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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Internal anal fissures and VVS, somebody kill me please!

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Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Sat May 11, 2013 10:13 pm

Hi everyone.

I have secondary VVS which also affects other parts of my genitals..
I got genital warts about 7 years ago when i was 18 from the first boyfriend i ever had. I got them treated with a mix of warticon cream and cryotherapy. The warts all cleared up and i have never got them since but anyway in the years following the cryotherapy i noticed sex was becoming more and more painful. I investigated once and realised there was a tiny paper like cut at the opening of my vaginal entrance where i had gotten the cryotherapy. It seems the cryotherapy has weakened the skin and now it tears everytime i have sex and is ruining my sex life. In the past year, the skin had started tearing externally around my anus and in the past 8/9 months had started tearing internally everytime i have a bowel movement which is incredibly painful and then for hours afterwards, its like im passing glass. I honestly cant take it anymore, i feel like giving up. The pain has also become chronic at the entrance of my vagina too when I attempt sex or some kinds of foreplay.

Iv done a lot of research and im fairly positive the cryotherapy has caused nerve damage as I have the tearing of the skin, everywhere I got the cryotherapy. The skin even tears between my buttcheeks sometimes when I walk. My now ex boyfriend of 6 years was not really supportive but at least he knew why i had the pain in the first place but i feel like i cant tell anyone else the reason so i think most of my friends think i exaggerate it. I really feel like life is not worth living being in continous pain and knowing i cant have sex either because of more pain and I cant seem to find anyone with a similar experience from cryotherapy on the internet? I feel so alone, all I do is cry. I don't want to think about this or feel this anymore No

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Wed May 15, 2013 5:00 pm

Someone else on the forum had a similar wart experience hopefully she sees this. I think I read she did a cream or topical something that helped I think the treatment thins your vaginal walls (from what I remember dont quote me on it!) and causes fissures. I think there are positive ways to treat it tho, so please don't give up! I had a doctor tell me I would never be cured 5 years later I have very little pain due to persistance and wanting to have sex so badly. So just because you haven't found something to help yet doesn't mean that you will always be like this. Very Happy

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Wed May 15, 2013 7:13 pm

Hi Alana,
Thanks for the reply!! That gives me good hope Smile I must scroll down through the stories and see if I can come across the girl you were talking about, thanks so much for letting me know. Valuable info!! How did you cure yourself and what did you have? that's so good to hear you are enjoying sex again Smile GO YOU!! xx

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Wed May 15, 2013 8:28 pm

I actually haven't had sex but I know from you know it's fine lol I had provoked vulvodynia and had a vestibulectomy in December

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Thu May 16, 2013 12:01 am

that's brilliant! hopefully u will enjoy loads and loads of sex in the future!! god vaginas are such hard work, guys really don't know how lucky they are, everything is so much more clear cut for them! iv been taking zinc tablets the last couple of days and it has made a massive difference with regards pain and healing of fissures, I recommend everyone to try it, I wonder if anyone else has had this experience with zinc supplements.. xx

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Thu May 16, 2013 2:54 am

Currently I hate my vagina it's burning like mad bitch won't leave me alone but I guess im lucky I just used my dialator (really my vibrator lol) and it didn't hurt so all in all im lucky I just hate it I hate having periods and I sometimes struggle with being a girl I hate wearing bras too. I have bad cysts and oh dear God the bras kill. I've been recently going without and noticed my boobs got perkier AND the pain before my periods is gone weird. I wear them only when absolutely necessary I hate being a girl ugh sorry im venting.

I don't want to add anything else in my supplements but I'm so glad you're feeling good!

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Kezz on Sat Apr 15, 2017 4:04 pm

Hi Alana, 4 years later haha!! How is everything with you??? I hope sex has become amazing!! I'm still struggling! Just in the process of finding a surgeon to do a vestibulectomy. Where did you get yours done? Thanks so much xxx

Kezz

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Re: Internal anal fissures and VVS, somebody kill me please!

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