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» Please tell me this can get better
Today at 2:10 am by anon99

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Today at 12:00 am by Bx11

» Lichen Sclerosus
Fri Feb 16, 2018 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

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NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Questions regarding symptoms

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Questions regarding symptoms

Post  Delilah1 on Sun May 05, 2013 3:45 am

Before the pain and burning of vulvodynia started I noticed very defined reddish purple lines on the inside of my labia minora from the urethral opening down to the bartholins glands. On the days when the pain is at its worst they are more visible and seem to fade when the pain is more tolerable. Does anyone else have these lines?

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Re: Questions regarding symptoms

Post  Sarah001 on Sun May 05, 2013 11:01 am

Yes! I have the exact same thing! A GP thought it was lichen planus in linear formation (it wasn't) but my current physio says it's where the pelvic floor meets the bones which makes more sense as I have very tight pelvic floor muscles. On good days they are barely visible but like you on bad days they are very dark red and obvious. I've never come across anyone else who described theirs as lines before, have you had your pelvic floor checked?
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Re: Questions regarding symptoms

Post  Delilah1 on Sun May 05, 2013 2:40 pm

Thank you for responding! Just knowing someone else has noticed the same thing is so comforting. I don't want to bombard you with too much information but I really want to know if we have anything else in common.
This all started last September. I noticed a fishy smell when washing with soap. While waiting to see my Dr. had sex with my husband one night. When he entered it felt like i was being cut with razor blades near the urethra. Never had that before!! I had been very active for the previous 3 years. Exercising, lifting weights, and then bike riding...(wonder if that had anything to do with it?) Started having burning and swelling in the vagina and vulva. When it was at its worst i felt a throbbing inside on my cervix. Then the whole vulva turned red. I have red spots at 5 and 7 oclock. I have never had a yeast infection and this was the first time I have ever been diagnosed with bacterial vaginosis. All STD tests were negative for me. Dr. gave me vaginal metrogel. I took one dose and had a reaction. Lump in my throat and numbness/tingling in my hands and feet. Felt like I was being poked in the feet at times. Stopped using it and did 5 days of peroxide douche. The BV went away but the burning never did. Sometimes I have shooting pains in my clitoris and now bladder discomfort at times. I do have a history of IBS and headaches. Now here is the strangest part--- Days after sex with my husband he started having burning/pain when he urinated. He went to the doctor. They found no bacteria in his urine. STD tests negativ. Gave him doxycycline just to see if it would help. It never helped. The pain spread to his bladder and then prostate. They gave him Cipro. That didn't help. He went to a urologist. Said he had nonbacterial chronic prostatits. He has been miserable. He read the book "Headache in the Pelvis" and got his doctor to send him to Physical Therapy. I have been doing the stretches/exercises from the books "Ending Female Pain" and "Heal Pelvic Pain" We have told all of the doctors about our symptoms starting at the same time. They have no answers. Just did STD tests. Is this just a coincidence or is there some kind of virus causing this???
My pain is better than it was 5 months ago. The burning is still there but gets worse at times. I can't wear pants because they really irritate me. I don't have discharge. If anything I am more dry. I am 45 years old.
Dr. gave me estrace cream but it doesn't seem to help. My periods are still normal. I've never taken birth control. Thank you for listening!! Can you tell me about yourself?

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Re: Questions regarding symptoms

Post  Kathye10 on Sun May 05, 2013 10:10 pm

Hi Delilah,

I don't mean to butt in but I read that you and your hubby both had issues around the same time. I wonder if you guys have some sort of infection (bacterial) that wasn't picked up through testing. I bring this up because it happened to me. I'm still trying to figure out what caused this for me, but there are really only two possibilities, bacteria or pelvic floor dysfunction or a combo of both. On some cultures I would show up negative for both yeast and bacteria (I've been to several Dr's in the past 5 months) and others I would show positive for bacteria. One of the Dr's did a DNA probe test to rule out bacteria's that don't show on normal cultures. They found one that doesn't normally show called, Mycoplasma hominis. I'm being retested for it now to see if it's still there. There is also one called Ureaplasma that can cause bladder related issues in both men and women. Both need to be treated for awhile....from what I've heard anywhere from 1 month to 6 months on antibiotics. Mycoplasma reacts to doxy long term, and I think Ureaplasma reacts to Z-pack long term. Sometimes us women (men as well) can be carrier's and not have it actually infect us, but maybe the BV that you had (unbalance in PH) brought one of these to surface. I obviously don't know your entire situation but you and the hubby might want to have your Dr look into it. Another member here had Ureplasma and once she did a long cycle of antibiotics her V went away. This is why I'm retesting, because if that's all it is, I will gladly take the antibiotics. Good luck! Very Happy
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Re: Questions regarding symptoms

Post  Sarah001 on Mon May 06, 2013 1:04 pm

Hi again, the lines of red skin seem to be almost where our similarities end! Me and my partner of the time were using condoms as contraception so there was never any question of him getting anything, I tested negative for all stds and BV too and I didn't have any BV symptoms either. Mine is definitely due to my pelvis being severely unstable and my pelvic floor being very very tight and it happened after a few months of seeing a physio who stupidly thought using more pelvic floor activity might stabilise my pelvis and it just brought on vulvar pain and didn't stabilise me either. I do lack discharge like you however and find I'm very dry (I'm nearly 40) but I think for me the lack of blood flow to the area and the muscles being clenched all the time are behind that. It does seem odd you both got symptoms so close to each other and I think Kathy is right it is worth checking for the more unusual bacterias but it could just be either coincidence or, don't be offended, your husband may be bringing his symptoms on phsycosomatically which is easy to do if someone around you has symptoms. I'm not suggesting he's lying but you know how it is when someone close has for example a vomiting bug and you convince yourself you feel sick and then don't get it so you know you're bringing it on yourself? I hope you're not offended by that it is only a suggestion.
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Re: Questions regarding symptoms

Post  Delilah1 on Mon May 06, 2013 2:49 pm

Thank you Kathy and Sarah for replying. I appreciate your input and opinions. I will definitely make an appointment with another doctor and discuss the mycoplasma and ureaplasma connection. I will also ask my doctor for a PT referral and give that a try. This whole mess is a nightmare. I just want to be normal again. Just like everyone else on this forum. I wish you good luck!

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Re: Questions regarding symptoms

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