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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


severe pain after sex please help :'(

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severe pain after sex please help :'(

Post  KerryLouise17 on Wed May 01, 2013 12:13 am

Hello my name is Kerry
I have been diognosed with Volvadynia and I have had it for a year now, I would really appreciate it if there is anyone here who could help me and give me tips on how to stop the pain, the pain starts of on the outside and about 2 inches in the inside of my vagina when I have sex and as soon as we start that's when I get the pain it starts off with a shooting pain and then I get the most horrible burning pain I have ever experienced, it gets so bad that the pain actually makes me cry Sad When I get this burning pain I have the pain for up to 3 to 4 days and it don't go away it then really hurts to wipe myself when I go to the toilet and also when I am washing, I even get this burning pain when I use tampons. I don't know if this is to do with how it started but last year I started the conraceptive injection and as soon as I went onto that that is when I started getting the pain, I reall cannot cope anymore I am only 17 years of age and I don't think I should be getting this pain! I don't think anyone should get this pain! Its really hard to explain. Just how much it hurts to my boyfriend I think he understands but I know he will never understand the actually pain I am going through Sad if anyone can help me can you please inbox me.
Thankyou so much if anyone can help I'm in so much pain and I just need to get rid of it x

KerryLouise17

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Re: severe pain after sex please help :'(

Post  Ridgwell on Sat Jun 08, 2013 12:35 am

Hi Kerry
I had the perfect sex life with an amazing boyfriend when I was 19 then suddenly the pain started. I was too embarrassed to see someone for weeks because the whole examination is violating and upsetting and I know now for good reason why I put it off. I was passed between 7 or 8 different doctors all examining me taking swabs and sending me away with clear test results and telling me it was in my head. My boyfriend was so sympathetic tried to understand but didnt know how to deal with me in pain and the crying and eventually didnt want to touch me because of being scared to hurt me. Finally a doctor diagnosed me with vulvodynia and I was put into amitrytholine to try and mend the exposed nerve fibres causing the pain. After about 6months the pain was completely gone but so was all sensation. I underwent counselling and sexual physiotherapy for months and the pleasure sensation never returned. I was diagnosed with depression and my relationship fell apart because he couldn't cope and I'd completely changed. It's been 2 years and up until last year things were starting to get bak on track. I was gaining some sensation again but then the pain returned with my new boyfriend.

I can't recommend a particular quick fix but creams don't seem to last and I'm sure your doctor will tell you this is a treatable condition but isn't curable. I just wanted to give you a heads up that taking the low dose of antidepressants that they prescribe DO work but you need to be prepared for any side effects that come with it and make sure you can emotionally handle it because this is not an easy condition to live with as I'm sure everyone will agree. But the sooner you start treatment the sooner the pain will go and if you're lucky your boyfriend will support you through it.

I don't know if this has been any help but I really wish you the best of luck because I know exactly how it feels to be so angry at the world for getting this condition so young and not knowing why but there are ways to stop it

Ridgwell

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Severe pain after sex

Post  Sunflower82 on Sat Jun 08, 2013 6:59 am

Dear Kerry,
First let me start by saying I understand your pain. Is your pain provoked or do you get unprovoked pain? I get both and have been suffering for years. I was also on the depo injection but this didn't seem to affect my pain, but for me it was useful as my periods stopped I could no longer use tampons and sanitary towels also made me uncomfortable. Do your on research on to tampons, if I had done this when I was younger I don't think I would ever use them. Try natural sanitary towels.

In term of the pain after sex the only think that had helped me is seeing a women's Heath Physio, in order to release the muscles and to de sensitise the area. This can be painful and first and symptoms can get worse but now I able able to have more or less psi free sex. Have a cool bath after sex just water no soap ect

Do you use lube? I need to use lots and least 20mls, try a live called yes it has no horrible chemicals.


I have also been on medication as well.

Hope this helps

Kt

Sunflower82

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Re: severe pain after sex please help :'(

Post  Alana3 on Sat Jun 08, 2013 1:03 pm

I tried everything that was mentioned above and than my doctor finally labeled me a surgery case last year. I had the surgery in december and am doing a lot better now. I still get pain from muscle spasms that mimic vulvodynia but they are easier to deal with since they can release. Maybe ask your doctor to write you a script of lube with.lidocaine in it so it numbs you while having sex. Unfortunately, you'll feel it after the fact. I also tried a gabapentin, ami, lidocaine mix that sometimes helps people but did little for me. Worst condition ever and really frustrating which makes you feel like less of a person because its supposed to be something everyone can do. I haven't had sex yet but use dilators everyday and the v pain isnt there just muscular. So if you're a candidate or it's ever mentioned you may want to consider it.

Alana3

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Re: severe pain after sex please help :'(

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