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Treatment Options / Surgery

Mon Jan 26, 2015 10:21 pm by vldicker

I am so happy to have found this forum. I have been suffering with vulvodyina for years…diagnosed when I was 22 and now am 25 but suffered long before the diagnosis. Over the past years it would only flare up for maybe a few days and then wouldn't bother me at all for a long time. My doctor put me on antidepressants and lidocain gel which did nothing to stop the random flare up so I stopped …

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New member looking for self-care and treatment ideas

Fri Jan 16, 2015 3:12 am by Millie

Hello
I am 25 years old and have been suffering from provoked Vulvodynia (Vestibulodynia) for the past year.

About 2 years ago I changed my contraceptive pill from Microgynon to Mercilon because I was experiencing side effects such as nausea and vomiting, however the side effects of Mercilon were much worse and I believe the main cause of all the problems I have experienced over the past two …

Comments: 3

Does anyone else test the ph of their urine?

Sun Jul 22, 2012 1:34 am by Rainy Day

Just wondering if everyone else has acidic urine too? Wondering if that is part of the puzzle? I have a urine ph of 5.75 in the morning and then 6.0 before bed. It never gets close to 7 in morn or at night.

Comments: 3

Just found this site.. thank god.

Sat Dec 27, 2014 1:59 pm by abbey5531

Hi everyone-
I have been struggling with my diagnosis of vulvodynia since February of this year, but problems have been going on for a long time. I was on the pill after I lost my virginity due to a pregnancy scare when I was about to turn 19, which was over two years ago now, and since then I have experienced pain while having sex. My boyfriend at the time and I ended up breaking up, and I …

Comments: 2

Vulvodynia nerve pain after having baby

Wed Dec 10, 2014 7:33 am by ethome

I recently had my second baby 7 months ago and since then I have had pain at the site where I tore and just inside my vagina. It only really hurt if pressure was applied but I have recently had a steroid and anesthetic injection into the vagina area to help treat this. This has made things so much worse as now I have pain all the time. It throbs and burns constantly. I went back to the gynae who …

Comments: 1

Im a Guy with Issues Similar

Mon Dec 15, 2014 8:17 am by Justin777

Hi girls I recently discovered 'Vulvodynia' last month. How I came across it is ironic. In June of this year 2014 I took a hair loss pill called propecia. Pill designed to stop my hair from falling out. One month in I discovered that my private would struggle to stay turned on. Also orgasm lost feeling. Private has become pretty numb. Very upset over this. They have a website for the few guys who …

Comments: 17

New to vulvodynia and searching for solutions

Sun Dec 07, 2014 11:39 am by justbecca28

Hi,
I am 30 and was just diagnosed with vulvodynia about 6 months ago. Since the first time I had sex, when I was 16, I knew there was something wrong. My bf at the time couldn't even penetrate, and when he finally did, the pain was unbearable. To this day I have never had sex without pain. I didn't even understand that what I was experiencing was not normal until I was probably 20. I thought to …

Comments: 3

Low oxalate diet?

Sun Dec 14, 2014 2:55 am by keepsmiling

I attended a Vulvodynia study day at my local hospital recently and was informed about a low oxalate diet that helps ease vulval pain. Anyone tried and tested this? And does it actually work??

Thanks


Comments: 1

Ipl/lazer hair removal bikin line

Sun Nov 16, 2014 5:58 am by Mary1000

Hiya,

Was wondering if anyone has ever had ipl/lazer hair removal on their bikini line before?

Or if you know if it would effect my vulvadynia.

I'm not in acute stage of it like I was last year. The constant pain stopped from seeing a physio and many other things like coconut oil.also breaking up with my boyfriend so not having sex which caused a lot of emotions as wasn't able too. Still …

Comments: 3


Help! Right side Vaginal Pain!

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Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 6:51 am

Hi everyone.
I am 26 year old female. I have had right side vaginal pain for about 3 years now. Some days it is burning, some days it is pain, some days it is nothing. I dont have any pain durning sex, but after it hurts. I have been to countless doctors. NO ONE KNOWS WHAT IS WRONG!! I recently just had a larproscopy done, and they found PID. They removed the PID, and i still have pain. I am thinking about trying Primose Oil, has anyone tried this? I am on an anti-depressant, that helps but the pain comes back. I use to take gabapintin 3 times a day, but i stopped that. SOMEONE PLEASE HELP ME!!! Any type of advice would be good. I am starting to lose my mind. I am in consent pain every single day. I use to be very active and now I just want to sleep all the time. I can still have sex. Sex doesnt bother me, slightly, but i can deal with the pain. Please help

tanyam23xo

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Re: Help! Right side Vaginal Pain!

Post  Sarah001 on Thu May 02, 2013 7:10 am

Could be trigger points in the pelvic floor or the hip rotators, go and see a womens health physio and have them do an internal examination to see if they can find the spot.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Thu May 02, 2013 7:15 am

I have been to a pelvic floor therapist. I did therapy for about 5 months. Pain would come back and go away. I even had a steriod injection inserted in my vagina!! I am speechless to what this pain could be. Everything anyone has tried, it doesnt help. I magically don't have pain when I am on my period. But as soon as I am off, the pain is right back. I feel that it is more muscle pain, but I'm not sure on what it could be exactly. Any thoughts?

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Fri May 03, 2013 12:31 am

Could be nerves along with muscles too... Could be anything have you been to a specialist yet? maybe you could try that?

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Fri May 03, 2013 12:46 am

I havent been to a "Pelvic Floor Specalist" but I have been to an OBYN, about 5 of them. No one knows what is wrong. I just had a laproscopy done, and they found PID. The PID has been removed, but i still have the pain. It hurts to even touch my right side of my vagina. It hurts to walk. I am out of words or ideas at this point. I dont know what to do Sad I am starting to think it is Vulvodynia, but i dont know. I have had ultra sounds, MRIs, blood work etc. NOTHING comes up. I have been on gabapintin, now i am on a anti depressant. I am going on a trip next week. I just want to feel better. When I went to physical therapy, it helped. My pain went away for about 6 months. But it is now back, and it HURTS!

tanyam23xo

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Fri May 03, 2013 12:58 am

Hi tanyam
Your pain sounds exactly like mine. I have deep right sided vaginal pain constant every day. Mine started after sex. It's kind of a dull sharp ache in my vagina wall sometimes raw. I have seen everyone gynos urologist dermatologists pain doctors etc but have found what is wrong with pelvic women's health physio. I have trigger points all inside my vagina mainly over the obturator internus muscle which connects with the hip. The trigger points are irritating the pudendal nerve causing the pain. My physio can pin point exactly along the nerve where it hurts. I maybe could have sex but I'm single now which is easier for me. But like you the pain came over the sex. Have a look at pudendal neuralgia.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Fri May 03, 2013 1:02 am

Hi Kate,
So how what do you do to get rid of it? What kind of doctor do you think i should go to? Are you on any current medications? I dont have pain when I am on my period. No pain at all. I do believe its a muscle/nerve issue as well. Is there anything they can do to make it go away?!

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Fri May 03, 2013 1:28 am

You're in Ohio? Go to Ohio State Hospital or Cleveland clinic!! Oh, and Go Bucks!

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Fri May 03, 2013 1:39 am

Yes i am in Columbus, Ohio! Smile And yes of course. Go bucks!!
Alana, Do you have this type of pain? I have been to every doctor. I have kind've lost hope.

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Fri May 03, 2013 1:58 am

I don't I had provoked vestibuldynia. Message me I need to ask you about Columbus (I'm pondering a move). I see a vulvar specialist in South Florida (where I live), he's my hero. Fixed me up like no ones's business, if you have the funds, I def suggest him, but I understand if you cant. He is ALSO affiliated with the Cleveland Clinic (down here) so that's why I thought maybe head into that direction up there, cant hurt right? My entire vag would hurt when I would have sex, touch it with qtip, or tampon use. But I had surgrey in December, which I'm sure you have seen me talk about on here. I have very little pain now, and I have muscular issues now, but it's no way near as horrible as it was back even 6 months ago Smile But I'm not sure what PID is (i know its pelvic inflammatory disease) but I know nothing more than what it's called, clue me in?

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Fri May 03, 2013 2:07 am

Hi tanyam
I think you should find a women's health pelvic floor physio who has a good knowledge of the pudendal nerve. If you look on the pudendal hope website there is a list of specialist physios. I think you need someone who can give you a thorough pelvic floor examination to see what's going on. I've been having physio for a good few months and it's definitely helping its hurts at the time and afterwards but my trigger points are loosening inside and outside. I take nortriptyline 40mg and lyrical 300mg per day. My nerve is going crazy why no one seems to know.

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Fri May 03, 2013 2:36 am

Kate, does the therapy help your pain? and does the medication? Seems we are on the same medication!
Alana, sent you a private message:)

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Re: Help! Right side Vaginal Pain!

Post  Alana3 on Fri May 03, 2013 3:13 am

sent you a text

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Re: Help! Right side Vaginal Pain!

Post  tanyam23xo on Fri May 03, 2013 3:57 am

I didn't get it. 614-361-2041

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Re: Help! Right side Vaginal Pain!

Post  Kate1981 on Fri May 03, 2013 4:11 am

The physio therapy is helping with my pain I have had some pain free days. Does your pain feel deep inside your vagina? Mine is probably about 3 inches inside. I'm not sure about the medication I think it just takes the edge of the pain. The really bad burning has gone but I don't know if it is the medication or just time

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