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» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» What's next?
Sat Apr 14, 2018 4:28 pm by sally_jane

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


15 year old daughter with vulval pain

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15 year old daughter with vulval pain

Post  Ameliasmum on Wed Apr 24, 2013 8:17 am

Hi all,
Just joined as been searching google about my daughter suffering from pain in this area....it has happened on and off over a year lasting days then going....but this time its lasted over a week...i took her to our gp last week and explained her symptoms which are intense stinging burning in vulva area...but daughter was afraid to be examined down there.....gp suggested drinking lots of water....thats all she does drink anyway......then Monday and Tuesday this week she couldnt go to school because of it as she finds it hard to walk has to take little baby steps because of the pain....i made another appointment to see gp yesterday and she tried to have and exam but just the action of knees bent up and flopping them out caused terrible pain that she was bought to tears....she said that walking bending just to put underwear on can make it hurt more..... the exam couldnt go ahead although she really tried.........gps advice now is to apply ice pack and yogurt and take pain meds....she had taken paracetamol and it didnt help which we explained.........gp hasnt requested to see her again ... my daughter is a sensible girl and rarely complains so i know how bad this is for her....any advise would be gratefully received....many thanks
p.s. doesnt seem related to cycle and she suffers with eczema


Last edited by Ameliasmum on Wed Apr 24, 2013 8:58 am; edited 1 time in total (Reason for editing : addition)

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Re: 15 year old daughter with vulval pain

Post  Alana3 on Wed Apr 24, 2013 1:06 pm

Unfortunately to really know she needs an exam. But they should just have to look on the outside if its vulvodynia and not do much more (maybe the qtip test). If it's really that bad (which it probably is) ask for lidocaine to put on before the exam and to use thruout the day. V wouldn't be related to a cycle it just hurts. I remember the last time mine hurt was for the mapping for surgery, unfortunately that couldn't be numbed because they needed to know exactly where it hurt. Oh my God it was the worst pain I have ever felt and I couldn't sit for a while after. Try a probiotic, but honestly, if it is V you need something like elavil, gabapentin, or amitryptilene (sp?) to try and make it stop hurting. From my experience, pain killers don't do anything except make you tired. Take her to someone who does strictly vular pain. I had to go thru 10 doctors before I found one who was even willing to admit that I had a problem and then from there found the doc I have now. Not a good feeling but it can be treated and she can be made to feel better. You could also try physical therapy for her, it helped me for a little, and I still do it now to help with muscle spasms. Good luck if you have any questions let me know Smile

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Re: 15 year old daughter with vulval pain

Post  Kathy100 on Wed Apr 24, 2013 3:11 pm

Hi,

I feel so sorry for you and your daughter. I can understand her not wanting to be examined because of the pain, I had to have my last smear test under anaesthic! I would change your gp - some of them have no idea - one of the first doctors I saw also said take paracetamol and come back in three weeks time. Paracetamol (or any ordinary pain killers) don't have any effect this kind of burning pain. Ice packs do help temporarily. I had to see several doctors before I got a diagnosis - even then I had to ask her was it V?. The doctor should take swabs & order a blood test. I then went to see a pain management specialist who specialises in V & things started to get better. I also went to see a vulval dermatologist to rule out any skin conditions. I take notriptyline which for me helps a lot with the burning pain. I'm also having physio to help ease the tight muscles which has helped too. It's very difficult but I think once you find the right GP / pain management specialist who understands V things will start to get better for her.

Good luck, don't give up & don't let the doctors fob you off! xx

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Re: 15 year old daughter with vulval pain

Post  Ameliasmum on Mon Apr 29, 2013 3:27 pm

Hi Alana and Kathy

Thank you both for replying......i shall try one more time at our surgery (i dont hold out much hope) then take advice to seek another gp....Kind Regards x

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Re: 15 year old daughter with vulval pain

Post  Alana3 on Mon Apr 29, 2013 4:57 pm

Keep us updated!

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Re: 15 year old daughter with vulval pain

Post  Loulou on Mon Apr 29, 2013 5:31 pm

Hi Ameliasmum

A few things struck a chord with me from your description of your daughter's pain as they mirrored my own pain in the early days of my vulvodynia ie painful to walk (having to take baby steps), pain when adopting the position for an internal exam, and the actual pain of my doctor trying, and failing, to insert the speculum. In my case this was due to tight pelvic muscles and tight adductor muscles in my inner thighs (which was caused by a misaligned pelvis). At the very least if you can get some help for your daughter to release these muscles it should help reduce the pain, and maybe enable an internal exam to take place.

Whatever the primary cause of her vulvodynia it is very likely that pain is causing her to tighten her pelvic floor and surrounding muscles causing additional secondary pain. So please get a referral to a women's health physio for her and have a look on here for some of my previous posts where i talk about the 'frog pose' which helps to release tight adductor muscles, this will enable her to drop her knees more comfortably. Also a great book which gives exercises for releasing the pelvic floor is 'Heal Pelvic Pain' by Amy Stein.

Another thing you can check for is whether she has any sore spots (trigger points) which indicate tight/contracted muslces in her bum, down the outside of her thighs and across her abdomen. Trigger points in her bum can be found and massaged with a friendly elbow! (just press the elbow firmly but gently into the sore spot for 30secs or so - or you can use a tennis ball). Thumbs and fingers are best for massaging abdomen (a typical vulvodynia related sore spot is in the psoas muscles - when lying flat, imagine a line from the knobbly hip bone (bit that sticks up) to the belly button and around the middle of that line feel around for a tight band or sore spot and massage gently. You might need to press quite deeply here to feel the muscle/sore spot. Outer and inner thighs can be massaged with thumbs, fingers. Or you can buy a 'knobbler' hand held massager. Repeat the massages several times and throughout the day. If your daughter has any tight muscles these should definitely help.

You say your daughter has eczema - hopefully if she can relax her muscles enough for an internal exam they will be able to identify if her pain is caused by vulval eczema. Another thought has your daughter ever had any back or pelvic injuries at any time? e.g falling off something? a slip in dance/gymnastics etc? If yes then structural or muscular problems in the pelvis might be the primary cause of her vulvodynia.

Hope this helps while you find some answers for your daughter.

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Re: 15 year old daughter with vulval pain

Post  Ameliasmum on Tue May 07, 2013 7:20 am

Hi Loulou

Thank you so much for info...daughter has episodes of really bad leg/calf muscle cramps so will check areas you mention too...many thanks

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Re: 15 year old daughter with vulval pain

Post  Alana3 on Tue May 07, 2013 10:19 am

Is she on birth control? If so mention to a doc asap about the.cramps

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Re: 15 year old daughter with vulval pain

Post  Delilah1 on Tue May 07, 2013 3:02 pm

I can't imagine being 15 and having to deal with this. Dealing with the pain and burning can be so stressful. The anxiety that it provokes only adds to the problem. The pain, worry and anxiety make the muscles in your whole body tense. You wonder why me? Will this ever go away? Do I have a sexually transmitted disease or something the doctors are missing? I am in no way saying the pain of vulvodynia is all in your head but emotional issues, stress and anxiety add to it. Has your daughter been through a particuliarly stressful event recently? Is she having issues with boyfriend, friends, school....etc. When my V first started I was going thru a stressful time in my life. I thought I would go to the doctor get some medicine and be on my way feeling better in a few days. When this didn't happen the anxiety started. I think it made all my symptoms worse.
What you can do for your daughter right now is help her to find ways to relax. Give her a back massage, play a movie that will help her get her mind off of it for a while or make her laugh, assure her that she can talk with you about anything that is bothering her. Warm baths in Aveeno Colloidal oatmeal are very soothing. And all of the exercises, stretches and trigger point techniques LouLou described are so important. One of the most important exercises I believe is learning how to breathe filling your lungs using your diaphragm muscles. Amy Stein's book "Heal Pelvic Pain" teaches you how to do this. It really helps. Whatever the cause of her V these things will help. I wish her well!!

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Re: 15 year old daughter with vulval pain

Post  Alana3 on Tue May 07, 2013 3:15 pm

All that is great if the pain is muscular, with mine it was mostly skin and nerve related and it drove me up a wall it made it a lot worse. Just make sure you have a doctor tell you if its muscular or nerve. Now that I had the surgery and removed all the skin and such that was affected I can get thru PT (because I have a little bit of muscle spasms) a lot easier.

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Re: 15 year old daughter with vulval pain

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