Log in
Similar topics
Latest topics
Gabapentin Gel. or other topical creams
Thu May 10, 2018 9:43 am by Rosie21
Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.
Comments: 2
Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?
Sat Aug 01, 2015 4:17 pm by Fielder
Hi everyone,
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
I'm a newbie. I live in the UK.
I'm trying to work out the best cushion to get for my vulvodynia. I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.
I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …
Comments: 11
An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990
Dear All,
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.
I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …
Comments: 0
I'm sorry im rambling
Thu Feb 21, 2019 5:49 am by Jet227
hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …
Comments: 1
New member need advice please
Thu Feb 28, 2019 11:33 pm by PANDORA123
Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.
Thanks
Thanks
Comments: 5
MonaLisa Touch
Fri Feb 08, 2019 7:35 pm by rl2091
Hi All,
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …
Comments: 3
Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg
Hi All,
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
I’m so glad I’ve found a place where there are others who understand how I feel!
So this is my story:-
I’m 36, and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”. The following morning I woke up …
Comments: 4
New and need advice and help
Wed Dec 05, 2018 3:26 pm by Cin124
Hi everyone,
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …
Comments: 6
New here would very much appreciate advice at the end of my rope
Wed Jan 09, 2019 9:09 pm by Jma990o
This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …
Comments: 3
Do you exercise?
3 posters
Page 1 of 1
Do you exercise?
Hey Ladies,
Just curious...What kind of workouts or exercises can/do you do comfortably? How about you ladies with PFD?
Just curious...What kind of workouts or exercises can/do you do comfortably? How about you ladies with PFD?
Kathye10- Posts : 82
Join date : 2013-02-18
Location : Los Angeles
Re: Do you exercise?
Yoga, horseback riding, circuit training swimming. I don't know I never let it.stop me because then it wins
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Do you exercise?
Used to do loads of exercise Zumba, gym etc but at the moment - pilates to strengthen back & hips, walking, some yoga (but no forward bends) & pelvic floor release exercises & some very light Zumba.
Kathy100- Posts : 95
Join date : 2012-12-17
Re: Do you exercise?
Lol I forgot zumba im an instructor lol oops
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Do you exercise?
Alana - You're an instructor? OMG, so is my best friend! lol We went to a zumbathon this weekend. It was a lot of fun but I was burning so badly I couldn't dance You can tell you had the surgery, horseback riding sounds like a freakin' NIGHTMARE to me right now lol
Kathy100- That sounds more my speed..lol Are you getting some good results with the pelvic exercises, pilates and yoga?
Kathy100- That sounds more my speed..lol Are you getting some good results with the pelvic exercises, pilates and yoga?
Kathye10- Posts : 82
Join date : 2013-02-18
Location : Los Angeles
Re: Do you exercise?
Haha I was riding til the day before out never bothered me. Zumba I'm so sick of lol do yoga!
Alana3- Posts : 1093
Join date : 2012-09-25
Can't wait to exercise again!
I used to get up at 4:00 AM to exercise before work. After my close call in December I was unable to exercise for a while. I had just joined the Y (in February) when I started having my ladyparts issues. Right now I'm supposed to avoid sweating. Thank God the Y will extend my membership with a doctor's note. I'll try to do my workout tapes when this subsides. Alana, how cool that you're a zumba instructor. Taking zumba is one of my goals. Thanks again for welcoming me when I first posted
Loey
Loey
Guest- Guest
Re: Do you exercise?
Hi Kathye10 - Yep - the pelvic floor stretches have helped a lot with my tight old pelvic floor - I can really feel all the muscles in legs, inner thighs & pelvis just relax and stretch out which is really nice - feels totally different to my normal clenched up state. Felt really strange at first but it's get much easier & normal now. The pilates is helping slowing strengthen my back - I went through some of the exercises with my physio & she says which ones I can & can't do & advises on correct posture for them which has made a difference.
Yoga I love but have to be careful with quite a few of the postures - the twists give me shooting pain in thighs for example!! & I have to avoid forward bends & anything which involves 2 feet off the floor!
Yoga I love but have to be careful with quite a few of the postures - the twists give me shooting pain in thighs for example!! & I have to avoid forward bends & anything which involves 2 feet off the floor!
Kathy100- Posts : 95
Join date : 2012-12-17
Re: Do you exercise?
Alana - you're a star. I love Zumba. And you do horseback riding...Just writing it makes me wince! Can you wear jeans as well? lol
Kathy100- Posts : 95
Join date : 2012-12-17
Re: Do you exercise?
Never had a problem with jeans... Which is good cuz I.live in them you can't?
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Do you exercise?
Nope - they irritate me if I sit down or walk about - really miss them! The only trousers I can wear comfortably are my yoga pants - otherwise it's leggings & skirts.
Kathy100- Posts : 95
Join date : 2012-12-17
Re: Do you exercise?
Icky never was a problem for me- be careful with yoga pants they hold moisture in
Alana3- Posts : 1093
Join date : 2012-09-25
Re: Do you exercise?
I'm in the same boat as you Kathy....no jeans. Only yoga pants, leggings and skirts/dresses. The minute jeans press on my labia, it's over! Sure miss them, I use to LIVE in them everyday
Kathye10- Posts : 82
Join date : 2013-02-18
Location : Los Angeles
Page 1 of 1
Permissions in this forum:
You cannot reply to topics in this forum
|
|
Fri Oct 23, 2020 12:04 am by ringostarr26
» Please tell me this can get better
Sat Jul 18, 2020 7:38 pm by sammykramer
» By no means cured, but doing much better!
Mon Mar 16, 2020 1:26 pm by tinkerbelle2
» How I cured my Vulvodynia!
Sat Dec 07, 2019 11:54 am by Millie
» 7 months since the diagnosis
Wed Aug 14, 2019 2:38 am by agtoronto
» Gabapentin Gel. or other topical creams
Sat Jun 15, 2019 5:22 pm by mary jane
» IMPORTANT FOR UK SUFFERERS
Sat Jun 15, 2019 5:21 pm by mary jane
» Help New Diagnosis
Sat Jun 15, 2019 5:07 pm by mary jane
» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Tue Jun 11, 2019 12:56 am by VVSSufferer