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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

Comments: 7

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 3

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 21

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12


Do you exercise?

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Do you exercise?

Post  Kathye10 on Wed May 01, 2013 4:46 am

Hey Ladies,

Just curious...What kind of workouts or exercises can/do you do comfortably? How about you ladies with PFD?

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Re: Do you exercise?

Post  Alana3 on Wed May 01, 2013 11:08 am

Yoga, horseback riding, circuit training swimming. I don't know I never let it.stop me because then it wins

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Re: Do you exercise?

Post  Kathy100 on Wed May 01, 2013 12:06 pm

Used to do loads of exercise Zumba, gym etc but at the moment - pilates to strengthen back & hips, walking, some yoga (but no forward bends) & pelvic floor release exercises & some very light Zumba.

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Re: Do you exercise?

Post  Alana3 on Wed May 01, 2013 12:45 pm

Lol I forgot zumba im an instructor lol oops

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Re: Do you exercise?

Post  Kathye10 on Wed May 01, 2013 2:30 pm

Alana - You're an instructor? OMG, so is my best friend! lol We went to a zumbathon this weekend. It was a lot of fun but I was burning so badly I couldn't dance Sad You can tell you had the surgery, horseback riding sounds like a freakin' NIGHTMARE to me right now lol

Kathy100- That sounds more my speed..lol Are you getting some good results with the pelvic exercises, pilates and yoga? Smile

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Re: Do you exercise?

Post  Alana3 on Wed May 01, 2013 3:02 pm

Haha I was riding til the day before out never bothered me. Zumba I'm so sick of lol do yoga!

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Can't wait to exercise again!

Post  Guest on Wed May 01, 2013 3:27 pm

I used to get up at 4:00 AM to exercise before work. After my close call in December I was unable to exercise for a while. I had just joined the Y (in February) when I started having my ladyparts issues. Right now I'm supposed to avoid sweating. Thank God the Y will extend my membership with a doctor's note. I'll try to do my workout tapes when this subsides. Alana, how cool that you're a zumba instructor. Taking zumba is one of my goals. Thanks again for welcoming me when I first posted Very Happy

Loey

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Re: Do you exercise?

Post  Kathy100 on Wed May 01, 2013 3:42 pm

Hi Kathye10 - Yep - the pelvic floor stretches have helped a lot with my tight old pelvic floor - I can really feel all the muscles in legs, inner thighs & pelvis just relax and stretch out which is really nice - feels totally different to my normal clenched up state. Felt really strange at first but it's get much easier & normal now. The pilates is helping slowing strengthen my back - I went through some of the exercises with my physio & she says which ones I can & can't do & advises on correct posture for them which has made a difference.

Yoga I love but have to be careful with quite a few of the postures - the twists give me shooting pain in thighs for example!! & I have to avoid forward bends & anything which involves 2 feet off the floor!

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Re: Do you exercise?

Post  Kathy100 on Wed May 01, 2013 3:45 pm

Alana - you're a star. I love Zumba. And you do horseback riding...Just writing it makes me wince! Can you wear jeans as well? lol

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Re: Do you exercise?

Post  Alana3 on Wed May 01, 2013 5:12 pm

Never had a problem with jeans... Which is good cuz I.live in them you can't?

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Re: Do you exercise?

Post  Kathy100 on Thu May 02, 2013 10:29 am

Nope - they irritate me if I sit down or walk about - really miss them! The only trousers I can wear comfortably are my yoga pants - otherwise it's leggings & skirts.

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Re: Do you exercise?

Post  Alana3 on Thu May 02, 2013 11:17 am

Icky never was a problem for me- be careful with yoga pants they hold moisture in

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Re: Do you exercise?

Post  Kathye10 on Thu May 02, 2013 9:09 pm

I'm in the same boat as you Kathy....no jeans. Only yoga pants, leggings and skirts/dresses. The minute jeans press on my labia, it's over! Sure miss them, I use to LIVE in them everyday Sad
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Re: Do you exercise?

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