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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Joy 123 my story

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Joy 123 my story

Post  Joy 123 on Thu Apr 25, 2013 7:07 am

I am 58 years of age, married for 37 years, had vaginal inflammation off and on for 30 years, appearing to occurr especially after drinking bubbly wines or good quality wines, bubbly strawberry wine or even strong mixed drinks. Diflucan tablets helped initially but over time no longer work as with most thrush treatments. Sometimes when I had no inflammation I'd have a period then inflammation followed taking me months to recover using all the candida medications available. I have given 3 Gyno's a year each to try to help me, but each one virtually put me through the same medications. I am now allergic to the preservatives in any vaginal treatments and Hormone Replacement Therapy gives my fibroids. At age 50 my periods ceased never to return again, thank goodness but it seems like my vulvodynia is here to stay as for the last 8 years I have not been able to have sex because of how sore and raw I feel. My GP suggested I try HRT patches which I did and to my disbelief my vaginal pain went and sex was at last comfortable. This relief only lasted 4 months then pain was back, so now the patches don't work. I have recently spent 2 months on Naturopath treatment taking bucket loads of pro-biotics and a diet of unprocessed foods, but with no improvement. My next and I feel possibly last idea is to try a Doctor who specializes in Chinese Medicine, has anyone had any possitive results from Chinese Medicine.

Joy 123

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Re: Joy 123 my story

Post  Alana3 on Thu Apr 25, 2013 5:34 pm

I have that too with some alcoholic drinks, what do you mean by inflammation tho? Mine just burns and goes away after a minute its the weirdest thing. It hits me and then goes away so weird. I hate being a girl. We get shit on, unless a woman is healthy we get the raw end Sad

You're vaginal tissue gets thinner and burns at menopause, it could just be normal wear and tear. I forget what that's called, but there are creams and such to help. I did acupuncture, and it helped, but it didn't take it away 100%. Sorry to hear that your pain came back that sucks, it's like you feel better than BAM! Something else to hinder you and your vagina rears its ugly head. So frustrating!


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