Vulvodynia Support
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» Hope to all my suffering ladies
Using a TSE Machine  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Using a TSE Machine  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Using a TSE Machine  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Using a TSE Machine  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Using a TSE Machine  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Using a TSE Machine  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Using a TSE Machine  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Using a TSE Machine  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Using a TSE Machine  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Using a TSE Machine

5 posters

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Using a TSE Machine  Empty Using a TSE Machine

Post  Sebby (Admin) Wed Sep 15, 2010 8:31 pm


Hi all

I have just begun to use a TSE/TENs machine just to see how it goes.

The TSE is stronger than an normal TENs machine and my mum has lent it to me to see if it works.

I have to use it everyday and supposedly the pain relief builds up over time. Currently using it for bout and hour and a half to two hours in the evening.

Its suppossed to interupt and calm the nerve signals that travel up and down the spine.

I feel like a cyborg tho all strapped up lol Laughing

I will do it for about a month and see if I notice any benefits

Sebby
xxx
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  Husband Thu Sep 16, 2010 3:32 pm

HI Sebby;
Do you have some special instruction to adjust the tens? The recommendation from my wifes doctor was:
15 min 10 Hertz and 50 microsek pulsduration followed by 15 min with 50 Hertz 100 microsek for both 10-100 mAmpère.

Husband

Posts : 29
Join date : 2010-08-30
Age : 57
Location : Germany

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Post  Sarah001 Thu Sep 16, 2010 6:51 pm

I've seriously considered a Tens machine Sebby so I'll be really interested to hear how you get on. For me it might help with my joint issues too so fingers crossed for you.
Sarah001
Sarah001

Posts : 1164
Join date : 2010-06-11
Age : 50
Location : UK

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Post  Sebby (Admin) Tue Sep 21, 2010 7:04 pm


Hi Husband..my machine does TSE as well as TENS...TSE is a bit different and is supposed to be stronger but Im just learning to work it!

I will deff let you know how it goes Sarah

Here is the link to the site my mum bought it from if you want more info

http://www.acticare.com/

Right im off to plug myself in!! Im a cyborg now!! Laughing

Sebby xx
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  Sarah001 Tue Sep 21, 2010 7:50 pm

Very interesting, where are you placing the pads? I've heard they can go either on the stomach or on the back?
Sarah001
Sarah001

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Post  Sebby (Admin) Wed Sep 22, 2010 6:10 am


With this machine I have to place one pad at the top of my spine just below my neck and the 2nd pad on the lower part of my spine, just below bra strap, but I put it a little lower.

On the first setting the pads tingle and go hot..it feels funny lol

Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 43
Location : London UK

https://vulvodyniasupport.forumotion.net

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Post  Husband Wed Sep 22, 2010 7:34 am

http://www.amazon.de/Promed-352410-Reizstromger%C3%A4t-emt-4/dp/B000ZJ2F18/ref=sr_1_2?ie=UTF8&s=drugstore&qid=1285140555&sr=8-2


The link is in German but its obviously different from your machine. With an additional vaginal applicator it is going to work direct in the problematic area.

Husband

Posts : 29
Join date : 2010-08-30
Age : 57
Location : Germany

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Post  Sarah001 Wed Sep 22, 2010 11:19 am

Hmm, don't think I'd fancy a vaginal applicator version! Sebby on another vulvar site a woman found wearing the pads either on the abdomen either side of the belly button and just below, or on the very low back over the sacroiliac joints or a bit further down on the glutes if necessary was very effective, she noticed an immediate effect from hers and wears it all day long!
Sarah001
Sarah001

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Age : 50
Location : UK

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Post  jules Sat Sep 25, 2010 5:42 pm

I'm interested to hear if this machine helps. Sebby, did you ever have your spinal block? how long is the tens supposed to help for? is it something you would have to do on-going? i hope it helps.

jules

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Join date : 2010-03-17

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Post  jules Sat Sep 25, 2010 5:46 pm

Hey..i'm not too intelligent. i looked at the site and the price. i don't know how to convert your money into American money..i'm lost. can you tell me how much your unit costs w/ the accessories that you needed to buy as well?


jules

Posts : 225
Join date : 2010-03-17

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Post  Mouse Sun Sep 26, 2010 2:18 am

Jules, just google currency conversion. Like the link below, obviously change whichever way you are converting.

I google my whole life - it's how I ended up diagnosing myself and sending the info to my clueless gyny who still didn't get it. I don't suppose this story is new to any of us though.

http://finance.yahoo.com/currency-converter/?u#from=USD;to=GBP;amt=1

Mouse

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Join date : 2010-09-09
Location : New Zealand

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Post  jules Sun Sep 26, 2010 8:20 pm

will do..thanks! you forgot to answer the rest of my question. did you ever get your spinal block? if so, any results?

jules

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Post  Sarah001 Mon Sep 27, 2010 12:03 pm

I had a look at the TSE achine and unfortunately it's out of my price range so I've ordered a normal TENS machine instead and will let you all know how that goes.
Sarah001
Sarah001

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Post  Sebby (Admin) Wed Sep 29, 2010 8:55 pm


Sorry girls this last couple of weeks has been mental!!

Im still chasing up spinal block!! grrrrrr I will phone hospital again next week when fings have calmed down and complain

Im still using TSE maching only managing to use it every other day at present..

Have had good week with the pain anyway, maybe Ive just been so distracted Im focusing less on it? or the maching is working!!

Having problems at work so am quite stressed grrrrrrrrr


Godbless you all

Sebby
xxx
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
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Location : London UK

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Post  Mouse Wed Sep 29, 2010 11:28 pm

Sebby I had the pain therapist yesterday she's all about stress reduction at the minute. And encouraging my fat little body into doing some exercise to reduce it. She used the endorphin word. I've been meaning to get some of those, they sound like fun.

Distraction does work a treat, that's why the mindfulness helps. But stress is a bastard, I'm pretty sure that's what kicked off the coeliacs and then that domino fell onto the bartholins and here we are with vulvodynia! I would have chosen a different route, say one that involved laying down for hours, soothing massages and drinks that come with umbrellas.

Mouse

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Post  jules Thu Sep 30, 2010 3:12 am

Exercise is important and does make you feel better. However, I am in a hell of a lot of pain because i started working out again. I am mad as hell that i can't work out like i used to. I know i have said this here before, but i need to get it out. I think i am in the anger stage of grief (about the loss of life before Vulvodynia). Oh well, i just have to be careful and accept that things likely will not be as they were before this disorder. Still need to get back to the physical therapist. i feel like it is my last hope since i have tried almost everything.

"husband"...let us know if the botox helps ur wife. i will try it if it does. I'm reaching for straws here.

thanks for listening or reading.

jules

Posts : 225
Join date : 2010-03-17

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Post  Mouse Thu Sep 30, 2010 4:45 am

Jules, funny you should mention the grief cycle. I know the one size fits allness of the Kubler-ross grief cycle is no longer popular because everyone does it differently and there is no wrong way. BUT I did all of the stages except for bargaining - what would be the point? When I got really mad, that's when I found the right people to help me. Acceptance is a bit of a stretch though.

It's ok to be bloody mad, fuck I'm so angry sometimes I could scream AND apparently I should. It's unhealthy to internalise your anger but I don't like dumping my crap on other people. My dog is way too cute to kick hmmmmm maybe the cat but I'd have to sleep with both eyes open even though she sleeps outside.

Mouse

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Post  Sarah001 Thu Sep 30, 2010 12:24 pm

Could be the machine is working Sebby, I saw a lady on another site say she had fabulous results with a TENS machine which is why I've ordered one!
Sarah001
Sarah001

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Post  Sebby (Admin) Mon Oct 04, 2010 9:03 pm


Haha yes deff the drinks that come with umbrellas!!

Am taking one day at a time with the bloody anxiety, does me head in!

I have the machine on this evening..wow it makes me hot lol Im charging like a mobile phone!!

I have noticed a reduction in pain but I wont get all excited yet as this thing does come and go so I will see if I have a flare up and how severe it is.

Well at least the pain is managable at the mo... phew! now I just need to sort my brain out!!
Sebby (Admin)
Sebby (Admin)
Admin

Posts : 750
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Age : 43
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