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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


New here and need help!

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New here and need help!

Post  juleps on Fri May 03, 2013 3:20 pm

Hello everyone,

i have been diagnosed with VVS about 7 months ago, but actually not sure how long I suffer from it.
My issues started a year ago with the first yeast infection I ever had which I had to fight very long with fluconazol.
Although after some months the yeast was finally gone, the burning pain stayed.
But I also remember a time when I was 16 that I had huge issues with sex after a chronic episode of bladder infections, so maybe I suffer from it even since 7 years or so and just thought it is a bladder issue.
I tried already quite many things (fluconazol long time, all cremes, no tight clothes, all shower stuff natural and bio, estradiol cremes, physiotherapy, gapabentin, ...) but am still stuck in making up my mind what I personally think the main reason is for my VVS.
I had some physiotherapy which actually helped a bit but no mayor breakthrough, it sems that I react positively to estradioö but in general seem to be allergic to something in all those cremes.
Generally I am a bit tired of fighting the illness, as I went now twice to a specialist in the hospital and he told me surgery is the only thing they can offer me Sad
I am so lost with the many things people seem to help Sad
Anything you really can recommend to try?
Pls excuse my English, as I am not a native speaker Smile

Take care!
Juleps

juleps

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Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 4:19 pm

I had the surgery and it worked wonders for me but it's a personal preference

Alana3

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Re: New here and need help!

Post  juleps on Fri May 03, 2013 4:23 pm

Thank you so much for the reponse!
Can you tell me a bit about the surgery, as it seems many people are telling bad stories about it...
For exmaple my doctor could not even tell me if the people - where the surgery failed - are worse off then before or just have the same level of pain.
How does it affect you, if you still want to have children. Wont the scarces rip?
I am really helpful for any advice!
I always have hormones in mind, as I am naturally to high in testosterone and had since being 16 a very strong pill against acne. I switched since 4 months to a lower one but no significant change happened.

juleps

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Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 4:47 pm

No it's like any other surgery there's a recovery process and then you're fine. I was way better than before so it was a positive but like any procedure there are risks but I had talked to people who had it and all of us are better now. As for kids I don't know I don't want kids but im sure you can. Just have a c-section instead of vaginal birth. Im not willing to mess with it tho. The surgery was not a big deal I had it done in December very little pain and a 6 week recovery period I would do it again. But nothing rips unless you do sometime wrong. I had one stitch tear and that was it and it wasn't a big deal

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Re: New here and need help!

Post  juleps on Fri May 03, 2013 5:27 pm

That sounds actually quite promising!
Can you tell me how much exactly was removed?
6 weeks seems like a really ok time. Did you have to do a lot of exercise after and when was sex possible?
Are you fully pain-free now?
Sorry for the many questions, it is not so easy to find people in my country which are pro-surgery!

juleps

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Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 5:34 pm

Im painfree horseback riding gym you Name it I can do it I haven't had sex yet no boy but I def could! Everything was good as soon as 6 weeks were up actually I was given the ok a few days early! I do physical therapy now but only every other week you'll be fine I promise!

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Re: New here and need help!

Post  juleps on Fri May 03, 2013 5:37 pm

big thanks for taking your time! Smile sounds promising and took away a lot of the fear!

juleps

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Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 6:18 pm

You will be fine! Let me know how it goes! Where are you from?

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Re: New here and need help!

Post  juleps on Tue May 07, 2013 7:27 pm

Hey! I am from Germany but live in Belgium,which makes the whole finding a doctor thing even more difficult for me Sad

juleps

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Re: New here and need help!

Post  Alana3 on Tue May 07, 2013 7:47 pm

Yeah, even over here it was hard. If you're willing to travel to Florida I have a good person, def can't help you with Belgium although I would kill to visit lol

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Re: New here and need help!

Post  juleps on Tue May 07, 2013 7:54 pm

Thanks for offering tho ! Smile

juleps

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Re: New here and need help!

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