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» FB secret Vestibulodynia/vulvodynia groups
Thu Sep 22, 2016 6:19 am by LuLu81

» How do you explain to men?
Wed Sep 21, 2016 9:09 am by Mark

» Cured of Vulvodynia
Wed Sep 21, 2016 3:33 am by Suzie

» Vulvodynia Caused by Lichen Sclerosus & Inflammatory Vaginitis?
Tue Sep 20, 2016 6:58 pm by LT

» Vaginal Valium Suppositories
Tue Sep 20, 2016 1:21 pm by LT

» Intestinal permeability (leaky gut)
Tue Sep 20, 2016 6:05 am by LuLu81

» How dare he make me feel this way!
Tue Sep 20, 2016 2:17 am by emalita

» Diagnosed and Humiliated
Tue Sep 20, 2016 12:20 am by lindsey_taylor

» Surgery Update - 5 Week Post-Surgery
Sun Sep 18, 2016 10:01 pm by emalita

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Diagnosed and Humiliated

Thu Sep 15, 2016 4:19 pm by Valkywrite

When I was with my boyfriend a few months ago, we decided to eventually try to have sex (both virgins, believe it or not). I'm 25, and it was my first attempt (grew up in a super religious family--I've been gradually moving away from that), so I decided to go to a gynecologist to get a check up and get on birth control.

I've never found tampons comfortable or possible to wear, so I've always …

Comments: 4

Anyone Completely Cured?

Sat Nov 28, 2015 7:55 pm by senozs1

Hello everyone!

I've been struggling with provoked localized vulvodynia for some time. I feel like I can't take it anyome, and what I wanted to know is if there's anyone out there who's completely cured? Thank you, and I hope all of us get better

Comments: 7

Did your doctor tell you that the birth control pill caused it?

Sat Apr 23, 2016 12:29 am by orangelight

Hey Everyone,

I started having pain after taking yaz birth control pill for 5 months, that was 6 years ago. My doctor said Yaz was one of the worst offenders, and that the 'low estrogen' pills like it cause the most vestibulodynia. Apparently the estrogen in bcp is from horse urine and highly potent, and it shuts down your body's production of testosterone (by increasing sex hormone binding …

Comments: 5

Urge to Urinate, Vulvadynia or something else?

Thu Aug 04, 2016 7:19 pm by CherryTree23

The last few days I've been feeling the urge to urinate constantly, even when bladder is full. It doesn't hurt to pee, don't think it's a UTI. I'm not sure if it's just the burning on vaginal opening that makes me feel like I have to pee, or I was reading more about IC? Does anyone have any input?? Thanks so much!

Comments: 2

My almost 4 year old was diagnosed today

Mon Aug 01, 2016 11:50 am by HazelsMum

Hello

This morning my daughter was diagnosed with Vulvodynia. She has been suffering pain since she was 18months and it has taken over two years to get referred to a paediatrician who diagnosed her.

Her symptoms have been intense pain, normally at night. Now she is older she can tell us about it and she says she feels like her 'front bottom's is on fire. She is SO SO distressed when happens. …

Comments: 4

Another one suffering

Thu Aug 18, 2016 6:51 pm by Ldc

Hi, I was a bit reluctant about registering and posting here.. But this forum has helped me a lot so far. I read it almost everyday since I realized my problems down there weren't caused by an infection.

Well, I think I can skip the emotional journey, as all of you know what it is like. I am 24 years old, apparently healthy, no UTIs in the past and a couple of yeast infections, but many years …

Comments: 3

Surgery Failure :(

Thu Oct 24, 2013 10:35 pm by vetinprep

Hi
I joined this forum because I've been feeling really isolated and alone while slogging through a vestibulectomy recovery-hoping to talk to some people who understand!
I'm 28-I was diagnosed with vulvodynia and provoked vestibulitis last year-although I've probably had it forever I just hadn't tried intercourse before haha.
I ended up having a vestibulectomy exactly three months ago and I can't …

Comments: 15

Vulvodynia is ruining my life

Tue Aug 16, 2016 2:33 pm by amy124

Hi everyone. I've read through a bunch of your stories and I am so glad I found this forum. I've felt so isolated in my issues but it's reassuring to find a group of people who seem to be experiencing something similar to what I have been experiencing...although I would never wish this on you all because it sucks.

I'm 18 years old and I've been struggling with all sorts of bladder/vaginal …

Comments: 3


Help! Right side Vaginal Pain!

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Help! Right side Vaginal Pain!

Post  tanyam23xo on Wed May 01, 2013 7:51 pm

Hi everyone.
I am 26 year old female. I have had right side vaginal pain for about 3 years now. Some days it is burning, some days it is pain, some days it is nothing. I dont have any pain durning sex, but after it hurts. I have been to countless doctors. NO ONE KNOWS WHAT IS WRONG!! I recently just had a larproscopy done, and they found PID. They removed the PID, and i still have pain. I am thinking about trying Primose Oil, has anyone tried this? I am on an anti-depressant, that helps but the pain comes back. I use to take gabapintin 3 times a day, but i stopped that. SOMEONE PLEASE HELP ME!!! Any type of advice would be good. I am starting to lose my mind. I am in consent pain every single day. I use to be very active and now I just want to sleep all the time. I can still have sex. Sex doesnt bother me, slightly, but i can deal with the pain. Please help

tanyam23xo

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Re: Help! Right side Vaginal Pain!

Post  Sarah001 on Wed May 01, 2013 8:10 pm

Could be trigger points in the pelvic floor or the hip rotators, go and see a womens health physio and have them do an internal examination to see if they can find the spot.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Wed May 01, 2013 8:15 pm

I have been to a pelvic floor therapist. I did therapy for about 5 months. Pain would come back and go away. I even had a steriod injection inserted in my vagina!! I am speechless to what this pain could be. Everything anyone has tried, it doesnt help. I magically don't have pain when I am on my period. But as soon as I am off, the pain is right back. I feel that it is more muscle pain, but I'm not sure on what it could be exactly. Any thoughts?

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 1:31 pm

Could be nerves along with muscles too... Could be anything have you been to a specialist yet? maybe you could try that?

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 1:46 pm

I havent been to a "Pelvic Floor Specalist" but I have been to an OBYN, about 5 of them. No one knows what is wrong. I just had a laproscopy done, and they found PID. The PID has been removed, but i still have the pain. It hurts to even touch my right side of my vagina. It hurts to walk. I am out of words or ideas at this point. I dont know what to do Sad I am starting to think it is Vulvodynia, but i dont know. I have had ultra sounds, MRIs, blood work etc. NOTHING comes up. I have been on gabapintin, now i am on a anti depressant. I am going on a trip next week. I just want to feel better. When I went to physical therapy, it helped. My pain went away for about 6 months. But it is now back, and it HURTS!

tanyam23xo

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Thu May 02, 2013 1:58 pm

Hi tanyam
Your pain sounds exactly like mine. I have deep right sided vaginal pain constant every day. Mine started after sex. It's kind of a dull sharp ache in my vagina wall sometimes raw. I have seen everyone gynos urologist dermatologists pain doctors etc but have found what is wrong with pelvic women's health physio. I have trigger points all inside my vagina mainly over the obturator internus muscle which connects with the hip. The trigger points are irritating the pudendal nerve causing the pain. My physio can pin point exactly along the nerve where it hurts. I maybe could have sex but I'm single now which is easier for me. But like you the pain came over the sex. Have a look at pudendal neuralgia.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 2:02 pm

Hi Kate,
So how what do you do to get rid of it? What kind of doctor do you think i should go to? Are you on any current medications? I dont have pain when I am on my period. No pain at all. I do believe its a muscle/nerve issue as well. Is there anything they can do to make it go away?!

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 2:28 pm

You're in Ohio? Go to Ohio State Hospital or Cleveland clinic!! Oh, and Go Bucks!

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 2:39 pm

Yes i am in Columbus, Ohio! Smile And yes of course. Go bucks!!
Alana, Do you have this type of pain? I have been to every doctor. I have kind've lost hope.

tanyam23xo

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 2:58 pm

I don't I had provoked vestibuldynia. Message me I need to ask you about Columbus (I'm pondering a move). I see a vulvar specialist in South Florida (where I live), he's my hero. Fixed me up like no ones's business, if you have the funds, I def suggest him, but I understand if you cant. He is ALSO affiliated with the Cleveland Clinic (down here) so that's why I thought maybe head into that direction up there, cant hurt right? My entire vag would hurt when I would have sex, touch it with qtip, or tampon use. But I had surgrey in December, which I'm sure you have seen me talk about on here. I have very little pain now, and I have muscular issues now, but it's no way near as horrible as it was back even 6 months ago Smile But I'm not sure what PID is (i know its pelvic inflammatory disease) but I know nothing more than what it's called, clue me in?

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Thu May 02, 2013 3:07 pm

Hi tanyam
I think you should find a women's health pelvic floor physio who has a good knowledge of the pudendal nerve. If you look on the pudendal hope website there is a list of specialist physios. I think you need someone who can give you a thorough pelvic floor examination to see what's going on. I've been having physio for a good few months and it's definitely helping its hurts at the time and afterwards but my trigger points are loosening inside and outside. I take nortriptyline 40mg and lyrical 300mg per day. My nerve is going crazy why no one seems to know.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 3:36 pm

Kate, does the therapy help your pain? and does the medication? Seems we are on the same medication!
Alana, sent you a private message:)

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 4:13 pm

sent you a text

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 4:57 pm

I didn't get it. 614-361-2041

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Thu May 02, 2013 5:11 pm

The physio therapy is helping with my pain I have had some pain free days. Does your pain feel deep inside your vagina? Mine is probably about 3 inches inside. I'm not sure about the medication I think it just takes the edge of the pain. The really bad burning has gone but I don't know if it is the medication or just time

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 6:46 pm

Yes. Mine is deep inside my vagina on the right side.

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Re: Help! Right side Vaginal Pain!

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