Log in

I forgot my password

Latest topics
New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Using a TSE Machine

View previous topic View next topic Go down

Using a TSE Machine

Post  Sebby (Admin) on Wed Sep 15, 2010 8:31 pm


Hi all

I have just begun to use a TSE/TENs machine just to see how it goes.

The TSE is stronger than an normal TENs machine and my mum has lent it to me to see if it works.

I have to use it everyday and supposedly the pain relief builds up over time. Currently using it for bout and hour and a half to two hours in the evening.

Its suppossed to interupt and calm the nerve signals that travel up and down the spine.

I feel like a cyborg tho all strapped up lol Laughing

I will do it for about a month and see if I notice any benefits

Sebby
xxx
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Using a TSE Machine

Post  Husband on Thu Sep 16, 2010 3:32 pm

HI Sebby;
Do you have some special instruction to adjust the tens? The recommendation from my wifes doctor was:
15 min 10 Hertz and 50 microsek pulsduration followed by 15 min with 50 Hertz 100 microsek for both 10-100 mAmpère.

Husband

Posts : 29
Join date : 2010-08-30
Age : 50
Location : Germany

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  Sarah001 on Thu Sep 16, 2010 6:51 pm

I've seriously considered a Tens machine Sebby so I'll be really interested to hear how you get on. For me it might help with my joint issues too so fingers crossed for you.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  Sebby (Admin) on Tue Sep 21, 2010 7:04 pm


Hi Husband..my machine does TSE as well as TENS...TSE is a bit different and is supposed to be stronger but Im just learning to work it!

I will deff let you know how it goes Sarah

Here is the link to the site my mum bought it from if you want more info

http://www.acticare.com/

Right im off to plug myself in!! Im a cyborg now!! Laughing

Sebby xx
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Using a TSE Machine

Post  Sarah001 on Tue Sep 21, 2010 7:50 pm

Very interesting, where are you placing the pads? I've heard they can go either on the stomach or on the back?
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  Sebby (Admin) on Wed Sep 22, 2010 6:10 am


With this machine I have to place one pad at the top of my spine just below my neck and the 2nd pad on the lower part of my spine, just below bra strap, but I put it a little lower.

On the first setting the pads tingle and go hot..it feels funny lol

avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Using a TSE Machine

Post  Husband on Wed Sep 22, 2010 7:34 am

http://www.amazon.de/Promed-352410-Reizstromger%C3%A4t-emt-4/dp/B000ZJ2F18/ref=sr_1_2?ie=UTF8&s=drugstore&qid=1285140555&sr=8-2


The link is in German but its obviously different from your machine. With an additional vaginal applicator it is going to work direct in the problematic area.

Husband

Posts : 29
Join date : 2010-08-30
Age : 50
Location : Germany

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  Sarah001 on Wed Sep 22, 2010 11:19 am

Hmm, don't think I'd fancy a vaginal applicator version! Sebby on another vulvar site a woman found wearing the pads either on the abdomen either side of the belly button and just below, or on the very low back over the sacroiliac joints or a bit further down on the glutes if necessary was very effective, she noticed an immediate effect from hers and wears it all day long!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  jules on Sat Sep 25, 2010 5:42 pm

I'm interested to hear if this machine helps. Sebby, did you ever have your spinal block? how long is the tens supposed to help for? is it something you would have to do on-going? i hope it helps.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  jules on Sat Sep 25, 2010 5:46 pm

Hey..i'm not too intelligent. i looked at the site and the price. i don't know how to convert your money into American money..i'm lost. can you tell me how much your unit costs w/ the accessories that you needed to buy as well?


jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  Mouse on Sun Sep 26, 2010 2:18 am

Jules, just google currency conversion. Like the link below, obviously change whichever way you are converting.

I google my whole life - it's how I ended up diagnosing myself and sending the info to my clueless gyny who still didn't get it. I don't suppose this story is new to any of us though.

http://finance.yahoo.com/currency-converter/?u#from=USD;to=GBP;amt=1

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  jules on Sun Sep 26, 2010 8:20 pm

will do..thanks! you forgot to answer the rest of my question. did you ever get your spinal block? if so, any results?

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  Sarah001 on Mon Sep 27, 2010 12:03 pm

I had a look at the TSE achine and unfortunately it's out of my price range so I've ordered a normal TENS machine instead and will let you all know how that goes.
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  Sebby (Admin) on Wed Sep 29, 2010 8:55 pm


Sorry girls this last couple of weeks has been mental!!

Im still chasing up spinal block!! grrrrrr I will phone hospital again next week when fings have calmed down and complain

Im still using TSE maching only managing to use it every other day at present..

Have had good week with the pain anyway, maybe Ive just been so distracted Im focusing less on it? or the maching is working!!

Having problems at work so am quite stressed grrrrrrrrr


Godbless you all

Sebby
xxx
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Using a TSE Machine

Post  Mouse on Wed Sep 29, 2010 11:28 pm

Sebby I had the pain therapist yesterday she's all about stress reduction at the minute. And encouraging my fat little body into doing some exercise to reduce it. She used the endorphin word. I've been meaning to get some of those, they sound like fun.

Distraction does work a treat, that's why the mindfulness helps. But stress is a bastard, I'm pretty sure that's what kicked off the coeliacs and then that domino fell onto the bartholins and here we are with vulvodynia! I would have chosen a different route, say one that involved laying down for hours, soothing massages and drinks that come with umbrellas.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  jules on Thu Sep 30, 2010 3:12 am

Exercise is important and does make you feel better. However, I am in a hell of a lot of pain because i started working out again. I am mad as hell that i can't work out like i used to. I know i have said this here before, but i need to get it out. I think i am in the anger stage of grief (about the loss of life before Vulvodynia). Oh well, i just have to be careful and accept that things likely will not be as they were before this disorder. Still need to get back to the physical therapist. i feel like it is my last hope since i have tried almost everything.

"husband"...let us know if the botox helps ur wife. i will try it if it does. I'm reaching for straws here.

thanks for listening or reading.

jules

Posts : 225
Join date : 2010-03-17

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  Mouse on Thu Sep 30, 2010 4:45 am

Jules, funny you should mention the grief cycle. I know the one size fits allness of the Kubler-ross grief cycle is no longer popular because everyone does it differently and there is no wrong way. BUT I did all of the stages except for bargaining - what would be the point? When I got really mad, that's when I found the right people to help me. Acceptance is a bit of a stretch though.

It's ok to be bloody mad, fuck I'm so angry sometimes I could scream AND apparently I should. It's unhealthy to internalise your anger but I don't like dumping my crap on other people. My dog is way too cute to kick hmmmmm maybe the cat but I'd have to sleep with both eyes open even though she sleeps outside.

Mouse

Posts : 303
Join date : 2010-09-09
Location : New Zealand

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  Sarah001 on Thu Sep 30, 2010 12:24 pm

Could be the machine is working Sebby, I saw a lady on another site say she had fabulous results with a TENS machine which is why I've ordered one!
avatar
Sarah001

Posts : 1163
Join date : 2010-06-11
Age : 44
Location : UK

View user profile

Back to top Go down

Re: Using a TSE Machine

Post  Sebby (Admin) on Mon Oct 04, 2010 9:03 pm


Haha yes deff the drinks that come with umbrellas!!

Am taking one day at a time with the bloody anxiety, does me head in!

I have the machine on this evening..wow it makes me hot lol Im charging like a mobile phone!!

I have noticed a reduction in pain but I wont get all excited yet as this thing does come and go so I will see if I have a flare up and how severe it is.

Well at least the pain is managable at the mo... phew! now I just need to sort my brain out!!
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Using a TSE Machine

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum