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» I don't know what to do anymore
Sat May 26, 2018 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Internal anal fissures and VVS, somebody kill me please!

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Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Sat May 11, 2013 10:13 pm

Hi everyone.

I have secondary VVS which also affects other parts of my genitals..
I got genital warts about 7 years ago when i was 18 from the first boyfriend i ever had. I got them treated with a mix of warticon cream and cryotherapy. The warts all cleared up and i have never got them since but anyway in the years following the cryotherapy i noticed sex was becoming more and more painful. I investigated once and realised there was a tiny paper like cut at the opening of my vaginal entrance where i had gotten the cryotherapy. It seems the cryotherapy has weakened the skin and now it tears everytime i have sex and is ruining my sex life. In the past year, the skin had started tearing externally around my anus and in the past 8/9 months had started tearing internally everytime i have a bowel movement which is incredibly painful and then for hours afterwards, its like im passing glass. I honestly cant take it anymore, i feel like giving up. The pain has also become chronic at the entrance of my vagina too when I attempt sex or some kinds of foreplay.

Iv done a lot of research and im fairly positive the cryotherapy has caused nerve damage as I have the tearing of the skin, everywhere I got the cryotherapy. The skin even tears between my buttcheeks sometimes when I walk. My now ex boyfriend of 6 years was not really supportive but at least he knew why i had the pain in the first place but i feel like i cant tell anyone else the reason so i think most of my friends think i exaggerate it. I really feel like life is not worth living being in continous pain and knowing i cant have sex either because of more pain and I cant seem to find anyone with a similar experience from cryotherapy on the internet? I feel so alone, all I do is cry. I don't want to think about this or feel this anymore No

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Wed May 15, 2013 5:00 pm

Someone else on the forum had a similar wart experience hopefully she sees this. I think I read she did a cream or topical something that helped I think the treatment thins your vaginal walls (from what I remember dont quote me on it!) and causes fissures. I think there are positive ways to treat it tho, so please don't give up! I had a doctor tell me I would never be cured 5 years later I have very little pain due to persistance and wanting to have sex so badly. So just because you haven't found something to help yet doesn't mean that you will always be like this. Very Happy

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Wed May 15, 2013 7:13 pm

Hi Alana,
Thanks for the reply!! That gives me good hope Smile I must scroll down through the stories and see if I can come across the girl you were talking about, thanks so much for letting me know. Valuable info!! How did you cure yourself and what did you have? that's so good to hear you are enjoying sex again Smile GO YOU!! xx

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Wed May 15, 2013 8:28 pm

I actually haven't had sex but I know from you know it's fine lol I had provoked vulvodynia and had a vestibulectomy in December

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Thu May 16, 2013 12:01 am

that's brilliant! hopefully u will enjoy loads and loads of sex in the future!! god vaginas are such hard work, guys really don't know how lucky they are, everything is so much more clear cut for them! iv been taking zinc tablets the last couple of days and it has made a massive difference with regards pain and healing of fissures, I recommend everyone to try it, I wonder if anyone else has had this experience with zinc supplements.. xx

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Thu May 16, 2013 2:54 am

Currently I hate my vagina it's burning like mad bitch won't leave me alone but I guess im lucky I just used my dialator (really my vibrator lol) and it didn't hurt so all in all im lucky I just hate it I hate having periods and I sometimes struggle with being a girl I hate wearing bras too. I have bad cysts and oh dear God the bras kill. I've been recently going without and noticed my boobs got perkier AND the pain before my periods is gone weird. I wear them only when absolutely necessary I hate being a girl ugh sorry im venting.

I don't want to add anything else in my supplements but I'm so glad you're feeling good!

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Kezz on Sat Apr 15, 2017 4:04 pm

Hi Alana, 4 years later haha!! How is everything with you??? I hope sex has become amazing!! I'm still struggling! Just in the process of finding a surgeon to do a vestibulectomy. Where did you get yours done? Thanks so much xxx

Kezz

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Re: Internal anal fissures and VVS, somebody kill me please!

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