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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Using a TSE Machine

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Using a TSE Machine

Post  Sebby (Admin) on Wed Sep 15, 2010 8:31 pm


Hi all

I have just begun to use a TSE/TENs machine just to see how it goes.

The TSE is stronger than an normal TENs machine and my mum has lent it to me to see if it works.

I have to use it everyday and supposedly the pain relief builds up over time. Currently using it for bout and hour and a half to two hours in the evening.

Its suppossed to interupt and calm the nerve signals that travel up and down the spine.

I feel like a cyborg tho all strapped up lol Laughing

I will do it for about a month and see if I notice any benefits

Sebby
xxx
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Re: Using a TSE Machine

Post  Husband on Thu Sep 16, 2010 3:32 pm

HI Sebby;
Do you have some special instruction to adjust the tens? The recommendation from my wifes doctor was:
15 min 10 Hertz and 50 microsek pulsduration followed by 15 min with 50 Hertz 100 microsek for both 10-100 mAmpère.

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Re: Using a TSE Machine

Post  Sarah001 on Thu Sep 16, 2010 6:51 pm

I've seriously considered a Tens machine Sebby so I'll be really interested to hear how you get on. For me it might help with my joint issues too so fingers crossed for you.
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Re: Using a TSE Machine

Post  Sebby (Admin) on Tue Sep 21, 2010 7:04 pm


Hi Husband..my machine does TSE as well as TENS...TSE is a bit different and is supposed to be stronger but Im just learning to work it!

I will deff let you know how it goes Sarah

Here is the link to the site my mum bought it from if you want more info

http://www.acticare.com/

Right im off to plug myself in!! Im a cyborg now!! Laughing

Sebby xx
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Re: Using a TSE Machine

Post  Sarah001 on Tue Sep 21, 2010 7:50 pm

Very interesting, where are you placing the pads? I've heard they can go either on the stomach or on the back?
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Re: Using a TSE Machine

Post  Sebby (Admin) on Wed Sep 22, 2010 6:10 am


With this machine I have to place one pad at the top of my spine just below my neck and the 2nd pad on the lower part of my spine, just below bra strap, but I put it a little lower.

On the first setting the pads tingle and go hot..it feels funny lol

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Re: Using a TSE Machine

Post  Husband on Wed Sep 22, 2010 7:34 am

http://www.amazon.de/Promed-352410-Reizstromger%C3%A4t-emt-4/dp/B000ZJ2F18/ref=sr_1_2?ie=UTF8&s=drugstore&qid=1285140555&sr=8-2


The link is in German but its obviously different from your machine. With an additional vaginal applicator it is going to work direct in the problematic area.

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Re: Using a TSE Machine

Post  Sarah001 on Wed Sep 22, 2010 11:19 am

Hmm, don't think I'd fancy a vaginal applicator version! Sebby on another vulvar site a woman found wearing the pads either on the abdomen either side of the belly button and just below, or on the very low back over the sacroiliac joints or a bit further down on the glutes if necessary was very effective, she noticed an immediate effect from hers and wears it all day long!
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Re: Using a TSE Machine

Post  jules on Sat Sep 25, 2010 5:42 pm

I'm interested to hear if this machine helps. Sebby, did you ever have your spinal block? how long is the tens supposed to help for? is it something you would have to do on-going? i hope it helps.

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Re: Using a TSE Machine

Post  jules on Sat Sep 25, 2010 5:46 pm

Hey..i'm not too intelligent. i looked at the site and the price. i don't know how to convert your money into American money..i'm lost. can you tell me how much your unit costs w/ the accessories that you needed to buy as well?


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Re: Using a TSE Machine

Post  Mouse on Sun Sep 26, 2010 2:18 am

Jules, just google currency conversion. Like the link below, obviously change whichever way you are converting.

I google my whole life - it's how I ended up diagnosing myself and sending the info to my clueless gyny who still didn't get it. I don't suppose this story is new to any of us though.

http://finance.yahoo.com/currency-converter/?u#from=USD;to=GBP;amt=1

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Re: Using a TSE Machine

Post  jules on Sun Sep 26, 2010 8:20 pm

will do..thanks! you forgot to answer the rest of my question. did you ever get your spinal block? if so, any results?

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Re: Using a TSE Machine

Post  Sarah001 on Mon Sep 27, 2010 12:03 pm

I had a look at the TSE achine and unfortunately it's out of my price range so I've ordered a normal TENS machine instead and will let you all know how that goes.
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Re: Using a TSE Machine

Post  Sebby (Admin) on Wed Sep 29, 2010 8:55 pm


Sorry girls this last couple of weeks has been mental!!

Im still chasing up spinal block!! grrrrrr I will phone hospital again next week when fings have calmed down and complain

Im still using TSE maching only managing to use it every other day at present..

Have had good week with the pain anyway, maybe Ive just been so distracted Im focusing less on it? or the maching is working!!

Having problems at work so am quite stressed grrrrrrrrr


Godbless you all

Sebby
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Re: Using a TSE Machine

Post  Mouse on Wed Sep 29, 2010 11:28 pm

Sebby I had the pain therapist yesterday she's all about stress reduction at the minute. And encouraging my fat little body into doing some exercise to reduce it. She used the endorphin word. I've been meaning to get some of those, they sound like fun.

Distraction does work a treat, that's why the mindfulness helps. But stress is a bastard, I'm pretty sure that's what kicked off the coeliacs and then that domino fell onto the bartholins and here we are with vulvodynia! I would have chosen a different route, say one that involved laying down for hours, soothing massages and drinks that come with umbrellas.

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Re: Using a TSE Machine

Post  jules on Thu Sep 30, 2010 3:12 am

Exercise is important and does make you feel better. However, I am in a hell of a lot of pain because i started working out again. I am mad as hell that i can't work out like i used to. I know i have said this here before, but i need to get it out. I think i am in the anger stage of grief (about the loss of life before Vulvodynia). Oh well, i just have to be careful and accept that things likely will not be as they were before this disorder. Still need to get back to the physical therapist. i feel like it is my last hope since i have tried almost everything.

"husband"...let us know if the botox helps ur wife. i will try it if it does. I'm reaching for straws here.

thanks for listening or reading.

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Re: Using a TSE Machine

Post  Mouse on Thu Sep 30, 2010 4:45 am

Jules, funny you should mention the grief cycle. I know the one size fits allness of the Kubler-ross grief cycle is no longer popular because everyone does it differently and there is no wrong way. BUT I did all of the stages except for bargaining - what would be the point? When I got really mad, that's when I found the right people to help me. Acceptance is a bit of a stretch though.

It's ok to be bloody mad, fuck I'm so angry sometimes I could scream AND apparently I should. It's unhealthy to internalise your anger but I don't like dumping my crap on other people. My dog is way too cute to kick hmmmmm maybe the cat but I'd have to sleep with both eyes open even though she sleeps outside.

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Re: Using a TSE Machine

Post  Sarah001 on Thu Sep 30, 2010 12:24 pm

Could be the machine is working Sebby, I saw a lady on another site say she had fabulous results with a TENS machine which is why I've ordered one!
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Re: Using a TSE Machine

Post  Sebby (Admin) on Mon Oct 04, 2010 9:03 pm


Haha yes deff the drinks that come with umbrellas!!

Am taking one day at a time with the bloody anxiety, does me head in!

I have the machine on this evening..wow it makes me hot lol Im charging like a mobile phone!!

I have noticed a reduction in pain but I wont get all excited yet as this thing does come and go so I will see if I have a flare up and how severe it is.

Well at least the pain is managable at the mo... phew! now I just need to sort my brain out!!
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Re: Using a TSE Machine

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