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» What's next?
Today at 10:07 am by amyhp

» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Questions regarding symptoms

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Questions regarding symptoms

Post  Delilah1 on Sun May 05, 2013 3:45 am

Before the pain and burning of vulvodynia started I noticed very defined reddish purple lines on the inside of my labia minora from the urethral opening down to the bartholins glands. On the days when the pain is at its worst they are more visible and seem to fade when the pain is more tolerable. Does anyone else have these lines?

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Re: Questions regarding symptoms

Post  Sarah001 on Sun May 05, 2013 11:01 am

Yes! I have the exact same thing! A GP thought it was lichen planus in linear formation (it wasn't) but my current physio says it's where the pelvic floor meets the bones which makes more sense as I have very tight pelvic floor muscles. On good days they are barely visible but like you on bad days they are very dark red and obvious. I've never come across anyone else who described theirs as lines before, have you had your pelvic floor checked?
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Re: Questions regarding symptoms

Post  Delilah1 on Sun May 05, 2013 2:40 pm

Thank you for responding! Just knowing someone else has noticed the same thing is so comforting. I don't want to bombard you with too much information but I really want to know if we have anything else in common.
This all started last September. I noticed a fishy smell when washing with soap. While waiting to see my Dr. had sex with my husband one night. When he entered it felt like i was being cut with razor blades near the urethra. Never had that before!! I had been very active for the previous 3 years. Exercising, lifting weights, and then bike riding...(wonder if that had anything to do with it?) Started having burning and swelling in the vagina and vulva. When it was at its worst i felt a throbbing inside on my cervix. Then the whole vulva turned red. I have red spots at 5 and 7 oclock. I have never had a yeast infection and this was the first time I have ever been diagnosed with bacterial vaginosis. All STD tests were negative for me. Dr. gave me vaginal metrogel. I took one dose and had a reaction. Lump in my throat and numbness/tingling in my hands and feet. Felt like I was being poked in the feet at times. Stopped using it and did 5 days of peroxide douche. The BV went away but the burning never did. Sometimes I have shooting pains in my clitoris and now bladder discomfort at times. I do have a history of IBS and headaches. Now here is the strangest part--- Days after sex with my husband he started having burning/pain when he urinated. He went to the doctor. They found no bacteria in his urine. STD tests negativ. Gave him doxycycline just to see if it would help. It never helped. The pain spread to his bladder and then prostate. They gave him Cipro. That didn't help. He went to a urologist. Said he had nonbacterial chronic prostatits. He has been miserable. He read the book "Headache in the Pelvis" and got his doctor to send him to Physical Therapy. I have been doing the stretches/exercises from the books "Ending Female Pain" and "Heal Pelvic Pain" We have told all of the doctors about our symptoms starting at the same time. They have no answers. Just did STD tests. Is this just a coincidence or is there some kind of virus causing this???
My pain is better than it was 5 months ago. The burning is still there but gets worse at times. I can't wear pants because they really irritate me. I don't have discharge. If anything I am more dry. I am 45 years old.
Dr. gave me estrace cream but it doesn't seem to help. My periods are still normal. I've never taken birth control. Thank you for listening!! Can you tell me about yourself?

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Re: Questions regarding symptoms

Post  Kathye10 on Sun May 05, 2013 10:10 pm

Hi Delilah,

I don't mean to butt in but I read that you and your hubby both had issues around the same time. I wonder if you guys have some sort of infection (bacterial) that wasn't picked up through testing. I bring this up because it happened to me. I'm still trying to figure out what caused this for me, but there are really only two possibilities, bacteria or pelvic floor dysfunction or a combo of both. On some cultures I would show up negative for both yeast and bacteria (I've been to several Dr's in the past 5 months) and others I would show positive for bacteria. One of the Dr's did a DNA probe test to rule out bacteria's that don't show on normal cultures. They found one that doesn't normally show called, Mycoplasma hominis. I'm being retested for it now to see if it's still there. There is also one called Ureaplasma that can cause bladder related issues in both men and women. Both need to be treated for awhile....from what I've heard anywhere from 1 month to 6 months on antibiotics. Mycoplasma reacts to doxy long term, and I think Ureaplasma reacts to Z-pack long term. Sometimes us women (men as well) can be carrier's and not have it actually infect us, but maybe the BV that you had (unbalance in PH) brought one of these to surface. I obviously don't know your entire situation but you and the hubby might want to have your Dr look into it. Another member here had Ureplasma and once she did a long cycle of antibiotics her V went away. This is why I'm retesting, because if that's all it is, I will gladly take the antibiotics. Good luck! Very Happy
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Re: Questions regarding symptoms

Post  Sarah001 on Mon May 06, 2013 1:04 pm

Hi again, the lines of red skin seem to be almost where our similarities end! Me and my partner of the time were using condoms as contraception so there was never any question of him getting anything, I tested negative for all stds and BV too and I didn't have any BV symptoms either. Mine is definitely due to my pelvis being severely unstable and my pelvic floor being very very tight and it happened after a few months of seeing a physio who stupidly thought using more pelvic floor activity might stabilise my pelvis and it just brought on vulvar pain and didn't stabilise me either. I do lack discharge like you however and find I'm very dry (I'm nearly 40) but I think for me the lack of blood flow to the area and the muscles being clenched all the time are behind that. It does seem odd you both got symptoms so close to each other and I think Kathy is right it is worth checking for the more unusual bacterias but it could just be either coincidence or, don't be offended, your husband may be bringing his symptoms on phsycosomatically which is easy to do if someone around you has symptoms. I'm not suggesting he's lying but you know how it is when someone close has for example a vomiting bug and you convince yourself you feel sick and then don't get it so you know you're bringing it on yourself? I hope you're not offended by that it is only a suggestion.
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Re: Questions regarding symptoms

Post  Delilah1 on Mon May 06, 2013 2:49 pm

Thank you Kathy and Sarah for replying. I appreciate your input and opinions. I will definitely make an appointment with another doctor and discuss the mycoplasma and ureaplasma connection. I will also ask my doctor for a PT referral and give that a try. This whole mess is a nightmare. I just want to be normal again. Just like everyone else on this forum. I wish you good luck!

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Re: Questions regarding symptoms

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