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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Questions regarding symptoms

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Questions regarding symptoms

Post  Delilah1 on Sun May 05, 2013 3:45 am

Before the pain and burning of vulvodynia started I noticed very defined reddish purple lines on the inside of my labia minora from the urethral opening down to the bartholins glands. On the days when the pain is at its worst they are more visible and seem to fade when the pain is more tolerable. Does anyone else have these lines?

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Re: Questions regarding symptoms

Post  Sarah001 on Sun May 05, 2013 11:01 am

Yes! I have the exact same thing! A GP thought it was lichen planus in linear formation (it wasn't) but my current physio says it's where the pelvic floor meets the bones which makes more sense as I have very tight pelvic floor muscles. On good days they are barely visible but like you on bad days they are very dark red and obvious. I've never come across anyone else who described theirs as lines before, have you had your pelvic floor checked?
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Re: Questions regarding symptoms

Post  Delilah1 on Sun May 05, 2013 2:40 pm

Thank you for responding! Just knowing someone else has noticed the same thing is so comforting. I don't want to bombard you with too much information but I really want to know if we have anything else in common.
This all started last September. I noticed a fishy smell when washing with soap. While waiting to see my Dr. had sex with my husband one night. When he entered it felt like i was being cut with razor blades near the urethra. Never had that before!! I had been very active for the previous 3 years. Exercising, lifting weights, and then bike riding...(wonder if that had anything to do with it?) Started having burning and swelling in the vagina and vulva. When it was at its worst i felt a throbbing inside on my cervix. Then the whole vulva turned red. I have red spots at 5 and 7 oclock. I have never had a yeast infection and this was the first time I have ever been diagnosed with bacterial vaginosis. All STD tests were negative for me. Dr. gave me vaginal metrogel. I took one dose and had a reaction. Lump in my throat and numbness/tingling in my hands and feet. Felt like I was being poked in the feet at times. Stopped using it and did 5 days of peroxide douche. The BV went away but the burning never did. Sometimes I have shooting pains in my clitoris and now bladder discomfort at times. I do have a history of IBS and headaches. Now here is the strangest part--- Days after sex with my husband he started having burning/pain when he urinated. He went to the doctor. They found no bacteria in his urine. STD tests negativ. Gave him doxycycline just to see if it would help. It never helped. The pain spread to his bladder and then prostate. They gave him Cipro. That didn't help. He went to a urologist. Said he had nonbacterial chronic prostatits. He has been miserable. He read the book "Headache in the Pelvis" and got his doctor to send him to Physical Therapy. I have been doing the stretches/exercises from the books "Ending Female Pain" and "Heal Pelvic Pain" We have told all of the doctors about our symptoms starting at the same time. They have no answers. Just did STD tests. Is this just a coincidence or is there some kind of virus causing this???
My pain is better than it was 5 months ago. The burning is still there but gets worse at times. I can't wear pants because they really irritate me. I don't have discharge. If anything I am more dry. I am 45 years old.
Dr. gave me estrace cream but it doesn't seem to help. My periods are still normal. I've never taken birth control. Thank you for listening!! Can you tell me about yourself?

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Re: Questions regarding symptoms

Post  Kathye10 on Sun May 05, 2013 10:10 pm

Hi Delilah,

I don't mean to butt in but I read that you and your hubby both had issues around the same time. I wonder if you guys have some sort of infection (bacterial) that wasn't picked up through testing. I bring this up because it happened to me. I'm still trying to figure out what caused this for me, but there are really only two possibilities, bacteria or pelvic floor dysfunction or a combo of both. On some cultures I would show up negative for both yeast and bacteria (I've been to several Dr's in the past 5 months) and others I would show positive for bacteria. One of the Dr's did a DNA probe test to rule out bacteria's that don't show on normal cultures. They found one that doesn't normally show called, Mycoplasma hominis. I'm being retested for it now to see if it's still there. There is also one called Ureaplasma that can cause bladder related issues in both men and women. Both need to be treated for awhile....from what I've heard anywhere from 1 month to 6 months on antibiotics. Mycoplasma reacts to doxy long term, and I think Ureaplasma reacts to Z-pack long term. Sometimes us women (men as well) can be carrier's and not have it actually infect us, but maybe the BV that you had (unbalance in PH) brought one of these to surface. I obviously don't know your entire situation but you and the hubby might want to have your Dr look into it. Another member here had Ureplasma and once she did a long cycle of antibiotics her V went away. This is why I'm retesting, because if that's all it is, I will gladly take the antibiotics. Good luck! Very Happy
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Re: Questions regarding symptoms

Post  Sarah001 on Mon May 06, 2013 1:04 pm

Hi again, the lines of red skin seem to be almost where our similarities end! Me and my partner of the time were using condoms as contraception so there was never any question of him getting anything, I tested negative for all stds and BV too and I didn't have any BV symptoms either. Mine is definitely due to my pelvis being severely unstable and my pelvic floor being very very tight and it happened after a few months of seeing a physio who stupidly thought using more pelvic floor activity might stabilise my pelvis and it just brought on vulvar pain and didn't stabilise me either. I do lack discharge like you however and find I'm very dry (I'm nearly 40) but I think for me the lack of blood flow to the area and the muscles being clenched all the time are behind that. It does seem odd you both got symptoms so close to each other and I think Kathy is right it is worth checking for the more unusual bacterias but it could just be either coincidence or, don't be offended, your husband may be bringing his symptoms on phsycosomatically which is easy to do if someone around you has symptoms. I'm not suggesting he's lying but you know how it is when someone close has for example a vomiting bug and you convince yourself you feel sick and then don't get it so you know you're bringing it on yourself? I hope you're not offended by that it is only a suggestion.
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Re: Questions regarding symptoms

Post  Delilah1 on Mon May 06, 2013 2:49 pm

Thank you Kathy and Sarah for replying. I appreciate your input and opinions. I will definitely make an appointment with another doctor and discuss the mycoplasma and ureaplasma connection. I will also ask my doctor for a PT referral and give that a try. This whole mess is a nightmare. I just want to be normal again. Just like everyone else on this forum. I wish you good luck!

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