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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Q-Tip Test?

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Q-Tip Test?

Post  katie220 on Wed May 08, 2013 6:48 am

Hey everyone. I went to the doctor on Monday. I discussed my issues with him and he gave me a Q-tip test. He said I don't have vulvodynia or vulvar vestibules because there isn't any pain in a localized area. I also don't feel that uncomfortable when I have physical examinations. There is just a generalized pain that stays at the same level throughout the day and gets worse with sex. This makes no sense! Does anyone know what this is? Do you have to have a positive result on a Q-tip test to have vulvodynia? Thanks!

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Re: Q-Tip Test?

Post  Alana3 on Wed May 08, 2013 11:31 am

I know when I had v I would react horribly to a qtip test it would hurt so bad. Maybe yours is more vaginismus or pfd than vulvodynia but omg qtips used to hurt like crazy!

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Re: Q-Tip Test?

Post  Delilah1 on Wed May 08, 2013 7:04 pm

You dont have to have a positive q-tip test to have vulvodynia. A positive test is more common in women who have a type of V called vulvar vestibulitis. Their pain is localized to the vestibule(entrance to the vagina) . Pain with vestibulitis occurs upon penetration or inserting a tampon or speculum or contact with tight clothing or certain activities.. They have the most success with the surgery. Another type of V is Dyesthetic Vulvodynia in which a woman feels burning, rawness, irritaiton, itching anywhere on the vulva. Some have constant pain all the time and sometimes there are brief periods of relief. Some have pain with sex or exams and some dont. You can also have both types of V which I do. I have burning, swelling, all the time. Sometimes I feel a stinging or a poking near the clitoris or labia. Sex is very painful upon entry but then subsides. The pain is worse (THE absolute worse for me) the day after and for several days. Once in a while I will feel almost normal for a few hours but it always returns. For this reason I stopped having intercourse. I figure my body is trying to tell me something if the pain is that bad. I feel I need to give myself time to heal before trying again. There are several good books out there that explain Vulvodynia. One is 'The Vulvodynia Survival Guide" by Howard Glazer. Another is "The V Book" by Elizabeth Stewart and "Ending Female Pain" by Isa Herrera. I have read them all. The self help measures that have given me the most relief are Aveeno Colloidal Oatmeal baths, spraying myself off with cool water after urinating (using an irrigation bottle - like you get after delivery) and the stretching exercises. The most surprising thing that has helped is learning how to breathe using your diaphragm while stretching/exercising and taking the time to deep breathe many times throughout the day to relax. stress makes everything worse. I wish you well!

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Re: Q-Tip Test?

Post  Sarah001 on Wed May 08, 2013 7:05 pm

Hi Katie, unprovoked vulvodynia does not respond to a q tip test unless there's an element of provoked mixed in (often can be) so yes you could have unprovoked generalised vulvodynia, google it and see if it sounds like what you are experiencing.
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RE:

Post  katie220 on Wed May 08, 2013 7:22 pm

Thanks for the replies! That's kind of what I was thinking. I don't think it's right to judge whether someone has vulvodynia or not from a Q-tip. For the pain my doctor is thinking of giving me Gabapentin. Have you guys ever tried that? My pain goes away when I take xanax so he was thinking gabapentin would be my best bet.

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Re: Q-Tip Test?

Post  Alana3 on Wed May 08, 2013 7:31 pm

I used it as a topical it didn't work for me, I didn't want to deal with the side effects of a pill. But maybe orally it would work better? Smile

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Re: Q-Tip Test?

Post  allforone on Tue May 14, 2013 1:40 am

I have read many articles on vulvodynia..........there are 2 kinds........one could be a q-tip test, however the other is not!! They are totally different.........
The 2nd kind is burning inside the vulva...........these doctors need to get informed!

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Re: Q-Tip Test?

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