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» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» What's next?
Sat Apr 14, 2018 4:28 pm by sally_jane

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Help! Right side Vaginal Pain!

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Help! Right side Vaginal Pain!

Post  tanyam23xo on Wed May 01, 2013 7:51 pm

Hi everyone.
I am 26 year old female. I have had right side vaginal pain for about 3 years now. Some days it is burning, some days it is pain, some days it is nothing. I dont have any pain durning sex, but after it hurts. I have been to countless doctors. NO ONE KNOWS WHAT IS WRONG!! I recently just had a larproscopy done, and they found PID. They removed the PID, and i still have pain. I am thinking about trying Primose Oil, has anyone tried this? I am on an anti-depressant, that helps but the pain comes back. I use to take gabapintin 3 times a day, but i stopped that. SOMEONE PLEASE HELP ME!!! Any type of advice would be good. I am starting to lose my mind. I am in consent pain every single day. I use to be very active and now I just want to sleep all the time. I can still have sex. Sex doesnt bother me, slightly, but i can deal with the pain. Please help

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Re: Help! Right side Vaginal Pain!

Post  Sarah001 on Wed May 01, 2013 8:10 pm

Could be trigger points in the pelvic floor or the hip rotators, go and see a womens health physio and have them do an internal examination to see if they can find the spot.
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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Wed May 01, 2013 8:15 pm

I have been to a pelvic floor therapist. I did therapy for about 5 months. Pain would come back and go away. I even had a steriod injection inserted in my vagina!! I am speechless to what this pain could be. Everything anyone has tried, it doesnt help. I magically don't have pain when I am on my period. But as soon as I am off, the pain is right back. I feel that it is more muscle pain, but I'm not sure on what it could be exactly. Any thoughts?

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 1:31 pm

Could be nerves along with muscles too... Could be anything have you been to a specialist yet? maybe you could try that?

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 1:46 pm

I havent been to a "Pelvic Floor Specalist" but I have been to an OBYN, about 5 of them. No one knows what is wrong. I just had a laproscopy done, and they found PID. The PID has been removed, but i still have the pain. It hurts to even touch my right side of my vagina. It hurts to walk. I am out of words or ideas at this point. I dont know what to do Sad I am starting to think it is Vulvodynia, but i dont know. I have had ultra sounds, MRIs, blood work etc. NOTHING comes up. I have been on gabapintin, now i am on a anti depressant. I am going on a trip next week. I just want to feel better. When I went to physical therapy, it helped. My pain went away for about 6 months. But it is now back, and it HURTS!

tanyam23xo

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Thu May 02, 2013 1:58 pm

Hi tanyam
Your pain sounds exactly like mine. I have deep right sided vaginal pain constant every day. Mine started after sex. It's kind of a dull sharp ache in my vagina wall sometimes raw. I have seen everyone gynos urologist dermatologists pain doctors etc but have found what is wrong with pelvic women's health physio. I have trigger points all inside my vagina mainly over the obturator internus muscle which connects with the hip. The trigger points are irritating the pudendal nerve causing the pain. My physio can pin point exactly along the nerve where it hurts. I maybe could have sex but I'm single now which is easier for me. But like you the pain came over the sex. Have a look at pudendal neuralgia.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 2:02 pm

Hi Kate,
So how what do you do to get rid of it? What kind of doctor do you think i should go to? Are you on any current medications? I dont have pain when I am on my period. No pain at all. I do believe its a muscle/nerve issue as well. Is there anything they can do to make it go away?!

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 2:28 pm

You're in Ohio? Go to Ohio State Hospital or Cleveland clinic!! Oh, and Go Bucks!

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 2:39 pm

Yes i am in Columbus, Ohio! Smile And yes of course. Go bucks!!
Alana, Do you have this type of pain? I have been to every doctor. I have kind've lost hope.

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 2:58 pm

I don't I had provoked vestibuldynia. Message me I need to ask you about Columbus (I'm pondering a move). I see a vulvar specialist in South Florida (where I live), he's my hero. Fixed me up like no ones's business, if you have the funds, I def suggest him, but I understand if you cant. He is ALSO affiliated with the Cleveland Clinic (down here) so that's why I thought maybe head into that direction up there, cant hurt right? My entire vag would hurt when I would have sex, touch it with qtip, or tampon use. But I had surgrey in December, which I'm sure you have seen me talk about on here. I have very little pain now, and I have muscular issues now, but it's no way near as horrible as it was back even 6 months ago Smile But I'm not sure what PID is (i know its pelvic inflammatory disease) but I know nothing more than what it's called, clue me in?

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Thu May 02, 2013 3:07 pm

Hi tanyam
I think you should find a women's health pelvic floor physio who has a good knowledge of the pudendal nerve. If you look on the pudendal hope website there is a list of specialist physios. I think you need someone who can give you a thorough pelvic floor examination to see what's going on. I've been having physio for a good few months and it's definitely helping its hurts at the time and afterwards but my trigger points are loosening inside and outside. I take nortriptyline 40mg and lyrical 300mg per day. My nerve is going crazy why no one seems to know.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 3:36 pm

Kate, does the therapy help your pain? and does the medication? Seems we are on the same medication!
Alana, sent you a private message:)

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 4:13 pm

sent you a text

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 4:57 pm

I didn't get it. 614-361-2041

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Thu May 02, 2013 5:11 pm

The physio therapy is helping with my pain I have had some pain free days. Does your pain feel deep inside your vagina? Mine is probably about 3 inches inside. I'm not sure about the medication I think it just takes the edge of the pain. The really bad burning has gone but I don't know if it is the medication or just time

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 6:46 pm

Yes. Mine is deep inside my vagina on the right side.

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Re: Help! Right side Vaginal Pain!

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