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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Internal anal fissures and VVS, somebody kill me please!

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Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Sat May 11, 2013 10:13 pm

Hi everyone.

I have secondary VVS which also affects other parts of my genitals..
I got genital warts about 7 years ago when i was 18 from the first boyfriend i ever had. I got them treated with a mix of warticon cream and cryotherapy. The warts all cleared up and i have never got them since but anyway in the years following the cryotherapy i noticed sex was becoming more and more painful. I investigated once and realised there was a tiny paper like cut at the opening of my vaginal entrance where i had gotten the cryotherapy. It seems the cryotherapy has weakened the skin and now it tears everytime i have sex and is ruining my sex life. In the past year, the skin had started tearing externally around my anus and in the past 8/9 months had started tearing internally everytime i have a bowel movement which is incredibly painful and then for hours afterwards, its like im passing glass. I honestly cant take it anymore, i feel like giving up. The pain has also become chronic at the entrance of my vagina too when I attempt sex or some kinds of foreplay.

Iv done a lot of research and im fairly positive the cryotherapy has caused nerve damage as I have the tearing of the skin, everywhere I got the cryotherapy. The skin even tears between my buttcheeks sometimes when I walk. My now ex boyfriend of 6 years was not really supportive but at least he knew why i had the pain in the first place but i feel like i cant tell anyone else the reason so i think most of my friends think i exaggerate it. I really feel like life is not worth living being in continous pain and knowing i cant have sex either because of more pain and I cant seem to find anyone with a similar experience from cryotherapy on the internet? I feel so alone, all I do is cry. I don't want to think about this or feel this anymore No

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Wed May 15, 2013 5:00 pm

Someone else on the forum had a similar wart experience hopefully she sees this. I think I read she did a cream or topical something that helped I think the treatment thins your vaginal walls (from what I remember dont quote me on it!) and causes fissures. I think there are positive ways to treat it tho, so please don't give up! I had a doctor tell me I would never be cured 5 years later I have very little pain due to persistance and wanting to have sex so badly. So just because you haven't found something to help yet doesn't mean that you will always be like this. Very Happy

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Wed May 15, 2013 7:13 pm

Hi Alana,
Thanks for the reply!! That gives me good hope Smile I must scroll down through the stories and see if I can come across the girl you were talking about, thanks so much for letting me know. Valuable info!! How did you cure yourself and what did you have? that's so good to hear you are enjoying sex again Smile GO YOU!! xx

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Wed May 15, 2013 8:28 pm

I actually haven't had sex but I know from you know it's fine lol I had provoked vulvodynia and had a vestibulectomy in December

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Thu May 16, 2013 12:01 am

that's brilliant! hopefully u will enjoy loads and loads of sex in the future!! god vaginas are such hard work, guys really don't know how lucky they are, everything is so much more clear cut for them! iv been taking zinc tablets the last couple of days and it has made a massive difference with regards pain and healing of fissures, I recommend everyone to try it, I wonder if anyone else has had this experience with zinc supplements.. xx

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Thu May 16, 2013 2:54 am

Currently I hate my vagina it's burning like mad bitch won't leave me alone but I guess im lucky I just used my dialator (really my vibrator lol) and it didn't hurt so all in all im lucky I just hate it I hate having periods and I sometimes struggle with being a girl I hate wearing bras too. I have bad cysts and oh dear God the bras kill. I've been recently going without and noticed my boobs got perkier AND the pain before my periods is gone weird. I wear them only when absolutely necessary I hate being a girl ugh sorry im venting.

I don't want to add anything else in my supplements but I'm so glad you're feeling good!

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Kezz on Sat Apr 15, 2017 4:04 pm

Hi Alana, 4 years later haha!! How is everything with you??? I hope sex has become amazing!! I'm still struggling! Just in the process of finding a surgeon to do a vestibulectomy. Where did you get yours done? Thanks so much xxx

Kezz

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Re: Internal anal fissures and VVS, somebody kill me please!

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