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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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15 year old daughter with vulval pain

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15 year old daughter with vulval pain

Post  Ameliasmum on Wed Apr 24, 2013 8:17 am

Hi all,
Just joined as been searching google about my daughter suffering from pain in this area....it has happened on and off over a year lasting days then going....but this time its lasted over a week...i took her to our gp last week and explained her symptoms which are intense stinging burning in vulva area...but daughter was afraid to be examined down there.....gp suggested drinking lots of water....thats all she does drink anyway......then Monday and Tuesday this week she couldnt go to school because of it as she finds it hard to walk has to take little baby steps because of the pain....i made another appointment to see gp yesterday and she tried to have and exam but just the action of knees bent up and flopping them out caused terrible pain that she was bought to tears....she said that walking bending just to put underwear on can make it hurt more..... the exam couldnt go ahead although she really tried.........gps advice now is to apply ice pack and yogurt and take pain meds....she had taken paracetamol and it didnt help which we explained.........gp hasnt requested to see her again ... my daughter is a sensible girl and rarely complains so i know how bad this is for her....any advise would be gratefully received....many thanks
p.s. doesnt seem related to cycle and she suffers with eczema


Last edited by Ameliasmum on Wed Apr 24, 2013 8:58 am; edited 1 time in total (Reason for editing : addition)

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Re: 15 year old daughter with vulval pain

Post  Alana3 on Wed Apr 24, 2013 1:06 pm

Unfortunately to really know she needs an exam. But they should just have to look on the outside if its vulvodynia and not do much more (maybe the qtip test). If it's really that bad (which it probably is) ask for lidocaine to put on before the exam and to use thruout the day. V wouldn't be related to a cycle it just hurts. I remember the last time mine hurt was for the mapping for surgery, unfortunately that couldn't be numbed because they needed to know exactly where it hurt. Oh my God it was the worst pain I have ever felt and I couldn't sit for a while after. Try a probiotic, but honestly, if it is V you need something like elavil, gabapentin, or amitryptilene (sp?) to try and make it stop hurting. From my experience, pain killers don't do anything except make you tired. Take her to someone who does strictly vular pain. I had to go thru 10 doctors before I found one who was even willing to admit that I had a problem and then from there found the doc I have now. Not a good feeling but it can be treated and she can be made to feel better. You could also try physical therapy for her, it helped me for a little, and I still do it now to help with muscle spasms. Good luck if you have any questions let me know Smile

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Re: 15 year old daughter with vulval pain

Post  Kathy100 on Wed Apr 24, 2013 3:11 pm

Hi,

I feel so sorry for you and your daughter. I can understand her not wanting to be examined because of the pain, I had to have my last smear test under anaesthic! I would change your gp - some of them have no idea - one of the first doctors I saw also said take paracetamol and come back in three weeks time. Paracetamol (or any ordinary pain killers) don't have any effect this kind of burning pain. Ice packs do help temporarily. I had to see several doctors before I got a diagnosis - even then I had to ask her was it V?. The doctor should take swabs & order a blood test. I then went to see a pain management specialist who specialises in V & things started to get better. I also went to see a vulval dermatologist to rule out any skin conditions. I take notriptyline which for me helps a lot with the burning pain. I'm also having physio to help ease the tight muscles which has helped too. It's very difficult but I think once you find the right GP / pain management specialist who understands V things will start to get better for her.

Good luck, don't give up & don't let the doctors fob you off! xx

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Re: 15 year old daughter with vulval pain

Post  Ameliasmum on Mon Apr 29, 2013 3:27 pm

Hi Alana and Kathy

Thank you both for replying......i shall try one more time at our surgery (i dont hold out much hope) then take advice to seek another gp....Kind Regards x

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Re: 15 year old daughter with vulval pain

Post  Alana3 on Mon Apr 29, 2013 4:57 pm

Keep us updated!

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Re: 15 year old daughter with vulval pain

Post  Loulou on Mon Apr 29, 2013 5:31 pm

Hi Ameliasmum

A few things struck a chord with me from your description of your daughter's pain as they mirrored my own pain in the early days of my vulvodynia ie painful to walk (having to take baby steps), pain when adopting the position for an internal exam, and the actual pain of my doctor trying, and failing, to insert the speculum. In my case this was due to tight pelvic muscles and tight adductor muscles in my inner thighs (which was caused by a misaligned pelvis). At the very least if you can get some help for your daughter to release these muscles it should help reduce the pain, and maybe enable an internal exam to take place.

Whatever the primary cause of her vulvodynia it is very likely that pain is causing her to tighten her pelvic floor and surrounding muscles causing additional secondary pain. So please get a referral to a women's health physio for her and have a look on here for some of my previous posts where i talk about the 'frog pose' which helps to release tight adductor muscles, this will enable her to drop her knees more comfortably. Also a great book which gives exercises for releasing the pelvic floor is 'Heal Pelvic Pain' by Amy Stein.

Another thing you can check for is whether she has any sore spots (trigger points) which indicate tight/contracted muslces in her bum, down the outside of her thighs and across her abdomen. Trigger points in her bum can be found and massaged with a friendly elbow! (just press the elbow firmly but gently into the sore spot for 30secs or so - or you can use a tennis ball). Thumbs and fingers are best for massaging abdomen (a typical vulvodynia related sore spot is in the psoas muscles - when lying flat, imagine a line from the knobbly hip bone (bit that sticks up) to the belly button and around the middle of that line feel around for a tight band or sore spot and massage gently. You might need to press quite deeply here to feel the muscle/sore spot. Outer and inner thighs can be massaged with thumbs, fingers. Or you can buy a 'knobbler' hand held massager. Repeat the massages several times and throughout the day. If your daughter has any tight muscles these should definitely help.

You say your daughter has eczema - hopefully if she can relax her muscles enough for an internal exam they will be able to identify if her pain is caused by vulval eczema. Another thought has your daughter ever had any back or pelvic injuries at any time? e.g falling off something? a slip in dance/gymnastics etc? If yes then structural or muscular problems in the pelvis might be the primary cause of her vulvodynia.

Hope this helps while you find some answers for your daughter.

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Re: 15 year old daughter with vulval pain

Post  Ameliasmum on Tue May 07, 2013 7:20 am

Hi Loulou

Thank you so much for info...daughter has episodes of really bad leg/calf muscle cramps so will check areas you mention too...many thanks

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Re: 15 year old daughter with vulval pain

Post  Alana3 on Tue May 07, 2013 10:19 am

Is she on birth control? If so mention to a doc asap about the.cramps

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Re: 15 year old daughter with vulval pain

Post  Delilah1 on Tue May 07, 2013 3:02 pm

I can't imagine being 15 and having to deal with this. Dealing with the pain and burning can be so stressful. The anxiety that it provokes only adds to the problem. The pain, worry and anxiety make the muscles in your whole body tense. You wonder why me? Will this ever go away? Do I have a sexually transmitted disease or something the doctors are missing? I am in no way saying the pain of vulvodynia is all in your head but emotional issues, stress and anxiety add to it. Has your daughter been through a particuliarly stressful event recently? Is she having issues with boyfriend, friends, school....etc. When my V first started I was going thru a stressful time in my life. I thought I would go to the doctor get some medicine and be on my way feeling better in a few days. When this didn't happen the anxiety started. I think it made all my symptoms worse.
What you can do for your daughter right now is help her to find ways to relax. Give her a back massage, play a movie that will help her get her mind off of it for a while or make her laugh, assure her that she can talk with you about anything that is bothering her. Warm baths in Aveeno Colloidal oatmeal are very soothing. And all of the exercises, stretches and trigger point techniques LouLou described are so important. One of the most important exercises I believe is learning how to breathe filling your lungs using your diaphragm muscles. Amy Stein's book "Heal Pelvic Pain" teaches you how to do this. It really helps. Whatever the cause of her V these things will help. I wish her well!!

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Re: 15 year old daughter with vulval pain

Post  Alana3 on Tue May 07, 2013 3:15 pm

All that is great if the pain is muscular, with mine it was mostly skin and nerve related and it drove me up a wall it made it a lot worse. Just make sure you have a doctor tell you if its muscular or nerve. Now that I had the surgery and removed all the skin and such that was affected I can get thru PT (because I have a little bit of muscle spasms) a lot easier.

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Re: 15 year old daughter with vulval pain

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