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» Vulvadynia
Yesterday at 11:53 pm by Linda Williams

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Constant pain, I want to die.
Wed Jul 19, 2017 10:55 pm by jungleclover

» What is Vulvodynia?
Wed Jul 19, 2017 10:42 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

» Surgery Success - Still early days, but going well so far!
Sun Jul 16, 2017 8:42 pm by sarahjane1332343

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3


Internal anal fissures and VVS, somebody kill me please!

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Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Sat May 11, 2013 10:13 pm

Hi everyone.

I have secondary VVS which also affects other parts of my genitals..
I got genital warts about 7 years ago when i was 18 from the first boyfriend i ever had. I got them treated with a mix of warticon cream and cryotherapy. The warts all cleared up and i have never got them since but anyway in the years following the cryotherapy i noticed sex was becoming more and more painful. I investigated once and realised there was a tiny paper like cut at the opening of my vaginal entrance where i had gotten the cryotherapy. It seems the cryotherapy has weakened the skin and now it tears everytime i have sex and is ruining my sex life. In the past year, the skin had started tearing externally around my anus and in the past 8/9 months had started tearing internally everytime i have a bowel movement which is incredibly painful and then for hours afterwards, its like im passing glass. I honestly cant take it anymore, i feel like giving up. The pain has also become chronic at the entrance of my vagina too when I attempt sex or some kinds of foreplay.

Iv done a lot of research and im fairly positive the cryotherapy has caused nerve damage as I have the tearing of the skin, everywhere I got the cryotherapy. The skin even tears between my buttcheeks sometimes when I walk. My now ex boyfriend of 6 years was not really supportive but at least he knew why i had the pain in the first place but i feel like i cant tell anyone else the reason so i think most of my friends think i exaggerate it. I really feel like life is not worth living being in continous pain and knowing i cant have sex either because of more pain and I cant seem to find anyone with a similar experience from cryotherapy on the internet? I feel so alone, all I do is cry. I don't want to think about this or feel this anymore No

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Wed May 15, 2013 5:00 pm

Someone else on the forum had a similar wart experience hopefully she sees this. I think I read she did a cream or topical something that helped I think the treatment thins your vaginal walls (from what I remember dont quote me on it!) and causes fissures. I think there are positive ways to treat it tho, so please don't give up! I had a doctor tell me I would never be cured 5 years later I have very little pain due to persistance and wanting to have sex so badly. So just because you haven't found something to help yet doesn't mean that you will always be like this. Very Happy

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Wed May 15, 2013 7:13 pm

Hi Alana,
Thanks for the reply!! That gives me good hope Smile I must scroll down through the stories and see if I can come across the girl you were talking about, thanks so much for letting me know. Valuable info!! How did you cure yourself and what did you have? that's so good to hear you are enjoying sex again Smile GO YOU!! xx

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Wed May 15, 2013 8:28 pm

I actually haven't had sex but I know from you know it's fine lol I had provoked vulvodynia and had a vestibulectomy in December

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Thu May 16, 2013 12:01 am

that's brilliant! hopefully u will enjoy loads and loads of sex in the future!! god vaginas are such hard work, guys really don't know how lucky they are, everything is so much more clear cut for them! iv been taking zinc tablets the last couple of days and it has made a massive difference with regards pain and healing of fissures, I recommend everyone to try it, I wonder if anyone else has had this experience with zinc supplements.. xx

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Thu May 16, 2013 2:54 am

Currently I hate my vagina it's burning like mad bitch won't leave me alone but I guess im lucky I just used my dialator (really my vibrator lol) and it didn't hurt so all in all im lucky I just hate it I hate having periods and I sometimes struggle with being a girl I hate wearing bras too. I have bad cysts and oh dear God the bras kill. I've been recently going without and noticed my boobs got perkier AND the pain before my periods is gone weird. I wear them only when absolutely necessary I hate being a girl ugh sorry im venting.

I don't want to add anything else in my supplements but I'm so glad you're feeling good!

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Kezz on Sat Apr 15, 2017 4:04 pm

Hi Alana, 4 years later haha!! How is everything with you??? I hope sex has become amazing!! I'm still struggling! Just in the process of finding a surgeon to do a vestibulectomy. Where did you get yours done? Thanks so much xxx

Kezz

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Re: Internal anal fissures and VVS, somebody kill me please!

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