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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


New here and need help!

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New here and need help!

Post  juleps on Fri May 03, 2013 3:20 pm

Hello everyone,

i have been diagnosed with VVS about 7 months ago, but actually not sure how long I suffer from it.
My issues started a year ago with the first yeast infection I ever had which I had to fight very long with fluconazol.
Although after some months the yeast was finally gone, the burning pain stayed.
But I also remember a time when I was 16 that I had huge issues with sex after a chronic episode of bladder infections, so maybe I suffer from it even since 7 years or so and just thought it is a bladder issue.
I tried already quite many things (fluconazol long time, all cremes, no tight clothes, all shower stuff natural and bio, estradiol cremes, physiotherapy, gapabentin, ...) but am still stuck in making up my mind what I personally think the main reason is for my VVS.
I had some physiotherapy which actually helped a bit but no mayor breakthrough, it sems that I react positively to estradioö but in general seem to be allergic to something in all those cremes.
Generally I am a bit tired of fighting the illness, as I went now twice to a specialist in the hospital and he told me surgery is the only thing they can offer me Sad
I am so lost with the many things people seem to help Sad
Anything you really can recommend to try?
Pls excuse my English, as I am not a native speaker Smile

Take care!
Juleps

juleps

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Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 4:19 pm

I had the surgery and it worked wonders for me but it's a personal preference

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Re: New here and need help!

Post  juleps on Fri May 03, 2013 4:23 pm

Thank you so much for the reponse!
Can you tell me a bit about the surgery, as it seems many people are telling bad stories about it...
For exmaple my doctor could not even tell me if the people - where the surgery failed - are worse off then before or just have the same level of pain.
How does it affect you, if you still want to have children. Wont the scarces rip?
I am really helpful for any advice!
I always have hormones in mind, as I am naturally to high in testosterone and had since being 16 a very strong pill against acne. I switched since 4 months to a lower one but no significant change happened.

juleps

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Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 4:47 pm

No it's like any other surgery there's a recovery process and then you're fine. I was way better than before so it was a positive but like any procedure there are risks but I had talked to people who had it and all of us are better now. As for kids I don't know I don't want kids but im sure you can. Just have a c-section instead of vaginal birth. Im not willing to mess with it tho. The surgery was not a big deal I had it done in December very little pain and a 6 week recovery period I would do it again. But nothing rips unless you do sometime wrong. I had one stitch tear and that was it and it wasn't a big deal

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Re: New here and need help!

Post  juleps on Fri May 03, 2013 5:27 pm

That sounds actually quite promising!
Can you tell me how much exactly was removed?
6 weeks seems like a really ok time. Did you have to do a lot of exercise after and when was sex possible?
Are you fully pain-free now?
Sorry for the many questions, it is not so easy to find people in my country which are pro-surgery!

juleps

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Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 5:34 pm

Im painfree horseback riding gym you Name it I can do it I haven't had sex yet no boy but I def could! Everything was good as soon as 6 weeks were up actually I was given the ok a few days early! I do physical therapy now but only every other week you'll be fine I promise!

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Re: New here and need help!

Post  juleps on Fri May 03, 2013 5:37 pm

big thanks for taking your time! Smile sounds promising and took away a lot of the fear!

juleps

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Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 6:18 pm

You will be fine! Let me know how it goes! Where are you from?

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Re: New here and need help!

Post  juleps on Tue May 07, 2013 7:27 pm

Hey! I am from Germany but live in Belgium,which makes the whole finding a doctor thing even more difficult for me Sad

juleps

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Re: New here and need help!

Post  Alana3 on Tue May 07, 2013 7:47 pm

Yeah, even over here it was hard. If you're willing to travel to Florida I have a good person, def can't help you with Belgium although I would kill to visit lol

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Re: New here and need help!

Post  juleps on Tue May 07, 2013 7:54 pm

Thanks for offering tho ! Smile

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Re: New here and need help!

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