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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


New here and need help!

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New here and need help!

Post  juleps on Fri May 03, 2013 3:20 pm

Hello everyone,

i have been diagnosed with VVS about 7 months ago, but actually not sure how long I suffer from it.
My issues started a year ago with the first yeast infection I ever had which I had to fight very long with fluconazol.
Although after some months the yeast was finally gone, the burning pain stayed.
But I also remember a time when I was 16 that I had huge issues with sex after a chronic episode of bladder infections, so maybe I suffer from it even since 7 years or so and just thought it is a bladder issue.
I tried already quite many things (fluconazol long time, all cremes, no tight clothes, all shower stuff natural and bio, estradiol cremes, physiotherapy, gapabentin, ...) but am still stuck in making up my mind what I personally think the main reason is for my VVS.
I had some physiotherapy which actually helped a bit but no mayor breakthrough, it sems that I react positively to estradioö but in general seem to be allergic to something in all those cremes.
Generally I am a bit tired of fighting the illness, as I went now twice to a specialist in the hospital and he told me surgery is the only thing they can offer me Sad
I am so lost with the many things people seem to help Sad
Anything you really can recommend to try?
Pls excuse my English, as I am not a native speaker Smile

Take care!
Juleps

juleps

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Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 4:19 pm

I had the surgery and it worked wonders for me but it's a personal preference

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Re: New here and need help!

Post  juleps on Fri May 03, 2013 4:23 pm

Thank you so much for the reponse!
Can you tell me a bit about the surgery, as it seems many people are telling bad stories about it...
For exmaple my doctor could not even tell me if the people - where the surgery failed - are worse off then before or just have the same level of pain.
How does it affect you, if you still want to have children. Wont the scarces rip?
I am really helpful for any advice!
I always have hormones in mind, as I am naturally to high in testosterone and had since being 16 a very strong pill against acne. I switched since 4 months to a lower one but no significant change happened.

juleps

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Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 4:47 pm

No it's like any other surgery there's a recovery process and then you're fine. I was way better than before so it was a positive but like any procedure there are risks but I had talked to people who had it and all of us are better now. As for kids I don't know I don't want kids but im sure you can. Just have a c-section instead of vaginal birth. Im not willing to mess with it tho. The surgery was not a big deal I had it done in December very little pain and a 6 week recovery period I would do it again. But nothing rips unless you do sometime wrong. I had one stitch tear and that was it and it wasn't a big deal

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Re: New here and need help!

Post  juleps on Fri May 03, 2013 5:27 pm

That sounds actually quite promising!
Can you tell me how much exactly was removed?
6 weeks seems like a really ok time. Did you have to do a lot of exercise after and when was sex possible?
Are you fully pain-free now?
Sorry for the many questions, it is not so easy to find people in my country which are pro-surgery!

juleps

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Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 5:34 pm

Im painfree horseback riding gym you Name it I can do it I haven't had sex yet no boy but I def could! Everything was good as soon as 6 weeks were up actually I was given the ok a few days early! I do physical therapy now but only every other week you'll be fine I promise!

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Re: New here and need help!

Post  juleps on Fri May 03, 2013 5:37 pm

big thanks for taking your time! Smile sounds promising and took away a lot of the fear!

juleps

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Re: New here and need help!

Post  Alana3 on Fri May 03, 2013 6:18 pm

You will be fine! Let me know how it goes! Where are you from?

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Re: New here and need help!

Post  juleps on Tue May 07, 2013 7:27 pm

Hey! I am from Germany but live in Belgium,which makes the whole finding a doctor thing even more difficult for me Sad

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Re: New here and need help!

Post  Alana3 on Tue May 07, 2013 7:47 pm

Yeah, even over here it was hard. If you're willing to travel to Florida I have a good person, def can't help you with Belgium although I would kill to visit lol

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Re: New here and need help!

Post  juleps on Tue May 07, 2013 7:54 pm

Thanks for offering tho ! Smile

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Re: New here and need help!

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