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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Using a TSE Machine

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Using a TSE Machine

Post  Sebby (Admin) on Wed Sep 15, 2010 8:31 pm


Hi all

I have just begun to use a TSE/TENs machine just to see how it goes.

The TSE is stronger than an normal TENs machine and my mum has lent it to me to see if it works.

I have to use it everyday and supposedly the pain relief builds up over time. Currently using it for bout and hour and a half to two hours in the evening.

Its suppossed to interupt and calm the nerve signals that travel up and down the spine.

I feel like a cyborg tho all strapped up lol Laughing

I will do it for about a month and see if I notice any benefits

Sebby
xxx
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Re: Using a TSE Machine

Post  Husband on Thu Sep 16, 2010 3:32 pm

HI Sebby;
Do you have some special instruction to adjust the tens? The recommendation from my wifes doctor was:
15 min 10 Hertz and 50 microsek pulsduration followed by 15 min with 50 Hertz 100 microsek for both 10-100 mAmpère.

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Re: Using a TSE Machine

Post  Sarah001 on Thu Sep 16, 2010 6:51 pm

I've seriously considered a Tens machine Sebby so I'll be really interested to hear how you get on. For me it might help with my joint issues too so fingers crossed for you.
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Re: Using a TSE Machine

Post  Sebby (Admin) on Tue Sep 21, 2010 7:04 pm


Hi Husband..my machine does TSE as well as TENS...TSE is a bit different and is supposed to be stronger but Im just learning to work it!

I will deff let you know how it goes Sarah

Here is the link to the site my mum bought it from if you want more info

http://www.acticare.com/

Right im off to plug myself in!! Im a cyborg now!! Laughing

Sebby xx
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Re: Using a TSE Machine

Post  Sarah001 on Tue Sep 21, 2010 7:50 pm

Very interesting, where are you placing the pads? I've heard they can go either on the stomach or on the back?
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Re: Using a TSE Machine

Post  Sebby (Admin) on Wed Sep 22, 2010 6:10 am


With this machine I have to place one pad at the top of my spine just below my neck and the 2nd pad on the lower part of my spine, just below bra strap, but I put it a little lower.

On the first setting the pads tingle and go hot..it feels funny lol

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Re: Using a TSE Machine

Post  Husband on Wed Sep 22, 2010 7:34 am

http://www.amazon.de/Promed-352410-Reizstromger%C3%A4t-emt-4/dp/B000ZJ2F18/ref=sr_1_2?ie=UTF8&s=drugstore&qid=1285140555&sr=8-2


The link is in German but its obviously different from your machine. With an additional vaginal applicator it is going to work direct in the problematic area.

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Re: Using a TSE Machine

Post  Sarah001 on Wed Sep 22, 2010 11:19 am

Hmm, don't think I'd fancy a vaginal applicator version! Sebby on another vulvar site a woman found wearing the pads either on the abdomen either side of the belly button and just below, or on the very low back over the sacroiliac joints or a bit further down on the glutes if necessary was very effective, she noticed an immediate effect from hers and wears it all day long!
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Re: Using a TSE Machine

Post  jules on Sat Sep 25, 2010 5:42 pm

I'm interested to hear if this machine helps. Sebby, did you ever have your spinal block? how long is the tens supposed to help for? is it something you would have to do on-going? i hope it helps.

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Re: Using a TSE Machine

Post  jules on Sat Sep 25, 2010 5:46 pm

Hey..i'm not too intelligent. i looked at the site and the price. i don't know how to convert your money into American money..i'm lost. can you tell me how much your unit costs w/ the accessories that you needed to buy as well?


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Re: Using a TSE Machine

Post  Mouse on Sun Sep 26, 2010 2:18 am

Jules, just google currency conversion. Like the link below, obviously change whichever way you are converting.

I google my whole life - it's how I ended up diagnosing myself and sending the info to my clueless gyny who still didn't get it. I don't suppose this story is new to any of us though.

http://finance.yahoo.com/currency-converter/?u#from=USD;to=GBP;amt=1

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Re: Using a TSE Machine

Post  jules on Sun Sep 26, 2010 8:20 pm

will do..thanks! you forgot to answer the rest of my question. did you ever get your spinal block? if so, any results?

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Re: Using a TSE Machine

Post  Sarah001 on Mon Sep 27, 2010 12:03 pm

I had a look at the TSE achine and unfortunately it's out of my price range so I've ordered a normal TENS machine instead and will let you all know how that goes.
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Re: Using a TSE Machine

Post  Sebby (Admin) on Wed Sep 29, 2010 8:55 pm


Sorry girls this last couple of weeks has been mental!!

Im still chasing up spinal block!! grrrrrr I will phone hospital again next week when fings have calmed down and complain

Im still using TSE maching only managing to use it every other day at present..

Have had good week with the pain anyway, maybe Ive just been so distracted Im focusing less on it? or the maching is working!!

Having problems at work so am quite stressed grrrrrrrrr


Godbless you all

Sebby
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Re: Using a TSE Machine

Post  Mouse on Wed Sep 29, 2010 11:28 pm

Sebby I had the pain therapist yesterday she's all about stress reduction at the minute. And encouraging my fat little body into doing some exercise to reduce it. She used the endorphin word. I've been meaning to get some of those, they sound like fun.

Distraction does work a treat, that's why the mindfulness helps. But stress is a bastard, I'm pretty sure that's what kicked off the coeliacs and then that domino fell onto the bartholins and here we are with vulvodynia! I would have chosen a different route, say one that involved laying down for hours, soothing massages and drinks that come with umbrellas.

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Re: Using a TSE Machine

Post  jules on Thu Sep 30, 2010 3:12 am

Exercise is important and does make you feel better. However, I am in a hell of a lot of pain because i started working out again. I am mad as hell that i can't work out like i used to. I know i have said this here before, but i need to get it out. I think i am in the anger stage of grief (about the loss of life before Vulvodynia). Oh well, i just have to be careful and accept that things likely will not be as they were before this disorder. Still need to get back to the physical therapist. i feel like it is my last hope since i have tried almost everything.

"husband"...let us know if the botox helps ur wife. i will try it if it does. I'm reaching for straws here.

thanks for listening or reading.

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Re: Using a TSE Machine

Post  Mouse on Thu Sep 30, 2010 4:45 am

Jules, funny you should mention the grief cycle. I know the one size fits allness of the Kubler-ross grief cycle is no longer popular because everyone does it differently and there is no wrong way. BUT I did all of the stages except for bargaining - what would be the point? When I got really mad, that's when I found the right people to help me. Acceptance is a bit of a stretch though.

It's ok to be bloody mad, fuck I'm so angry sometimes I could scream AND apparently I should. It's unhealthy to internalise your anger but I don't like dumping my crap on other people. My dog is way too cute to kick hmmmmm maybe the cat but I'd have to sleep with both eyes open even though she sleeps outside.

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Re: Using a TSE Machine

Post  Sarah001 on Thu Sep 30, 2010 12:24 pm

Could be the machine is working Sebby, I saw a lady on another site say she had fabulous results with a TENS machine which is why I've ordered one!
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Re: Using a TSE Machine

Post  Sebby (Admin) on Mon Oct 04, 2010 9:03 pm


Haha yes deff the drinks that come with umbrellas!!

Am taking one day at a time with the bloody anxiety, does me head in!

I have the machine on this evening..wow it makes me hot lol Im charging like a mobile phone!!

I have noticed a reduction in pain but I wont get all excited yet as this thing does come and go so I will see if I have a flare up and how severe it is.

Well at least the pain is managable at the mo... phew! now I just need to sort my brain out!!
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Re: Using a TSE Machine

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