Log in

I forgot my password

Latest topics
» Acupuncture advice please
Yesterday at 11:27 pm by infinitelywondering

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


New here and need help!

Go down

New here and need help!

Post  juleps on Fri May 03, 2013 3:20 pm

Hello everyone,

i have been diagnosed with VVS about 7 months ago, but actually not sure how long I suffer from it.
My issues started a year ago with the first yeast infection I ever had which I had to fight very long with fluconazol.
Although after some months the yeast was finally gone, the burning pain stayed.
But I also remember a time when I was 16 that I had huge issues with sex after a chronic episode of bladder infections, so maybe I suffer from it even since 7 years or so and just thought it is a bladder issue.
I tried already quite many things (fluconazol long time, all cremes, no tight clothes, all shower stuff natural and bio, estradiol cremes, physiotherapy, gapabentin, ...) but am still stuck in making up my mind what I personally think the main reason is for my VVS.
I had some physiotherapy which actually helped a bit but no mayor breakthrough, it sems that I react positively to estradioö but in general seem to be allergic to something in all those cremes.
Generally I am a bit tired of fighting the illness, as I went now twice to a specialist in the hospital and he told me surgery is the only thing they can offer me Sad
I am so lost with the many things people seem to help Sad
Anything you really can recommend to try?
Pls excuse my English, as I am not a native speaker Smile

Take care!
Juleps

juleps

Posts : 14
Join date : 2013-05-03

View user profile

Back to top Go down

Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 4:19 pm

I had the surgery and it worked wonders for me but it's a personal preference

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New here and need help!

Post  juleps on Fri May 03, 2013 4:23 pm

Thank you so much for the reponse!
Can you tell me a bit about the surgery, as it seems many people are telling bad stories about it...
For exmaple my doctor could not even tell me if the people - where the surgery failed - are worse off then before or just have the same level of pain.
How does it affect you, if you still want to have children. Wont the scarces rip?
I am really helpful for any advice!
I always have hormones in mind, as I am naturally to high in testosterone and had since being 16 a very strong pill against acne. I switched since 4 months to a lower one but no significant change happened.

juleps

Posts : 14
Join date : 2013-05-03

View user profile

Back to top Go down

Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 4:47 pm

No it's like any other surgery there's a recovery process and then you're fine. I was way better than before so it was a positive but like any procedure there are risks but I had talked to people who had it and all of us are better now. As for kids I don't know I don't want kids but im sure you can. Just have a c-section instead of vaginal birth. Im not willing to mess with it tho. The surgery was not a big deal I had it done in December very little pain and a 6 week recovery period I would do it again. But nothing rips unless you do sometime wrong. I had one stitch tear and that was it and it wasn't a big deal

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New here and need help!

Post  juleps on Fri May 03, 2013 5:27 pm

That sounds actually quite promising!
Can you tell me how much exactly was removed?
6 weeks seems like a really ok time. Did you have to do a lot of exercise after and when was sex possible?
Are you fully pain-free now?
Sorry for the many questions, it is not so easy to find people in my country which are pro-surgery!

juleps

Posts : 14
Join date : 2013-05-03

View user profile

Back to top Go down

Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 5:34 pm

Im painfree horseback riding gym you Name it I can do it I haven't had sex yet no boy but I def could! Everything was good as soon as 6 weeks were up actually I was given the ok a few days early! I do physical therapy now but only every other week you'll be fine I promise!

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New here and need help!

Post  juleps on Fri May 03, 2013 5:37 pm

big thanks for taking your time! Smile sounds promising and took away a lot of the fear!

juleps

Posts : 14
Join date : 2013-05-03

View user profile

Back to top Go down

Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 6:18 pm

You will be fine! Let me know how it goes! Where are you from?

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New here and need help!

Post  juleps on Tue May 07, 2013 7:27 pm

Hey! I am from Germany but live in Belgium,which makes the whole finding a doctor thing even more difficult for me Sad

juleps

Posts : 14
Join date : 2013-05-03

View user profile

Back to top Go down

Re: New here and need help!

Post  Alana3 on Tue May 07, 2013 7:47 pm

Yeah, even over here it was hard. If you're willing to travel to Florida I have a good person, def can't help you with Belgium although I would kill to visit lol

Alana3

Posts : 1086
Join date : 2012-09-25

View user profile

Back to top Go down

Re: New here and need help!

Post  juleps on Tue May 07, 2013 7:54 pm

Thanks for offering tho ! Smile

juleps

Posts : 14
Join date : 2013-05-03

View user profile

Back to top Go down

Re: New here and need help!

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum