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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Q-Tip Test?

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Q-Tip Test?

Post  katie220 on Wed May 08, 2013 6:48 am

Hey everyone. I went to the doctor on Monday. I discussed my issues with him and he gave me a Q-tip test. He said I don't have vulvodynia or vulvar vestibules because there isn't any pain in a localized area. I also don't feel that uncomfortable when I have physical examinations. There is just a generalized pain that stays at the same level throughout the day and gets worse with sex. This makes no sense! Does anyone know what this is? Do you have to have a positive result on a Q-tip test to have vulvodynia? Thanks!

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Re: Q-Tip Test?

Post  Alana3 on Wed May 08, 2013 11:31 am

I know when I had v I would react horribly to a qtip test it would hurt so bad. Maybe yours is more vaginismus or pfd than vulvodynia but omg qtips used to hurt like crazy!

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Re: Q-Tip Test?

Post  Delilah1 on Wed May 08, 2013 7:04 pm

You dont have to have a positive q-tip test to have vulvodynia. A positive test is more common in women who have a type of V called vulvar vestibulitis. Their pain is localized to the vestibule(entrance to the vagina) . Pain with vestibulitis occurs upon penetration or inserting a tampon or speculum or contact with tight clothing or certain activities.. They have the most success with the surgery. Another type of V is Dyesthetic Vulvodynia in which a woman feels burning, rawness, irritaiton, itching anywhere on the vulva. Some have constant pain all the time and sometimes there are brief periods of relief. Some have pain with sex or exams and some dont. You can also have both types of V which I do. I have burning, swelling, all the time. Sometimes I feel a stinging or a poking near the clitoris or labia. Sex is very painful upon entry but then subsides. The pain is worse (THE absolute worse for me) the day after and for several days. Once in a while I will feel almost normal for a few hours but it always returns. For this reason I stopped having intercourse. I figure my body is trying to tell me something if the pain is that bad. I feel I need to give myself time to heal before trying again. There are several good books out there that explain Vulvodynia. One is 'The Vulvodynia Survival Guide" by Howard Glazer. Another is "The V Book" by Elizabeth Stewart and "Ending Female Pain" by Isa Herrera. I have read them all. The self help measures that have given me the most relief are Aveeno Colloidal Oatmeal baths, spraying myself off with cool water after urinating (using an irrigation bottle - like you get after delivery) and the stretching exercises. The most surprising thing that has helped is learning how to breathe using your diaphragm while stretching/exercising and taking the time to deep breathe many times throughout the day to relax. stress makes everything worse. I wish you well!

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Re: Q-Tip Test?

Post  Sarah001 on Wed May 08, 2013 7:05 pm

Hi Katie, unprovoked vulvodynia does not respond to a q tip test unless there's an element of provoked mixed in (often can be) so yes you could have unprovoked generalised vulvodynia, google it and see if it sounds like what you are experiencing.
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RE:

Post  katie220 on Wed May 08, 2013 7:22 pm

Thanks for the replies! That's kind of what I was thinking. I don't think it's right to judge whether someone has vulvodynia or not from a Q-tip. For the pain my doctor is thinking of giving me Gabapentin. Have you guys ever tried that? My pain goes away when I take xanax so he was thinking gabapentin would be my best bet.

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Re: Q-Tip Test?

Post  Alana3 on Wed May 08, 2013 7:31 pm

I used it as a topical it didn't work for me, I didn't want to deal with the side effects of a pill. But maybe orally it would work better? Smile

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Re: Q-Tip Test?

Post  allforone on Tue May 14, 2013 1:40 am

I have read many articles on vulvodynia..........there are 2 kinds........one could be a q-tip test, however the other is not!! They are totally different.........
The 2nd kind is burning inside the vulva...........these doctors need to get informed!

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Re: Q-Tip Test?

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