Log in

I forgot my password

Latest topics
» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


New here and need help!

Go down

New here and need help!

Post  juleps on Fri May 03, 2013 3:20 pm

Hello everyone,

i have been diagnosed with VVS about 7 months ago, but actually not sure how long I suffer from it.
My issues started a year ago with the first yeast infection I ever had which I had to fight very long with fluconazol.
Although after some months the yeast was finally gone, the burning pain stayed.
But I also remember a time when I was 16 that I had huge issues with sex after a chronic episode of bladder infections, so maybe I suffer from it even since 7 years or so and just thought it is a bladder issue.
I tried already quite many things (fluconazol long time, all cremes, no tight clothes, all shower stuff natural and bio, estradiol cremes, physiotherapy, gapabentin, ...) but am still stuck in making up my mind what I personally think the main reason is for my VVS.
I had some physiotherapy which actually helped a bit but no mayor breakthrough, it sems that I react positively to estradioö but in general seem to be allergic to something in all those cremes.
Generally I am a bit tired of fighting the illness, as I went now twice to a specialist in the hospital and he told me surgery is the only thing they can offer me Sad
I am so lost with the many things people seem to help Sad
Anything you really can recommend to try?
Pls excuse my English, as I am not a native speaker Smile

Take care!
Juleps

juleps

Posts : 14
Join date : 2013-05-03

View user profile

Back to top Go down

Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 4:19 pm

I had the surgery and it worked wonders for me but it's a personal preference

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New here and need help!

Post  juleps on Fri May 03, 2013 4:23 pm

Thank you so much for the reponse!
Can you tell me a bit about the surgery, as it seems many people are telling bad stories about it...
For exmaple my doctor could not even tell me if the people - where the surgery failed - are worse off then before or just have the same level of pain.
How does it affect you, if you still want to have children. Wont the scarces rip?
I am really helpful for any advice!
I always have hormones in mind, as I am naturally to high in testosterone and had since being 16 a very strong pill against acne. I switched since 4 months to a lower one but no significant change happened.

juleps

Posts : 14
Join date : 2013-05-03

View user profile

Back to top Go down

Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 4:47 pm

No it's like any other surgery there's a recovery process and then you're fine. I was way better than before so it was a positive but like any procedure there are risks but I had talked to people who had it and all of us are better now. As for kids I don't know I don't want kids but im sure you can. Just have a c-section instead of vaginal birth. Im not willing to mess with it tho. The surgery was not a big deal I had it done in December very little pain and a 6 week recovery period I would do it again. But nothing rips unless you do sometime wrong. I had one stitch tear and that was it and it wasn't a big deal

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New here and need help!

Post  juleps on Fri May 03, 2013 5:27 pm

That sounds actually quite promising!
Can you tell me how much exactly was removed?
6 weeks seems like a really ok time. Did you have to do a lot of exercise after and when was sex possible?
Are you fully pain-free now?
Sorry for the many questions, it is not so easy to find people in my country which are pro-surgery!

juleps

Posts : 14
Join date : 2013-05-03

View user profile

Back to top Go down

Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 5:34 pm

Im painfree horseback riding gym you Name it I can do it I haven't had sex yet no boy but I def could! Everything was good as soon as 6 weeks were up actually I was given the ok a few days early! I do physical therapy now but only every other week you'll be fine I promise!

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New here and need help!

Post  juleps on Fri May 03, 2013 5:37 pm

big thanks for taking your time! Smile sounds promising and took away a lot of the fear!

juleps

Posts : 14
Join date : 2013-05-03

View user profile

Back to top Go down

Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 6:18 pm

You will be fine! Let me know how it goes! Where are you from?

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New here and need help!

Post  juleps on Tue May 07, 2013 7:27 pm

Hey! I am from Germany but live in Belgium,which makes the whole finding a doctor thing even more difficult for me Sad

juleps

Posts : 14
Join date : 2013-05-03

View user profile

Back to top Go down

Re: New here and need help!

Post  Alana3 on Tue May 07, 2013 7:47 pm

Yeah, even over here it was hard. If you're willing to travel to Florida I have a good person, def can't help you with Belgium although I would kill to visit lol

Alana3

Posts : 1090
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New here and need help!

Post  juleps on Tue May 07, 2013 7:54 pm

Thanks for offering tho ! Smile

juleps

Posts : 14
Join date : 2013-05-03

View user profile

Back to top Go down

Re: New here and need help!

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum