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» 7 months since the diagnosis
Thu Aug 16, 2018 9:09 am by Gaby

» Did going off antidepressants cause this?
Wed Aug 15, 2018 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Internal anal fissures and VVS, somebody kill me please!

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Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Sat May 11, 2013 10:13 pm

Hi everyone.

I have secondary VVS which also affects other parts of my genitals..
I got genital warts about 7 years ago when i was 18 from the first boyfriend i ever had. I got them treated with a mix of warticon cream and cryotherapy. The warts all cleared up and i have never got them since but anyway in the years following the cryotherapy i noticed sex was becoming more and more painful. I investigated once and realised there was a tiny paper like cut at the opening of my vaginal entrance where i had gotten the cryotherapy. It seems the cryotherapy has weakened the skin and now it tears everytime i have sex and is ruining my sex life. In the past year, the skin had started tearing externally around my anus and in the past 8/9 months had started tearing internally everytime i have a bowel movement which is incredibly painful and then for hours afterwards, its like im passing glass. I honestly cant take it anymore, i feel like giving up. The pain has also become chronic at the entrance of my vagina too when I attempt sex or some kinds of foreplay.

Iv done a lot of research and im fairly positive the cryotherapy has caused nerve damage as I have the tearing of the skin, everywhere I got the cryotherapy. The skin even tears between my buttcheeks sometimes when I walk. My now ex boyfriend of 6 years was not really supportive but at least he knew why i had the pain in the first place but i feel like i cant tell anyone else the reason so i think most of my friends think i exaggerate it. I really feel like life is not worth living being in continous pain and knowing i cant have sex either because of more pain and I cant seem to find anyone with a similar experience from cryotherapy on the internet? I feel so alone, all I do is cry. I don't want to think about this or feel this anymore No

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Wed May 15, 2013 5:00 pm

Someone else on the forum had a similar wart experience hopefully she sees this. I think I read she did a cream or topical something that helped I think the treatment thins your vaginal walls (from what I remember dont quote me on it!) and causes fissures. I think there are positive ways to treat it tho, so please don't give up! I had a doctor tell me I would never be cured 5 years later I have very little pain due to persistance and wanting to have sex so badly. So just because you haven't found something to help yet doesn't mean that you will always be like this. Very Happy

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Wed May 15, 2013 7:13 pm

Hi Alana,
Thanks for the reply!! That gives me good hope Smile I must scroll down through the stories and see if I can come across the girl you were talking about, thanks so much for letting me know. Valuable info!! How did you cure yourself and what did you have? that's so good to hear you are enjoying sex again Smile GO YOU!! xx

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Wed May 15, 2013 8:28 pm

I actually haven't had sex but I know from you know it's fine lol I had provoked vulvodynia and had a vestibulectomy in December

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  kezzo2013 on Thu May 16, 2013 12:01 am

that's brilliant! hopefully u will enjoy loads and loads of sex in the future!! god vaginas are such hard work, guys really don't know how lucky they are, everything is so much more clear cut for them! iv been taking zinc tablets the last couple of days and it has made a massive difference with regards pain and healing of fissures, I recommend everyone to try it, I wonder if anyone else has had this experience with zinc supplements.. xx

kezzo2013

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Alana3 on Thu May 16, 2013 2:54 am

Currently I hate my vagina it's burning like mad bitch won't leave me alone but I guess im lucky I just used my dialator (really my vibrator lol) and it didn't hurt so all in all im lucky I just hate it I hate having periods and I sometimes struggle with being a girl I hate wearing bras too. I have bad cysts and oh dear God the bras kill. I've been recently going without and noticed my boobs got perkier AND the pain before my periods is gone weird. I wear them only when absolutely necessary I hate being a girl ugh sorry im venting.

I don't want to add anything else in my supplements but I'm so glad you're feeling good!

Alana3

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Re: Internal anal fissures and VVS, somebody kill me please!

Post  Kezz on Sat Apr 15, 2017 4:04 pm

Hi Alana, 4 years later haha!! How is everything with you??? I hope sex has become amazing!! I'm still struggling! Just in the process of finding a surgeon to do a vestibulectomy. Where did you get yours done? Thanks so much xxx

Kezz

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Re: Internal anal fissures and VVS, somebody kill me please!

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