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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

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Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


My story - please someone help

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My story - please someone help

Post  Roo on Tue May 21, 2013 8:11 pm

Hi,

I have been married for 3 years to a wonderful husband but during all that time we have not been able to have a sexual relationship.
From the first time we tried I felt pain and panicky.
After getting some urine infections and thrush my fear became worse and on top of this I feel pain even when a small amount of pressure is put on the entrance of the vagina.
I have tried lubricants (which sting) and dilators. I struggle to put anything inside due to fear and pain.
On rare occasions when we have got so far with intercourse the pain is so intense I can't go any further.
I have been to the doctor and to a sex therapist which didn't help me.
I am really not sure what to do - does anyone have advice??

Roo

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i wish i could reach and hug you

Post  dreaming@jeans on Mon Jun 03, 2013 5:26 am

I am so sorry to hear about how painful it has been for you. I don't know your age and what you have tried but i have been able to find some relief after 24 years of this living hell. I have a list of problems longer than my arm but this awful pain given to us women just plain sucks more than anything else in my life. I have not been intimate with my husband for 1 year and I miss him so much. You must have a special partner that is no doubt as frustrated as you deep down. I got on hormones years ago after going to many doctors and trying everything (without luck). I know that testosterone was instantly helpful but it is not a long term thing since it can level out. You have to see a compounding specialist for special hormones (creams). I use what's called the Wiley Protocol which I'm sure has a website. A doctor developed it and it is hormone cream. Your vagina is dry and hurting which is similar to going through menopause. I have to pay cash for it since it is compounded by a special pharmacy and not covered by insurance. If you want more info I can help you. I use estrogen and progesterone and they also make testosterone (gave me sex back for a while). I am sorry for your pain. I am sitting here in excruciating pain myself for some reason. I either wore something too tight or ate too many cookies yesterday. I am starting to think there is a connection with the sugar and yeast. This is my very first post btw. I just had to reach out to you. Hope today is better. Sincerely, Julie

dreaming@jeans

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Re: My story - please someone help

Post  jen007 on Mon Jun 03, 2013 11:46 pm

Hello Roo,

I'm sorry to hear about the pain you're feeling. Vulvodynia (VV) is truly a curse. I'm young, but I've tried a lot of things to help ease my pain. Theres a couple of things you can change in your daily routines that may be able to give you some relief. One thing you can try is changing your underwear to 100% cotton. The cotton helps keep moisture away from your "area" keeping it vented. This helps keep the yeast away. Second, you could use un-scented soaps on your "area". I found that using un-scented ivory soap is less irritating on my skin. Most of the time women with VV have delicate/ sensitive skin "down there" and soaps with perfumes can be harsh and cause pain. Third, you can freeze a bottle of water and put it between your legs. I used this when I would get the burning feeling. A water bottle works better than an ice pack because it fits perfectly between the legs, especially a small soda bottle. Fourth, you MUST find a specialist. It's rare that a regular gyno knows anything about VV. I went to about 5 doctors before I found the right one. I can be hard to find a specialist in certain parts of the country, or even globally. I'd recommend going to the NVA (National Vulvodynia Association) website and join. Once you're a member you can get a list of recommended doctors in your area that specialize in VV.

I hope I was of some help! I know how hard it is to find information about this. Don't give up!

-Jen

jen007

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Re:

Post  maria1985 on Wed Jun 05, 2013 4:12 pm

Hi,
You mentioned you have had some urinary infection for which i suppose you have been treated with antibiotics.. Sexual intercourse is also painfull...I have been there. They discovered I had Candida in my urethra and bladder and that caused the pain I was getting and just like you sex was painfull..Candida can cause inflamation in the vagina and that makes sex almost unbearable.

The interesting thing here is that alot of women have previously had a UTI before experience "vulvodynia". Its a strong link between antibiotics and thrush taking over causing most symptoms women are complaining here (painfull sex, pain increasing before and during period when obv acidity of vagina drops making thrush fluorish, pain when sitting down etc etc). Candida is the most common but a couple other not so much and hard to find and treat. Talk to your GP's about the eventuality of having a systemic candida or bladder candiasis.. They can take a swab and check it and so you will know.

Hope this helps

maria1985

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...

Post  Marylynnreily on Thu Jun 06, 2013 9:24 am

Maria..I know many women on here will say that their vulvodynia has nothing to do with an actual infection, i was diagnosed for years with vulvodynia and it turned out to be a long term chronic infection for me...

Please try to find a gynecologist and try some clindesse for atleast 14 days for awhile, just to see if your problem is maybe bacterial, and then try the Gyne Lotrimin 3 day, atleast 3 packages (if you can find it in the stores where you live, its hard to find) if not, its worth it to order it online, you can get it online, and it is cheap..cheaper than Monistat..

Not all yeast creams are created equal! Monistat doesnt even work, for many people..

I know its a long shot, but its worth it to try..I had tried everything before discovering these things after MANY years, prayers, tears to God, and a broken marriage later..
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Re: My story - please someone help

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