Log in

I forgot my password

Latest topics
» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Do you exercise?

Go down

Do you exercise?

Post  Kathye10 on Wed May 01, 2013 4:46 am

Hey Ladies,

Just curious...What kind of workouts or exercises can/do you do comfortably? How about you ladies with PFD?

avatar
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

View user profile

Back to top Go down

Re: Do you exercise?

Post  Alana3 on Wed May 01, 2013 11:08 am

Yoga, horseback riding, circuit training swimming. I don't know I never let it.stop me because then it wins

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Do you exercise?

Post  Kathy100 on Wed May 01, 2013 12:06 pm

Used to do loads of exercise Zumba, gym etc but at the moment - pilates to strengthen back & hips, walking, some yoga (but no forward bends) & pelvic floor release exercises & some very light Zumba.

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Do you exercise?

Post  Alana3 on Wed May 01, 2013 12:45 pm

Lol I forgot zumba im an instructor lol oops

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Do you exercise?

Post  Kathye10 on Wed May 01, 2013 2:30 pm

Alana - You're an instructor? OMG, so is my best friend! lol We went to a zumbathon this weekend. It was a lot of fun but I was burning so badly I couldn't dance Sad You can tell you had the surgery, horseback riding sounds like a freakin' NIGHTMARE to me right now lol

Kathy100- That sounds more my speed..lol Are you getting some good results with the pelvic exercises, pilates and yoga? Smile

avatar
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

View user profile

Back to top Go down

Re: Do you exercise?

Post  Alana3 on Wed May 01, 2013 3:02 pm

Haha I was riding til the day before out never bothered me. Zumba I'm so sick of lol do yoga!

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Can't wait to exercise again!

Post  Guest on Wed May 01, 2013 3:27 pm

I used to get up at 4:00 AM to exercise before work. After my close call in December I was unable to exercise for a while. I had just joined the Y (in February) when I started having my ladyparts issues. Right now I'm supposed to avoid sweating. Thank God the Y will extend my membership with a doctor's note. I'll try to do my workout tapes when this subsides. Alana, how cool that you're a zumba instructor. Taking zumba is one of my goals. Thanks again for welcoming me when I first posted Very Happy

Loey

Guest
Guest


Back to top Go down

Re: Do you exercise?

Post  Kathy100 on Wed May 01, 2013 3:42 pm

Hi Kathye10 - Yep - the pelvic floor stretches have helped a lot with my tight old pelvic floor - I can really feel all the muscles in legs, inner thighs & pelvis just relax and stretch out which is really nice - feels totally different to my normal clenched up state. Felt really strange at first but it's get much easier & normal now. The pilates is helping slowing strengthen my back - I went through some of the exercises with my physio & she says which ones I can & can't do & advises on correct posture for them which has made a difference.

Yoga I love but have to be careful with quite a few of the postures - the twists give me shooting pain in thighs for example!! & I have to avoid forward bends & anything which involves 2 feet off the floor!

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Do you exercise?

Post  Kathy100 on Wed May 01, 2013 3:45 pm

Alana - you're a star. I love Zumba. And you do horseback riding...Just writing it makes me wince! Can you wear jeans as well? lol

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Do you exercise?

Post  Alana3 on Wed May 01, 2013 5:12 pm

Never had a problem with jeans... Which is good cuz I.live in them you can't?

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Do you exercise?

Post  Kathy100 on Thu May 02, 2013 10:29 am

Nope - they irritate me if I sit down or walk about - really miss them! The only trousers I can wear comfortably are my yoga pants - otherwise it's leggings & skirts.

Kathy100

Posts : 95
Join date : 2012-12-17

View user profile

Back to top Go down

Re: Do you exercise?

Post  Alana3 on Thu May 02, 2013 11:17 am

Icky never was a problem for me- be careful with yoga pants they hold moisture in

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: Do you exercise?

Post  Kathye10 on Thu May 02, 2013 9:09 pm

I'm in the same boat as you Kathy....no jeans. Only yoga pants, leggings and skirts/dresses. The minute jeans press on my labia, it's over! Sure miss them, I use to LIVE in them everyday Sad
avatar
Kathye10

Posts : 82
Join date : 2013-02-18
Location : Los Angeles

View user profile

Back to top Go down

Re: Do you exercise?

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum