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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Help! Right side Vaginal Pain!

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Help! Right side Vaginal Pain!

Post  tanyam23xo on Wed May 01, 2013 7:51 pm

Hi everyone.
I am 26 year old female. I have had right side vaginal pain for about 3 years now. Some days it is burning, some days it is pain, some days it is nothing. I dont have any pain durning sex, but after it hurts. I have been to countless doctors. NO ONE KNOWS WHAT IS WRONG!! I recently just had a larproscopy done, and they found PID. They removed the PID, and i still have pain. I am thinking about trying Primose Oil, has anyone tried this? I am on an anti-depressant, that helps but the pain comes back. I use to take gabapintin 3 times a day, but i stopped that. SOMEONE PLEASE HELP ME!!! Any type of advice would be good. I am starting to lose my mind. I am in consent pain every single day. I use to be very active and now I just want to sleep all the time. I can still have sex. Sex doesnt bother me, slightly, but i can deal with the pain. Please help

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Re: Help! Right side Vaginal Pain!

Post  Sarah001 on Wed May 01, 2013 8:10 pm

Could be trigger points in the pelvic floor or the hip rotators, go and see a womens health physio and have them do an internal examination to see if they can find the spot.
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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Wed May 01, 2013 8:15 pm

I have been to a pelvic floor therapist. I did therapy for about 5 months. Pain would come back and go away. I even had a steriod injection inserted in my vagina!! I am speechless to what this pain could be. Everything anyone has tried, it doesnt help. I magically don't have pain when I am on my period. But as soon as I am off, the pain is right back. I feel that it is more muscle pain, but I'm not sure on what it could be exactly. Any thoughts?

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 1:31 pm

Could be nerves along with muscles too... Could be anything have you been to a specialist yet? maybe you could try that?

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 1:46 pm

I havent been to a "Pelvic Floor Specalist" but I have been to an OBYN, about 5 of them. No one knows what is wrong. I just had a laproscopy done, and they found PID. The PID has been removed, but i still have the pain. It hurts to even touch my right side of my vagina. It hurts to walk. I am out of words or ideas at this point. I dont know what to do Sad I am starting to think it is Vulvodynia, but i dont know. I have had ultra sounds, MRIs, blood work etc. NOTHING comes up. I have been on gabapintin, now i am on a anti depressant. I am going on a trip next week. I just want to feel better. When I went to physical therapy, it helped. My pain went away for about 6 months. But it is now back, and it HURTS!

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Thu May 02, 2013 1:58 pm

Hi tanyam
Your pain sounds exactly like mine. I have deep right sided vaginal pain constant every day. Mine started after sex. It's kind of a dull sharp ache in my vagina wall sometimes raw. I have seen everyone gynos urologist dermatologists pain doctors etc but have found what is wrong with pelvic women's health physio. I have trigger points all inside my vagina mainly over the obturator internus muscle which connects with the hip. The trigger points are irritating the pudendal nerve causing the pain. My physio can pin point exactly along the nerve where it hurts. I maybe could have sex but I'm single now which is easier for me. But like you the pain came over the sex. Have a look at pudendal neuralgia.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 2:02 pm

Hi Kate,
So how what do you do to get rid of it? What kind of doctor do you think i should go to? Are you on any current medications? I dont have pain when I am on my period. No pain at all. I do believe its a muscle/nerve issue as well. Is there anything they can do to make it go away?!

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 2:28 pm

You're in Ohio? Go to Ohio State Hospital or Cleveland clinic!! Oh, and Go Bucks!

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 2:39 pm

Yes i am in Columbus, Ohio! Smile And yes of course. Go bucks!!
Alana, Do you have this type of pain? I have been to every doctor. I have kind've lost hope.

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 2:58 pm

I don't I had provoked vestibuldynia. Message me I need to ask you about Columbus (I'm pondering a move). I see a vulvar specialist in South Florida (where I live), he's my hero. Fixed me up like no ones's business, if you have the funds, I def suggest him, but I understand if you cant. He is ALSO affiliated with the Cleveland Clinic (down here) so that's why I thought maybe head into that direction up there, cant hurt right? My entire vag would hurt when I would have sex, touch it with qtip, or tampon use. But I had surgrey in December, which I'm sure you have seen me talk about on here. I have very little pain now, and I have muscular issues now, but it's no way near as horrible as it was back even 6 months ago Smile But I'm not sure what PID is (i know its pelvic inflammatory disease) but I know nothing more than what it's called, clue me in?

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Thu May 02, 2013 3:07 pm

Hi tanyam
I think you should find a women's health pelvic floor physio who has a good knowledge of the pudendal nerve. If you look on the pudendal hope website there is a list of specialist physios. I think you need someone who can give you a thorough pelvic floor examination to see what's going on. I've been having physio for a good few months and it's definitely helping its hurts at the time and afterwards but my trigger points are loosening inside and outside. I take nortriptyline 40mg and lyrical 300mg per day. My nerve is going crazy why no one seems to know.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 3:36 pm

Kate, does the therapy help your pain? and does the medication? Seems we are on the same medication!
Alana, sent you a private message:)

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Thu May 02, 2013 4:13 pm

sent you a text

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 4:57 pm

I didn't get it. 614-361-2041

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Thu May 02, 2013 5:11 pm

The physio therapy is helping with my pain I have had some pain free days. Does your pain feel deep inside your vagina? Mine is probably about 3 inches inside. I'm not sure about the medication I think it just takes the edge of the pain. The really bad burning has gone but I don't know if it is the medication or just time

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 6:46 pm

Yes. Mine is deep inside my vagina on the right side.

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Re: Help! Right side Vaginal Pain!

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