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» Acupuncture advice please
Today at 2:25 am by ryn207

» New and need some help
Today at 12:49 am by Sad

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4


Do you exercise?

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Do you exercise?

Post  Kathye10 on Wed May 01, 2013 4:46 am

Hey Ladies,

Just curious...What kind of workouts or exercises can/do you do comfortably? How about you ladies with PFD?

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Re: Do you exercise?

Post  Alana3 on Wed May 01, 2013 11:08 am

Yoga, horseback riding, circuit training swimming. I don't know I never let it.stop me because then it wins

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Re: Do you exercise?

Post  Kathy100 on Wed May 01, 2013 12:06 pm

Used to do loads of exercise Zumba, gym etc but at the moment - pilates to strengthen back & hips, walking, some yoga (but no forward bends) & pelvic floor release exercises & some very light Zumba.

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Re: Do you exercise?

Post  Alana3 on Wed May 01, 2013 12:45 pm

Lol I forgot zumba im an instructor lol oops

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Re: Do you exercise?

Post  Kathye10 on Wed May 01, 2013 2:30 pm

Alana - You're an instructor? OMG, so is my best friend! lol We went to a zumbathon this weekend. It was a lot of fun but I was burning so badly I couldn't dance Sad You can tell you had the surgery, horseback riding sounds like a freakin' NIGHTMARE to me right now lol

Kathy100- That sounds more my speed..lol Are you getting some good results with the pelvic exercises, pilates and yoga? Smile

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Re: Do you exercise?

Post  Alana3 on Wed May 01, 2013 3:02 pm

Haha I was riding til the day before out never bothered me. Zumba I'm so sick of lol do yoga!

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Can't wait to exercise again!

Post  Guest on Wed May 01, 2013 3:27 pm

I used to get up at 4:00 AM to exercise before work. After my close call in December I was unable to exercise for a while. I had just joined the Y (in February) when I started having my ladyparts issues. Right now I'm supposed to avoid sweating. Thank God the Y will extend my membership with a doctor's note. I'll try to do my workout tapes when this subsides. Alana, how cool that you're a zumba instructor. Taking zumba is one of my goals. Thanks again for welcoming me when I first posted Very Happy

Loey

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Re: Do you exercise?

Post  Kathy100 on Wed May 01, 2013 3:42 pm

Hi Kathye10 - Yep - the pelvic floor stretches have helped a lot with my tight old pelvic floor - I can really feel all the muscles in legs, inner thighs & pelvis just relax and stretch out which is really nice - feels totally different to my normal clenched up state. Felt really strange at first but it's get much easier & normal now. The pilates is helping slowing strengthen my back - I went through some of the exercises with my physio & she says which ones I can & can't do & advises on correct posture for them which has made a difference.

Yoga I love but have to be careful with quite a few of the postures - the twists give me shooting pain in thighs for example!! & I have to avoid forward bends & anything which involves 2 feet off the floor!

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Re: Do you exercise?

Post  Kathy100 on Wed May 01, 2013 3:45 pm

Alana - you're a star. I love Zumba. And you do horseback riding...Just writing it makes me wince! Can you wear jeans as well? lol

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Re: Do you exercise?

Post  Alana3 on Wed May 01, 2013 5:12 pm

Never had a problem with jeans... Which is good cuz I.live in them you can't?

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Re: Do you exercise?

Post  Kathy100 on Thu May 02, 2013 10:29 am

Nope - they irritate me if I sit down or walk about - really miss them! The only trousers I can wear comfortably are my yoga pants - otherwise it's leggings & skirts.

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Re: Do you exercise?

Post  Alana3 on Thu May 02, 2013 11:17 am

Icky never was a problem for me- be careful with yoga pants they hold moisture in

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Re: Do you exercise?

Post  Kathye10 on Thu May 02, 2013 9:09 pm

I'm in the same boat as you Kathy....no jeans. Only yoga pants, leggings and skirts/dresses. The minute jeans press on my labia, it's over! Sure miss them, I use to LIVE in them everyday Sad
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Re: Do you exercise?

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