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My Story...in desperate need of help

Mon Jul 07, 2014 11:45 pm by sailor_moon

Hi ladies,

I joined this forum out of desperation in hope that someone may be able to offer advice. I am also here to offer support to others, because lets face it, noone really knows how this issue affects your life and makes you feel until you experience it first hand. HELL is the only word to describe it.

I'm an Australian girl in her mid 20's.

A little over a year ago I developed an …

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Traumeel injections or Botox?

Mon Jul 21, 2014 2:14 am by Kris282

Has anybody has success with either of these? Or perhaps nerve blocks?

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How do I get added to the secret Facebook page?

Wed Jun 18, 2014 3:32 pm by Caropes

How do I get added to the secret Facebook page?

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hi all new possible diagnosis of vulvodynia

Wed Jul 16, 2014 7:27 pm by princesst124

I just went to my GYN nurse and she believes I have nerve pain and she wants me to see a vulva specialist. I am B R O K E! We live in the US , have insurance through my husband's work but it's minimal. The last time I had female pain it was constant cramps and they said I had a weak lower pelvic floor. I went to a female physical therapist. ┬áThe out of pocket expense was over $700! I knew I most …

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New here and trying to find more girls that live in Brisbane or Australia

Mon Apr 01, 2013 7:05 am by keepdreaming

Hi All,

I am new here and I would really like to get in contact with people from Brisbane, Australia.

I was recently diagnosis (2 months ago) with Provoked Vestibulodynia (Vulvar Vestibulitis) and reactive vaginismus due to the Vestibulodynia, after such a long time of massive pain, suffering and feeling completely hopeless.

I just want to start by saying that this forum have helped me SO …

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New and confused :( opinions needed please

Fri Jul 11, 2014 6:52 pm by quixotic

Hello, i'm very confused and upset and looking for some opinions on what could be going on with me, I will try to keep it brief...

Problem started January after two courses of antibiotics - suspected Thrush, no swab taken at time due to how swollen/painful area was, felt and looked very red/inflammed and aggravated inside, alot of discharge, thick white/yellow coloured, multipe doses of …

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Please help

Wed Jul 09, 2014 8:01 pm by noelle2530

Hello ladies I have yet to be diagnosed I have been to many doctors plan on going back in a couple weeks I have been tracking my symptoms daily I was hoping someone could tell me if it sounds like what they have experienced. I would appreciate any help I could get I am desperate for answers...

05/12: felt fine
05/13: burning
05/14: Some slite burning kinda irritated feeling,
05/15 burning …

Comments: 9

New,Depressed and need help!!!!!

Sat Jun 21, 2014 10:04 pm by bvnh13

Hi everyone, this all started for me about five months ago, and I am 42. I had sex with a new partner and a few days later I was red inflammed and on fire down there. Went to the DR did cultures and it came back as yeast, gave me diflucan and got better but not fully. I then got bronchitis and got a RX for Zythromax and after that and my period the same symptoms game back.I got two doses of …

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How did you find this forum?

Sun Aug 01, 2010 5:36 pm by Sebby (Admin)

Please state which search engine, forum or directory you found this forum on...fanx!

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Help! Right side Vaginal Pain!

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Help! Right side Vaginal Pain!

Post  tanyam23xo on Wed May 01, 2013 8:51 pm

Hi everyone.
I am 26 year old female. I have had right side vaginal pain for about 3 years now. Some days it is burning, some days it is pain, some days it is nothing. I dont have any pain durning sex, but after it hurts. I have been to countless doctors. NO ONE KNOWS WHAT IS WRONG!! I recently just had a larproscopy done, and they found PID. They removed the PID, and i still have pain. I am thinking about trying Primose Oil, has anyone tried this? I am on an anti-depressant, that helps but the pain comes back. I use to take gabapintin 3 times a day, but i stopped that. SOMEONE PLEASE HELP ME!!! Any type of advice would be good. I am starting to lose my mind. I am in consent pain every single day. I use to be very active and now I just want to sleep all the time. I can still have sex. Sex doesnt bother me, slightly, but i can deal with the pain. Please help

tanyam23xo

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Re: Help! Right side Vaginal Pain!

Post  Sarah001 on Wed May 01, 2013 9:10 pm

Could be trigger points in the pelvic floor or the hip rotators, go and see a womens health physio and have them do an internal examination to see if they can find the spot.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Wed May 01, 2013 9:15 pm

I have been to a pelvic floor therapist. I did therapy for about 5 months. Pain would come back and go away. I even had a steriod injection inserted in my vagina!! I am speechless to what this pain could be. Everything anyone has tried, it doesnt help. I magically don't have pain when I am on my period. But as soon as I am off, the pain is right back. I feel that it is more muscle pain, but I'm not sure on what it could be exactly. Any thoughts?

tanyam23xo

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 2:31 pm

Could be nerves along with muscles too... Could be anything have you been to a specialist yet? maybe you could try that?

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 2:46 pm

I havent been to a "Pelvic Floor Specalist" but I have been to an OBYN, about 5 of them. No one knows what is wrong. I just had a laproscopy done, and they found PID. The PID has been removed, but i still have the pain. It hurts to even touch my right side of my vagina. It hurts to walk. I am out of words or ideas at this point. I dont know what to do Sad I am starting to think it is Vulvodynia, but i dont know. I have had ultra sounds, MRIs, blood work etc. NOTHING comes up. I have been on gabapintin, now i am on a anti depressant. I am going on a trip next week. I just want to feel better. When I went to physical therapy, it helped. My pain went away for about 6 months. But it is now back, and it HURTS!

tanyam23xo

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Thu May 02, 2013 2:58 pm

Hi tanyam
Your pain sounds exactly like mine. I have deep right sided vaginal pain constant every day. Mine started after sex. It's kind of a dull sharp ache in my vagina wall sometimes raw. I have seen everyone gynos urologist dermatologists pain doctors etc but have found what is wrong with pelvic women's health physio. I have trigger points all inside my vagina mainly over the obturator internus muscle which connects with the hip. The trigger points are irritating the pudendal nerve causing the pain. My physio can pin point exactly along the nerve where it hurts. I maybe could have sex but I'm single now which is easier for me. But like you the pain came over the sex. Have a look at pudendal neuralgia.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 3:02 pm

Hi Kate,
So how what do you do to get rid of it? What kind of doctor do you think i should go to? Are you on any current medications? I dont have pain when I am on my period. No pain at all. I do believe its a muscle/nerve issue as well. Is there anything they can do to make it go away?!

tanyam23xo

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 3:28 pm

You're in Ohio? Go to Ohio State Hospital or Cleveland clinic!! Oh, and Go Bucks!

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 3:39 pm

Yes i am in Columbus, Ohio! Smile And yes of course. Go bucks!!
Alana, Do you have this type of pain? I have been to every doctor. I have kind've lost hope.

tanyam23xo

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 3:58 pm

I don't I had provoked vestibuldynia. Message me I need to ask you about Columbus (I'm pondering a move). I see a vulvar specialist in South Florida (where I live), he's my hero. Fixed me up like no ones's business, if you have the funds, I def suggest him, but I understand if you cant. He is ALSO affiliated with the Cleveland Clinic (down here) so that's why I thought maybe head into that direction up there, cant hurt right? My entire vag would hurt when I would have sex, touch it with qtip, or tampon use. But I had surgrey in December, which I'm sure you have seen me talk about on here. I have very little pain now, and I have muscular issues now, but it's no way near as horrible as it was back even 6 months ago Smile But I'm not sure what PID is (i know its pelvic inflammatory disease) but I know nothing more than what it's called, clue me in?

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Thu May 02, 2013 4:07 pm

Hi tanyam
I think you should find a women's health pelvic floor physio who has a good knowledge of the pudendal nerve. If you look on the pudendal hope website there is a list of specialist physios. I think you need someone who can give you a thorough pelvic floor examination to see what's going on. I've been having physio for a good few months and it's definitely helping its hurts at the time and afterwards but my trigger points are loosening inside and outside. I take nortriptyline 40mg and lyrical 300mg per day. My nerve is going crazy why no one seems to know.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 4:36 pm

Kate, does the therapy help your pain? and does the medication? Seems we are on the same medication!
Alana, sent you a private message:)

tanyam23xo

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 5:13 pm

sent you a text

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 5:57 pm

I didn't get it. 614-361-2041

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Thu May 02, 2013 6:11 pm

The physio therapy is helping with my pain I have had some pain free days. Does your pain feel deep inside your vagina? Mine is probably about 3 inches inside. I'm not sure about the medication I think it just takes the edge of the pain. The really bad burning has gone but I don't know if it is the medication or just time

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