a Doctor who specializes in Chinese Medicine, has anyone had any possitive results from Chinese Medicine.

Joy 123

Posts : 1
Join date : 2013-04-25
Age : 69
Location : Perth

http://cooltech@live.com.au

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Joy 123 my story Empty Re: Joy 123 my story

Post  Alana3 Thu Apr 25, 2013 5:34 pm

I have that too with some alcoholic drinks, what do you mean by inflammation tho? Mine just burns and goes away after a minute its the weirdest thing. It hits me and then goes away so weird. I hate being a girl. We get shit on, unless a woman is healthy we get the raw end Sad

You're vaginal tissue gets thinner and burns at menopause, it could just be normal wear and tear. I forget what that's called, but there are creams and such to help. I did acupuncture, and it helped, but it didn't take it away 100%. Sorry to hear that your pain came back that sucks, it's like you feel better than BAM! Something else to hinder you and your vagina rears its ugly head. So frustrating!

Alana3

Posts : 1093
Join date : 2012-09-25

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