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» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


severe pain after sex please help :'(

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severe pain after sex please help :'(

Post  KerryLouise17 on Wed May 01, 2013 12:13 am

Hello my name is Kerry
I have been diognosed with Volvadynia and I have had it for a year now, I would really appreciate it if there is anyone here who could help me and give me tips on how to stop the pain, the pain starts of on the outside and about 2 inches in the inside of my vagina when I have sex and as soon as we start that's when I get the pain it starts off with a shooting pain and then I get the most horrible burning pain I have ever experienced, it gets so bad that the pain actually makes me cry Sad When I get this burning pain I have the pain for up to 3 to 4 days and it don't go away it then really hurts to wipe myself when I go to the toilet and also when I am washing, I even get this burning pain when I use tampons. I don't know if this is to do with how it started but last year I started the conraceptive injection and as soon as I went onto that that is when I started getting the pain, I reall cannot cope anymore I am only 17 years of age and I don't think I should be getting this pain! I don't think anyone should get this pain! Its really hard to explain. Just how much it hurts to my boyfriend I think he understands but I know he will never understand the actually pain I am going through Sad if anyone can help me can you please inbox me.
Thankyou so much if anyone can help I'm in so much pain and I just need to get rid of it x

KerryLouise17

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Age : 22
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Re: severe pain after sex please help :'(

Post  Ridgwell on Sat Jun 08, 2013 12:35 am

Hi Kerry
I had the perfect sex life with an amazing boyfriend when I was 19 then suddenly the pain started. I was too embarrassed to see someone for weeks because the whole examination is violating and upsetting and I know now for good reason why I put it off. I was passed between 7 or 8 different doctors all examining me taking swabs and sending me away with clear test results and telling me it was in my head. My boyfriend was so sympathetic tried to understand but didnt know how to deal with me in pain and the crying and eventually didnt want to touch me because of being scared to hurt me. Finally a doctor diagnosed me with vulvodynia and I was put into amitrytholine to try and mend the exposed nerve fibres causing the pain. After about 6months the pain was completely gone but so was all sensation. I underwent counselling and sexual physiotherapy for months and the pleasure sensation never returned. I was diagnosed with depression and my relationship fell apart because he couldn't cope and I'd completely changed. It's been 2 years and up until last year things were starting to get bak on track. I was gaining some sensation again but then the pain returned with my new boyfriend.

I can't recommend a particular quick fix but creams don't seem to last and I'm sure your doctor will tell you this is a treatable condition but isn't curable. I just wanted to give you a heads up that taking the low dose of antidepressants that they prescribe DO work but you need to be prepared for any side effects that come with it and make sure you can emotionally handle it because this is not an easy condition to live with as I'm sure everyone will agree. But the sooner you start treatment the sooner the pain will go and if you're lucky your boyfriend will support you through it.

I don't know if this has been any help but I really wish you the best of luck because I know exactly how it feels to be so angry at the world for getting this condition so young and not knowing why but there are ways to stop it

Ridgwell

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Severe pain after sex

Post  Sunflower82 on Sat Jun 08, 2013 6:59 am

Dear Kerry,
First let me start by saying I understand your pain. Is your pain provoked or do you get unprovoked pain? I get both and have been suffering for years. I was also on the depo injection but this didn't seem to affect my pain, but for me it was useful as my periods stopped I could no longer use tampons and sanitary towels also made me uncomfortable. Do your on research on to tampons, if I had done this when I was younger I don't think I would ever use them. Try natural sanitary towels.

In term of the pain after sex the only think that had helped me is seeing a women's Heath Physio, in order to release the muscles and to de sensitise the area. This can be painful and first and symptoms can get worse but now I able able to have more or less psi free sex. Have a cool bath after sex just water no soap ect

Do you use lube? I need to use lots and least 20mls, try a live called yes it has no horrible chemicals.


I have also been on medication as well.

Hope this helps

Kt

Sunflower82

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Re: severe pain after sex please help :'(

Post  Alana3 on Sat Jun 08, 2013 1:03 pm

I tried everything that was mentioned above and than my doctor finally labeled me a surgery case last year. I had the surgery in december and am doing a lot better now. I still get pain from muscle spasms that mimic vulvodynia but they are easier to deal with since they can release. Maybe ask your doctor to write you a script of lube with.lidocaine in it so it numbs you while having sex. Unfortunately, you'll feel it after the fact. I also tried a gabapentin, ami, lidocaine mix that sometimes helps people but did little for me. Worst condition ever and really frustrating which makes you feel like less of a person because its supposed to be something everyone can do. I haven't had sex yet but use dilators everyday and the v pain isnt there just muscular. So if you're a candidate or it's ever mentioned you may want to consider it.

Alana3

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Re: severe pain after sex please help :'(

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