Log in

I forgot my password

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

severe pain after sex please help :'(

Go down

severe pain after sex please help :'(

Post  KerryLouise17 on Wed May 01, 2013 12:13 am

Hello my name is Kerry
I have been diognosed with Volvadynia and I have had it for a year now, I would really appreciate it if there is anyone here who could help me and give me tips on how to stop the pain, the pain starts of on the outside and about 2 inches in the inside of my vagina when I have sex and as soon as we start that's when I get the pain it starts off with a shooting pain and then I get the most horrible burning pain I have ever experienced, it gets so bad that the pain actually makes me cry Sad When I get this burning pain I have the pain for up to 3 to 4 days and it don't go away it then really hurts to wipe myself when I go to the toilet and also when I am washing, I even get this burning pain when I use tampons. I don't know if this is to do with how it started but last year I started the conraceptive injection and as soon as I went onto that that is when I started getting the pain, I reall cannot cope anymore I am only 17 years of age and I don't think I should be getting this pain! I don't think anyone should get this pain! Its really hard to explain. Just how much it hurts to my boyfriend I think he understands but I know he will never understand the actually pain I am going through Sad if anyone can help me can you please inbox me.
Thankyou so much if anyone can help I'm in so much pain and I just need to get rid of it x


Posts : 1
Join date : 2013-04-30
Age : 22
Location : East Sussex

View user profile

Back to top Go down

Re: severe pain after sex please help :'(

Post  Ridgwell on Sat Jun 08, 2013 12:35 am

Hi Kerry
I had the perfect sex life with an amazing boyfriend when I was 19 then suddenly the pain started. I was too embarrassed to see someone for weeks because the whole examination is violating and upsetting and I know now for good reason why I put it off. I was passed between 7 or 8 different doctors all examining me taking swabs and sending me away with clear test results and telling me it was in my head. My boyfriend was so sympathetic tried to understand but didnt know how to deal with me in pain and the crying and eventually didnt want to touch me because of being scared to hurt me. Finally a doctor diagnosed me with vulvodynia and I was put into amitrytholine to try and mend the exposed nerve fibres causing the pain. After about 6months the pain was completely gone but so was all sensation. I underwent counselling and sexual physiotherapy for months and the pleasure sensation never returned. I was diagnosed with depression and my relationship fell apart because he couldn't cope and I'd completely changed. It's been 2 years and up until last year things were starting to get bak on track. I was gaining some sensation again but then the pain returned with my new boyfriend.

I can't recommend a particular quick fix but creams don't seem to last and I'm sure your doctor will tell you this is a treatable condition but isn't curable. I just wanted to give you a heads up that taking the low dose of antidepressants that they prescribe DO work but you need to be prepared for any side effects that come with it and make sure you can emotionally handle it because this is not an easy condition to live with as I'm sure everyone will agree. But the sooner you start treatment the sooner the pain will go and if you're lucky your boyfriend will support you through it.

I don't know if this has been any help but I really wish you the best of luck because I know exactly how it feels to be so angry at the world for getting this condition so young and not knowing why but there are ways to stop it


Posts : 11
Join date : 2013-05-24

View user profile

Back to top Go down

Severe pain after sex

Post  Sunflower82 on Sat Jun 08, 2013 6:59 am

Dear Kerry,
First let me start by saying I understand your pain. Is your pain provoked or do you get unprovoked pain? I get both and have been suffering for years. I was also on the depo injection but this didn't seem to affect my pain, but for me it was useful as my periods stopped I could no longer use tampons and sanitary towels also made me uncomfortable. Do your on research on to tampons, if I had done this when I was younger I don't think I would ever use them. Try natural sanitary towels.

In term of the pain after sex the only think that had helped me is seeing a women's Heath Physio, in order to release the muscles and to de sensitise the area. This can be painful and first and symptoms can get worse but now I able able to have more or less psi free sex. Have a cool bath after sex just water no soap ect

Do you use lube? I need to use lots and least 20mls, try a live called yes it has no horrible chemicals.

I have also been on medication as well.

Hope this helps



Posts : 82
Join date : 2012-02-17

View user profile

Back to top Go down

Re: severe pain after sex please help :'(

Post  Alana3 on Sat Jun 08, 2013 1:03 pm

I tried everything that was mentioned above and than my doctor finally labeled me a surgery case last year. I had the surgery in december and am doing a lot better now. I still get pain from muscle spasms that mimic vulvodynia but they are easier to deal with since they can release. Maybe ask your doctor to write you a script of lube with.lidocaine in it so it numbs you while having sex. Unfortunately, you'll feel it after the fact. I also tried a gabapentin, ami, lidocaine mix that sometimes helps people but did little for me. Worst condition ever and really frustrating which makes you feel like less of a person because its supposed to be something everyone can do. I haven't had sex yet but use dilators everyday and the v pain isnt there just muscular. So if you're a candidate or it's ever mentioned you may want to consider it.


Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: severe pain after sex please help :'(

Post  Sponsored content

Sponsored content

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum