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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

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» Recently Diagnosed.... Help!
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» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

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» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering


I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0

My story - please someone help

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My story - please someone help

Post  Roo on Tue May 21, 2013 8:11 pm


I have been married for 3 years to a wonderful husband but during all that time we have not been able to have a sexual relationship.
From the first time we tried I felt pain and panicky.
After getting some urine infections and thrush my fear became worse and on top of this I feel pain even when a small amount of pressure is put on the entrance of the vagina.
I have tried lubricants (which sting) and dilators. I struggle to put anything inside due to fear and pain.
On rare occasions when we have got so far with intercourse the pain is so intense I can't go any further.
I have been to the doctor and to a sex therapist which didn't help me.
I am really not sure what to do - does anyone have advice??


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i wish i could reach and hug you

Post  dreaming@jeans on Mon Jun 03, 2013 5:26 am

I am so sorry to hear about how painful it has been for you. I don't know your age and what you have tried but i have been able to find some relief after 24 years of this living hell. I have a list of problems longer than my arm but this awful pain given to us women just plain sucks more than anything else in my life. I have not been intimate with my husband for 1 year and I miss him so much. You must have a special partner that is no doubt as frustrated as you deep down. I got on hormones years ago after going to many doctors and trying everything (without luck). I know that testosterone was instantly helpful but it is not a long term thing since it can level out. You have to see a compounding specialist for special hormones (creams). I use what's called the Wiley Protocol which I'm sure has a website. A doctor developed it and it is hormone cream. Your vagina is dry and hurting which is similar to going through menopause. I have to pay cash for it since it is compounded by a special pharmacy and not covered by insurance. If you want more info I can help you. I use estrogen and progesterone and they also make testosterone (gave me sex back for a while). I am sorry for your pain. I am sitting here in excruciating pain myself for some reason. I either wore something too tight or ate too many cookies yesterday. I am starting to think there is a connection with the sugar and yeast. This is my very first post btw. I just had to reach out to you. Hope today is better. Sincerely, Julie


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Re: My story - please someone help

Post  jen007 on Mon Jun 03, 2013 11:46 pm

Hello Roo,

I'm sorry to hear about the pain you're feeling. Vulvodynia (VV) is truly a curse. I'm young, but I've tried a lot of things to help ease my pain. Theres a couple of things you can change in your daily routines that may be able to give you some relief. One thing you can try is changing your underwear to 100% cotton. The cotton helps keep moisture away from your "area" keeping it vented. This helps keep the yeast away. Second, you could use un-scented soaps on your "area". I found that using un-scented ivory soap is less irritating on my skin. Most of the time women with VV have delicate/ sensitive skin "down there" and soaps with perfumes can be harsh and cause pain. Third, you can freeze a bottle of water and put it between your legs. I used this when I would get the burning feeling. A water bottle works better than an ice pack because it fits perfectly between the legs, especially a small soda bottle. Fourth, you MUST find a specialist. It's rare that a regular gyno knows anything about VV. I went to about 5 doctors before I found the right one. I can be hard to find a specialist in certain parts of the country, or even globally. I'd recommend going to the NVA (National Vulvodynia Association) website and join. Once you're a member you can get a list of recommended doctors in your area that specialize in VV.

I hope I was of some help! I know how hard it is to find information about this. Don't give up!



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Post  maria1985 on Wed Jun 05, 2013 4:12 pm

You mentioned you have had some urinary infection for which i suppose you have been treated with antibiotics.. Sexual intercourse is also painfull...I have been there. They discovered I had Candida in my urethra and bladder and that caused the pain I was getting and just like you sex was painfull..Candida can cause inflamation in the vagina and that makes sex almost unbearable.

The interesting thing here is that alot of women have previously had a UTI before experience "vulvodynia". Its a strong link between antibiotics and thrush taking over causing most symptoms women are complaining here (painfull sex, pain increasing before and during period when obv acidity of vagina drops making thrush fluorish, pain when sitting down etc etc). Candida is the most common but a couple other not so much and hard to find and treat. Talk to your GP's about the eventuality of having a systemic candida or bladder candiasis.. They can take a swab and check it and so you will know.

Hope this helps


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Post  Marylynnreily on Thu Jun 06, 2013 9:24 am

Maria..I know many women on here will say that their vulvodynia has nothing to do with an actual infection, i was diagnosed for years with vulvodynia and it turned out to be a long term chronic infection for me...

Please try to find a gynecologist and try some clindesse for atleast 14 days for awhile, just to see if your problem is maybe bacterial, and then try the Gyne Lotrimin 3 day, atleast 3 packages (if you can find it in the stores where you live, its hard to find) if not, its worth it to order it online, you can get it online, and it is cheap..cheaper than Monistat..

Not all yeast creams are created equal! Monistat doesnt even work, for many people..

I know its a long shot, but its worth it to try..I had tried everything before discovering these things after MANY years, prayers, tears to God, and a broken marriage later..

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Re: My story - please someone help

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