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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Q-Tip Test?

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Q-Tip Test?

Post  katie220 on Wed May 08, 2013 6:48 am

Hey everyone. I went to the doctor on Monday. I discussed my issues with him and he gave me a Q-tip test. He said I don't have vulvodynia or vulvar vestibules because there isn't any pain in a localized area. I also don't feel that uncomfortable when I have physical examinations. There is just a generalized pain that stays at the same level throughout the day and gets worse with sex. This makes no sense! Does anyone know what this is? Do you have to have a positive result on a Q-tip test to have vulvodynia? Thanks!

katie220

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Re: Q-Tip Test?

Post  Alana3 on Wed May 08, 2013 11:31 am

I know when I had v I would react horribly to a qtip test it would hurt so bad. Maybe yours is more vaginismus or pfd than vulvodynia but omg qtips used to hurt like crazy!

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Re: Q-Tip Test?

Post  Delilah1 on Wed May 08, 2013 7:04 pm

You dont have to have a positive q-tip test to have vulvodynia. A positive test is more common in women who have a type of V called vulvar vestibulitis. Their pain is localized to the vestibule(entrance to the vagina) . Pain with vestibulitis occurs upon penetration or inserting a tampon or speculum or contact with tight clothing or certain activities.. They have the most success with the surgery. Another type of V is Dyesthetic Vulvodynia in which a woman feels burning, rawness, irritaiton, itching anywhere on the vulva. Some have constant pain all the time and sometimes there are brief periods of relief. Some have pain with sex or exams and some dont. You can also have both types of V which I do. I have burning, swelling, all the time. Sometimes I feel a stinging or a poking near the clitoris or labia. Sex is very painful upon entry but then subsides. The pain is worse (THE absolute worse for me) the day after and for several days. Once in a while I will feel almost normal for a few hours but it always returns. For this reason I stopped having intercourse. I figure my body is trying to tell me something if the pain is that bad. I feel I need to give myself time to heal before trying again. There are several good books out there that explain Vulvodynia. One is 'The Vulvodynia Survival Guide" by Howard Glazer. Another is "The V Book" by Elizabeth Stewart and "Ending Female Pain" by Isa Herrera. I have read them all. The self help measures that have given me the most relief are Aveeno Colloidal Oatmeal baths, spraying myself off with cool water after urinating (using an irrigation bottle - like you get after delivery) and the stretching exercises. The most surprising thing that has helped is learning how to breathe using your diaphragm while stretching/exercising and taking the time to deep breathe many times throughout the day to relax. stress makes everything worse. I wish you well!

Delilah1

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Re: Q-Tip Test?

Post  Sarah001 on Wed May 08, 2013 7:05 pm

Hi Katie, unprovoked vulvodynia does not respond to a q tip test unless there's an element of provoked mixed in (often can be) so yes you could have unprovoked generalised vulvodynia, google it and see if it sounds like what you are experiencing.
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RE:

Post  katie220 on Wed May 08, 2013 7:22 pm

Thanks for the replies! That's kind of what I was thinking. I don't think it's right to judge whether someone has vulvodynia or not from a Q-tip. For the pain my doctor is thinking of giving me Gabapentin. Have you guys ever tried that? My pain goes away when I take xanax so he was thinking gabapentin would be my best bet.

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Re: Q-Tip Test?

Post  Alana3 on Wed May 08, 2013 7:31 pm

I used it as a topical it didn't work for me, I didn't want to deal with the side effects of a pill. But maybe orally it would work better? Smile

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Re: Q-Tip Test?

Post  allforone on Tue May 14, 2013 1:40 am

I have read many articles on vulvodynia..........there are 2 kinds........one could be a q-tip test, however the other is not!! They are totally different.........
The 2nd kind is burning inside the vulva...........these doctors need to get informed!

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Re: Q-Tip Test?

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