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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 1


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Joy 123 my story

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Joy 123 my story

Post  Joy 123 on Thu Apr 25, 2013 7:07 am

I am 58 years of age, married for 37 years, had vaginal inflammation off and on for 30 years, appearing to occurr especially after drinking bubbly wines or good quality wines, bubbly strawberry wine or even strong mixed drinks. Diflucan tablets helped initially but over time no longer work as with most thrush treatments. Sometimes when I had no inflammation I'd have a period then inflammation followed taking me months to recover using all the candida medications available. I have given 3 Gyno's a year each to try to help me, but each one virtually put me through the same medications. I am now allergic to the preservatives in any vaginal treatments and Hormone Replacement Therapy gives my fibroids. At age 50 my periods ceased never to return again, thank goodness but it seems like my vulvodynia is here to stay as for the last 8 years I have not been able to have sex because of how sore and raw I feel. My GP suggested I try HRT patches which I did and to my disbelief my vaginal pain went and sex was at last comfortable. This relief only lasted 4 months then pain was back, so now the patches don't work. I have recently spent 2 months on Naturopath treatment taking bucket loads of pro-biotics and a diet of unprocessed foods, but with no improvement. My next and I feel possibly last idea is to try a Doctor who specializes in Chinese Medicine, has anyone had any possitive results from Chinese Medicine.

Joy 123

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Re: Joy 123 my story

Post  Alana3 on Thu Apr 25, 2013 5:34 pm

I have that too with some alcoholic drinks, what do you mean by inflammation tho? Mine just burns and goes away after a minute its the weirdest thing. It hits me and then goes away so weird. I hate being a girl. We get shit on, unless a woman is healthy we get the raw end Sad

You're vaginal tissue gets thinner and burns at menopause, it could just be normal wear and tear. I forget what that's called, but there are creams and such to help. I did acupuncture, and it helped, but it didn't take it away 100%. Sorry to hear that your pain came back that sucks, it's like you feel better than BAM! Something else to hinder you and your vagina rears its ugly head. So frustrating!


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