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» Can you guys tell me your experiences with diflucan/Fluconazole?
Yesterday at 1:29 am by ryn207

» So frustrating!!
Yesterday at 1:25 am by ryn207

» Looking for suggestions or encouragement
Yesterday at 1:19 am by ryn207

» Looking for a friend..... and new problems
Mon Jan 15, 2018 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Looking for women to talk about their experiences

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Looking for women to talk about their experiences

Post  ellie12 on Fri May 17, 2013 12:26 pm

Hi there

I am a freelance journalist and vulvodynia sufferer and I am looking to write a long feature about the condition to pitch to womens magazines. When I first began to experience symptoms aged 19, I found it very difficult to get a diagnosis from doctors and had never heard of the condition myself. I would like to help young women like I was with their diagnosis by explaining the condition fully in an article.

I need some case studies - although I do already know some other sufferers who I will be interviewing. These people could be young women, post childbirth sufferers and post menopause sufferers. I want stories from people who's condition has been caused by all manner of things. I also need to talk to experts and support group members if anyone would be willing to discuss the effect that emotional support has on sufferers. Please do let me know if you would be interested in helping me out with an interview - I am available over Skype, email or phone at any time. My email address is eleanorfrancesslee at gmail dot com if you'd like to get in touch.

Best wishes,

Ellie Slee

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Hello

Post  msginayorke on Sat May 18, 2013 1:20 pm

I would love to share my experience in order to help others, how do I get in contact with you?

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Re: Looking for women to talk about their experiences

Post  ellie12 on Sat May 18, 2013 4:06 pm

I've sent you a private message Smile

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Re: Looking for women to talk about their experiences

Post  msginayorke on Sat May 18, 2013 4:22 pm

I sent you one back, let me know if you didn't get it!

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Pain Down Under

Post  Melbourne lyn on Wed Jun 05, 2013 6:45 am

Hi, my name is Lyn and I live in Australia. I am 60, a fitness fanatic and a surviver of sexual abuse. The discomfort began less than a year ago and has made my anxiety and depression much worse. For the last couple of weeks I have tried managing without any exercise at the recomendation of friends to no avail but half a sedative three times a day does seem to be helping. I have seen a phsyiotherapist, a psychologist, a gyno and a pain specialist (plus others). They all seem to agree that lowering my stress would help but that is easier said than done. The Royal Women's hospital in Melbourne is working on the issue for young women but the post-menopausal women are not being included in the trials at this stage. The pain has reached the level of acid or broken glass and is making my life a misery but the sedative is helping although I worry about my driving reaction time. The internet seems to be almost the only place I can find people who have heard of the condition which again makes things more difficult. An ointment made from coconut oil and shea butter combined with some soothing essential oils that my friend has put together seems to be helping me and doesn't stain my clothes which is also beneficial. I would love to hear from others with their ideas on the subject and am happy to take part in your article if you would like my input. I look forward to hearing from you, best wishes, Lyn.

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Melbourn lyn

Post  BpCookie on Thu Jun 06, 2013 6:39 pm

Lyn, You said that your taking a sedative, what is the name of the medication? I have vulva lichen simplex chronicus which causes burning pain, which in turn has caused depression. I take Lorazepam once or twice a day, just to calm me down. Also I have heard good things about coco nut oil, I think Im gonna try it.

take care

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Re: Looking for women to talk about their experiences

Post  Alana3 on Thu Jun 06, 2013 8:34 pm

Be careful with coconut oil, it has the ability to cause infection and yeast because it traps bacteria in and won't let your vagina "breathe" normally. Which can cause BV, yeast, etc etc. Not fun! And if you ingest it, very high in calories and can cuase you to break out. Just be aware of what you're putting where. It seems harmless, but in reality, can cause all other problems you might not want to play with.

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Re: Looking for women to talk about their experiences

Post  BpCookie on Thu Jun 06, 2013 9:24 pm

Hi Alana Sweetie, Oh no, I have enough problems with YI and BI. Thanks for the heads up. I use A and D ointment. For some reason the A and D ointment makes my vulva feel a bit better and protects it from the darn sweat and any discharge I may have. My Gyno told me to use it, Ive used it for two years now, I hope its not gonna cause me any problems. uuugggghhh All I need is more problems with my burning bush, with Mrs. DoubtFire, with Vagisorous......I could go on and on. lol
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Re: Looking for women to talk about their experiences

Post  Alana3 on Thu Jun 06, 2013 11:50 pm

Yeah ew its an oil probably not the best thing to put there

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Re: Looking for women to talk about their experiences

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