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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Q-Tip Test?

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Q-Tip Test?

Post  katie220 on Wed May 08, 2013 6:48 am

Hey everyone. I went to the doctor on Monday. I discussed my issues with him and he gave me a Q-tip test. He said I don't have vulvodynia or vulvar vestibules because there isn't any pain in a localized area. I also don't feel that uncomfortable when I have physical examinations. There is just a generalized pain that stays at the same level throughout the day and gets worse with sex. This makes no sense! Does anyone know what this is? Do you have to have a positive result on a Q-tip test to have vulvodynia? Thanks!

katie220

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Re: Q-Tip Test?

Post  Alana3 on Wed May 08, 2013 11:31 am

I know when I had v I would react horribly to a qtip test it would hurt so bad. Maybe yours is more vaginismus or pfd than vulvodynia but omg qtips used to hurt like crazy!

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Re: Q-Tip Test?

Post  Delilah1 on Wed May 08, 2013 7:04 pm

You dont have to have a positive q-tip test to have vulvodynia. A positive test is more common in women who have a type of V called vulvar vestibulitis. Their pain is localized to the vestibule(entrance to the vagina) . Pain with vestibulitis occurs upon penetration or inserting a tampon or speculum or contact with tight clothing or certain activities.. They have the most success with the surgery. Another type of V is Dyesthetic Vulvodynia in which a woman feels burning, rawness, irritaiton, itching anywhere on the vulva. Some have constant pain all the time and sometimes there are brief periods of relief. Some have pain with sex or exams and some dont. You can also have both types of V which I do. I have burning, swelling, all the time. Sometimes I feel a stinging or a poking near the clitoris or labia. Sex is very painful upon entry but then subsides. The pain is worse (THE absolute worse for me) the day after and for several days. Once in a while I will feel almost normal for a few hours but it always returns. For this reason I stopped having intercourse. I figure my body is trying to tell me something if the pain is that bad. I feel I need to give myself time to heal before trying again. There are several good books out there that explain Vulvodynia. One is 'The Vulvodynia Survival Guide" by Howard Glazer. Another is "The V Book" by Elizabeth Stewart and "Ending Female Pain" by Isa Herrera. I have read them all. The self help measures that have given me the most relief are Aveeno Colloidal Oatmeal baths, spraying myself off with cool water after urinating (using an irrigation bottle - like you get after delivery) and the stretching exercises. The most surprising thing that has helped is learning how to breathe using your diaphragm while stretching/exercising and taking the time to deep breathe many times throughout the day to relax. stress makes everything worse. I wish you well!

Delilah1

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Re: Q-Tip Test?

Post  Sarah001 on Wed May 08, 2013 7:05 pm

Hi Katie, unprovoked vulvodynia does not respond to a q tip test unless there's an element of provoked mixed in (often can be) so yes you could have unprovoked generalised vulvodynia, google it and see if it sounds like what you are experiencing.
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RE:

Post  katie220 on Wed May 08, 2013 7:22 pm

Thanks for the replies! That's kind of what I was thinking. I don't think it's right to judge whether someone has vulvodynia or not from a Q-tip. For the pain my doctor is thinking of giving me Gabapentin. Have you guys ever tried that? My pain goes away when I take xanax so he was thinking gabapentin would be my best bet.

katie220

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Re: Q-Tip Test?

Post  Alana3 on Wed May 08, 2013 7:31 pm

I used it as a topical it didn't work for me, I didn't want to deal with the side effects of a pill. But maybe orally it would work better? Smile

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Re: Q-Tip Test?

Post  allforone on Tue May 14, 2013 1:40 am

I have read many articles on vulvodynia..........there are 2 kinds........one could be a q-tip test, however the other is not!! They are totally different.........
The 2nd kind is burning inside the vulva...........these doctors need to get informed!

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Re: Q-Tip Test?

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